Warm Wishes and Prayers for David ~ FLHW

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Tony Crispino
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Date Joined Dec 2006
Total Posts : 8128
   Posted 2/1/2008 2:10 PM (GMT -7)   
David,
I have noticed that your PSA is now on the rise, and I wanted to get the troops here rallied for good will in your direction.  I have been monitoring your site and understand that the Keto has stopped working.  You have tried for so long to avoid chemo but if you have to, we are praying it doesn't bother you too much.  I will have you and your wife and son in my prayers regularly.  God Bless You and stay strong.  You are such a great inspiration and a very couragous man!
 
Tony
 
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 2/1/2008 2:27 PM (GMT -7)   
David,

You know we're thinking of you here in Florida - you & your family.
As you move forward in your decision making process, you have the backing of all here.

All the best to you David,
Susan & Don
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1
11/27/07: PSA 0.1


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 2/1/2008 9:00 PM (GMT -7)   
Almost missed this!

Here is today's update.

We met with a great doctor at U of KS Cancer Center
We are going to give Nilandron (like Casodex) a shot first.

If this does not help (it's a long shot), then we are either going with DES or chemo.

Thanks for your thoughts are prayers!
Dx'd 2/18/05
PSA 219, bone mets, lymph node involvement
Gleason Score: 7
Current (12-31-07)
PSA: 30
Lupron, Keto_Hydrocortizone, Avodart

Personal Blog:
prostatecancerat42.blogspot.com


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 2/1/2008 9:42 PM (GMT -7)   
Hey David,

You are definitely in our thoughts and prayers. Your attitude and courage are an inspiration...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
 
"Patience is essential, attitude is everything."
 


JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted 2/2/2008 5:10 AM (GMT -7)   
Sending out prayers and light to you, David. May the good Lord give you strength and success.

Jack
Diagnosed: March 25, 2007. Age 49
Biopsy: Gleason 6. Five of twelve samples positive with <5% each. No perineural invasion seen.
Surgery: May 21, 2007
Post-op Pathology: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes. T2c
Continence: Out of pads at five weeks. Seven months post-op I'm fully continent.
Erections: Yes! With the assistance of Cialis.
Post Surgery PSA: Three tests, all <0.1
Family history: Great-great grandfather died from PC. My Father had his prostate removed at age 67 in 1997 and has had an undetectable PSA ever since. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 2/2/2008 6:47 AM (GMT -7)   
With all due respect to all of our medical professionals, if ever there were a dream team/committee to get things done, it would be everyone here at HW. Our hearts are rallyin' around.

David, each birthday matters as does each day. Your spirit is so admirable, each time I read a post, it's so filled with courage, the toughest kind of courage to muster.

Our sincerest best goes out to you.
Husband: Age 67
PSA had doubled in 14 mos to 4.3/Gleason 6
da Vinci 8/06 in Austin with Dr. Randy Fagin
Post surgical path shows encapsular penetration; possible bladder neck involvement.
PSAs remain undetectable; no further treatment at this time.
Next PSA: April 08


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 2/2/2008 7:11 AM (GMT -7)   

David,

A battle is not a war. You are winning the war. Do whatever it takes. Your journey and your spirit lift us all.

I am so glad to have got to know you here on the forum and your site. The "troops" are with you.

Love brother and WAR EAGLE.

Walt 


Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Casodex 4/2007
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
PSA 6.72 1/2008
PSA 8.23 2/2008 - Starting prednisone for 30 days
 
 
"I will persist without exception - I will find a way where there is no way"


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/2/2008 9:43 AM (GMT -7)   
Quote taken from David's blog listed in his signature:
I find myself remarkably calm about what is happening at this point in time.
 
Dear ~ David,
      Our thoughts and prayers surround you and your loved ones.
          We feel your calm...  Heartfelt thanks for allowing all of us to walk with you.
                  Thank you ~ for you!!! 
                       Hugs from Lee & Buddy
 

Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 2/2/2008 11:11 AM (GMT -7)   

Sending prayers from Seattle!  What an army you have on your side!!

 

Chayna


Father's Information
DX July 15, 2007
Age 62 (now 63)
PSA 5.5
Original Gleason 3+4=7 
Post Surgery Gleason- 4+3=7
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin
One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
T3a N1 M0
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07
Lupon beg. Dec 03, 2007 2 yr
Radiation soon to follow
 
 


mozart250
Regular Member


Date Joined Jan 2007
Total Posts : 102
   Posted 2/4/2008 6:22 PM (GMT -7)   
David:
 
My heart goes out to you and the other guys here with more advanced degrees.  I will
try to remember to keep you in my prayers.
 
God bless you and so many others here.  Y'all are an inspiration to me.
 
By the way, your blog is bookmarked in my "prostate" folder. :-)
52 Year Old DBA by profession; amateur pianist by passion.
 
June 2006:  PSA 4.6.  DRE prostate enlarged.  
Aug  2006:  Second opinion confirms first.  Biopsy suggested.
Sep  2006:  Biopsy results positive one lobe.  Gleason 3+3.
Nov  2006:  RPA performed at Fletcher Allen in Burlington VT.
Nov  2006:  Pathology report: Stage T3a and Gleason 3+4.
Dec  2006:  PSA 0.1
Feb, May  2007:  PSA 0.0 (under 0.1)
Aug, Nov  2007:  PSA 0.1
 
Trying my hand at blogging.


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 2/6/2008 7:11 PM (GMT -7)   
Here's a quick update for those who may not read my blog:
I started Nilandron on Monday (three days ago). It's like Casodex and Ketolonizal (anti-androgen)
The chances of it working are not the greatest, but they weren't real good with Keto and I got 16 months
from Keto.

On Tuesday I had new CT and bone scans (5th time since I started the journey). I'm an old pro now.
I didin;t even flinch my she ijected my with the radioactive fluid!

Also, since my last post my blog is three years old.
Dx'd 2/18/05
PSA 219, bone mets, lymph node involvement
Gleason Score: 7
Current (12-31-07)
PSA: 30
Lupron, Keto_Hydrocortizone, Avodart

Personal Blog:
prostatecancerat42.blogspot.com


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 2/6/2008 7:37 PM (GMT -7)   
FLHW (David) said...
“…go do something nice for someone. It could be a friend or stranger or family member. Do it because it's the right thing to do. Don't do it for the accolades, don't do it because it might make you feel better, do it because it might make them feel better….”
Hi David,
 
I read the above quote on your wonderful blog today... very well said!  We should all do our very best to follow your admonition.
 
Thank you for your contributions.  I wish you the best and will keep you in my prayers.
 
Kind regards,
 
Barry

"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  9/11/2007   <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

My web site: http://pca-info.blogspot.com


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 2/6/2008 7:56 PM (GMT -7)   
Hi David: Dittos to all the above. You are so strong and brave.
You've got a boatload of caring thoughts and prayers here in your HealingWell bank.
You will get through this.
Tom

D.O.B - 8/9/52

PSA: First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06.  Both lobes involved.  Six out of eight cores positive - from 100 percent to 90, to 60, to 50, two 20s and two zeros.

Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.  Volume of tumor much less than biopsy suggested.  12 percent overall.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 2/26/2008 8:23 PM (GMT -7)   
UPDATE
Yesterday's PSA ......
down to 29.4 from 36.2 last month!
The Nilandron might just be working!!!!
Dx'd 2/18/05
PSA 219, bone mets, lymph node involvement
Gleason Score: 7
Current (1-28-08)
PSA: 36
Lupron, Nilandron

Personal Blog:
prostatecancerat42.blogspot.com


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 2/26/2008 8:48 PM (GMT -7)   
Great News David!
All those good wishes and prayers are working. I just know that this is trend that is going to continue! You're still in my thoughts and prayers, as are so many others here.
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear. February 2007 - Three to fo ur pads a day, no erection with viagara. April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.July, 2007 - Six Month Post-op: PSA 0.04 No change in ED. October, 2007 - Nine Month Post-op: PSA back down to 0.02!Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment. January 2008: One Year Post-OP PSA 0.02 still dripping, but improving. Tried 500 dose of MUSE for ED, no luck. Will try 1000.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/26/2008 8:50 PM (GMT -7)   

  :-) Hi ~ David,

This is great news ~ for sure.

Thank you for keeping us close as we continue to keep you close in thoughts and prayers.

Hugs from Lee & Buddy

Post Edited (bluebird) : 2/27/2008 8:47:02 AM (GMT-7)


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 2/26/2008 9:24 PM (GMT -7)   
That's great news David!
You know we stand with you in this fight and hope for the best.

Susan and Don

Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2268
   Posted 2/26/2008 9:52 PM (GMT -7)   
David--This is wonderful news to read that your PSA has decreased on the new drug!  Those on the board who have advanced prostate cancer are an inspiration and a blessing to all of us who read and post here. Your courage and grit and positive attitude are an example to me and others. Take care and hang in there. You are in my prayers...Tim 
Age 59  PSA velocity quadrupled in 1 yr (0.6 to 2.6) 
1 of 12 biopsies positive (5%) 
Open surgery June 2006 
Cancer confined to one small area Gleason 5 
PSA's non-detectable


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/26/2008 11:00 PM (GMT -7)   
That's great news, David. Sayin' prayers for a lower number next test!

God Bless you. And thank you so much for your inspirational fight!

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


anniea
Regular Member


Date Joined May 2007
Total Posts : 234
   Posted 2/26/2008 11:56 PM (GMT -7)   

Hi David,

I am really glad to see your PSA has dropped a bit. With all of us well wishers, prayers, love, hope and your positive attitude I can't help but think this medication will work for you. You have helped so many others with your willingness to open your heart & share your knowledge with us. You are a inspiration to many,and have touched the lives of so many people you have never met, its no wonder you have so many prayers headed your way. Thank you for all you do. Good luck & I pray that the new meds continue to work for you.

Diana 


Rick & Diana
Age 68/ 67@ Dx
6-30-06  PSA 2.54
1-22-07  PSA 4.98
1-26-07  PSA 5.09
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
3-6-07 Triple Spinal Fusion (due to old back injury)
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
6-9-07   PSA 0.02
7-6-07   PSA 0.03
8-1-07   CT Scan & Chest X-Ray   Clean
 9-26-2007 PSA 0.07
11/1/07 PSA 0.1
11/30/07 PSA 0.12
01/31/2008 PSA 0.3


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 3/24/2008 6:53 PM (GMT -7)   
Hey folks, just checking in after a week in the sun!!!

I had my monthly appointment this week, a number of changes:

1) First we switched to a Dr at the University of Kansas Cancer Center.
He specializes in PC and has access to more options than our previous general Oncologist.

2) This facility was just opened in it's current location about 6 months ago, it a fantastic.
In the waiting room there is a lady with a cart and provides free bottled water, juice etc.
Doesn't sound like much, but a great touch.

3) Because the lab and the treatment room are in the same facility, when they inserted the
temporary port in my hand, they drew blood for all the tests at the same time. Again, not
a big deal, small touch but goes a long way.

4) The treatment room or should I say rooms. These are laid out like cubicles in an office environment.
No more big room with 15 chairs and 15 patients. Each room has a flat panel TV, DVD player, a door that
closes....privacy. This is going to be real important in the future when I have chemo, now it's just a good addition
to the monthly visit.

5) One od the best parts, now I get my PSA results before I leave! Now more waiting for days and placing multiple calls back to the
doctors office.

The bad news, my PSA went up a little bit from 29 last month to 34 this month.

A few factors that we believe may have contributed:
- I was on vacation and was out of routine; no daily work outs
- The week proceeding vacation was perhpas one of the most stressful I have had at
work in years
- The week proceeding vacation I was also working 4+ hours a night on a volunteer project for our church and
therefore sleeping less etc.

That's my story....and I'm sticking to it!!
Dx'd 2/18/05
PSA 219, bone mets, lymph node involvement
Gleason Score: 7
Current (2-24-08)
PSA: 29
Lupron, Nilandron

Personal Blog:
prostatecancerat42.blogspot.com


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/24/2008 7:49 PM (GMT -7)   
I sometimes find that following you I am inspired to keep on a strong fight of my own. While the PSA has risen a bit, it is not able to stop your very positive ways. I too have a great center with all the amenities. It is a nice feeling to be able to get that quick PSA. I wish you well, David. God Bless you.

Tony


Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator

Post Edited (TC-LasVegas) : 3/24/2008 9:08:05 PM (GMT-6)


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 3/24/2008 8:07 PM (GMT -7)   
David,

So glad you & your family enjoyed my beautiful, crazy state!

I'm happy that you get such good treatment, you deserve every bit of it! Sounds like a good move to a great facility.
You know we're keeping your fight in our prayers and have great hope you will get a good result next time.
Get your rest, eat well and keep the faith. You are an inspiration to us all and we appreciate that. You're a good man, David.

Bless you,
Susan & Don
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 3/24/2008 8:42 PM (GMT -7)   

Hi David,

Thanks for the update on your journey.  I like you description of the the University of Kansas Cancer Center.  It seems you're covered now by all angles.

As others have said, thanks for your continued courage shown to all of us.

Our thought's and prayers go out to you.

Kindest regards,

Barry


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 4/21/2008 6:12 PM (GMT -7)   
I've been somewhat inactive around here lately, nice weather, lots of disc golf and I've been feeling great.

Well, then I went to the Oncologist today for my monthly check up.

My PSA is now up to 38.31 so Chemo is inevitable. We are looking at a clinical trails
as well but are not sure of my eligibility yet.

I have held this at bay for almost 39 months but perhaps "the times they are a changin'"

Mary and I are taking this very well, no tears yet, but I have a feeling she dropped me at work after
the appointment and trashed a few kleenex's.

Funny how life is, two days early we held a Disc Golf Tournament and raised over $2,000 - today I
get whacked with this news.
Dx'd 2/18/05
PSA 219, bone mets, lymph node involvement
Gleason Score: 7
Current (2-24-08)
PSA: 29
Lupron, Nilandron

Personal Blog:
prostatecancerat42.blogspot.com

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