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Bob1949
Regular Member


Date Joined Jan 2008
Total Posts : 24
   Posted 1/15/2008 12:37 PM (GMT -7)   
Good Day all
New Member to the board, hope to get lots of info and support here
Bob1949 (Bob)
Waldorf, Maryland 20601
Pre-Treatment PSA:  7.38
Gleason 3+3 = 6, T1C Diagnosed December 2007
Age 58
Da-Vinci Scheduled: 25 February 2008 @
INOVA Fairfax Hospital, Fairfax Virginia
Dr. Simon S. chung
 


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 1/15/2008 1:01 PM (GMT -7)   
Hi, Bob. We see you're in the waiting game right now. Remember so much what that was like, although ours was relatively short. Hate to expand the "family," but you're in good hands here until the docs take over.


Edited to remove signature - something weird is going on with it, have to figure that out.

Post Edited (GreenAcres) : 1/15/2008 1:08:29 PM (GMT-7)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 1/15/2008 1:41 PM (GMT -7)   
Hi Bob,
You will get great support and make new friends here. This is the best place on the web to discuss prostate cancer with fellow patients and loved ones. Bluebird or Idahosurvivor are our moderators. They will soon send you a welcome. In it are some great links. I have a Videos thread that explains much of what to expect. But there is nothing better that to talk to us. The friendships for me have been nothing short of amazing. Good luck in you treatment plans. I too had that surgery. When I look back on it, it was a blip on the radar screen. But that's it. God Bless, and stay close.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 1/15/2008 1:51 PM (GMT -7)   

Bob,

Welcome to a wonderful world of support. You have entered a site filled with love, compassion, and knowledge. Use them all. I hope and pray the surgery scheduled in Feb. goes great and Barry can send you his world famous "goose egg" when you get your post surgery PSA. Don't feel shy about asking any questions here, you will get an answer or two. We are all on this journey together.

Loe ya man,

War Eagle (walt)


Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Casodex 4/2007
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
 
 
"I will persist without exception - I will find a way where there is no way"


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 1/15/2008 2:15 PM (GMT -7)   
Hi Bob and Welcome to HW,

It will be 2 years Feb.9th that my husband had an LRP. He was diagnosed at the end of Nov. 2005 and had the same wait time you do. It's tough but on the bright side this gives you time to eat well, exercise, meditate (or whatever you do to relieve stress)...we'll be here to answer questions or direct you to the answers.
We didn't find this site until after surgery - that was our loss. This forum is the best!

Wishing you well,
Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1
11/27/07: PSA 0.1


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 1/15/2008 2:28 PM (GMT -7)   
Hey Bob,
Ten days past surgery here. any questions at all, just ask. You should see some of the questions I ask these folk. They are the greatest. You will be fine. Your numbers look good already. Gleason 6 a good start. As my nurse just told me, "If you're going to have cancer, this is the best one to choose!"
Don't let it overwhelm you. Ask away
Paul
47 at Diagnosis.
 
1/06 PSA 3.15
1/07 PSA 4.6
10/07 PSA 5.06
Biopsy 3/07 just suspicious
Biopsy 11/07  1 of 12 with 20% involvment
Gleason (3+3)6
T1c
Father died of Pca 4/07 at 86.
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC
No visible cancer. Saved both nerve bundles.
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 1/15/2008 2:47 PM (GMT -7)   
Welcome Bob.  Can't add anything that the others have said.  Hope your time with us is comforting and useful.

James C. 
 
Help support the forums so they can support you:  http://www.healingwell.com/donate 
 
Age 60 
4/19/07   PSA 7.6, referred to Urologist, recheck 6.7 06/05/07
7/11/07   Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07   Path report:  3 of 16 PCa, 5% involved, left lobe , GS 3/3:6. 
9/24/07   Retropubic Radical Prostatectomy performed 
9/26/07   Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07  ED- 25mg Viagra nightly
10/19/07  Dry 24 hrs, pad at night just in case
11/15/07  ED-continue 25mg Viagra, no response, begin Vacurect pump-
11/15/07  1st PSA-0.01, fully continent- no pads
12/17/07  ED- 3 mts.-continue Viagra and pump-no change-no response
01/01/08  First use of Caverject 2.5mcg, successful, erections at last
01/14/08  Caverject abandoned due to pain and aching, Bimix ordered


JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted 1/15/2008 4:06 PM (GMT -7)   
Welcome, Bob. I wish I would have found this place before my surgery. Glad you did. You'll have lots of support and answers to any questions.
Diagnosed: March 25, 2007. Age 49
Biopsy: Gleason 6. Five of twelve samples positive with <5% each. No perineural invasion seen.
Surgery: May 21, 2007
Post-op Pathology: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes. T2c
Continence: Out of pads at five weeks. Seven months post-op I'm fully continent.
Erections: Yes! With the assistance of Cialis.
Post Surgery PSA: Three tests, all <0.1
Family history: Great-great grandfather died from PC. My Father had his prostate removed at age 67 in 1997 and has had an undetectable PSA ever since. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 1/15/2008 4:58 PM (GMT -7)   
Stay here with us, Bob.  Ask any question you want to ask.  Complain as much as you need.  Cry freely.  Don't be shy.  The guys and gals here are the best.  Don't ever give up. 
 
Regards,
 
Bill
August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
Four month post treatment PSA is 1.9.
Seven month PSA is 0.8.


Michael's Wife
Regular Member


Date Joined Aug 2007
Total Posts : 150
   Posted 1/15/2008 5:04 PM (GMT -7)   
Welcome! We found everything at Fairfax great; everything very efficient and the people very nice. It's only about 10 miles from us ... a bit more of a hike for you from Waldorf.


Husband: Age 58
Stage: T1c
Gleason: 6 (3+3)
PSA: 4.4
Biopsy: 12 samples, Adenocarcinoma involving 3 cores, right side only (95%, 90%, 30%, discontinuously)

Pre-op prostate study - November 13
Brachytherapy - December 12, 2007
CT Scan - January 11, 2008

So far, so good!


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2249
   Posted 1/15/2008 6:00 PM (GMT -7)   

Welcome, Bob.  You're among friends here.  If you have questions or need support we're here for you!  Take care and hang in there...Tim

 


Age 59 PSA 2.6 (PSA velocity--quadrupled in 1yr) 1 of 12 biopsy cores positive
Bilateral nerve-sparing open RRP 6/21/06  Gleason 5
Cancer confined to prostate, post-op PSA's non-detectable


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/15/2008 6:13 PM (GMT -7)   
tongue   Hi ~ Bob & Loved Ones ,

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

Knowledge gives us POWER….  POWER takes away the fear.

 

~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~

 

 Click  on  link  below for important information that will help you ~ help us!!

 

Welcome New Members ~ to HealingWell

 

 

 

The information (link) listed above is to help you get around the forum! 

     This is a journey best traveled with friends. 

          Welcome ~ New Friend from all the members here... on HealingWell.com

 

v      IdahoSurvivor ~  Moderator for Prostate Cancer Forum

http://farm2.static.flickr.com/1160/1313099593_9f819e3ff8.jpg

 

v      bluebird ~  Moderator for Prostate Cancer Forum

http://i206.photobucket.com/albums/bb179/mamabluebird1955/mamabluebirdWelcome.jpg


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/15/2008 6:19 PM (GMT -7)   
cool     Hey ~ Bob & Loved Ones,

 

A   Special   Warm Welcome  to  You!   

 

I know we can “all” make “Your Journey” smoother ~ just by being here for you!  

Thank you for reaching out!!! and for sharing your specifics in your signature!!  yeah  

 

You’ve just made your own journey a lot smoother.  There are a lot of Helping Hands here… and just by reaching out like you did ~ you will have a much easier time.  We’ve been where you are now…. Knowing you aren’t alone… makes a big difference in psyche and spirit.

 

We will always be here for you… This is truly a great forum!!! ~ You have joined! You are now part our forum family ~ a group of wonderful individuals who are so willing to share their journey with you!  Please take time to follow the link in your Welcome Message above… it will help to ease some of the unknowns…

 

It helps “all of us” ~ to help you ~ if we know where you are on your path.

So ~ Please stay with us and take our hand when you need it!  Keep posting.... OKAY!!   

  

KNOWLEDGE IS POWER... and POWER conquers fear

  

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

 

 

Buddy & I invite you to visit our personal thread “Our Journey”… listed in our signature below.

Hoping our experience can help you over at least one stepping-stone on your journey. 

http://i206.photobucket.com/albums/bb179/mamabluebird1955/Stepping-StonestoHealingWell.jpg

 

Our thoughts and prayers will be with you as you continue to move forward in your search for answers… Stay Close!

In Friendship ~ Lee & Buddy

 


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 1/15/2008 8:50 PM (GMT -7)   
Hi Bob. Welcome to the forum. Feel free to ask any questions you like. We are hear to help. By the way, we were in Waldorf this weekend visiting our God Daughter for her birthday. Here is hoping your surgery goes well. Keep us posted on how things go.

Mika

PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 1/15/2008 9:10 PM (GMT -7)   
Hi Bob: Sounds like you're in good hands on the medical side and I KNOW you are in good hands with your friends here at HealingWell. Take it one day at a time and you’ll be fine.
I really like your idea regarding exercising. I wish I’d had time to do it myself, but I had an early opportunity for surgery and went for it. Check with your doctor first, but I'd say work on (but don't overwork) your abs and begin practicing the Kegel exercises. One good way to isolate the muscles involved in Kegeling is to stop the flow of your pee -- mid-stream -- a few times a day right now, prior to your surgery. Doing this will help you identify the appropriate sphincter-controlling muscles. You’ll be ahead of your game.
Last but not least, in my opinion, DO-NOT overdo anything (meaning strenuous activities) for at least 6-weeks post surgery. I don’t care how well you feel, or how much you want to run, throw, lift, whatever. Take it easy after surgery!! Before you know it, you'll be back to your old self and ready for the former actitivies.
Best to ya,
Tom

D.O.B - 8/9/52

PSA: First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06.  Both lobes involved.  Six out of eight cores positive - from 100 percent to 90, to 60, to 50, two 20s and two zeros.

Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.  Volume of tumor much less than biopsy suggested.  12 percent overall.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 1/16/2008 7:17 AM (GMT -7)   
Bob

Good luck as you proceed thru the world of PC, you have found a great site that provided me with much information prior to surgery and most importantly support when you need it. This is a wonderful group of caring people working together to help us all through. I found like you getting in the oportunity to walk and get in good shape really helps so you have the right attitude and in my case I think it really helped with incontenence.

You will be in our prayers
Norskie
norskie
Age 49, PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Pathology report 3+4=7 a couple agressive Grade 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
Catheter removed 1-18-07 suffered bladder spasms Catheter reattached 1-18-07 Catheter removed 2nd time 1-24-07
1st Post PSA Blood Test 3-22-07 <.1 Undetectable
2nd Post PSA Blood Test 7/5/07 <.1 Undetectable
3nd Post PSA Blood Test 11-12-07 .2 monitoring
Next Post PSA Blood Test Scheduled for 1-17-08
Incontenence-Pad free since end of May 07 4 1/2 months post surgery 
ED back to 95% prior to surgery - no medication required.

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