Rob's 2nd chemo

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lifeline
Regular Member


Date Joined Aug 2007
Total Posts : 67
   Posted 3/3/2008 1:14 PM (GMT -7)   
Hi everyone: I'm so sorry I haven't posted lately. Just feeling a bit down and having the occasional bout of panic attacks and crying jags. Feeling better now. Since Rob's 1st chemo we saw our family dr. and also spoke with chemo dr. about Rob's fingers and hands being numb. As earilier posted he has barely any muscle strength in his hands and forearms. Only up to his elbows. Upon speaking with the chemo dr. I was to see family dr. first and have dr. call him after visit. Well, first he says he'll do an MRI, then decides no, to wait and see (for what i don't know). I was still fighting with him as i was leaving the office. He later called to say that MRI would be scheduled, this only after speaking to our oncolgist. Chemo dr. called later to advise that if MRI was not done within next couple of days to call him and he would get on the phone to our hospital. (at least he didn't fool around) MRI was done 2nd day after phone call. He seemed to think that something was pressing on a nerve causing the numbness. Turns out there is a lesion that has grown and is pressing on the C7 vertebrae. We go to Sudbury this Wed. and radiation Thur.  Chemo and Radiation drs both seem confident that when radiation shrinks the tumour his feelings will return. Sure hope so since this lack of independance is driving Rob crazy. Dr. says his spine has stabilized. 5 days after 1st chemo Rob started feeling much better and eating well. The pain left him 2 days after chemo, and till a few days ago he has been pain free. Only his upper back near the C7 has started bothering him. Rest of him is good. I know it's probably the pain meds. doing this but it is nice once in awhile to think that the chemo is killing some of the cancer and he is getting a bit better. He is not taking the 12mg. Hydromorph Contin anymore, he's on 6mg. ones every 8 hrs. so he's only taking 18mg. per day instead of 24. Hallucinations have dropped to almost nothing and he is still pain free. He sure is happy feeling better. He has been eating really well since last chemo. He had his 2nd chemo today and the different side affects he had the 1st time at hospital didn't happen this time. He was waiting for them though and it took constant talking to convince him not to dwell on them, to focus positive thoughts of getting through this better than before. Took the whole hr. to do this. The dr. dropped the doseage back to 80 instead of 90 due to his also having radiation this wk. He wants to make sure Rob can handle it.  I'm worried because although he's been eating well, when they weighed him today he has lost 6 pounds since last chemo. I know the first week of chemo he didn't really eat much but shouldn't he have put some back on by now. Is it normal for people to keep losing weight during chemo treatments even if they are eating? This really concerns me. If anyone has any info about this I would really appreciate it. Thank you so much for being here for us and for all your prayers. I hope everyone is doing well and you are all in my prayers. I will read the other posts. lifeline
 

myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 3/3/2008 3:42 PM (GMT -7)   
It's good to see you post, lifeline.
It sounds as if Rob is making some headway in the pain department. That is imperative - that the pain is kept under control - it's too much to be fighting it all the time.
And regarding weight loss, my sister is on chemo and it seems losing some weight is pretty normal. Just not being in such pain is an appetite improver!
You went to bat for Rob and it paid off - at least the doctors are now working together to bring Rob the best care. Your love and care for him is imperative - you're doing the best you can, Lifeline.
As we always say here (and, yes, it's easier said than done) try to take care of yourself. There are many people here who care about you & Rob, please know you're in our thoughts & prayers.

All the best,
Susan

IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 3/3/2008 9:56 PM (GMT -7)   

Dear lifeline,

Your assertiveness has really paid off for Rob.  You are a good example of how we need to take charge of our health care and the health care of our loved ones.  My wife is the same way, and she has literally saved the life of my daughter on one occasion and preserved the quality of life for both of our children on several occasions.

Thank you for providing us the details of Rob's experience.  We want to know so we can support.  I pray that you and Rob will continue to experience these successes.

All the best,

Barry


"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  9/11/2007   <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

My web site: http://pca-info.blogspot.com


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/4/2008 8:05 PM (GMT -7)   
Hey ~ Lifeline & Rob,
Keeping you close.... Hopefully you saw Susan's thread to you!!!
Hugs from Lee & Buddy
 
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