Rob's update from MRI and radiation

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lifeline
Regular Member


Date Joined Aug 2007
Total Posts : 67
   Posted 3/8/2008 3:10 PM (GMT -6)   
Hi everyone:  Rob and I went to Sudbury this past Wed. for his radiation on his spine (C7) because of the numbness in his hands and arms as i mentioned before. Sometimes i really think that he and i have blinders on. Because we were scheduled to go back on the 19 and 20th of Mar. we just assumed we would only be away for a day or two. When we met with the radiation oncologist we were told we would be there for 10 days except weekends. They don't do treatments on weekends. He expained that because Rob had just had that area done in Dec. he had to do really low doses (200 rads. each session) where normally he does 2000 rads per session. He has had too much done in that area and this is the last time he can radiated that area. We were told that if he did larger doses there would be a 90% chance of paralyzing him, but doing small doses there is a 5% chance that maybe in 5 yrs. he might be paralyzed. Dr. looked at Rob's hands and said that he has muscle atrophy which is caused by the tumor on the nerve.  Man were we ever scared. I asked Rob if he wanted to think about this first but the dr. said (go for it, that's why i brought you down for this). He seems to be pretty sure that this will give Rob back his feelings in his hands and that the tumor will shrink from radiation. I asked if this meant that chemo wasn't working and he seemed to think that it wasn't. That threw us for a loop. If this is the case why are we bothering with chemo? We met with the chemo dr. next day and I mentioned what we were told about chemo not working. Dr. said that it's too soon to tell. (Rob just had his 2nd dose this past Mon.)  Really confused now but I guess a chemo dr. would know more about this than a rad. dr.  The tumour is in the nerve channel. this is how it was described to us.  We were so taken off guard and stunned at how long we would be away from home and family. I guess by now you guys have figured out that we are really home and family people. Anyway, when we got to the motel room we both just fell apart. We both just cried and I felt so bad for my husband because he is so used to being in control of his life that now everything seems out of his control. Depending on me more due to loss of the use of his hands is getting to be more than he can handle. He has asked god to take his hair just give him back his hands. My oldest daughter told us to use her car but I thought we would only be away for a few days.  We came home for the weekend since there's no treatment till Monday. She has no problem letting us use her car for the next 1 1/2 weeks but it's hard for us to accept this. We have no choice since our vehicles are not reliable enough to take. My sister is helping us financially and our other daughter and son-in-law have covered our gasoline. Our son is cooking and freezing meals for us to help with cost of eating. We are so lucky to have family like this and while we are grateful our pride and independance is taking a ??? kicking. Somehow to us it should be parents helping their kids not the other way around. I guess we have to get over this. Rob is on Prednisone to hopefully shrink the swelling that radiation and chemo also cause for awhile which we did not know till now. His appetite is unbelievable and i can't keep up with the food he wants. It's like he has no control. I also noticed that his mood changes. When we were in Sudbury we walked to the store and the parking lots were extremely icy. I was holding his arm and he chose the worse, most dangerous path to walk. When I tried to steer him to a better path he balked me. At that point I lost it and shouted at him (what the ??? are you doing, look at the ice). He called me a few choice names and at the motel door I told him to go to the room himself while I walked to the drug store myself.  When I got back to the room he couldn't get the door open himself and was standing there.  I felt so low and bad at leaving him to manage himself when I thought he would have trouble. It's like he is in a fog sometimes and isn't thinking straight. My daughter says that Prednisone can do this. (her husband has MS and is on this drug) I'm scared to leave him alone at the motel because I don't know what he will try to do by himself.  I just feel overwhelmed with this. I guess I'm used to being home where I have family to talk to or go and visit sometimes. Anyway, we are both dreading going back to Sudbury this Mon. and we will not be coming home for the following weekend.  We will be done his radiation on Mar. 20. I know that all of you are praying for us. May I please ask for a prayer that his hands be given back to him and the radiation and chemo work. He handled this last dose of chemo so well that he is asking the dr. to keep him on the 3 week plan instead of moving him to every 4 wks. I am still worried about weight loss during chemo, especially when he isn't vomiting and is eating so much. If anyone can add anything about this I would appreciate it. Thanks so much everyone for all of your support and caring. I feel like I'm not giving much back.  I haven't forgotten anyone of you and am still praying for you. I will read here again before we leave Mon. morning and when we return on the 20th I will touch base again. Again, thank you everyone and keep fighting, stay strong and be positive.  Bluebird, thanks so much for posting The Power of Hope. I have printed it out and am taking it with us to read over and over again. Good timing. Talk to you guys when we return. All the best, Lifeline

myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 3/8/2008 6:04 PM (GMT -6)   
Lifeline,
I cry reading your post...I feel so badly for this place you've come to. You have a tough road laid out for you and I'm sure at times it seems impossible to keep going.
But then, I read back to past posts and I'm amazed at what you've done. How very strong you are when it seems you think you're weak. How brave you are when you are feeling nothing but fear. How much you love Rob when you think you can't take another minute of this. He must love you very much.
You family is wonderful and it's good for them to help you out in such loving ways. This is part of children being a blessing, yes?

You are a help to everyone of us here by letting us in. We need to learn from you and I for one am exceedingly grateful you are baring your soul to us. You're braver than you will ever know.

Do not doubt for a minute that we here on this forum are thinking of you both and praying for you. We'll be looking for your return.

God speed,
Susan

biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 3/8/2008 6:29 PM (GMT -6)   
Dear Lifeline,

Thank you so much for your post and for your courage through this hard time for Rod and you. You help us all so much by letting us into your life a little bit.

Being away from home, having strangers in control and fear of the unknown would make anyone anxious about the furture. You are so brave...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
"Patience is essential, attitude is everything."
 


anniea
Regular Member


Date Joined May 2007
Total Posts : 234
   Posted 3/9/2008 12:17 AM (GMT -6)   

Dear Lifeline,

I am so sorry to hear what you & Rob are going thru, it is so unfair. I can't offer any help, other than prayers for you both on the the treatment issues. You mentioned that your sister and your children are helping and that you felt it should be parents helping their children..... My mom died of small cell lung cancer this past year an the last 2 years of her life she was completely broke. Rick & I were able to help my mom & step father out financially, Now that mom is gone I have no regretts and if I could do it over again I would give her more. Please don't feel bad about your children helping you, You and Rob sound like wonderful people and I am sure your children feel honored to help in anyway they can. Hang in there & feel the prayers and warm wishes coming your way.

Diana


Rick & Diana
Age 68/ 67@ Dx
6-30-06  PSA 2.54
1-22-07  PSA 4.98
1-26-07  PSA 5.09
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
3-6-07 Triple Spinal Fusion (due to old back injury)
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
6-9-07   PSA 0.02
7-6-07   PSA 0.03
8-1-07   CT Scan & Chest X-Ray   Clean
 9-26-2007 PSA 0.07
11/1/07 PSA 0.1
11/30/07 PSA 0.12
01/31/2008 PSA 0.3
03/01/2008 PSA 0.3


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 3/10/2008 8:30 AM (GMT -6)   
Lifeline & Rob need our support more than ever as they deal with the hard time they're going through...I want them to know they can count on us.

Susan

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/10/2008 7:17 PM (GMT -6)   

Dear Sweet Lady,

 

Our thoughts and prayers are with you.  You will be back in Sudbury as I type this… but no matter where you are ~ we are All There With You.

Stop fighting the gift of giving that your daughter wants and needs to do.  It will ease her mind knowing that you are traveling in a secure vehicle.

Sometimes it’s a matter of timing ~ when we say something or type something… we never know what impact it will have on others. 

When I first posted “Our Journey”… I made a statement that I hoped we could help just one person by telling our story.  Jetguy came back and said it not only touches one person… it touches the whole family.  I’ve never forgotten that reply!

You’ve touched a lot of lives by reaching out to all of us and by letting us reach back in our own special ways.

When you feel a gentle breeze  on your cheek ~ it’s a gentle reminder that we are close.

Continue to stay close and know we care.

Warm Thoughts and Gentle Hugs surround your and Rob.

In Friendship ~ Lee & Buddy


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 3/11/2008 8:02 PM (GMT -6)   
Lifeline-
I wish I could give you a hug....so please know that I am sending you one from Seattle. You will both be in my thoughts and prayers as you continue with treatment. I had a similar situation with helping my parents out during the surgery part of my father's treatment and to be honest, I was hurt when my parents didn't want to accept my help financially or felt bad when I took my dad to his appointments in Seattle. There is no room for formality with family....my money, cars, whatever are theirs too.
Remember, as daughters, we would walk through fire and back for our parents. I'm sure it makes your daughter feel good to be helping out and lending you both her car. I know I would feel good. I know it's hard to accept it, but if that is how she is able to help, let her help. She sounds very sweet...a lot like her mom:) Wishing you peace and hope!

Chayna
Father's Information
DX July 15, 2007
Age 62 (now 63)
PSA 5.5
Original Gleason 3+4=7 
Post Surgery Gleason- 4+3=7
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin
One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
T3a N1 M0
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07
Lupon beg. Dec 03, 2007 2 yr
Radiation soon to follow
 
 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 3/12/2008 4:11 PM (GMT -6)   
Bump for the Team - Let's keep them in our prayers

Susan

myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 3/15/2008 1:39 PM (GMT -6)   
Hope all is well.


Thinking of you Lifeline & Rob,

Susan

lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 3/15/2008 9:25 PM (GMT -6)   
Prayers go out to you Lifeline & Rob . . . .praying for a successful outcome and that you have the strength to cope through all this.
;o) Linda & Bob


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 3/18/2008 9:58 PM (GMT -6)   
Lifeline,

Thinking of you both.

Susan

Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 3/18/2008 10:02 PM (GMT -6)   
Ditto! Many hugs, thoughts and prayers.

swim
 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 3/22/2008 2:10 PM (GMT -6)   
Lifeline,

Well, you should be back home if I figured this out right...as you can see we've been thinking of you both and sending you strength.
Looking forward to your update.

God Bless,
Susan

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/22/2008 2:31 PM (GMT -6)   

Lifeline ~

Our thoughts and prayers surround you!

Stay close ~ as we continue to walk with you…

Warm Thoughts and Gentle Hugs from Lee & Buddy


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 4/2/2008 4:41 PM (GMT -6)   
Lifeline - how is Rob?

Many are hoping to see you here.

Susan

Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 4/3/2008 12:01 PM (GMT -6)   

Lifeline-

Thinking about you and Rob and keeping you close in prayer!

Chayna
Father's Information
DX July 15, 2007
Age 62 (now 63)
PSA 5.5
Original Gleason 3+4=7 
Post Surgery Gleason- 4+3=7
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin
One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
T3a N1 M0
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07
Lupron beg. Dec 03, 2007 2 yr
Radiation started March 03, 2008 7 weeks 5x a week
2 weeks of radiation down!!!
 
 

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