Hi Guys- Jetguy drove 4 hours to meet me at my hotel in Houston and I just had one of the most wonderful evenings I've ever spent. We each feel that the other is like a long lost brother. We had dinner at Houston's (I remembered it from when Carol and I were here in August).
We sat at the bar first and I had two (count 'em - two) single malt scotches (Oban) - a first for me - and then were seated and we each had filet mignon. I've been on a diet of organic fruits and vegetables for months now and I've been dreaming about filet mignon all that time.
Bill is one of the most wonderful guys I've ever met, and I know he feels that way about me, too. And we have Healingwell.com to thank for introducing us and all you sweet folks for making it so conducive for that to happen.
While waiting for Bill to pick me up I was talking to three women in the lobby of the hotel and I said something strange. I said that thanks to this horrible disease, not only has my life changed for the better, but I've met a bunch of incredibely caring people from all over the country and world. You folks really are wonderful and I'm very lucky to have found this site and all of you.
And if Jetguy ever writes that he's going to be in your area and wonders if anyone would like to meet him for dinner, take him up on it. You'll never regret it.
I'm going up to my room now, so won't be able to respond should any of you add to this thread. I'm using one of the 'puters in the lobby of the hotel, available to guests, who are all patients at M.D. Anderson. I'll be undergoing tests all day tomorrow, but should be able to check back here tomorrow evening. If I have some spare time between tests, I'll use one of the 'puters in the various waiting rooms in the hospital which are available to patients. Needless to say, I can't praise this hospital or its hotel enough.
Good night all, and sweet dreams.
And Bill........thank you, Buddy.
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01 AND REMAINS THERE TO THIS DAY
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
7/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA STILL UNDETECTABLE