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New Member

Date Joined Feb 2008
Total Posts : 4
   Posted 2/26/2008 8:34 PM (GMT -6)   
Thank you for your response to my post about my dad!!  I am so thankful that there are so many people willing to help us to help dad.
OK...couple questions:
1.  How does one go about getting their biopsy slides sent to John Hopkins, and how long does that take?
2.  Is proton radiation different from the radiation that you normally hear about
3.  Regarding the hormone treatment - the urologist recommended this, but dad will be seeing a radiology oncologist on Thursday, so I am so happy you brought this up so they can ask.  The urologist said that using the hormones would kind or "arrest or freeze" the cancer from continuing, and then at that point they would zap it with the radiation.  Do you think it could be a problem to wait for so long to start the radiation?
Thanks again for any help!
Dad, 65, diagnosed 2/8/08
PSA 8.4
Gleason 4 + 3 = 7
Stage T1C
Plan to begin hormone therapy and radiation soon

Veteran Member

Date Joined May 2006
Total Posts : 2542
   Posted 2/26/2008 9:55 PM (GMT -6)   
cool  Hey ~ dmid,


Your request for information is so important that I’ve taken the liberty to add it to your original posting titled….>  Need help for my dad - is this treatment plan reasonable?


Keeping your dad’s journey together will help others who find themselves or their loved ones on the path with the same stepping-stones your dad has in front of him…


I’m hoping Dave will respond to the original thread ~ also….  After you research Dave’s personal threads and many others who have kept their Journey on one thread ~ you will see how powerful the information becomes when found in one location.


Thinking of you and keeping you close.

In New Friendship ~ Lee & Buddy

Tim G
Veteran Member

Date Joined Jul 2006
Total Posts : 2361
   Posted 2/26/2008 9:59 PM (GMT -6)   

My biopsy slides were sent to Dr. Jonathan Epstein at Johns Hopkins for a second opinion.  My urologist initiated the request and the pathology lab here in Seattle sent them to JHU. 

I had a confirmatory second opinion on the slides back in about 10 days. Dr Epstein confirmed the positive biopsy and the Gleason score of 3+3.

My post-prostatectomy pathology slides were not sent to Johns Hopkins. 

Age 59  PSA velocity quadrupled in 1 yr (0.6 to 2.6) 
1 of 12 biopsies positive (5%) 
Open surgery June 2006 
Cancer confined to one small area Gleason 5 
PSA's non-detectable

Regular Member

Date Joined Oct 2006
Total Posts : 444
   Posted 2/26/2008 10:55 PM (GMT -6)   
Hi Dmid

I am responding to your questions in your original thread as Bluebird has suggested. Tim has done a great job above in explaining to you the procedure for getting a 2nd biopsy opinion from Johns Hopkins.

-69 years young!
-29 core biopsy 9/27/06 at age 68
-PSA 7.1, Stage T1c, Gleason 7 (3+4) [less than 20% in one area], Gleason 6 [less than 5% in two other areas], Negative DRE, bone scan and Endorectal MRI. 
-Completed 39 Proton radiation treatments 2/22/07-4/18/07.   
-PSA History: 7.1 pre-treatment; post treatment: 2.1 (3 mo.), 2.4 (6 mo.), 1.7 (9 mo). Radiation oncologist said the 3-mo. drop of 70% exceeded expectations and the slight 6-mo. movement upwards was not a cause for concern now.
-The following is a link to My Journey With Prostate Cancer -- Proton RadiationTherapy.  

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