Your comment that MD Anderson turned you down because of a Gleason score of 9 really caught my eye because I have my initial appointment there on 2/12/08 and my urologist told me I had a Gleason score of 9 with a stage of T1C.
He was turned down for Proton treatment
because of the Gleason score, not that they won't treat at all. Their Proton program is new and they are cherry picking patients to improve the success rate. Loma Linda is older and more established and as such they will accept a lot of patients that MD won't. I had contact with 4 or 5 men at LLUMC that tried to get treated at MD Anderson. They also will reject out of hand a high PSA value 10+ and over as the data shows less long term success with those patients as well.
Bob, if I were you I would find a new radiation oncologist or go back to the one who first treated you. There is no way in the world that he can stage your cancer with a DRE. Experts in the field of pathology will disagree on the staging of marginal samples. I sure as hell wouldn't let him treat me with radiation or hormones or chemo??!! until I had several other opinions about your disease. You need to be your own advocate. He sounds like just the sort of egotistical know-it-all prick you should avoid and he was pretty negative to boot, which is not what you need at this time. Of course he pooh-poohs Protons, he won't be paid if you choose that modality. The truth is that if Loma Linda will accept you as a patient, they believe that they can cure you and will convince you of the same.
If you would like to discuss the Loma Linda experience I encourage you to email me using the button below my name on the left of the page.
54 years old
PSA 5.6 on 3/20/07
Biopsy on 4/20/07
3 out of 12 cores positive, 2 on the right lobe with 5% adenocarcinoma Gleason 3+3, 1 on the left lobe 10% adenocarcinoma Gleason 3+4, overall Gleason graded 7 Cancer T1C. After web research discovered Proton Beam Therapy and called Loma Linda. Completed consultation with Dr. Luu on 7/5/2007 and started treatment at Loma Linda on 7/26/07. Completed treatment 44 on 9/28/07. 0 treatments remain. Side Effects remain minimal. 1st PSA result on January 28th is 1.1.
Post Edited (Jayadub) : 1/30/2008 9:41:27 PM (GMT-7)