UPDATE ON LES' (Gordy) TEST RESULTS

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 2/8/2008 1:02 PM (GMT -7)   
As many of you know, Les went to MD Anderson in Houston for testing and re-evaluation by his doctors there. I know you've been waiting to hear word on his results as I was. He can’t post at the moment and gave me permission to give this update.

This is from an email Les sent this morning:

“Some of the nodules have gotten a little larger and my PSA, which has been <0.1 (undetectable) for three years, is now 0.5. I'm to go back to Houston in four months.”

The nodules he speaks of are in his lungs. Les is back on 4 month Lupron shots. His T level is currently 12, down from 23 in August.

Les went out there with a new attitude and a hopeful heart...this is a huge blow, so understandably, he & his wife need time to digest this and regroup.

As always he has our support and love and he does know this.

Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1
11/27/07: PSA 0.1

Post Edited (myman) : 2/8/2008 2:03:23 PM (GMT-7)


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 2/8/2008 1:28 PM (GMT -7)   
You are a good friend Susan. Thanks for letting us know.

Swim
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 2/8/2008 1:35 PM (GMT -7)   
Thank you Susan,
Yes I have been watching very closely. He has made strides here and I hope he and Carol, continue this fight with his great new attitude. I will continue my prayers, and hope he responds well to his treatments. God Bless you, Les...We are very much behind you, friend.

Tony


Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
 
Visit my Journey at:
 
STAY POSITIVE!


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 2/8/2008 5:06 PM (GMT -7)   

Thank you Susan, Swim, and Tony.
(Three warm posts from my three unilaterally adopted children....)

Thanks for the opportunity to once again focus our love on Les and Carol!
Especially at times like these, may they never have to look for it!

CCedar!


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 2/8/2008 5:47 PM (GMT -7)   
myman and the group.  We are thinking and praying for Les everyday and hope this will be better for him.  Thinking of you  Les.
 
Mika

GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 2/9/2008 7:50 AM (GMT -7)   
Susan, you are such a true treasure - and friend. We'll keep Les and Carol near to our hearts.
Husband: Age 67
PSA had doubled in 14 mos to 4.3/Gleason 6
da Vinci 8/06 in Austin with Dr. Randy Fagin
Post surgical path shows encapsular penetration; possible bladder neck involvement.
PSAs remain undetectable; no further treatment at this time.
Next PSA: April 08


lifeline
Regular Member


Date Joined Aug 2007
Total Posts : 67
   Posted 2/9/2008 8:20 AM (GMT -7)   
Myman; thanks for letting us know of Les' update. He and his wife are in my prayers. He is a strong fighter and i know that he will continue to fight and drive this beast back. Stay positive Gordy and keep fighting. God bless you and your wife. lifeline

War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 2/9/2008 12:05 PM (GMT -7)   

Susan,

You are an angle sent to earth. We are all praying for Les. He is a fighter and he will win this battle. I thank you for your love and and caring spirit. You are doing what we all should. Keep it up, girl. You have the true WAR EAGLE spirit.

Spread the love and may God bless,

Walt


Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Casodex 4/2007
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
PSA 6.72 1/2008
PSA 8.23 2/2008 - Starting prednisone for 30 days
 
 
"I will persist without exception - I will find a way where there is no way"


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/10/2008 5:32 PM (GMT -7)   

Dear Gordy & Carol,

    You’ve touched our lives ~ and we continue to reach out… 

            in our own special ways…

         Touch a life ~ with a Hug

We surround you with strength… as you keep moving forward with all of us beside you! 

      You are tucked close to our hearts…. and I know you feel the warmth.

http://i206.photobucket.com/albums/bb179/mamabluebird1955/BluebirdStayClose.jpg

In Friendship ~ Lee & Buddy

xoxo


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 2/10/2008 7:48 PM (GMT -7)   
Susan,
You are indeed a great friend! Les is a mainstay on this site, and I know everyone here is pulling for him (and Carol). He is another example of how unfair this D@#$ disease is. Nobody deserves some good news more than our "Gordy." We'll continue to pray for his strength and healing.
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear. February 2007 - Three to fo ur pads a day, no erection with viagara. April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.July, 2007 - Six Month Post-op: PSA 0.04 No change in ED. October, 2007 - Nine Month Post-op: PSA back down to 0.02!Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment. January 2008: One Year Post-OP PSA 0.02 still dripping, but improving. Tried 500 dose of MUSE for ED, no luck. Will try 1000.


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 2/10/2008 8:40 PM (GMT -7)   

Dear Susan, Thank you so much for your service to Les and Carol.

Les and Carol, Your friends are here for you as you fight this difficult challenge.  Many thoughts for strength and comfort are going out to you!

Sincerely,

Barry


anniea
Regular Member


Date Joined May 2007
Total Posts : 234
   Posted 2/10/2008 9:13 PM (GMT -7)   

Hi Susan,

Thank you for updating us on Les & Carol, Its times like these when we need people like you, so very supportive. Thank you. Please let Les & Carol know they are in our prayers & we will be waiting to hear further updates when he is up to it. My best & warmest wishes to everyone on this site.

Diana


Rick & Diana
Age 68/ 67@ Dx
6-30-06  PSA 2.54
1-22-07  PSA 4.98
1-26-07  PSA 5.09
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
3-6-07 Triple Spinal Fusion (due to old back injury)
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
6-9-07   PSA 0.02
7-6-07   PSA 0.03
8-1-07   CT Scan & Chest X-Ray   Clean
 9-26-2007 PSA 0.07
11/1/07 PSA 0.1
11/30/07 PSA 0.12
01/31/2008 PSA 0.3


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 2/10/2008 9:31 PM (GMT -7)   
Good job Susan, thanks for the update. You are a true friend to Les and Carol and all the rest of us.

Les, we are all hoping and praying for your situation. Your meeting with Bill and Susan's help updating us are signs of just how powerful this group of friends is. Cancer changes our lives and our association changes our lives for the better...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
"Patience is essential, attitude is everything."
 


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 2/11/2008 1:11 PM (GMT -7)   
Thanks Susan,
My prayers are with Les & Carol. God Speed Les!
Your friend,
Pete
54 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. Testosterone Theropy since 12/06. I am's what I am and that's all that I am!!! 


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 2/12/2008 3:53 PM (GMT -7)   
All-

I think I've got my voice back and my wits about me, so it's time to thank you all for the kind thoughts and wishes, which I've read over and over again. And a special thank you to Susan (Myman) for being my voice and telling you so eloquently that which I could not bring myself to do.

I've been doing a lot of thinking over the past few days and thought about when I was first diagnosed. I had the same feelings all of you had when told you had cancer, but, at least in my case, even though I feared the worst, I kept telling myself I had a 50-50 chance - it could go either way. But this time, I'd been lulled into a false sense of (relative) security - the last two CT scans, in September and November, each showed no change. And that was what I expected this time. It never entered my mind that things could get worse. Stupid me. As Susan wrote to me "This disease is insidious" and I let it get the upper hand for a while.

It's taken me four days, but I'm back in fighting shape thanks to all of you and your kind, kind words and thoughts. I originally come from Brooklyn, NY, so it's natural for me to say "thank youse all" - you're the greatest.

-Les

PS - Of course I've had Carol read each post as it came in and she's also eternally grateful to all of you.

Post Edited (Gordy) : 2/12/2008 3:59:10 PM (GMT-7)


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 2/12/2008 6:10 PM (GMT -7)   

Yeah, Les was saying 'youse' at dinner in Houston.  We were both so confident.  I'm glad that you have gotten ahold of yourself, Les.  I don't know how you guys do it.  Gals too, actually.  I have been unable (emotionally) to post here till I read Les's latest. 

The fine folks here at HealingWell have been very important to Les.  We spent quite some time talking about this place while drinking and eating and being too confident.  I know that I'm preaching to the choir, but we are so very important to each other. 

Les, I love you like a brother and I am most disappointed in your test results.  Like you, I expected better.  I guess we should hope rather than expect.  As I said to you before, I wish I had more and better words.

Regards (love),

Bill


August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
Four month post treatment PSA is 1.9.
Seven month PSA is 0.8.


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 2/12/2008 8:38 PM (GMT -7)   
Les,

I'm pleased, relieved and gratified to see you here. Through our "conversations" I believe I've come to know you and that adds to my life. I'm so fortunate to have you for a friend. I repeat, As always you have our support and love. Seems to me we do that for each other right here.

Jetguy,

Hope is talked about so much lately and that's a good thing. I personally don't know where I'd be without it. I've come to believe it really is a gift that we offer to each other.
You said it perfectly.

Susan

Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2246
   Posted 2/12/2008 9:00 PM (GMT -7)   
Like others here, I am so sorry to hear about your latest test results, Les. I admire your courage to fight this disease.  You and Carol are in my prayers for strength and for healing.  Take care and hang in there...Tim
Age 59 PSA 2.6 PSA velocity quadrupled in 1 yr 
1 of 12 biopsy cores positive (5%) 
Open surgery June 2006  Cancer confined to one small area of the prostate Gleason 5
Post-op PSA's non-detectable


anniea
Regular Member


Date Joined May 2007
Total Posts : 234
   Posted 2/13/2008 12:14 AM (GMT -7)   

Hi Les & Carol,

I am so sorry to hear your test results. I am very glad you are back with us and able to post. Hang in there and fight this fight, I have read many stories where the Docs give men a limited amount of time and many of those men are still around 10 years later. I hope & pray that you are one of those. Best wishes to both you and Carol.

Diana


Rick & Diana
Age 68/ 67@ Dx
6-30-06  PSA 2.54
1-22-07  PSA 4.98
1-26-07  PSA 5.09
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
3-6-07 Triple Spinal Fusion (due to old back injury)
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
6-9-07   PSA 0.02
7-6-07   PSA 0.03
8-1-07   CT Scan & Chest X-Ray   Clean
 9-26-2007 PSA 0.07
11/1/07 PSA 0.1
11/30/07 PSA 0.12
01/31/2008 PSA 0.3


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 2/13/2008 5:28 AM (GMT -7)   
Thanks again to all of you.

Diana- I, too, have heard lots of those stories and that is what helps to keep me going.

Bill- Your words are fine, but, as you know, you and I don't need words.

-Les

War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 2/13/2008 7:47 PM (GMT -7)   

Les,

I am happy to hear you are home and your spirit has returned. Like I said to Susan, You will win this battle. I know you will. You do inspire me to keep up the fight. Bill shows what this forum is all about. It is LOVE. It is CARING. It is FAITH. I will continue to pray for you, I hope that is OK (I know it will be). I just know everything will be fine and recovery is coming soon.

Keep up your fight and so us the way, brother.

Love!

Walt


Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Casodex 4/2007
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
PSA 6.72 1/2008
PSA 8.23 2/2008 - Starting prednisone for 30 days
 
 
"I will persist without exception - I will find a way where there is no way"


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 2/14/2008 6:27 PM (GMT -7)   
Walt-

You're the one who shows us how to fight and how to keep the faith, not me. It's guys (and their gals) who have your spirit and courage and mettle who are the ones who keep guys like me going.

Although I admit that I didn't feel this way when I first showed up here, I now know that I'd be in deep trouble if it were not for this site, which is, of course, the people who post here.

I'm grateful to all of you.

-Les

gtmriviera
Regular Member


Date Joined May 2007
Total Posts : 338
   Posted 2/14/2008 8:26 PM (GMT -7)   
Words, often way too many, come easily to me, but the right words, the comforting words from the heart, don't.  I just don't come from that kind of background.  You are an inspiration and I don't mean just in fighting cancer.  You don't really have any choices in that regard, you have to fight it, but you don't have to share your experience with us and yet you continue to provide information that is very personal to you and may be of great benefit of those of us who may be or may yet  find ourselves in the same place.  Thanks brother.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 12, 2017 7:26 AM (GMT -7)
There are a total of 2,904,340 posts in 318,745 threads.
View Active Threads


Who's Online
This forum has 158135 registered members. Please welcome our newest member, Sinemac.
352 Guest(s), 8 Registered Member(s) are currently online.  Details
Lapis_29, Sherrine, ASAdvocate, RobLee, garyi, BostonMarigold, k07, JkorourkeRN for husband