We got a book, some pamphlets, a list of local cancer support groups, some papers that the uro had written and a list of web sites. Luckily, HW was on that list. I guess that was supposed to cover all our concerns.
I think most docs are so concerned with getting the patients in and out that they don't worry too much about our understanding or our concerns. They have lots of info but expect us to ask the right questions. Problem is, we don't even know where to start.
We always wrote our questions down beforehand and went down the list during the visit. Also, I always handed the doc my journal that told how I was doing since the last visit. I doubt he ever read it but it made me feel better.
This whole trip has been a real learning experience for us. Learning how to handle doctors was a big part of it.
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06. Dry on 12/14/06.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from 1/3/07 - 10/17/07 0.00.
Next PSA test on 1/15/08
"Patience is essential, attitude is everything."