Mayo vs. MD Anderson vs. doc who does only DaVinci

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kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 1/21/2008 7:53 PM (GMT -7)   
Thank you to all who answered my last question.  Here is one I haven't seen here before.  When Kurt had his surgery, we chose to go with a doctor who specialized in the prostate and the DaVinci.  We had the option of going to MD Anderson and the Mayo, but felt like a young doc who specialized in the DaVinci, and not just in pca was our choice.  But, we were going to have to travel any way.  If you lived near MD or Mayo, would you still travel?  Even if you knew first hand of the results from another doc?  Thanks again!  Courtney
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Live in OK
Da Vinci scheduled 3-14-07 in Austin
Post-Op  Gleason 6, Stage t2c nx mx  YAAAAA HOOOOOO! 
1st PSA Post OP  Undetectable!!!!!!  OFF THE CHART
2nd CT scan, to recheck enlarged lymph nodes not related to PCa NO CHANGE relook in 6 months


not me!
Regular Member


Date Joined Jan 2007
Total Posts : 30
   Posted 1/21/2008 9:09 PM (GMT -7)   
If you are going to travel -and you want daVinci, why not go to the best --I believe the  Ford cancer center in Detroit has the best credentials. pioneered the procedure- been doing it the longest, 1000's of surgeries- they have published results - I heard they may be doing the surgery on an out patient basis now- I did not go there.
 
not me

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 1/22/2008 7:23 AM (GMT -7)   

Hindsight I guess is always something that we do as humans.  Before choosing to have my surgery at Vanderbilt Univeristy I looked strongly at Dr. Menon in Detriot and the Mayo locations in Florida and Minnesota.  My surgeon had done over 1,000 Da Vinci's and I felt that he had plenty of experience.  The fact that he was only two hours away did not really influence my decision as I was willing to travel anywhere.  His comforting characteristic and commitment to my total recovery was what sold me.  Now 14 months later and still struggling with ED and reading the experiences of others that have had total recovery it is just natural to think if my outcome would have been better with another surgeon.  Then I think about how selfish that sounds when compared to those who are dealing with advanced PCa. 

Tamu


Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 1/23/2008 8:41 PM (GMT -7)   
Thank you Tamu and Not me, as some of you know, we traveled for Kurt's DaVinci. We chose to go with dr. fagin or (f.a.g.i.n.) if his name gets erased. He was not a pioneer in the davinci, but had performed over 800 at that time. Kurt's dad lives in Scotsdale, and he has Mayo at his back door. Like Tamu, we are still struggling with ED, but feel like our lack of a good biopsy was part of that. Dr. F had no idea where the cancer was. Only that it was on both sides. His dad's biopsy was much better. Apex on one side. 4 + 3, 25% of 3 cores. Tamu, how are the injections going? We got them in September, but haven't tried yet. Thanks again
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Live in OK
Da Vinci scheduled 3-14-07 in Austin
Post-Op  Gleason 6, Stage t2c nx mx  YAAAAA HOOOOOO! 
1st PSA Post OP  Undetectable!!!!!!  OFF THE CHART
2nd CT scan, to recheck enlarged lymph nodes not related to PCa NO CHANGE relook in 6 months


not me!
Regular Member


Date Joined Jan 2007
Total Posts : 30
   Posted 1/23/2008 9:41 PM (GMT -7)   
Kziz,
 
you didn't direct your injection question to me, but I'll put my two cents in anyway. I began injections caverject last September- some pain but well worth it. I have tried everything that has been discussed on this site and highly recommend injections - it is the only thing that I have found that allows me to function about as well as before surgery and it doesn't take any special work to make it happen. I think the injections are also improving my natural function, so I don't think they hender the recovery process (you should talk to doctor about that, however). I have recent posts - trimix thread - about my experience. The only negative when I started was the cost of caverject and some minor pain envolved- Switching to Trimix improved both issues drastically. I just wish I hadn't wasted 7 or 8 months before starting. If I had a do over I would found a good compounding pharmacy about 3 months after surgery and get a 10ML vial of trimix formulated as follows; 30 mg, 1mg & 10mcg/ mL (Papaverine, Phentolamine and Alprostadil) - get some 1/2inch 33gage syringes - and go for it.  I have heard some talk about a reduced sex drive- personally I think it's natural when you can't get it up like you used to, and you have to pump it up and take pills and then hope you don't leak pee.  -  The injections changed that for me.

 

55 yr old at surgery -2/06 PSA 5.5 – 3/06 PSA 5.4- 3/06Gleason 3+3 (6)

7/06 DaVinci Surgery –contained, nerve bundles spared,

7/13 cath removed – used pad for one week

PSA undetectable at 6 and 12 months

No ED prior to Surgery – Substantial ED post surgery

some improvement with daily viagra, pump helped a more, not enough

9/07 began Caverject injections – Worked Great- some pain

1/15 switched to Trimix-works great-no pain  & cheap <$5 per injection

 

 


kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 1/26/2008 2:58 PM (GMT -7)   
Thank you Not Me. I will let Kurt know what you said. Really encouraging to hear that it is helping to restore the process naturally also. Courtney
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Live in OK
Da Vinci scheduled 3-14-07 in Austin
Post-Op  Gleason 6, Stage t2c nx mx  YAAAAA HOOOOOO! 
1st PSA Post OP  Undetectable!!!!!!  OFF THE CHART
2nd CT scan, to recheck enlarged lymph nodes not related to PCa NO CHANGE relook in 6 months

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