Newly incontinent, question

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bb48
Regular Member


Date Joined Mar 2008
Total Posts : 23
   Posted 3/5/2008 3:24 PM (GMT -7)   
 
I'm new to this forum, a lot of great information, much needed. I had the catheter removed about 2 weeks ago.I have a question about urine leakage when active, like a lot of others I have pretty good control when sitting or sleeping, but when I'm up and moving around the leakage is pretty steady. I seem to have it in my head that I should avoid activity so as to not "encourage" my bladder to leak. I'm sure this is a wrong headed notion, and I want to do things, but just want to make sure I'm not impeding progress by being too active. I sympathize strongly with so many of you who have a lot more serious problems . I feel blessed that my cancer has been removed. I've had 4 surgeries on my leg in the last 18 months to correct a deformity from a previous fracture, but that was duck soup compared with this serious issue of my cancer. My Dad died of prostate cancer in 1984 at the age of 64, my urologist told me that if he could have been treated with today's medical resources he probably would have survived his cancer. Let's all feel lucky were living in these times.

Age 59
Robotic prostatectomy 2-4-08, Shands U of Fla
PSA 6.1, Gleason 3+3, 1 out of 14 biopsies pos. 5%
Negative margins, surgery went well.


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 3/5/2008 3:32 PM (GMT -7)   
Welcome to the board, great people and resources here. I would encourage activity, esp walking and Kegels to help strengthen your pelvic floor, which will in turn help with the leakage and speed return of control. I have walked 3 to 4 miles/day for several years, and resumed as soon as possible following my surgery. I was fortunate that I had no problems following removal of the catheter, but still "squeeze before I sneeze" and such, otherwise I am reminded to do so next time!!! Good Luck
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.004
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement, more notable over last month
with Viagra 100 mg.


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 3/5/2008 3:47 PM (GMT -7)   
Bill b.

I calculate you are ONLY 4 or 5  weeks out from surgery.
I believe you should stay active and learn your kegel routines.
Wear pads and drink less before & while active and re-hydrate before & while resting. 
Getting a full bladder while resting and then standing over the toilette and coughing while kegeling will focus your exercise efforts like a laser beam!

Most gain continence between weeks 12 and 16.  Some sooner (immediately!) and some never.
Your control while resting/reclined is a VERY good sign.

For my fight & tips against incontinence, you can click on the link in my signature.
There are many other helpful threads found posted in an index in the Helpful Links thread at the top of the page.

(Aside: My nephew recently moved to Florida to work for the Feds -  testing municipal effluent/water for pharmaceuticals......)

You have found both friends and a good source here.

CCedar
ICTHUS!

2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
OPEN R P 16FEB07 at age 54. 1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  PSA: 6 mths <.003  :)   9mths <.008
:)  1 Yr <.008 :)
At 1 yr, ED treated with 100mg Viagra Often -  5 Year Colonoscopy 19FEB08:  Clear!

JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted 3/5/2008 4:34 PM (GMT -7)   
Welcome, Bill.

I had my surgery at Florida Hospital in Orlando, but am also familiar with Shands in Gainsville.

You sound like I did post catheter removal - no leaks at night or while sitting but dripping during activity.

I didn't cease my activity but did watch my fluid intake. Also, I cut out the caffeine for a few weeks. I just wore a pad and let the drip go on, especially on my walks. Eventually the dripping slowly decreased until it stopped altogether. I still remember the day when the leaking stopped altogether. I spent an hour cutting the grass and just about leaped for joy when I saw that I hadn't leaked a drop. I felt that the walking, doing 75 sets of walking up and down the stairs in our house, and Kegeling, strengthened the pelvic floor muscles and helped me regain total continence.

Good luck, you sound like you'll be just fine.

Jack
Diagnosed: March 25, 2007. Age 49
Biopsy: Gleason 6. Five of twelve samples positive with <5% each. No perineural invasion seen.
Surgery: May 21, 2007
Post-op Pathology: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes. T2c
Continence: Out of pads at five weeks. Seven months post-op I'm fully continent.
Erections: Yes! With the assistance of Cialis.
Post Surgery PSA: Three tests, all <0.1
Family history: Great-great grandfather died from PC. My Father had his prostate removed at age 67 in 1997 and has had an undetectable PSA ever since. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.


Bob1949
Regular Member


Date Joined Jan 2008
Total Posts : 24
   Posted 3/5/2008 5:34 PM (GMT -7)   
Post Da-Vinci on 25 Feb 08
Catheter Out on 5 March 2008

Definitely concur
Dont back up, make forward progress, just remember the word "Kegel"
Bob1949 (Bob)
Southern Maryland
Pre-Treatment PSA:  7.38
2004: Trus Biospy: Suspicious but followup
2007: Trus Biospy, 12 Samples, "Positive"
Gleason 3+3 = 6, T1C Diagnosed December 2007
Prostate, 60 grams
Age 58, 6'5, 233
DX:  Kidney Cancer/Removal, Prostate Cancer/Scheduled Removal, Atrial Fibrillation, Gastric By-Pass
Da-Vinci Ccompleted: 25 February 2008 @
INOVA Fairfax Hospital, Fairfax Virginia
Dr. Simon S. Chung
Both nerves sparred
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/5/2008 7:00 PM (GMT -7)   
tongue   Hi ~ Bill & Loved Ones ,

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

Knowledge gives us POWER….  POWER takes away the fear.

 

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The information (link) listed above is to help you get around the forum! 

 

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Welcome ~ New Friend from all the members here... on HealingWell.com

 

v      IdahoSurvivor ~  Moderator for Prostate Cancer Forum

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bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/5/2008 7:07 PM (GMT -7)   
tongue       Hey ~ Bill & Loved Ones,

 

We’re glad you found all of us!!!   yeah  

 

I know we can “all” make “Your Journey” smoother ~ just by being here for you!  

Thank you for reaching out!!! 

 

You’ve just made your own journey a lot smoother.  There are a lot of Helping Hands here… and just by reaching out like you did ~ you will have a much easier time.  We’ve been where you are now…. Knowing you aren’t alone… makes a big difference in psyche and spirit.

 

We will always be here for you… This is truly a great forum!!! ~ You have joined! You are now part our forum family ~ a group of wonderful individuals who are so willing to share their journey with you!  Please take time to follow the link in your Welcome Message above… it will help to ease some of the unknowns…

 

It helps “all of us” ~ to help you ~ if we know where you are on your path.

Thank you for your "signature"....

Please stay with us and take our hand when you need it!  Keep posting.... OKAY!!   

  

KNOWLEDGE IS POWER... and POWER conquers fear

  

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

 

 

Buddy & I invite you to visit our personal thread “Our Journey”… listed in our signature below.

Hoping our experience can help you over at least one stepping-stone on your journey. 

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Our thoughts and prayers will be with you as you continue to move forward in your search for answers… Stay Close!

In Friendship ~ Lee & Buddy

 

P.S.  We agree with Bob.... Kegels was and is a huge part of our recovery ~ we feel strongly about this...  our routine is posted in "Our Journey" listed in our signature below.  :)


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

4th PSA 2-13-2008 (23 months) Less than 0.1 Non-Detectable :)


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 3/5/2008 7:45 PM (GMT -7)   
Bill - We're Floridians also - Don had surgery at Moffitt Cancer Center in Tampa. I read your post (you've had great responses by the guys here) and I just wanted to say how glad I am you had good results with your surgery. You've been through much in the recent past and now your recovery is the most important thing.

Welcome to Healing Well,
Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 3/6/2008 10:03 AM (GMT -7)   
Hi Bill,
Everyone is right, kegels is the key word. Patience is one too. Don't expect miracles, it will take time. It helped me to note and concentrate on any progress, no matter how small. I am now 14 months post surgery, and still wear an ultra thin pad (for confidence mostly). I still feel the occasional drip, and suspect I will for a while yet. Many on this forum have had much quicker results....everybody heals at a different rate. Good Luck!
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear. February 2007 - Three to fo ur pads a day, no erection with viagara. April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.July, 2007 - Six Month Post-op: PSA 0.04 No change in ED. October, 2007 - Nine Month Post-op: PSA back down to 0.02!Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment. January 2008: One Year Post-OP PSA 0.02 still dripping, but improving. Tried 500 dose of MUSE for ED, no luck. Will try 1000.


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 3/6/2008 11:45 AM (GMT -7)   
Do not want to cast doom on you. But if things do not improve there are other options. It could always be worse!
Just hang in there and do not rush into anything. Give you body a chance to adjust.

KW
    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
 
     

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