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maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 782
   Posted 1/13/2008 7:34 PM (GMT -7)   
Hi everyone, I have 8 photon beam treatments to go, have had most of the symptoms associated, burning rear end, stomach upset, frequent bowel movement, but the doc gave me stuff to counteract this, have been very tired, but having a nap in afternoon, frustrating thing is the Oncologist said they won't be taking a new PSA for 3 months after the treatment finishes, so won't find out if it has been a success 'till April, anyone else had this experience?
 
regards Mal.
 
Correction! since i posted this thread I have found out that my treatment was Photon, not Proton, so I apologise for that...see my post "May have lead you slightly astray" also my first post treatment PSA is now on 24th Feb. (the above 3 month waiting time was quoted to me by my oncologist's registrar)
 
Regards Mal.


age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7  right side tumour adenocarcinoma stage T2a
RP on 30th July,
Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck, free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.
Post op PSA 0.5 26th Sept. next PSA 26th Oct. seeing Radiation Onocologist 31st Oct. PSA 0.5 23rd October. Started radiation treatment on 5th Dec, to continue until 24 Jan. 08

Post Edited (maldugs) : 1/28/2008 9:48:04 PM (GMT-7)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/27/2008 12:34 PM (GMT -7)   

tongue  Hey ~ Mal,

This thread got by me ~ threads are moving at a quick pace! 

I wanted to drop in and let you know you’re in our thoughts and prayers as you continue to move forward ~ after treatment.  Please continue to stay closeHugs from Lee & Buddy 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 1/27/2008 1:16 PM (GMT -7)   
Hi Mal,
Hope you are feeling better. Strange thing that you had such side effects with Proton treatments. i had IMRT and no side effects. It does show that radiation treatment, no matter the delivery mechanism, can be a source of discomfort. I know it's different for everybody. But I hope you are well now. God Bless you , and we'll keep the prayers coming.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 1/27/2008 1:38 PM (GMT -7)   

Mal:

Sorry to hear about your side effects - Proton is usually quite easily tolerated and don't think I've heard of anyone with as many problems as yours.  As for the PSA - they are done at 3mos and then every 6mos for 5yr.  The PSA does not go down as quickly with radiation as it does with surgery.  It took mine almost 5yr to get to my nadir and I may still have some lowering.

Dutch



Diagnosed Feb 2001  (Age 65)  Currently 72
PSA 4.8      Gleason 3+3=6      Stage   T2b
Completed Proton Therapy @ Loma Linda - Aug 2001 - No side effects.
6yr PSA - 0.19
Our responsibility now is to educate men about Pca, PSA and the importance of early detection. 
 
 
 


pcdave
Regular Member


Date Joined Oct 2006
Total Posts : 444
   Posted 1/27/2008 9:19 PM (GMT -7)   
Dear Mal
 
Sorry to hear that you have had to endure a double whammy in your treatment (i.e., surgery followed by photon or x-ray radiation).  As you can see from my footnote, proton radiation was my only treatment.  Hopefully your side effects will quickly dissipate after treatment (mine did).  I did not experience any fatigue, upset stomach or anal burning during my treatment.  Changes in urinary functions and bowel moments during radiation treatment is quite common whether it be IMRT (x-ray) or proton radiation.  The bottom line is that your cancer will hopefully be eradicated after the radiation treatments.  Good luck to you.  God Bless!
 
Dave
 
P.S. For those treated with radiation only, it can take 24 months or longer to reach the PSA nadir (low point).  Inasmuch as you have already had your prostate removed, perhaps you will reach you nadir more quickly after your proton radiation treatment.  Did your doctor discuss this point with you?  I don't really know the answer in your situatoin.


-69 years young!
-29 core biopsy 9/27/06 at age 68
-PSA 7.1, Stage T1c, Gleason 7 (3+4) [less than 20% in one area], Gleason 6 [less than 5% in two other areas], Negative DRE, bone scan and Endorectal MRI. 
-Completed 39 Proton radiation treatments 2/22/07-4/18/07.   
-PSA History: 7.1 pre-treatment; post treatment: 2.1 (3 mo.), 2.4 (6 mo.), 1.7 (9 mo). Radiation oncologist said the 3-mo. drop of 70% exceeded expectations and the slight 6-mo. movement upwards was not a cause for concern now.
-The following is a link to My Journey With Prostate Cancer -- Proton RadiationTherapy.  
 
 

Post Edited (pcdave) : 1/27/2008 9:26:18 PM (GMT-7)


jwb187
Regular Member


Date Joined Apr 2007
Total Posts : 101
   Posted 1/28/2008 11:32 AM (GMT -7)   
Hi Mal,

Sorry to hear of your problems with your radiation treatments....I guess some patients are just more susceptible to complications than others. I hope your remaining treatments don't cause you anymore distress. I had my first psa test a little over two months after I completed IMRT treatments.....I believe that is probably the norm, two to three months I presume to let the radiation do its work. Do you know what type of machine the rads were administered with? I believe that with some of the newer equipment the doc is able to block the radiation more resulting in less side effects. I wish you good luck with your future psa and hope you recover soon from your side effects with the rads. JWB
age: 62
PSA 4.57 - Positive DRE
Biopsy 3-19-07 - Gleason 4+4=8
Negative bone scan 3-20-07
DaVinci 4-24-07
Catheter out 5-01-07
post op pathology:
positive margin left side of prostate
left seminal vesicle involved (both removed)
No lymph node involvement
New gleason score 9
T3B....radiation consult on 5-9-07.
June 5, 2007 1st psa post surgery 0.62
June 27, 2007 second psa post surgery 0.59
June 27, 2007 started Lupron injection (24 mos)
September 6, 2007 scheduled to be marked and prepped for radiation therapy.
Start IMRT therapy on September 13, 2007.
September 26,2007 psa test .08
Finished IMRT therapy October 31!!!
January 17, 2008 psa test .05...

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