Ugh.... I find this very frustrating and scary.....

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SeekingBliss
New Member


Date Joined Feb 2008
Total Posts : 15
   Posted 2/21/2008 1:48 PM (GMT -7)   
This disease is sneaky and unfair.  I have read so many stories on here and it seems like there are a ton of positive results.  Why is it that my hubby's PSA didn't go to undetectable.  Why did it spread?  2 years ago his PSA was very very low!  How can it now be 5.0 post op?
 
My biggest fear, it's not going to respond to hormone therapy?  How fast is it going to become resistant?  How tough is this road going to be?  Is there a chance this disease progresses quickly and I only have a year or so left with him?  I do believe I am having a melt down and am overwhelmed in fear.  What does my future hold?
 
SeekingBliss
 
Husband Diagnosed:  September 2007
His Age: 61
       PSA: 20
Tumor: T2(b)
Radical Prostatectomy:  Oct 25, 2007
Gleason Score on pathology:  4 + 3 = 7
4 mo post op - Feb 13/08 PSA:  2.0
Starting hormone therapy:  March 2008
 


cowboy bob
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 2/21/2008 3:08 PM (GMT -7)   
You are right that there seem to be a ton of positive stories. That's because prostate cancer is so cureable. I wish I could tell you more about what it means to be a 5 post-op, but I don't know the exact answer, other than that a 5 sounds like something that could be fixed with a little clean up work. I do know this- with today's treatments and technology, so much can be taken care of. At this point, take a deep breath, have a good talk with your husband's doctor about what to do, and know that everything will be fine. Hey, within the next year you two will be some nice place on vacation, talking about why in the world you were worried. You WILL get this fixed.

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 2/21/2008 3:40 PM (GMT -7)   
You mentioned a post op PSA of 5 in your post but the signature indicates it was 2.0. While that is still a concern it is better then the 5 if the signature is correct. I find myself feeling guilty when I complain about the ED when those with advanced PCa are dealing with a situation that is not even in the ballpark with ED. There are more stories here that are positive. You might go to www.yananow.net and go to Mentor Experiences. The stories there are listed by treatment and you can view those for hormone and radiation therapy. There are some good results with many of them over a 10 year period of time. You can also contact those individuals that are mentors.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 2/21/2008 11:34 PM (GMT -7)   
SeekingBliss,
This stupid disease does keep reminding us of its serious side. But understand that it can and very likely will be medically managed for many, many, years. Each trip for my PSA check every 4 months I sweat that its back. But my hormone therapy is definitely helping and I show remission. My PSA did go to undetectable after surgery, but my pathology was so grossly abnormal the docs felt it completely necessary to add more therapy. So that is what your husband will do. And with God's blessings he will do well. You have to believe in the positive side and stay positive. Remember my numbers are pretty darn close to your husbands, and I am doing well, now. I don't have much anxiety or fear anymore, I figure it to be a waste of time. And I believe he will to. In time if that's what it takes. He has my prayers, and so do you. Take it easy and keep studying. Knowledge eases the fear.

I believe it was mentioned to read a book by Dr. Snuffy Myers. "Beating Prostate Cancer: Hormonal Therapy and Diet". I have read that book 5 times. When I see that some things work or don't work, I know there's more things that can be done. It talks about failed surgeries, or those who simply were inoperable, and succesful results.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


SeekingBliss
New Member


Date Joined Feb 2008
Total Posts : 15
   Posted 2/22/2008 8:17 AM (GMT -7)   
This is an interesting adventure as I am the greatest believer in we create our realities and that our bodies have a magnificent capability of healing itself if we let go of the resistance and truly do believe it can be done.
 
I had an experience at Christmas with a Christmas flower.  For Christmas I received one of those plants that have a very long stalk and at the top are 4 or 5 beautiful flowers.  We admired this plant as the flowers unfolded and they were enormous.  Unfortunately, the pot was not counter balanced properly and the plant toppled over from a very high cabinet it was on.  It sat for a couple days on the floor as I wasn't there to fix it up.

I came home and lovingly put it in a new pot.  It still had a couple of beautiful blooms.  It stood in the pot ok but the blooms were so heavy and the stalk was damaged in the fall that it now kept leaning way over and would not stand.  I went in my garden and found a stick that I put in the pot.  It reached up and had a little fork at the top that perfectly held the stalk at the right place.  Life was good.


Two days later I looked at the plant from across the room and thought, how weird, the stalk was no longer being propped up by the stick.  It was standing majestically on its own.  In 2 days, it "healed/fixed/strengthened" itself and was able to stand upright unsupported..... the plant has NO resistance!
 
At the time this struck me as such an amazing experience of nature's ability to heal. 
 
I know I have to hold this vision firm in my mind.  I dip into this place of fear because I love him so much and do not want to lose him.  This is a great test for me to practice what I believe!
 
I have tried to find the book that was referenced.  We are in Canada and they did not have it for sale on Chapters or Indigo.  I will keep searching for it as I am keen to make whatever dietary changes need to be made to help!
 
Thank you for your kind reassuring words.  I did modify my signature as 5.0 is the correct #.  Maybe I was hoping it was 2.0.  Perspective is quite funny... here I am wishing for a 2.0 and most of you would dread a 2.0.
 
Namaste!
SeekingBliss


Husband Diagnosed:  September 2007
His Age: 61
       PSA: 20
Tumor: T2(b)
Radical Prostatectomy:  Oct 25, 2007
Gleason Score on pathology:  4 + 3 = 7
4 mo post op - Feb 13/08 PSA:  5.0
Starting hormone therapy:  March 2008
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/22/2008 7:16 PM (GMT -7)   
  tongue Hey ~ New Friend,
 
You have been in my thoughts and prayers since reading your 1st thread/posting...on
The response from members is wonderful ~ isn't it!!! 
You've truly come to the right forum!!!
I will be back with a special welcome but wanted to say a quick Hi!!! and get the links below to you ~ asap.
 
Let us know if you have problems ordering.. okay!!!
 
CLICK on links below:
 

 

You can order on-line from our 

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v       bluebird ~  Moderator for Prostate Cancer Forum


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/4/2008 7:58 PM (GMT -7)   

Keeping you close in thoughts and prayers as you continue to move forward…

Stay close ~ okay!!

In Friendship ~ Lee & Buddy

 

Other thread started by SeekingBliss

02-17-08  New to the forum and trying hard to be optimistic!

 

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