Posted 1/31/2008 9:59 PM (GMT -6)
You story is heart breaking. I am not sure exactly where you live (it appears to be somewhere in Canada) or to what extent you have access to a top cancer treatment center (assuming that you do not already have such access). What I find so absolutely distrubing about your situation is the doctor who is treating Rob for his prostate cancer. He seems to have no compassion, nor is he willing to address your concerns and questions.
While this may not be readily possible based on your personal circumstances, if you could get a 2nd opinion at a major respected cancer hospital which has an excellent track record in treating advanced stage prostate cancer, it might help your situation. I have been unable to gather enough information from your many postings to fully understanding how good or bad the doctors and hospitals are where you live (i.e., are they expert enough to provide your husband with the best prostate cancer treatment available today)?
You have been given some good suggestions above (e.g., consulting with Rob's regular physician and telling him of your enormous concerns and frustrations about his cancer treatments, especially dealing with his cancer doctor; and accessing state and local social services to see what help you can get financially (especially for you husband's medical treatment) to carry you through.
You should also confront the cancer doctor in a diplomatic way to tell him you don't understand why he won't answer your questions and give you a clear indication as to why the treatment he has prescribed for Rob is the only way to proceed right now and why some alternative treatments don't make sense. When you suggest treatments that you have read about, the cancer doctor should indicate if he is aware of them and why he would reject them. If confronting him still proves ineffective, perhaps you could approach top management in the hospital to present your case.
You indicated that you and Rob will be consulting with a medical oncologist. Is he a specialist in prostate cancer? A top medical oncologist specialing in prostate cancer can usually be very helpful. They should be very familiar with the latest drugs available to treat your husband, including any in a clinical stage. What is the speciality of the doctor who is treating Rob's prostate cancer? Perhaps a urologist?
Please don't give up hope, be stong as difficult as it may be, forge ahead and pursue any other options that may be available to you and Rob. Don't leave any stone unturned. My heart and prayers go out to you and your beloved husband Rob. God Bless!
-69 years young!
-29 core biopsy 9/27/06 at age 68
-PSA 7.1, Stage T1c, Gleason 7 (3+4) [less than 20% in one area], Gleason 6 [less than 5% in two other areas], Negative DRE, bone scan and Endorectal MRI.
-Completed 39 Proton radiation treatments 2/22/07-4/18/07.
-PSA History: 7.1 pre-treatment; post treatment: 2.1 (3 mo.), 2.4 (6 mo.), 1.7 (9 mo). Radiation oncologist said the 3-mo. drop of 70% exceeded expectations and the slight 6-mo. movement upwards was not a cause for concern now.
-The following is a link to My Journey With Prostate Cancer -- Proton RadiationTherapy.