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Eagle10
New Member


Date Joined Mar 2008
Total Posts : 15
   Posted 3/10/2008 5:44 PM (GMT -6)   
So,
  i am a college stuedent. I found out that my dad has prostae cancer. They said that caught it early. I am kinda shaken up by this news. Anyone have any advice for me?
       Thanks

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/10/2008 5:51 PM (GMT -6)   

:-)    Hi ~ Eagle & Loved Ones ,

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

Knowledge gives us POWER….  POWER takes away the fear.

 

~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~

 

 Click  on  link  below for important information that will help you ~ help us!!

 

tongue  Welcome New Members ~ to HealingWell

 

The information (link) listed above is to help you get around the forum! 

 

v       This is a journey best traveled with friends. 

Welcome ~ New Friend from all the members here... on HealingWell.com

 

v      IdahoSurvivor ~  Moderator for Prostate Cancer Forum

http://farm2.static.flickr.com/1160/1313099593_9f819e3ff8.jpg

 

v      TC-LasVegas ~  Moderator for Prostate Cancer Forum

 

v      bluebird ~  Moderator for Prostate Cancer Forum

http://i206.photobucket.com/albums/bb179/mamabluebird1955/mamabluebirdWelcome.jpg


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/10/2008 5:56 PM (GMT -6)   

tongue  Hey ~  Eagle, Dad, & Loved Ones,

 

We know ~ we can “all” make “Your Journey” smoother just by being here for you! 

This is truly a great forum!!! ~ You have joined!  You are now part our forum family ~ a group of wonderful individuals who are so willing to share...  It helps “all of us” ~ to help you ~ if we know where your loved one is …on their path.

 

Pull from “all of us”… things that will help to make your dad’s journey smoother.

The more "specific" information we have on your dad's test results (see member's signatures and the links in your welcome message above) to help guide you and us.

 

Please stay with us and take our hand when you need it!  Keep posting.... OKAY!!    yeah    

KNOWLEDGE    IS    POWER  ...  and  POWER conquers  fear

 

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

 

Our thoughts and prayers will be with all of you as you continue your research.

Keeping you and your dad close in thoughts and prayers.

In Friendship,  Lee & Buddy

 

“God Bless You”

It's a little prayer  ~  "God Bless You" ...but it means so much each day,

It means may angels guard you and guide you on your  way. 


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

4th PSA 2-13-2008 (23 months) Less than 0.1 Non-Detectable :)


Eagle10
New Member


Date Joined Mar 2008
Total Posts : 15
   Posted 3/10/2008 7:46 PM (GMT -6)   
I am not gonna lie. It is a tough time right now. But i know that this site will help me. So thank you to you all. And it you have anyy advice to give a 14 yr old. that is my sister and she is struggling worse than i am. THanks!!

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/10/2008 9:21 PM (GMT -6)   
Hi Eagle10,
Your dad must be a special guy to have a child like you so determined to help. And not selfishly but for you and your younger sister. My son was 20 when I found out about my disease. I just told him straight. I kept him informed but I also told him that this disease can have very good outcomes. I told him I was a bit afraid, but mostly I did not want to not be here for him and my wife. 14 is old enough to understand pretty much most of what we go through. I am certain she will understand that your dad wants her to believe that he will be OK. For me, as a dad, I let him know everything. Sometimes had to time some information but he has it all. He has been there for me, and it's all I could ask for. The best advice I can give is be supportive, (both dad and sis), and take the time to continue to learn about this disease. Is your mother with you? You don't say but I ask, as it gives our "motherly" members a special heads up.

I am also a religous man, and I do keep my Faith in my fight along with Love and Hope. So God Bless you , Eagle10. In you, your dad already has at least one very special helper. Feel free to stay and ask any question.

Tony


Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator

Post Edited (TC-LasVegas) : 3/10/2008 9:25:30 PM (GMT-6)


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 3/10/2008 9:49 PM (GMT -6)   
Hi Eagle10,
 
A very WARM welcome to you!!! yeah

 

What a great son you are!

 

You have a right to feel scared and frustrated.  All of us went through these normal feelings when we or our loved ones had our lives changed by dealing with a new challenge.

 

As Bluebird and Tony have told you, there are three key aspects to help you... (1) There is a lot of good information that is available to you, (2) You have friends here that will not judge you, but they will listen and help you and (3) hope springs eternal.  Hope is what we hang on to each and every day.

 

Now is the time to take some deep breaths and gather all the strength you can muster to help yourself, your Dad, and your sister.  Be patient with yourself and your feelings.  There are some methodical next steps to take to get your Dad on a good track.

 

Feel free to ask any questions you'd like to ask.  There are no "stupid" questions on this forum.

 

Give your Dad and sister a big HUG from all of us here!

 

Kind regards,

 

Barry


"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  9/11/2007   <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

My web site: http://pca-info.blogspot.com


Eagle10
New Member


Date Joined Mar 2008
Total Posts : 15
   Posted 3/10/2008 10:15 PM (GMT -6)   
Yes my mother is with us as well. She does not know how to act. I am away at school. So i cant be home. That is tough. MY mom is taking it hard to. She has to be strong for my dad and my sister. Any advice that anyone gives me is great. I dad goes to the doc. tomorrow to talk to the doc. Any advice is always helpful. I am going thgout so may emotions. I am angry that it is happening to my family, i am sad and cry alot, and i am so worrie that i dont sleep at night.... are these normal???

IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 3/10/2008 10:37 PM (GMT -6)   

Dear Eagle10,

 

Your feelings are perfectly normal.  Denial, anger, and wanting to know why this happened to me or to our family are all common feelings.  Talking about your feelings with friends will help.  I think you'll find others who have gone through or are going through this in their families.

 

I am encouraged by the statement of the doctor as you mentioned... "They said that caught it early."  This is always a good sign.

 

You live in a time where there are many treatment options.  I assume by the doctor's statement that your family has much time to consider those options.  Second and third opinions by health-care professionals regarding your Dad's treatment options are always a good thing and doesn't offend doctors.

 

Bluebird has prepared many links in frozen topics at the top of this forum regarding the process of diagnosis and treatment.  There is often several treatment options that are very appropriate for a person in the early stages of Prostate Cancer. 

 

This news is no fun, very disturbing, and life altering.  However, I will tell you that when you catch this disease early, your opportunity for long-term survivial are statistically very, very good.  

 

In addition, it may sound peculiar now, but there are many studies showing prostate cancer survivors are happier than the population of men who never had the disease.  Perhaps this is because they have overcome a big challenge.  I'm not sure.  But I can tell you that I value the time I have with my family and friends even more that I could have imagined one year ago.

 

Sleep is important to you as a college student and as a supporter of your family.  I hope you can find some peace and comfort as you take one day at a time.

 

God bless you.

 

Kind regards,

 

Barry


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/10/2008 11:04 PM (GMT -6)   
Eagle10,
Yes. They are normal feelings. But you can cope with them. I know it's hard for you but you are not losing your father tomorrow, and likely not at all. We here have a very good peace of advice. Learn about this disease. Knowledge will slow the fear. Eagle10, I do know what it's like to not be able to be near your father at a time like this. A similar thing happened to me. Anger, sadness, worry, loss of sleep, dang these are normal feelings, and I had them. There are other feelings that make these ones pale by comparison. For example, Love, Faith, Hope, Caring, knowing, helping, believing, understanding, just to name a few. You can be the leader of the family research team, or you can be the leader of the watch out for little sister team, or many other roles you can take on. Try to get some rest because your dad can use a fresh you. Try to replace anger and worry with knowledge. Start by learning the stages, and Gleason system, and the PSA. Get those in your signature, then let us ask you the questions if you like. Remember we share our information so that those who live with this experience can help each other. I just bumped a thread called "Videos". check on them and ask your dad what he knows. Ask you dad if he would share the technical information with you. Here are some questions:

1> What is your PSA? (should be between 0 to 4 for normal, mine was 19.8)
2> Why did you get tested?
3> What is your Gleason Score? (should be between 2 and 10, my Gleason Score was a 7)
4> What are you planning to do next? (Common treatments are Radiation, Surgery, and Hormone Therapy)

Your dad's age will also help us help you. When you have gathered the information there are some more things to learn, but we can help. So if you can post what you have learned and we can show you how to get to the next step. Again, Bless you, Eagle10.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 3/11/2008 7:09 AM (GMT -6)   
Finding out your loved ones have cancer is tough, finding out you have cancer is traumatic. I lost both of my parents to cancer (GI/Colon). I find that the best thing to do is arm yourself with as much knowledge as possible, sites like this are wonderful. I needed my world to remain as normal as possible to provide me with stability while I was mentally wrestling with the personal diagnosis of cancer, fear of being unable to care for my family, do my job, etc. Hang in there, there are many treatment options and all have good outcomes, your dad will have a rocky road for a few months, but all will be well. Good Luck.
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.004
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement, more notable over last month
with Viagra 100 mg.


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 3/11/2008 7:35 AM (GMT -6)   

Eagle10,

First, great screen name choice. The changes that are taking place in your fathers life now are dramatic and will require much support from you, your sister,and mother. My great nephew (he is like my own son) was 13 when I got the news about my cancer. I told him about everything. I left knowthing out. He has handled it very well. Even when the diagnosis changed last year. The unknown is hard to deal with, but knowledge is power. Get educated on this monster. Comfort your mom and sister. Hold yor father close and show him that you stand with him. There is no time to be wasted in asking questions such as "Why Me".

I discribe how I felt after being diagnosised as being put on the other side of a fence from everyone that I knew. I found that I had to be the comforter for my family and friends. The people here at Healing Well, along with my wife, have been my comfort givers. Their knowledge and experiences give me strength. You will find it also. The information that Tony has asked for will help us all understand your fathers condition better and show you the path you must choose in helping you father.

The most important thing that has helped me on my journey has been my faith and the prayers from so many people around the world. Pray for strength, wisdom, and guidance. The strongest drug we have to beat PC is love. Love your father, mother, and sister. Never let them feel that they are alone in this battle. Love will always win.

We will add your father and your family to our prayer list down here in "Sweet Home Alabama" and ask that you stay close to us here at Healing Well. God bless you.

You now have many more brothers and sisters on this journey.

Love, peace, and a big War Eagle,

Walt 


Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Casodex 4/2007
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
PSA 6.72 1/2008
PSA 8.23 2/2008 - Starting prednisone for 30 days
PSA 14 2-29-2008 - start chemo on 3/12 
 
"I will persist without exception - I will find a way where there is no way"


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 3/11/2008 8:34 AM (GMT -6)   
Eagle10,

The feelings that you are having are the same ones that your dad is having. Here are a few points to remember.

Prostate cancer is curable not just treatable. Especially when caught early.

There are several different types of treatment and choosing one is difficult as it is not straight forward.

While men fear the cancer first, the possible complications of incontinence and impotence weighs heavily on them.

You do not say whether you are male or female but if you are male there is a higher chance for you to get prostate cancer when you are older now that your dad has been diagnosed.

Prostate cancer is a couples disease, not just the male.

Education and knowledge are the key weapons. Encourage your dad to research and study before making a treatment decision.

This is a life changing event for your dad. No matter what treatment he chooses he will be different afterwards and he will have to deal with it.

The expertise of the treatment provider impacts the degree of complications.

God Bless your family.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 3/11/2008 9:12 AM (GMT -6)   

I am sorry to say that I am in the same boat.  (My father has prostate cancer)  I found out this past July.  I went through all the emotions, just like you.  The previous posts are right on.  The one thing that I will add and this is just in my opinion and experience, I know others may differ, but, I found it very important to have someone besides my immediate family to cry to.  In my case, I had to be strong for my family and I was and continue to be.  I cry in my room and to my husband when I need to cry.  Otherwise, I am my dad's and mom's biggest cheerleader.  They need the support...even more than we do right now.  I figured that I didn't want my parents to worry about how I was handling the news on top of everything else they would be worrying about.  Your dad will be ok, so will you, even though you might not feel like it right now.  Hang in there and use this site for support.  It is incredible.  Get educated on PC, oncologists, surgeons, support groups...just like you are doing and BELIEVE!  Best wishes to you and your family! 

 

 


Father's Information
DX July 15, 2007
Age 62 (now 63)
PSA 5.5
Original Gleason 3+4=7 
Post Surgery Gleason- 4+3=7
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin
One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
T3a N1 M0
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07
Lupon beg. Dec 03, 2007 2 yr
Radiation soon to follow
 
 


Johnny Canuck
Regular Member


Date Joined Jan 2008
Total Posts : 88
   Posted 3/11/2008 11:05 AM (GMT -6)   
Welcome aboard, Dude,
I gave my son (15) the news back in December...early stage prostate cancer, and he told me that it's easily cured at this point. I'm guessing he started investigating as soon as I got my biopsy. After my CT scan, and a talk with a radiation oncologist, I gave him further information, told him that he spoke in terms of a cure. The doctor had said, and I quote, "If you're gonna get cancer, this is the one to get." He just looked up from his computer and said "Told ya so".

That is to say that it's a really big deal that you're here and finding out what's what because you sound like you're ready to help the family out by providing some strength. Personally, I found that the biggest draw on my psyche was the need to reassure others that this was nothing to worry about...even as it was freaking me out. I found it an incredible help that I didn't have to expend a bunch of energy keeping him on an even keel, as he was already there.

I chose to look at some complementary medicine on top of standard treatment. That's an individual choice. Look around, but no need to get overwhelmed...and if you do, come here for clarity. We may not have all the answers, but we'll be familier with the questions. Post the info on your Dad, and that'll help us to h3lp you, if we can. Chin up.
Age: 54
Gleason Score: 6
PSA: 3.33
Biopsy:6/8 Positive
Stage: T1c
Prostate Size: 27cc
 
Diagnosed: December 05, 2007
Brachytherapy: February 26, 2008
 


Eagle10
New Member


Date Joined Mar 2008
Total Posts : 15
   Posted 3/11/2008 12:18 PM (GMT -6)   
THat is all great advice. Thank you so much. IT seems that i may not have given enough information about myself. So here is some background. I am from Tennesee. I got to college in Tennessee but awy from my home town. I am a girl. I am the oldest child in my fmaily. I have a yougner sister who is in middle school. I am a human services major. But enough about my. THey said that my dads PSA score was a 6.8.... i know that it is not bad, but not great. They meet with the doctor in a few hours to disucss treatment. The doc told my dad about a treatmetn in Atlanta GA, that was pretty mudh justy radiation and some kind of seed. ANyone know what that is about. THis may seem werid, but my dad is ver concered with leaking after all this. Got any advice ??

Johnny Canuck
Regular Member


Date Joined Jan 2008
Total Posts : 88
   Posted 3/11/2008 1:08 PM (GMT -6)   
ok...Dudette...my apologies....lol.
The seed being discussed is the same treatment I had, and it's called brachytherapy. It involved giving the patient a spinal to freeze his lower half, and implanting a bunch of small radioactive seeds into the prostate. This serves to put a measured dose of radiation exactly where it's needed. It's done out-patient...same day, in and out. By your note, your Dad might also require external beam radiation therapy. You'll know more when he gets back from the doctor.
 
I had the seeds done two weeks ago..I have a thread here discussing that process, but there are others who have been at it longer. I'll point out a thread by justjulie:  http://www.healingwell.com/community/default.aspx?f=35&p=1&m=710102
 
But I'd get your Dad to check out this site. There is a lot of info about prostate cancer on the internet...lots of it hooey, lots of it scary. This site has provided the most balanced and direct source of information that I found after a couple months of searching.  Look forward to hearing from you.
 
...and an edit to say that 'leaking', presumably incontinence does not necessarily follow, nor need it be permanent if it does. Best advice I got? Take care of things as they come and don't worry too much about what's down the road, because much can change along the way.


Age: 54
Gleason Score: 6
PSA: 3.33
Biopsy:6/8 Positive
Stage: T1c
Prostate Size: 27cc
 
Diagnosed: December 05, 2007
Brachytherapy: February 26, 2008
 

Post Edited (Johnny Canuck) : 3/11/2008 1:18:17 PM (GMT-6)


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 3/11/2008 1:17 PM (GMT -6)   
Eagle10,

Thanks for the information. By the way, I had robotic assisted laparoscopic prostateectomy done at Vanderbilt University in Nashville. As to the leaking I can give you the statistics of my surgeon. He has done over 1400 robotic assisted surgeries. At six months post op 90% of his patients are fully continent. Another 8% have stress incontinence which is leakage during strenuous activity or with a hard sneeze. The other 2% have leakage that requires additional intervention. In the case of surgery the expertise of the surgeon can impact these statistics. Your dad's Gleason score is an important number. It indicates the agressiveness of the cancer. The higher the number the more aggressive. Most men will have some leakage after the catheter is removed. It improves over time. In my case I became mostly dry at two months post op and completely dry at three months.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


Eagle10
New Member


Date Joined Mar 2008
Total Posts : 15
   Posted 3/11/2008 2:04 PM (GMT -6)   
IF you dont mind me asking. If you are doing your treatment at Vanderbilt, who is your surgeon? Also. what about hormone theapry. Is thier anyhitng yall could change in your treatment. OR any suggestions that might help new timers at this?

Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 3/12/2008 4:11 AM (GMT -6)   
Ms. Eagle 10,

Concerning your younger sister, I've been teaching kids at my church for 19 years now and yet offer only simple guidelines.
   Teenagers and their relationships with their parents are all different -
     - and this makes general advice on this topic a slippery slope.
My main advice is, cry when you feel like it - but do not linger in despair -
     - especially around your dad.
This disesase is very treatable.
Research indicates recovery rates are higher with optimistic patients.
Laughter is medicine.
Just be there for one another as best you can as you continue to live your lives.
     This will be especially challenging to your efforts in school.
     Do not be afraid to look up a school counsellor for support.
We of course will be here for you -
   - especially the kind and informed daughters, spouses, and dads that post here.

Copy some of this stuff and other posts and email it to your dad:
Your Dad's concern about incontinence is important.
I add to what the others have said:
   I would not choose treatment based on some idea that one treatment causes less incontinence than another treatment. 
Radiation delays incontinence (and E.D.) but both are still usually isssues.
(Proton Therapy may be the exception here.) 
While a very few patients experience no incontinence, -
  - except for a very few -
     -almost everyone overcomes incontinence within 12 to 16 weeks.
In the meantime, as you wait for biopsy information and regardless of treatment choice, I would recommend that your father start doing 3 sets of 10 kegel exercises every day.  (See my "incontinence" link in my signature for some discussion on kegels.) 

As we your friends here get more information about the biopsy and your father's age and treatment of choice, our posts will be more relevant.  Your father and mother should investigate the indexes found in the 4th or 5th post of Helpful Hints thread at the top of this page.
It has excellent examples of decision trees for treatment choice and prognosis of recovery from prostrate cancer, incontinece, and E.D.

Your Friend,

CCedar
ICTHUS!

2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
OPEN R P 16FEB07 at age 54. 1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  PSA: 6 mths <.003  :)   9mths <.008
:)  1 Yr <.008 :)
At 1 yr, ED treated with 100mg Viagra Often -  5 Year Colonoscopy 19FEB08:  Clear!

Eagle10
New Member


Date Joined Mar 2008
Total Posts : 15
   Posted 3/12/2008 7:40 PM (GMT -6)   
OK. so here is new information about my dad.
PSA- a year ago 3.2... now: 6
Gleason:3+3=6
T1
* They gave him the option of having the seeds implanted or having the robotic surgry. What do you a suggest. I said the surgry. MY dad is worried about leaking, he feels slef coscience abotu wearing a pad. Any advice?? They said they would wait to talk about radiation til after surgry. Got any advice??
 
Kristen
Dad:
PSA- 6
G.score- 3+3
Doctor told him that surgry was best. Date not set yet.


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 3/12/2008 7:58 PM (GMT -6)   
This is a decision that only your dad can make.
 
If I were in his shoes, I would consult my urologist...maybe even a couple of urologists...before making a decision.
 
In my case, with a PSA that rose from 1.8 to 14 in a year and from 9 to 14 in 3.5 weeks.....and a Gleason score of 9, my doctor said that surgery in his opinion was the only reasonable option.  Another uro backed up that opinion....but that was me...
 
As for wearing pads, it is not the most fun in the world, but compared to dying or other problems, it is a mere nuisance for most men.  My recovery from incontinence has been slowed by other problems (an infection and hernia surgery), but I am down to one pad a day after starting with twelve a day.
 
It is nothing to be embarrassed or self conscious about.  It gets better and in the vast majority of cases, it does go away in time....might be days, weeks or months...but it does clear up usually.
 
My prayers and good wishes are for your dad.
 
Bob
Danman Bob
Age 57
Prostate removal November 2007
Gleason score 9, TC1
Biopsy result - 9 of 12 sticks showed cancer
Despite high Gleason score, cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (1 to 2 pads a day)
Began using Osbon Erec-Aid Esteem manual pump for therapy mid-February 2008
Begain using Viagra 3 times a week December 2007 to stimulate blood flow


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/12/2008 8:05 PM (GMT -6)   
Hi Kristen,
The grade 6 disease is curable. There is definately a debate as to which is the best way to go after it. I had the surgery and I don't have serious issues from the surgery. I even added radiation and hormone therapy, but my case is advanced. Your father has reasonable concerns and may change his mind a couple times. I agree with your call for surgery, but I did what was right for me and I was most comfortable with. You may wish to add your fathers age to the signature line. Some radiaologists, including mine, were against using interstitchal seed implants because of my young age. He said surgery would be more definitive and both could have the same side effects in time. Again contraversial, one good argument for surgery that all of the other treatments lag in is a more definitive pathology of the removed prostate. You are doing well with your research. Hopefully you had a chance to review some of the videos here. They do show the various treatment options and are educational. God Bless and stay positive...(where have I heard that before?)

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


Eagle10
New Member


Date Joined Mar 2008
Total Posts : 15
   Posted 3/12/2008 8:39 PM (GMT -6)   
Thank you all so much for all the advice. I will add my dads age to the profile. The robotic surgry i belive he is leaning more toward. He meets with some doctor tomorrow to talk about more options. IS it werid that he copes with this by making jokes? It makes my mom really mad. But it keeps saying it is not a big deal. My dad is a dentist and he even told the people that he works with that it it not a big deal. and well be back to work in no time. IF you all work how long were you out of work, or how long was recovery.. or.. this quesiton might be better. HOw long til your PSA was normal.. and undetectable.
Dad:
PSA- 6
G.score- 3+3
Doctor told him that surgry was best. Date not set yet.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/12/2008 9:05 PM (GMT -6)   
Many return to work in just a couple weeks but I believe that a month out is quite common. I was lucky enough for the PSA to drop out in less that 45 days without any additional treatment. Again, I am an exception and have had to proceed with more treatment in hopes this does not return. But you can see my numbers were quite different than your fathers. i believe your fathers attitude is wonderful and he should carry on. And you should encourage him to stay positive and hopeful. Laughter is good medicine.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


Eagle10
New Member


Date Joined Mar 2008
Total Posts : 15
   Posted 3/12/2008 9:22 PM (GMT -6)   
THank. My mom appreciates all the advice that yall are giving me. He main concern in my father. I will update yall when i know more about his doctor visit tomorrow. Just remeber what i best friend told me toay when i told her about my dad.
She said: Kristen, God will never give you more than you can handle. He is right by your side even when you feel like no one understands, even when you feel alone. God is there. He is with you during the celebration, and the pain. So everyone take a deep breath and smile. God knows what we can handle!!!
Dad:
age: 58- good health overall
PSA- 6
G.score- 3+3
Doctor told him that surgry was best. Date not set yet.

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