Food for thought! - An interesting journey.

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 1/30/2008 12:07 AM (GMT -7)   
Terry Herbert is a great prostate cancer advocate.  He started the popular www.yananow.net web site.  He has made a special point to bring out one of the stories there and it gives ones view of his treatment options and the results.  I hve been biased to treating cancer with the surgery, but I have opened up a bit since.  I wonder since I had surgery if I could have skipped it.  I found studies later that have made me glad I did.  The posting below reflect a very sharp discussion of the options and his results.  Most of this I agree with but would have put it in a more polite way.  Click on the link nelow if you dare!
 
 
 
Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!


JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted 1/30/2008 8:01 AM (GMT -7)   
Tony, I'm a mentor over at YANA, and read that same post last year when I was trying to make a decision, and it was very helpful in doing so.



Diagnosed: March 25, 2007. Age 49
Biopsy: Gleason 6. Five of twelve samples positive with <5% each. No perineural invasion seen.
Surgery: May 21, 2007
Post-op Pathology: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes. T2c
Continence: Out of pads at five weeks. Seven months post-op I'm fully continent.
Erections: Yes! With the assistance of Cialis.
Post Surgery PSA: Three tests, all <0.1
Family history: Great-great grandfather died from PC. My Father had his prostate removed at age 67 in 1997 and has had an undetectable PSA ever since. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 1/30/2008 8:09 AM (GMT -7)   

My dear friend Tony,

I have never looked back since surgery. But, some of us really had no other choice. We needed to get that sucker out. Others, though, have many choices and should explore all options.

This coming Sunday night I have been given an opportunity to speak to our church about my journey. One point that I will make is for early testing. I also will talk about how misunderstood this monster is. But, really, if having cancer and spreading the word that can help someone else avoid what many of us have been through, then it has all been worth it. Sound strange but that is how I feel. My life has changed so much since I got the "news", and in most cases it has been for the better. What I have lost has been replaced with so much more. Not that I don't miss somethings, ALOT.

Keep up the research.

Be blessed my brother and War Eagle.

Walt

PS: How are the "visits" going this week? 


Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Casodex 4/2007
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
PSA 6.72 1/2008
 
 
"I will persist without exception - I will find a way where there is no way"


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 1/30/2008 8:30 AM (GMT -7)   
Walt,
The big visit is today. i didn't sleep too well, but I will be there at 10:00. PSA test was drawn yesterday. There will be a journal update today.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!


wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 1/30/2008 9:24 AM (GMT -7)   
That was a fun-scary read. I must say when the word went out that that I had cancer, the phone calls and the conversations I had with so many were 100% aligned with surgery. I had chosen the proton beam in the very beginning, but the calls to surgery was predominate including three doctors we know so I went that way especially since the Davinci was so attractive. As it turned out the robotic failed and I had the open surgery. It will be interesting to look at the numbers ten years from now and see how they fall out. And, for sure I hope and pray we all are around to say yes all the different ways work.

Randy
12/06/07 DaVinci and open prostate surgery after difficulties in breathing stopped the davinci.
Walked a lot
90% control the day the catherter removed.
pad only for a sneeze before the week was out
No pads most of the second week.

Post Edited (wd40) : 1/30/2008 12:59:06 PM (GMT-7)


wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 1/30/2008 9:29 AM (GMT -7)   
War Eagle I knew there would be some good Auburn people here. Read some of your stuff on the barbecue forums.
Yes getting the word ou on testing is more important tahn how it is done.

Randy
12/06/07 DaVinci and open prostate surgery after difficulties in breathing stopped the davinci.
Walked a lot
90% control the day the catherter removed.
pad only for a sneeze before the week was out
No pads most of the second week.


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 1/30/2008 9:50 AM (GMT -7)   

Randy, that right. We need to save some surprises for the uninformed. And what do you mean by BBQ forums? Everyone nows that Auburn people post only on the best Steak and Tater forums.

Tony, are you starting to studder? tongue (posting the same thing twice) I know you didn't sleep, but come on. It's all fun. Praying for a great day for you.

Blessings to all and big War Eagle,

Walt


Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Casodex 4/2007
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
PSA 6.72 1/2008
 
 
"I will persist without exception - I will find a way where there is no way"


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 1/30/2008 10:15 AM (GMT -7)   
Great post Randy,
I would pray that all of us are around a long time to debate which way is better. Studder removed Walt. And thank you for that prayer. Time to go in...

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!

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