I am a wife and new here- sooo many questions!

New Topic Post Reply Printable Version
27 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 3/5/2008 6:29 AM (GMT -7)   
Hi everyone I hope you can help me. My husband was given a gleason scale of 3 out of 6 being Gleason score of 8 and 9. The other 3 were 5-7. He just turned 64, his PSA was 6.3.
Dr wants to do radical pros.  my husband really is not happy about the idea of beint cut open to that extent. He wants DeVinchi surgery and believes this will have less side effects and is just as effective.
My concern is that my insurance covers all of the radical less a $500 deductible, otherwise it is a 40 mile commute, and maybe will cover 20%.
I trust the doctors in our area, I am a surgical nurse.
Am I being unreasonable???
He is considering waiting another year until medicare kicks in! I think this is a gamble!
Thanks for your help!
ML

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 3/5/2008 6:52 AM (GMT -7)   
ML,

I am surprised that your insurance does not cover the Da Vinci surgery since the latest numbers indicate that over 50% of the radical prostatectomies are being done using this procedure. I assumed that you have checked with your insurance and they have confirmed the coverage. As to the impact of the different surgeries there have been many men on this forum that have had the open surgery and report little pain and good recoveries. The difference in the results for incontinence and impotence between the open and Da Vinci is slightly more favorable for the Da Vinci but not by much. The Gleason of 8 and 9 as you know indicate aggressive cancer. You did not say if the DRE was positive for hardness or not but if it was me I would not wait another year. Of course, the other options are some form of radiation treatment with several men on this forum reporting very good results with the proton beam.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 3/5/2008 7:05 AM (GMT -7)   
Thanks for your quick reply and thoughts! I called my husband and hopefully he will join this wonderful resourse! His DRE was positive for hardness. His prostate is not enlarged, no symptoms at all. During the biopsy the Dr pointed out the "dark spot". This is all in the Left side, Right biopsies were neg. CT and Bone Scan were neg. As the Dr said, this a "good window of opportunity" to treat this!
He has always been well and this is a shock for all of us. The DaVinci is an out of network facility. about 40 miles south of Ft Myers, Fl. Any thoughts about the rate of success of DaVinci vs open related to the Gleason score?? After reading a few postings I am especially concerned about his gleason score. I agree about the waiting thing, that really scares me!! He was hoping the Lupron will hold him.
YIKES!
ML

myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 3/5/2008 7:27 AM (GMT -7)   
Welcome ml - I think you'll find this site will be a great support to you & your husband.
I noticed you mention Ft. Meyers - not knowing where you're located exactly is Moffitt Cancer Center an option for you? My husband had an LRP there and surgery went well. I agree with Tamu - a year at this point sounds like a long time...and why take that chance.
There's alot of information out there and it takes alot of research BUT the fact that you're a surgical nurse helps.
You mentioned Lupron...is your husband currently on HT?

Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 3/5/2008 8:05 AM (GMT -7)   
ML,

Is there a good surgeon who does a lap procedure in your area? This would be the next best thing to having a robotic asssisted lap. Surgery is definately his choice? Forget the money (if possible). Get him healthy and ready for that retirement party no matter what his choice!! The only decision he may wind up regretting is waiting another year. Personal opinion, not fact.

Good Luck,
swim
 


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 3/5/2008 8:07 AM (GMT -7)   
Hi ml,
Welcome to the forum no one wants to join. I agree with you that waiting with a Gleason 8 or 9 is risky business. Based on what I've read here, I don't think the success rates are any different with open or DaVinci surgery. A few years ago, there was a great difference in recovery times between the two surgeries, but I think techniques have improved in both the nerve sparing and recovery aspects of the open surgery. I'm sure some who have had open surgery will chime in here soon with their experiences. I had the DaVinci in January 2007, and was only in the hospital 24 hours. I returned to work in three weeks at a reduced schedule and full time in five weeks. I would suggest you do some more research on Florida hospitals (within a driving distance)that are performing DaVinci surgeries and might be in your Health Network. If he is set on the idea of DaVinci, remember that his attitude is a large part of his recovery process. Good Luck, and again welcome to HealingWell.
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear. February 2007 - Three to fo ur pads a day, no erection with viagara. April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.July, 2007 - Six Month Post-op: PSA 0.04 No change in ED. October, 2007 - Nine Month Post-op: PSA back down to 0.02!Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment. January 2008: One Year Post-OP PSA 0.02 still dripping, but improving. Tried 500 dose of MUSE for ED, no luck. Will try 1000.


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 3/5/2008 8:25 AM (GMT -7)   
I agree with Mike. I think attitude is a HUGE part of the process. Hopefully, you can find a great surgeon in your insurance network that will cover the Davinci. I can't imagine that you won't be able to find a number of good surgeons that are covered. If for some odd reason that you can't, you could always make an appeal to your insurance. While the cost for the Davinci might be a little more for the actual surgery portion, the overall costs vs the open are similar, if not less. (One night stay in the hospital vs. 3). Just my opinion :) Good luck and keep us posted!

Doting
Father's Information
DX July 15, 2007
Age 62 (now 63)
PSA 5.5
Original Gleason 3+4=7 
Post Surgery Gleason- 4+3=7
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin
One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
T3a N1 M0
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07
Lupon beg. Dec 03, 2007 2 yr
Radiation soon to follow
 
 


wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 3/5/2008 8:32 AM (GMT -7)   
I had both surgeries after the Davinci failed. and as my doctor said in three weeks you can't tell a davinci vs and open. But in either case the skill of the surgeon is paramount.

On waiting, again what my doctor told me, no one tell you the day the first cancer cell crosses the boundry but the odds go up as you wait.

Like your husband I wanted the Davinci method real bad but the open is like an extra day more in the hospital and three or four more days of catherter. The numbers in terms of countenance and ED are still tied to the skill of the surgeon.
12/06/07 DaVinci and open prostate surgery after difficulties in breathing stopped the davinci.
Walked a lot
90% control the day the catherter removed.
pad only for a sneeze before the week was out
No pads most of the second week.


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 3/5/2008 9:40 AM (GMT -7)   
Hey ML,

The skill and experience of the surgeon seem to be more important than whether open or DaVinci surgery is used. I had open surgery, was in the hospital 2 nights, had the catheter in for 6 days and was fully continent the day after the catheter came out and both nerve bundles were spared.

Good luck and please stay with us...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
"Patience is essential, attitude is everything."
 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1209
   Posted 3/5/2008 11:15 AM (GMT -7)   
Hi mlbsm,
Sorry that you have to be here, but welcome to this wonderful site.
As you can see by my signature, I also had the open prostatectomy with good results and very little discomfort. My hospital stay was a little longer than Biker90',s (5 days) and the catheter was removed after 14 days. The only reason that I opted for open rather than Davinci was the fact that I live in Canada and Davinci is not available in my area. The skill of the surgeon (as mentioned before) is the most important factor in the outcome of the operation; open or Davinci. I would hope that, with the numbers that you gave us in your post, your physician would urge you not to wait to long, but take aggressive action ASAP. However, only you and your caregiver can make the final decision.
Best of luck for your future what ever you decide.
 
Magaboo


Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
Open RP 28 Nov 06
Post op staging T3
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) = 0
 
 
 
 


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2249
   Posted 3/5/2008 12:02 PM (GMT -7)   
Welcome to the forum.  I, too, was nervously leary of the prospect of an open surgery, but it was, in fact, not that big a deal.  The daVinci procedure is newer and effective with a faster recovery.
 
The most important consideration, with a positive DRE and a higher Gleason number, is to treat the cancer as soon as possible.  Waiting a year is Russian roulette.
 
I would suggest discussing your options--open surgery vs. daVinci--with the insurance provider.  Most will cover either procedure, but may require pre-authorization.  I'd keep pressing them on this if your husband wants to do daVinci robotic.
 
Hope you will continue to stay with us here and keep posting.  There are some wonderful, warm people on this forum and lots of solid, helpful information for you related to prostate cancer.
 
Take care and hang in there...Tim
Age 59  PSA velocity quadrupled in 1 yr (0.6 to 2.6) 
1 of 12 biopsies positive (5%) 
Open surgery June 2006 
Cancer confined to one small area Gleason 5 
PSA's non-detectable


mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 3/5/2008 2:24 PM (GMT -7)   
Hi Everyone and Thank you all!   
   I began to think about my husbands attitude this AM while on my way to work and realized just as was said that his attitude is very important to HIS recovery. I did call insurance and  found that the hospital in Naples is covered 100%, the surgeon is covered 50% etc. I have a call out to them now, so Bill can explore the options. We also had a good visit with the ARNP and shared many of Bills concerns. Bill decided to keep the Surgery date for 3/26, I donated blood for him today, and hopefully he can see one of these Dr's in Naples.
    I am hoping he chimes in sometime, He is not much of a "sharer" but I am so impressed with how open, honest and concerned everyone is here! Maybe you can help him deal with the healing of his body as well as his heart!
BTW...Because of the extent of the GS and all on the left, the ARNP said they will need to take the nerves. She also said they will deceide on the right side nerves once they are in there. What do you all think and does this significantly increase the difficulty to control urine? Big deal to Bill as well as ED. Look forward to hearing from everyone!
ML

Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 3/5/2008 2:32 PM (GMT -7)   

Welcome to this very informative and helpful forum.  With the higher Gleason and something felt on the DRE, I would suggest a color doppler which will show the location and extent of the tumor and this info can be used as a tool for a treatment decision. Best wishes.

Dutch   


Diagnosed Feb 2001  (Age 65)  Currently 72
PSA 4.8      Gleason 3+3=6      Stage   T2b
Completed Proton Therapy @ Loma Linda - Aug 2001 - No side effects.
6yr PSA - 0.19
Our responsibility now is to educate men about Pca, PSA and the importance of early detection. 
 
 
 


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 3/5/2008 3:02 PM (GMT -7)   
Having just had the Da Vinci Jan 5, I would say it has little advantage over open. there are a few things like blood loss, but for me, it was obvious there are more similarities than differences. If I had it to do over again, I would worry far less about the procedure used. It simply is not the end to human suffering that some of the literature would ahve you believe. According to my dr, the race to continence is usally faster with open. I am down to one pad a day, very similar to open rrp. Some guys are dry right away, others take their time.
I was uncomfortable for about a week after surgery - again very simliar to open. The skill of the surgeon is by far the most important. My dr did a great job and I am very happy with the results, but as everyone said on here...and they were right....it is the surgeon, not the procedure. The recovery, pain, continence, potency are all different for every single guy and based hardly at all on the procedure.
Have your husband do what feels best for him. It hard and a process no one should ever have to go through. While we are all here together, it is most certainly our own individual journey at every level.
Glad you are here to share it. This is a great board.
Paul
47 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6      (Biopsy 3/07 just suspicious)
10/07 PSA 5.06   (Biopsy 11/07  1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC  www.roboticoncology.com
Saved both nerve bundles.
Path Report:  Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
 
 


mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 3/5/2008 3:35 PM (GMT -7)   
I am reading all your postings to my husband and it is a comfort to him as well as myself! The nurse still has not called back from the DeVinci people in Naples today. We both left requests to call us. Makes you wonder......Still will consider but I think Bill is becoming more comfortable with the open because of your postings and also the Dr has a lot of experience. I have personally cared for many of his patients as a surgical progressive care nurse and I have always been impressed with the concern for the patients from all the Dr's in this group. My husband sees me as his wife, not as a nurse. Tough for me to remember this.
Still hoping Bill chimes in.....I am glad you all will be around for us!
ML
PS will work on posting his info.

Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 3/5/2008 4:00 PM (GMT -7)   
ML,

I would get a second opinion from the best facility you can manage, regardless.
If you choose surgery --- (open has some advantages as does DaVinci- kind of a wash - get the best surgeon, this makes a difference.) --- If you choose surgery, go ahead and schedule it as there is usually a waiting period for good surgeons.
You can change to another surgeon or procedure after your second opinion if you choose and you don't have to wait "too" long.
If you are going with surgery, I WOULD NOT WAIT more than a couple of months or less... . But then I don't pretend to understand all of your situation.
If you are taking Lupron, I would read TC-LasVegas (Tony)'s threads for some excellent leadership in thought.

You and your husband will be surprised how manageable treating this disease is - after a lot of hassles. We will be here to help.

Your Friend,

CCedar
ICTHUS!


2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
OPEN R P 16FEB07 at age 54. 1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  PSA: 6 mths <.003  :)   9mths <.008
:)  1 Yr <.008 :)
At 1 yr, ED treated with 100mg Viagra Often -  5 Year Colonoscopy 19FEB08:  Clear!
Texas Hill Country FRESH Produce Department Manager  - Have you had your 5 colors today?My Threads?

Cedar Chopper's Page & Updates ~ Radical Prostatectomy ~ Feb '07
"Zen and the Art of Orchestral Erectile Function"

"Zen and the Art of Symphonic Continence"

Post Edited (Cedar Chopper) : 3/5/2008 4:03:27 PM (GMT-7)


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 3/5/2008 5:31 PM (GMT -7)   

Greetings, ML and Bill.  As others here have indicated the skill of your surgeon is the most important factor.  My surgeon is known for the open procedure and he did a great job.  I was only in the hospital 2 nights and had the catheter for a total of 9 days.  My surgery was on Feb 4 - just over 4 weeks ago.  I wore pads for about 2 or 3 days after the catheter came out but soon realized that I wasn't dripping much at all.  I gave up the pads 3 days after the catheter was out and have done fine in the couple of weeks since then. 

I, too, am married to a nurse and she has taken wonderful care of me.  I went back to work part time at 3 weeks and plan to go to full time next week (5 week point).  I worked all day today and did fine although was a little tired when I got home. 

With gleason scores of 8 and 9 I would encourage you to consider your options and make a decision quickly.  I am grateful that mine was caught early and from all indications my surgeon got it all.  My gleason was a 6 at biopsy time and was upgraded to 7 with the pathology report. 

You have found a great place for help - everyone has been great to us.  We look forward to reciprocating and providing encouragement where we can.  We'll be praying for you as you make decisions and for a rapid recovery and full healing.  David


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/5/2008 6:40 PM (GMT -7)   
tongue   Hi ~ ML, Bill, & Loved Ones ,

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

Knowledge gives us POWER….  POWER takes away the fear.

 

~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~

 

 Click  on  link  below for important information that will help you ~ help us!!

 

Welcome New Members ~ to HealingWell

 

The information (link) listed above is to help you get around the forum! 

 

v       This is a journey best traveled with friends. 

Welcome ~ New Friend from all the members here... on HealingWell.com

 

v      IdahoSurvivor ~  Moderator for Prostate Cancer Forum

http://farm2.static.flickr.com/1160/1313099593_9f819e3ff8.jpg

 

v      TC-LasVegas ~  Moderator for Prostate Cancer Forum

 

v      bluebird ~  Moderator for Prostate Cancer Forum

http://i206.photobucket.com/albums/bb179/mamabluebird1955/mamabluebirdWelcome.jpg


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 3/7/2008 7:41 PM (GMT -7)   
Hi dlbsm
 
I also have a GS 9 with all 6 of 6 left side samples containing cancer and 2 of 6 on the right side. My biopsy was done 1/10/08 and my urologist stage me T1C.  I first went to MD Anderson and found they will not do surgery or proton therapy on a GS 9. Bone scan, CT of chest and Pelvic were negative. They recommended Hormone therapy and Radiation.  My doctor said surgery was not out of line if I could find a surgeon who felt surgery was not a risk based on past medical history.  I consulted a very experience DaVinci surgeon in Texas and he discouraged me from considering surgery.  I finally settled on no surgery and trying  the University of Florida Proton Therapy Institute (Jacksonville, FL) for Proton Radiation.  They sent me a packet and I mailed off all my information to include path reports, films, and CD last Friday and received a call today with an Appointment next Thursday the 13th of March. 
 
I know Medicare covers proton treatment. I don't know about other insurance but you might call there intake coordinator at 904-588-1280.
 
I guess all I can add is that you and your husband  have to do your research and do what ya'll feel is the best option.   I would not wait and if necessary I would take my fight to the insurance company. 
 
We will keep ya'll in our prayers

Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
11/07 PSA 1.9 PSA 11/08 was 4.9 PSA 12/08 was 7.7 MDA 2/12/08 3.3 On Proscar so shud double
Biospy 1/10/08 Gleason score (4+5)9, Stage T1C or T2C, 8 of 12 samples positive 
Bone scan 1/17/08 hot spot on ribs, CT shows rib enjury CT CHest 1/30/08 Clear
M.D. Anderson appt 2/12/08 CT Abdomin & Pelvis Clear Recommended Hormone&Radiation
2/19/08 Dr Fagin, Austin, TX did not recommend surgery based on medical history
2/22/08 Contacted U of Florida Proton Therapy Institute - Appt 3/13/08
Turn Stumbling Blocks into Steping Stones


mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 3/8/2008 5:11 PM (GMT -7)   
Since my diagnosis of having PC, I had hundred's of questions and a few pounds of anger
and more than a few tons of fear. Not so much for myself, but for our children.

On 3/26/08 I'll have the surgery, and if I were to say I'm happy with that decision, I'd be lying.

But thanks to the posts I've read on this site, not only answering my wife's original post, but almost every other thread that seemed relavent, I think I'm a lot better informed than most people who lay down on the table listening only to the professionals.

There's a medical side to PC but you people are the human side and it goes a long way to ease the fear.

Billy

uncledan
Regular Member


Date Joined Aug 2007
Total Posts : 120
   Posted 3/8/2008 8:54 PM (GMT -7)   
Great that you have decided on a treatment. I had the DiVinci on August 14 07 and things went well, however you never know if the DiVinci will be performed as there is always the possibility of converting to open surgery after the operation starts. Usually most Surgeons like to wait 7 to 8 weeks after the biopsies before surgery to allow inflammation and swelling to reside. Just a couple of notes to make the trip easier for your husband, get a rubber donut not the plastic air filled kind for his trip home and a few days after. I got one of the air units and it was not comfortable at any pressure. I took it back and got the 18 inch sponge rubber unit with removable cloth washable cover, cost $9.96 I used it on a 3000 mile trip just shortly after the surgery. No problems. The surgeon will recommend stool softeners. A good one is Ducolax about $10 for 25 or you can get a generic for about $6. One other item if you are very far from home you might want to reserve a hotel room for a day or so after the surgery. I had to travel a long distance by car for my surgery and another day near the hospital was fine although it wasn't mandatory. Good attitudes and TLC will make a new man of your husband. God Bless, Uncle Dan
Age 68
DRE negative, 10 - 06 PSA 5.44, 01 - 07 PSA 6.47
5 - 07 CT and Bone scans negative, 05 - 07 Biopsies, 2 of 6 positive
Gleason Score (3+4) 7 Stage T1c
08 - 14 Da Vinci RAP, five hours surgery
Some right nerve and all left nerve removed,
8 -16 Negative margins, Encapsulated, 50% left side
Lymph nodes 2 R & 1 L - Negative, R & L seminal vesicles - Negative
Gleason changed (4+3) 7 so it was closer to 8 than 6
Sixth month PSA 0.04 Previous PSA 0.00 Occasional stress drip
Results are improving while using pump. Pills no help


kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 3/18/2008 5:40 PM (GMT -7)   
ml and Bill, through reading your posts, I see that you have both been trying to find a doc in network to do the da vinci. We traveled out of state for the surgery. My husband came through with flying colors and yet still ED issues 1 year out. I don't want to go into that here, but to say to Bill, believe in your choice. You don't have to love it, who loves the options here? But your outcome can be drastically better, believing you made the right choice, the choice for you! Most will tell you there is little difference in outcomes between open and da vinci. You have to have faith in your docs and trust in your decision. As Kurt said to his dad last night, who is about to have surgery this friday, the best way to feel assured it is gone, is to remove it! Good luck, Courtney
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Live in OK
Da Vinci scheduled 3-14-07 in Austin
Post-Op  Gleason 6, Stage t2c nx mx  YAAAAA HOOOOOO! 
1st PSA Post OP  Undetectable!!!!!!  OFF THE CHART
2nd CT scan, to recheck enlarged lymph nodes not related to PCa NO CHANGE relook in 6 months


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 3/18/2008 6:38 PM (GMT -7)   
HI. We are all glad you came to this site. As for me I had open surgery, spent two nights in the hospital(Duke University), had no blood loss that required replacement. No pain meds after leaving the hospital, not even for the 4 hour car ride back hom. My broken arm from 06 was a thousand percent more painful and spent 8 weeks in rehab. Stayed out of work 6 weeks because my wife said so. And continent within two months. I would not wait a year. It may not be safe to do. I know there are others who had treatments beside surgery, but as for me, I wanted the cancer out of me as soon as I could get it out. I am almost back to normal even with the ED thing, having surgery on May 30 of 2007. Take care, make your decision, don't look back and think positive thoughts about all this. Take care.

Mika
age at dx 54 now 55
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
wear one for insurance now
ED still a problem
last PSA undetectable
 


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 3/19/2008 8:08 AM (GMT -7)   

Billy and wife,

Was rereading this thread and saw your note saying Billy's surgery is March 26.

I will keep you both in my prayers.

I understand...and no doubt everyone else here does also....the many emotions that you are going through.

I went from feeling perfectly healthy one day to finding out I have an aggressive cancer the next day.  It was and still seems to some extent surreal.

For me, the six week wait from biopsy to surgery was the toughest emotionally.  I did not fear the surgery itself that much, but worried a lot about what the pathology results would be.

I wish you the very best next Tuesday, March 26.....and in the days and months to follow!!!!!!


Danman Bob
Age 57
Prostate removal November 2007
Gleason score 9, PSA 14
Biopsy result - 9 of 12 sticks showed cancer
Despite high Gleason score, cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (1 to 2 pads a day)
Began using Osbon Erec-Aid Esteem manual pump for therapy mid-February 2008
Begain using Viagra 3 times a week December 2007 to stimulate blood flow


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 3/19/2008 8:57 AM (GMT -7)   
Hey Billy and ML,

You have made your treatment decision, now don't look back. Become a cheer leader for you surgical team. Remember that the only two things you can take into the OR are your naked body and a great attitude. Your recovery from surgery will be greatly aided by your confidence in your surgeon and your expectation of a great post-op path report.

Our thoughts and prayers are with you, please stay with us. We can all get well together...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
"Patience is essential, attitude is everything."
 

New Topic Post Reply Printable Version
27 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Saturday, December 16, 2017 11:56 AM (GMT -7)
There are a total of 2,906,160 posts in 318,925 threads.
View Active Threads


Who's Online
This forum has 158265 registered members. Please welcome our newest member, Packers.
296 Guest(s), 11 Registered Member(s) are currently online.  Details
goshawk, farmer boy, Rick1310, Kct, PeppermintTea, Nostalgic Cowboy, Serenity Now, James A., Scaredy Cat, Maverick6981, gumby44