NY Times article - readers respond

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Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 1/22/2008 11:18 AM (GMT -7)   
Here is a link to responses from PCa survivors about the whole sex after surgery oversell by doctors.  As my wife said, some are heartbreaking, some are encouraging.
 
 
I have to remind myself that the problem isn't that the patient could end up impotent, that is fate. There are thousands of medical situations which are tragic - diabetes resulting in blindness or amputation, for example. The "crime" is that doctors are less than forthright and do not disclose the reality of the spectrum of outcomes. In fact, that is one reason I did not stay with my local urologist.  He was less than open about the side affects of a biopsy. When I was bloody for weeks, he brushed off my concerns and said that it hardly ever happens like that. i told him that I should have been told the entire range of possible outcomes. My second biopsy was better, but I still had bloody semen for weeks.
 
anyway, it is interesting reading.
Paul
 
47 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6      (Biopsy 3/07 just suspicious)
10/07 PSA 5.06   (Biopsy 11/07  1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC  www.roboticoncology.com
Saved both nerve bundles.
Path Report:  Stage 2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
 
 


puget
Regular Member


Date Joined Mar 2007
Total Posts : 237
   Posted 1/22/2008 11:59 AM (GMT -7)   
Thanks, Paul, My reaction was the same as your wife's. I'd add "angry," too, for the reason you suggest. Facing the diagnosis is bad enough, but then to not get an honest assessment of all elements of the treatment options is ultimately more than disheartening. After all, it's our bodies -- and lives, not the dr's.
Puget
60 years old
Dx March 2007
Pre-Surgery Gleason 3+3 = 6
Clinical Stage: T1c
Biopsy: 1 in 10 positive
Da Vinci: June 7, 2007 
Post-Surgery Gleason 3+3 = 6
   Clear at margins
First Post-PSA Sept 07 = <.01 (Hooray!!)


geon
Regular Member


Date Joined Oct 2007
Total Posts : 103
   Posted 1/22/2008 8:49 PM (GMT -7)   

Paul,

Sorry for your experience.

Thanks for the great web site!  The professionalism of the site and the knowlwdge gained is is to be passed on to many others so they can see where their progress lies on a larger scale. http://well.blogs.nytimes.com/2008/01/14/sex-after-prostate-surgery/#comment-173 

yeah   yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah
Great help.
Marc
64 years old 100307; healthy; active,
married 41 years, good strong erections before surgery.
DaVinci Prostate Removal February 5, 2007
2/12 samples malignant.
Catheter removal 2/13.
Viagra 25mg every other day from 2/14 to 5/12.
Tried Viagra 100mg on occasion-no erections.
Incontinence almost gone after three months.
No pads, occasional  dribble.
Lavitra every other day 5/12 to 7/22.
Muse 1000mcg - no help (50% at best).
Cialis twice a week 7/25 to 11/6/07.
Vacuum pump daily/twice a day 8/2 and going - no help.
Begin Trimix injections, two low dose per week, 11/05/07.
Currently, vacuum pump and low dose Trimix twice per week each.
Trimix in office - 0.10cc.  Low dose set at 0.05cc
First drug induced erection 10/8/07....Wow!
Natural erections - 0 as of 10/25/07.
PSA's, three to date undetectable.  Thank God!
 
Geon

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