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Big one
Regular Member


Date Joined Jan 2008
Total Posts : 21
   Posted 1/26/2008 9:20 PM (GMT -7)   
Hello everyone,
Just had the diagnosis friday. I read the book supplied by my urologist but I don't know what my gleason is yet. Bone scan and abdominal scan scheduled next week. So far the Davinci sounds less traumatic than the other options but it's too soon to decide. We'll have to wait for the scan results. The big concern at this point is the size of my prostate. 125 cm3. Has anyone been with that kind of enlargement? The doctor mentionned a shot to block testosterone that would shrink it before the surgery but it may interfere with the lab accuracy after the surgery. Thanks for any feedback.

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 1/26/2008 9:48 PM (GMT -7)   
Hi Bigone,
Welcome to the best site on the internet I could find. First up is a promise of prayer and support. Our moderators will respond shortly with a wonderful greeting. But let's get to it. Don't be too afraid, but be very active in your research. I agree with daVinci, but there are other compelling reasons to look elsewhere. But you will have to take an action. Education is imparative. So keep asking questions here and elsewhere. You need to look at your profile again here, and add important information about your condition. Look at me signature below. Lot's of information. You will get the best advise by providing it. We are pretty darn good at support, so get ready to receive it. the request to do a Hormone shot before surgery is not something I would be against. I didn't have one but it has foundation in my eyes. Good luck and welcome to Healingwell!

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/26/2008 10:34 PM (GMT -7)   

  tongue Hi ~ Bigone & Loved Ones ,

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

Knowledge gives us POWER….  POWER takes away the fear.

 

~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~

 

 Click  on  link  below for important information that will help you ~ help us!!

 

Welcome New Members ~ to HealingWell

 

 

 

The information (link) listed above is to help you get around the forum! 

     This is a journey best traveled with friends. 

          Welcome ~ New Friend from all the members here... on HealingWell.com

 

v      IdahoSurvivor ~  Moderator for Prostate Cancer Forum

http://farm2.static.flickr.com/1160/1313099593_9f819e3ff8.jpg

 

v      bluebird ~  Moderator for Prostate Cancer Forum

http://i206.photobucket.com/albums/bb179/mamabluebird1955/mamabluebirdWelcome.jpg


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 1/26/2008 10:35 PM (GMT -7)   
Hey Bigone,

Welcome to HealingWell. We are all here for the same reasons: information and support. None of us want to be here but all of us have found great new friends and learned that we can do this thing together.

Good for reading the book. You can't possibly have too much knowledge about treatment options before you make your choice. Read some of our stories that you can find referenced in the second post from the top. We all have had our own different experiences with recovery and are here to help you.

Lets get well together...

Jim


Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
 
 
"Patience is essential, attitude is everything."
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/26/2008 10:38 PM (GMT -7)   

    tongue   Hey ~ Bigone & Loved Ones,

 

A   Special   Warm Welcome  to  You!   

 

I know we can “all” make “Your Journey” smoother ~ just by being here for you!  

Thank you for reaching out!!! 

 

You’ve just made your own journey a lot smoother.  There are a lot of Helping Hands here… and just by reaching out like you did ~ you will have a much easier time.  We’ve been where you are now…. Knowing you aren’t alone… makes a big difference in psyche and spirit.

 

We will always be here for you… This is truly a great forum!!! ~ You have joined! You are now part our forum family ~ a group of wonderful individuals who are so willing to share their journey with you!  Please take time to follow the link in your Welcome Message above… it will help to ease some of the unknowns…

 

It helps “all of us” ~ to help you ~ if we know where you are on your path.

So ~ Please stay with us and take our hand when you need it!  Keep posting.... OKAY!!   

  

KNOWLEDGE IS POWER... and POWER conquers fear

  

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

 

 

Buddy & I invite you to visit our personal thread “Our Journey”… listed in our signature below.

Hoping our experience can help you over at least one stepping-stone on your journey. 

http://i206.photobucket.com/albums/bb179/mamabluebird1955/Stepping-StonestoHealingWell.jpg

 

Our thoughts and prayers will be with you as you continue to move forward in your search for answers… Stay Close!

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


aus
Regular Member


Date Joined Sep 2006
Total Posts : 211
   Posted 1/27/2008 5:45 AM (GMT -7)   

You are correct in thinking that it is "too soon to decide".

Until you know full details of your diagnosis, it is not logical to be considering which forms of treatment might be applicable.


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 1/27/2008 7:21 AM (GMT -7)   
Hi bigone. Sorry you have to be here, but we are all glad you found us. Right now read all you can and ask all the questions you have of your Dr. and the people here on this forum. We are here for you. Every question you have is important.

Mika

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 1/27/2008 7:28 AM (GMT -7)   

Welcome sir.

  I can't give anything but my situation, but my prostate was 110gms weight at surgery, and 76cm wide by ultrasound at biopsy.  The surgeon said it was the largest he had removed and it was the size of a small orange.  He did a planned open RP, but had to do some extra cutting to remove it.  He said if I had been having a DiVinci, I would probably have had to been converted to open by the surgeon, as the gland would have been too large to get out of the normal robotic surgery incisions.  I don't know how large is too large, but with robotic surgery they excise the gland and attachments inside the cavity, place it all in a plastic bag and remove it thru an incision, so there is a point when large it too large. 

Again welcome to the club now one wants to join and where no member wants to see an addition to the membership roll.


James C. 
 
Help support the forums so they can support you:  http://www.healingwell.com/donate 
 
Age 60 
4/19/07   PSA 7.6, referred to Urologist, recheck 6.7 06/05/07
7/11/07   Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07   Path report:  3 of 16 PCa, 5% involved, left lobe , GS 3/3:6. 
9/24/07   Retropubic Radical Prostatectomy performed 
9/26/07   Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07  ED- begin 25mg Viagra nightly, Fully continent
11/15/07  ED-continue 25mg Viagra, no response, begin Vacurect pump-
11/15/07  1st PSA-0.01
12/17/07  ED- 3 mts.-continue Viagra and pump-no change-no response
01/01/08  First use of Caverject 2.5mcg, successful, erections at last
01/14/08  Caverject abandoned due to pain and aching, Bimix ordered
01/27/08  5 attempts with Bimix, increasing dose each time, no response


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 1/27/2008 9:16 AM (GMT -7)   
Sr. Savatta claims to have removed a 125cc gland via robotic assisted prostatectomy. He's got a forum and answers questions from viewers. Perhaps google him?

Good Luck to you,

Swim
 


wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 1/27/2008 9:57 AM (GMT -7)   
open or divinci I have had them both so really don't worry too much about which is best fro you at the moment. As my surgeon said, in few weeks you want know the difference anyway. Read what you can find with an open mind. Get your test done, then listen to your options, then educate yourself to make your best decision.

Randy
12/06/07 DaVinci and LRP

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