Newly diagnosed.....

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caretaker2
New Member


Date Joined Feb 2008
Total Posts : 2
   Posted 2/6/2008 1:40 PM (GMT -7)   
Hi, i work with a fellow who was recently diagnosed with prostate cancer.  We have not seen a radiologist yet and/or had further tests other than the biopsy.
 
The fellow i work with is metally diasabled......and after one uroligist decided he was unworthy of a biopsy we finally had a referral to another urologist who tested him.
 
His PSA tested last August was 14.0
His biopsy results show cancer in 12/12 tissue samples taken. The percentage range was from 15%-90%.
This urologist said he believes that the cancer is past the prostate (even though no tests done yet to see if it is) He said he does not think having the prostate removed will help.He is sending us to a radiologist.............new to this wondering if anyone has an opinion.........after all the first specialist decided my client was unworthy..............i need to make sure he is being treated as we all should be....human.  That said if it is pretty bad........i would like to know.........to ensure he has the chance to enjoy life to the fullest. Gleason score is 6......................all samples 3

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 2/6/2008 1:50 PM (GMT -7)   
Hi Caretaker,
Radiation does sound like a good option. His core sample involvement does look to be likely outside the prostate but there will be more tests coming. One test that looks useful is called a Prostascint. This can determin the amount of spread and where the disease has travelled. Another necessary tests are a Bone Scan, CT scan, and an MRI. All of which can be done through the radiation oncologists. God Bless you for taking this on. It shows a huge heart in you.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
 
Visit my Journey at:
 
STAY POSITIVE!


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 2/6/2008 3:36 PM (GMT -7)   

Caretaker:

I admire you for helping this friend.  Another option to determine where the cancer has gone is the color doppler if you have it available in your area.

Best wishes to you both.   Dutch


Diagnosed Feb 2001  (Age 65)  Currently 72
PSA 4.8      Gleason 3+3=6      Stage   T2b
Completed Proton Therapy @ Loma Linda - Aug 2001 - No side effects.
6yr PSA - 0.19
Our responsibility now is to educate men about Pca, PSA and the importance of early detection. 
 
 
 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 2/6/2008 3:55 PM (GMT -7)   
I have a brother-in-law who is mentally disabled and I serve on a human rights committee for a local developmentally disabled agency.  The urologist who stated your friend was not worthy of receiving the same level of treatment as a normal person is breaking Federal law.  The American with Disabilitities Act
provides prtotection from discrimination for the disabled whether physically or mentally.  If it was me I be reporting him to the AMA and the Justice Department. 
 
Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 2/6/2008 4:50 PM (GMT -7)   
Caretaker:

This so called doctor who deemed your friend isn't worthy of a biopsy isn't really a physician in the true sense of the word.

The guys gave you good advice and there's plenty more on this forum. Go to the second topic on the first page of the topic threads:

"Prostate Cancer Resources and Direct Links to Sites, Videos, Books, etc. to help with your research!"

You'll find information there on a variety of treatment options and information that would be very helpful to you and your friend. You're a good man.

Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1
11/27/07: PSA 0.1


caretaker2
New Member


Date Joined Feb 2008
Total Posts : 2
   Posted 2/6/2008 6:08 PM (GMT -7)   
Hi All, I want to thank you for your responses. I also would like to clarify information about the Dr who decided, in my opinion, my client was unworthy. We had a referral to him and upon entering his office..i explained that i was Harold (my clients) staff and that he lived in a group home. The Dr immediately asked me to leave so he could check the prostate. I hesitatntly with drew from the room however waited outside the door. After a min or so the Dr opened the door, was surprised to see me there...and said he 's good to go....i of course immediately rambled on trying to get in info.......such as brother had prostate cancer and his father passed away with it...........the dr then said yeah he is a high candidate however we would just do hormone shots. I was speechless........the Dr then stated that he doesn't have the symptoms................I never heard him ask him any questions (and being disabled his answers would be unreliable,  there was a reason i was there) he never asked me for any info. I then asked what the symptoms are he stated back pain leg pain....i then tried to explain that my client is known to have an extremely high pain tolerance (and i believe probrably somewhat neglected growing up in an institution, probrably learned to ignore pain) and could very well be in pain...............etc.........the Dr was not interested and said a biopsy was not needed.
 
Well as you know he finally got one and the results are indicating that there is a problem.
 
ANd yes i will be complaining LOUDLY............i am in Canada an do plan to follow up, just waiting for the final results.
 
Thank you to all.
 
Deborah

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 2/6/2008 7:00 PM (GMT -7)   
God Bless you, Deborah,
You are doing the right things. This first doctor was not following any medical protocol that I know of. The doctor did state something though that will likely happen. Hormone Therapy is the first line of defense if the cancer has left the prostate. But stay with the second guy. We at this forum will be here if you need information. This place is amazing in that sense. I will be saying prayers for Harold's well being. And for his caretaker, too.

Tony


Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
 
Visit my Journey at:
 
STAY POSITIVE!


anniea
Regular Member


Date Joined May 2007
Total Posts : 234
   Posted 2/6/2008 7:14 PM (GMT -7)   

Dear Deborah,

I am so glad this man has you to fight for him. My nephew was born with downs syndrome, deaf and very disabled. When he was 4 years old we found out he had 2 holes in his heart that were the size of a quarter. The 1st Doc. said it would be more humane to let him go peacefully then to put him thru open heart surgery, with his disabilities he would not live past age 14 anyway. Needless to say we left that Doctor's office and never returned. We went to a training hosipital and they were wonderful, they gave him open heart surgery and he is now 35 years old and has a life filled with movies, video games and lots of love from his family.

You may be able to find a training hosipital where you are at. I wish you the best and would personally like to Thank you for caring for disabled people, I understand the amount of work, love, heartbreak, and devotion it takes but they need people like you. Thank You!

Diana 


Rick & Diana
Age 68/ 67@ Dx
6-30-06  PSA 2.54
1-22-07  PSA 4.98
1-26-07  PSA 5.09
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
3-6-07 Triple Spinal Fusion (due to old back injury)
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
6-9-07   PSA 0.02
7-6-07   PSA 0.03
8-1-07   CT Scan & Chest X-Ray   Clean
 9-26-2007 PSA 0.07
11/1/07 PSA 0.1
11/30/07 PSA 0.12
01/31/2008 PSA 0.3


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 2/6/2008 8:32 PM (GMT -7)   
Hi Caretaker2 -- Look at my biopsy history (below) and you might want to get your friend another biopsy before making a final decision.
Apparently, the urologist who did my biopsy had bad aim or poor ultrasound imaging equipment, and kept taking samples from the same area of my prostate during my biopsy. The volume of cancer suggested by that biopsy was very high.
Immediately after my surgery, the surgeon told my wife that from what he could see and feel, the volume of cancer was not near what the biopsy had suggested. When the the post-op pathology report came in, it confirmed what my surgeon suspected.
So get a second opinion for your friend, if possible.
By the way, I'd like to give that ***hole Dr. who declared your friend, "unworthy," an examination of my own invention -- the DUE -- Digital Urethral Exam (without the glove).
What a piece of garbage that guy is. Report him. Call your local media people. Whatever. That jerk is out of line.

D.O.B - 8/9/52

PSA: First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06.  Both lobes involved.  Six out of eight cores positive - from 100 percent to 90, to 60, to 50, two 20s and two zeros.

Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.  Volume of tumor much less than biopsy suggested.  12 percent overall.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07

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