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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 1/26/2008 10:13 PM (GMT -7)   
Since I have been here there are several people that have touched my heart.  i doubt there is anyone who hasn't loved Biker90's posts.  I love him.  I love his MaryLu! (I personally love her Mustang!).  Jim has been one of the most loving persons here.  Through his T problems and since them he continues to be a pillar of Healingwell.  I honor him with this post.  I picked him out tonight in thanks, and there are many others I'd love to say thanks.  This love is going to continue and it isn't preferential, so get ready for my one year love-a-thon.  Soon there will be more thanks from me.  I approach one year since surgery.  You people here are forever in my heart.  And so the love from me will be returned.  This thread is dedicated to Jim!  Thank you friend, and God Bless you!
 
Tony


Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!

Post Edited (TC-LasVegas) : 1/26/2008 10:26:02 PM (GMT-7)


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 1/26/2008 10:41 PM (GMT -7)   

Awww Tony,

Thank you for the kind words but I get much more out of this forum and all you wonderful friends than I will ever be able to repay.

Your story and your willingness to share your life is a real inspirition to all of us.  And thanks too for the tribute to MaryLu.  Where would you and I be if not for her and Ruthie?

Lets get well together...

Jim


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/26/2008 10:44 PM (GMT -7)   
tongue   Definitely feeling ~  the love!!!!! 

                for Jim *Our Biker90 & Miss MaryLu   yeah   

Jim is the core of wisdom. He has touched our lives and made us richer with his friendship.  His sharing and caring is so evident in each and every posting.  His personal threads are a true and powerful gift from the heart! 

Holding nothing back and allowing us in to the most sensitive parts of his life. 

 

We are proud to call you ~ friend. 

Love from Lee & Buddy

 

Thank you Tony ~ for this powerful message. 

Touching our hearts in so many ways… 

We continue to keep you tucked extra close! 

Loving arms surround you ~ Lee & Buddy


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 1/26/2008 11:09 PM (GMT -7)   
:-)   :-) :-) here here!!! I third that!
 
swim
 


pcdave
Regular Member


Date Joined Oct 2006
Total Posts : 444
   Posted 1/26/2008 11:35 PM (GMT -7)   
Dear Jim
 
I recently honored you in one of my postings and must find it to repeat here.  You certainly deserve the badge of honor for your courage, strength and determination to overcome the many obstacles that you have faced with your prostate cancer.  Your contributions to this forum have been enormous and have certainly given hope and encouragement to so many of us here who otherwise might have gone astray in self defeat.  May you be blessed with continued victories ahead and enjoy life to the fullest.  With best wishes and warmest regards.
 
Dave
 
 


-69 years young!
-29 core biopsy 9/27/06 at age 68
-PSA 7.1, Stage T1c, Gleason 7 (3+4) [less than 20% in one area], Gleason 6 [less than 5% in two other areas], Negative DRE, bone scan and Endorectal MRI. 
-Completed 39 Proton radiation treatments 2/22/07-4/18/07.   
-PSA History: 7.1 pre-treatment; post treatment: 2.1 (3 mo.), 2.4 (6 mo.), 1.7 (9 mo). Radiation oncologist said the 3-mo. drop of 70% exceeded expectations and the slight 6-mo. movement upwards was not a cause for concern now.
-The following is a link to My Journey With Prostate Cancer -- Proton RadiationTherapy.  
 
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 1/26/2008 11:57 PM (GMT -7)   
Jim is a great guy. We are planning to meet in last week of May.

Jim is DaMan......your friend.....KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
        Biopsy Sept. 27, 2006 - Diagnosis Sept. 29 - 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
        RRP on Oct. 17, - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
    Oct 17, 2007 1 year Post Op - Still fighting moderate / Severe incontenance. Using 4-6 pads a day.  Erections usable....sometimes!  Almost like before with 100mg Viagra!
    December 5th, 4th post op PSA 0.01!?!?!?   Is that still a 0?  Still leaking!!!!
    Jan. 12th - First visit to Dr. of Traditional Chinese Medicine (Accupuncture) for Incontenance.
   


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/27/2008 7:01 AM (GMT -7)   
Jim,
I'm not as good w/ words as most here are so let me say I agree w/ all that has been said about you here. Sometimes when I'm having a bad day and start feeling sorry for myself I'll come to this forum and write something dumb which usually relates to my mood or sometimes completely of track. Then later come back hoping someone read my post and hopefully commented as I'm sure we all do. It's always Jim who is the first and sometimes only person who writes back to me Thanks for being there for me Jim! You are the best! I'm writing you in on the Florida November election for President as you my friend are a much better man than any of these Bozo's on the ballet!!! I love you Brother!
Your freind always!
Pete
54 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. Testosterone Theropy since 12/06. I am's what I am and that's all that I am!!! 


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 1/27/2008 7:15 AM (GMT -7)   
Jim. Thanks for all you have done for us here. God bless you.

Mika

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 1/27/2008 7:19 AM (GMT -7)   
Yeah, what they all said.....lol

Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2249
   Posted 1/27/2008 4:32 PM (GMT -7)   
It's unaminous--Biker Jim for president! Seriously, I, too appreciate Jim's participation here and enjoy the lightness, the positiveness, the gentleness and the helpfulness of his messages.....Tim
Age 59 PSA 2.6 PSA velocity quadrupled in 1 yr 
1 of 12 biopsy cores positive (5% involvement) Open RP 6/21/06  Gleason 5
Cancer confined to prostate  Post-op PSA's non-detectable


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 1/27/2008 4:57 PM (GMT -7)   

Thanks gals and guys,

I am honored to have such a great group of friends.  I love all of you...

Jim


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 1/27/2008 4:58 PM (GMT -7)   
Hear, hear!  and thanks Biker. Lana & CJ xx
Creed_three (Lana & CJ)
 
Husband CJ aged 50 yrs (49 years at diagnosis and surgery)
PSA (2002) 2.1.  PSA (Nov 2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing, on Tuesday 17th April 2007 (Sydney, Australia).
Gleeson 3 + 4 = 7.  Cancer confined. Margins all clear, including bladder neck and seminal vessicles. No incontinence (thankfully).
1st PSA 0.01 - undetectable (June 07)
2nd PSA 0.02 - undetectable (Oct 07)
ED post-op recovery:  Good now with Levitra 20mg effective at 7-8 months post surgery (minimal (30-50%) response prior to 6 months on any meds).Continuing with Levitra 20 mg when needed now (at 9 months),  and noticing some gradual, spontaneous response without medication. Next PSA March 2008.


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 1/27/2008 6:40 PM (GMT -7)   
I'm in favor of Jim for President. I'm thinking Lee head of HEW, Mika is FBI, Vickie is Surgeon General, Tony is Sec of State, and under him are a bunch of Senior Official such as: 56pontiac, spinbiscuit (glen), and so many others - so many others. pcdave is the Protocol Officer. We have a new cabinet post - that of women's affairs and it's headed by Swim. Ably assisted by more than I can remember. (I recall posting once that anyone who thought that the gals don't understand their guys has never read this forum.)

I'm leaving out so many, so many. Cc, kw, kziz, greenacres, justjulie (just julie? Wonderful Julie!)

I began this post in fun and I'm beginning to get emotional. The memories. Those who took care of me when I was in need. So much in need. (For those of you who knew me a year ago, when I was a wreck, we still have our (my) namesake grandson five days a week and love him dearly.) This has become too much for me. See ya later.

Regards,

Bill
August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
Four month post treatment PSA is 1.9.
Seven month PSA is 0.8.


pcdave
Regular Member


Date Joined Oct 2006
Total Posts : 444
   Posted 1/27/2008 7:20 PM (GMT -7)   
Hi Bill (Jetguy)

Well, we all need levity here from time to time to combat the stress of dealing with prostate cancer. I just roared with laughter when I read your clever and humorous posting to Jim above. Thanks for thinking of me and honoring me with "Protocol Officer"!!!!! At one time there was a special thread in this forum about humorous postings--this gem you wrote should go there for posterity. You have been one of the key members here and it's always nice to hear from you. I happily note that your PSA has been going down nicely since you completed your radiation treatments. You are a little ahead of me, but I started with a higher initial PSA. The key is that we are heading down and keeping our fingers crossed. Continued good luck and all the best to you.

Dave
-69 years young!
-29 core biopsy 9/27/06 at age 68
-PSA 7.1, Stage T1c, Gleason 7 (3+4) [less than 20% in one area], Gleason 6 [less than 5% in two other areas], Negative DRE, bone scan and Endorectal MRI. 
-Completed 39 Proton radiation treatments 2/22/07-4/18/07.   
-PSA History: 7.1 pre-treatment; post treatment: 2.1 (3 mo.), 2.4 (6 mo.), 1.7 (9 mo). Radiation oncologist said the 3-mo. drop of 70% exceeded expectations and the slight 6-mo. movement upwards was not a cause for concern now.
-The following is a link to My Journey With Prostate Cancer -- Proton RadiationTherapy.  
 
 

Post Edited (pcdave) : 1/27/2008 7:23:25 PM (GMT-7)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 1/28/2008 7:55 AM (GMT -7)   
Our good friend Senator Pianoman started that funny's page. Susan can be VP, hopefully she's a bad enough hunter.  I say we get started on that budget, first we balance it, then we overspend on cancer research. And Jim, stay away from any girls named Monica.

Tony


Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!

Post Edited (TC-LasVegas) : 1/28/2008 8:05:34 AM (GMT-7)


pcdave
Regular Member


Date Joined Oct 2006
Total Posts : 444
   Posted 1/28/2008 8:30 AM (GMT -7)   
Hi Tony

This thread is really getting more amusing as we go along. Jim has gone to humongous lengths since his PCa to preserve his manhood (the evidence is clearly in his many postings on the matter). He may be more of a man than any "Monica" could handle right now! Moreover, Jim may now be the male equivalent of "Dr. Ruth" for prostate cancer patients. His "motto" is clearly "If there is a will, there is a way." I hope this posting will not be censored!

Dave
-69 years young!
-29 core biopsy 9/27/06 at age 68
-PSA 7.1, Stage T1c, Gleason 7 (3+4) [less than 20% in one area], Gleason 6 [less than 5% in two other areas], Negative DRE, bone scan and Endorectal MRI. 
-Completed 39 Proton radiation treatments 2/22/07-4/18/07.   
-PSA History: 7.1 pre-treatment; post treatment: 2.1 (3 mo.), 2.4 (6 mo.), 1.7 (9 mo). Radiation oncologist said the 3-mo. drop of 70% exceeded expectations and the slight 6-mo. movement upwards was not a cause for concern now.
-The following is a link to My Journey With Prostate Cancer -- Proton RadiationTherapy.  
 
 


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 1/28/2008 8:44 AM (GMT -7)   
Jim, Jim! He's our man. If he can't "do it" no one can! Viva Viagra can be our Prostate Nation's theme song. And, with India as our close friend, we won't be over spending the budget on PDE5's for all men! Belly up boys!!!!!!

Have a great monday,

swim
 


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/28/2008 9:15 AM (GMT -7)   
Swim,
You are one funny lady! I'm busting a gut, and it's a BIG gut! Bill, can I be incharge of the FDA??? Viagra for everybody!!!!!
Your bud,
Pete
54 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. Testosterone Theropy since 12/06. I am's what I am and that's all that I am!!! 


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 1/28/2008 9:27 AM (GMT -7)   
FDA Pete,

LOL, thanks. Paul needs a silent minority membership......Secret Service maybe? Oh, no, that would be a taxpayer wouldn't it? :>)

Gotta fly, Swim
 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 1/28/2008 4:12 PM (GMT -7)   
I accept the office of VP (said with tears in my eyes and a big grin on my kisser) Thank you my fellow 'mericans. cool I'm honored to work with the best on this board.

First of all, I would want to pass a resolution that every man get their tests done at age 40 - and ALL insurance companies would pay for it without a fight, in fact they would encourage it!

Secondly, (is that a word?) I would make sure that all the money that we're going to put into research would benefit ALL cancer patients.

Thirdly, (I don't care if it is a word or not, I'm VP - don't have to care) as VP I would make the President tell the truth...even if it means I have to take him hunting with me.

Fourthly, (I got that from W) Any pc patient & their significant other will have a Harley, Viagra, Testosterone, Beer or Wine. Not necessarily in that order.

We'll have a PC Parade with Jim & MaryLu in lead position and we'll all go to Daytona! Pete, as my fellow Florida resident, would be second in line, if he's not fishing.

And that would be on my first day!

With all due respect,
VP Susan

I love Jim too! devil
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1
11/27/07: PSA 0.1


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 1/28/2008 4:27 PM (GMT -7)   

This thread verifies my suspicions that you all are crazy.  Must be the DREs except that doesn't explain what happened to the ladies.

(I love you too Susan)

Jim


kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 1/28/2008 4:32 PM (GMT -7)   
Jim, I may be a here for now, gone for awhile (long while), then back again member, but you have and continue to be an inspiration to us! We love your humor and wonderful outlook on life. Courtney
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Live in OK
Da Vinci scheduled 3-14-07 in Austin
Post-Op  Gleason 6, Stage t2c nx mx  YAAAAA HOOOOOO! 
1st PSA Post OP  Undetectable!!!!!!  OFF THE CHART
2nd CT scan, to recheck enlarged lymph nodes not related to PCa NO CHANGE relook in 6 months


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 1/28/2008 6:41 PM (GMT -7)   
Is this like "Hazing"? It's kinda fun! Jim, I bet you would never have to worry about a college fraterity initiation at this point in your life. Jim, i take exception, I am not crazy. Dilerius maby but not crazy.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 1/28/2008 9:17 PM (GMT -7)   
Jim,

What happened to the ladies is you men! tongue

Respectfully,
Susan

IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 1/28/2008 11:13 PM (GMT -7)   
Hey Jim,
What more could I add?... but that we love you in true friendship!  yeah
 
Your contributions mean so much!
 
Kind regards,
 
Barry

"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  9/11/2007   <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

My web site: http://pca-info.blogspot.com

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