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FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 2/20/2008 9:50 AM (GMT -7)   
Just sharing a brief moment I had.......
~~~~~~~~~~~~
"Of her"
2-19-08

I think of her,
and I cry a little tear.
Man how I hate this...
I want it back,
my life without it,
my life with her.
Dx'd 2/18/05
PSA 219, bone mets, lymph node involvement
Gleason Score: 7
Current (12-31-07)
PSA: 30
Lupron, Keto_Hydrocortizone, Avodart

Personal Blog:
prostatecancerat42.blogspot.com


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 2/20/2008 10:58 AM (GMT -7)   
FLHW,
Man - How a few short words can be so poignant and so powerful! There are many of us who feel the same emotions from time to time.
Thanks for sharing.
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear. February 2007 - Three to fo ur pads a day, no erection with viagara. April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.July, 2007 - Six Month Post-op: PSA 0.04 No change in ED. October, 2007 - Nine Month Post-op: PSA back down to 0.02!Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment. January 2008: One Year Post-OP PSA 0.02 still dripping, but improving. Tried 500 dose of MUSE for ED, no luck. Will try 1000.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/20/2008 2:25 PM (GMT -7)   

WOW....  This is truly powerful… Dave

   Our wings surround you both ~

     We are so grateful you joined "all of us" here on HEALINGWELL.

Thank you for touching our hearts with emotions that we can feel and understand.

Thank you for CARING Enough to SHARE such deep feelings and know that we hold them gently.

Keeping you close as we all walk together…

In Friendship ~ Lee & Buddy


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 2/20/2008 2:41 PM (GMT -7)   
David,
 
The times Don & I talk about this winds up with a wistful "Oh God, how I wish..."
You've captured that perfectly.  Because we all have those times.
 
Thank you for giving that to us.
 
Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1
11/27/07: PSA 0.1


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 2/21/2008 5:17 PM (GMT -7)   

 



August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
Four month post treatment PSA is 1.9.
Seven month PSA is 0.8.

Post Edited (jetguy) : 2/25/2008 8:56:59 PM (GMT-7)


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 2/21/2008 7:37 PM (GMT -7)   
jetguy....all,
Perhaps a little explanation is in order?

First, all is not lost. We are fine, our life together is fine. We had extensive discussions early on that sex was no longer important.
What was important was living. That, we are doing.

The poem was just a moment I had, I captured and I shared.

We are really looking forward to our trip next month to Florida...the sun, the sand, the seafood, the sunsets.....the quite time.....
Dx'd 2/18/05
PSA 219, bone mets, lymph node involvement
Gleason Score: 7
Current (1-28-08)
PSA: 36
Lupron, Nilandron

Personal Blog:
prostatecancerat42.blogspot.com


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 2/25/2008 8:39 AM (GMT -7)   
FLHW,
When I shared your powerful thoughts with my wife last night, she seemed a little down and upset, although she said nothing was wrong. This morning she sent me this email:

"You've worried enough
about physical stuff.
Though I miss it too,
I'd rather have you."

We just couldn't make it through this without them, could we?
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear. February 2007 - Three to fo ur pads a day, no erection with viagara. April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.July, 2007 - Six Month Post-op: PSA 0.04 No change in ED. October, 2007 - Nine Month Post-op: PSA back down to 0.02!Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment. January 2008: One Year Post-OP PSA 0.02 still dripping, but improving. Tried 500 dose of MUSE for ED, no luck. Will try 1000.


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 2/25/2008 8:19 PM (GMT -7)   
mike - great response...I worte about my 'navigator' about three months after I was diagnosed.
She replied to the blog post....to date, this is her only response.

http://prostatecancerat42.blogspot.com/2005/05/my-gibraltar-my-navigator.html
Dx'd 2/18/05
PSA 219, bone mets, lymph node involvement
Gleason Score: 7
Current (1-28-08)
PSA: 36
Lupron, Nilandron

Personal Blog:
prostatecancerat42.blogspot.com

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