Prostate Cancer Wives

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Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2248
   Posted 1/13/2008 11:58 PM (GMT -7)   
The Johns Hopkins Health After 50 February newsletter reported on a new study of 263 couples and found that prostate cancer patients and their wives experienced similar symptoms of emotional stress.
 
This isn't news to me, but confirms our experience and what I read from spouses of men with prostate cancer on this forum.
 
The report goes on to urge that physicians offer family-focused programs of care to cancer patients. (Or they could tell them about this forum!) 

Age 59 PSA 2.6 (PSA velocity--quadrupled in 1yr) 1 of 12 biopsy cores positive
Bilateral nerve-sparing open RRP 6/21/06  Gleason 5
Cancer confined to prostate, post-op PSA's non-detectable


DesertGal
Regular Member


Date Joined Dec 2007
Total Posts : 65
   Posted 1/14/2008 10:24 AM (GMT -7)   

Hi Tim,

That makes perfect sense to me.  When my honey hurts so do I.  We're in this together whatever path our lives take we'll handle it.  One step at a time! Or better yet.. one dirt road at a time!

Marie


Husband 55 years old
No symptoms
PSA taken on routine health exam
06/18/07  PSA 9.2
07/14/07  Put on antibiotics for a month
09/18/07  PSA 8.77
09/18/07  PSA % Free  9.61
10/17/07  Biopsy =  Gleason 3 + 4  (7)
10/17/07  Biopsy 40% Right Side less than 5% Left Side
12/31/07  D Day!  Davinci Surgery Day - Jon Huntsman Cancer Institute
12/31/07  Left side nerves spared, Right side partial, right nodes taken
01/03/08  Home from the hospital! Let the healing begin!
01/11/08  Cath removed, post-op gleason 3 + 3 = 6, nodes clear
                Margins - capsular invasion but no penetration.  T2C


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2248
   Posted 1/14/2008 2:34 PM (GMT -7)   
Marie--Your husband is blessed to have you as a support as you take this journey together, heart-to-heart, hand-in-hand.  Take care and hang in there...Tim
Age 59 PSA 2.6 (PSA velocity--quadrupled in 1yr) 1 of 12 biopsy cores positive
Bilateral nerve-sparing open RRP 6/21/06  Gleason 5
Cancer confined to prostate, post-op PSA's non-detectable


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/14/2008 7:46 PM (GMT -7)   
tongue   Hey ~ Tim,
 

“Hand-in Hand” “Heart-to Heart”… nice words borrowed from Tim G…

 

We've used your phrase many times.... even in our personal journey. 
Noting they are special words from you!
 
It's true... yeah  
It is an Us/We Journey and it truly makes the path less rocky when you've got support.
 
And the added support from HealingWell is priceless....
 
Thank you for your postings and your support over the past 19 months ~
and for Staying Close.
 
In Friendship ~ Lee & Buddy

mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 1/14/2008 9:11 PM (GMT -7)   
Great post Tim,
I agree entirely. And we (My Wife AND I) did get good support from our surgery location, but not so much elsewhere. They have been great with me but not really talkitive about how she is doing. You make a very good point. For many doctors the "Quality of Life" means the patient. I would not say the places I've been were bad, just that there could be more education classes at the doctors office. I've seen many wives and daughters come here asking the same questions over and over. Good thing this site is here because there is a wealth of information here. Not to mention these very wives and daughters are great support for me too.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 1/14/2008 11:10 PM (GMT -7)   
We got a book, some pamphlets, a list of local cancer support groups, some papers that the uro had written and a list of web sites. Luckily, HW was on that list. I guess that was supposed to cover all our concerns.

I think most docs are so concerned with getting the patients in and out that they don't worry too much about our understanding or our concerns. They have lots of info but expect us to ask the right questions. Problem is, we don't even know where to start.

We always wrote our questions down beforehand and went down the list during the visit. Also, I always handed the doc my journal that told how I was doing since the last visit. I doubt he ever read it but it made me feel better.

This whole trip has been a real learning experience for us. Learning how to handle doctors was a big part of it.

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 10/17/07 0.00. 
Next PSA test on 1/15/08
 
"Patience is essential, attitude is everything."
 

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