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Just got Final Path Report

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Just got Final Path Report  
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Posted 3/14/2008 9:36 PM (GMT -6)

  Had the Cather removed, what a Male bonding experience that was also got my Pathology report. Final Gleason 6, yep,6, margins clean, no Lymph nodes, seminal involvement, negative, they kept the T1c at T1c,
size 26 cc, I mean  teenagers don't have
Prostate's that small.  It was a great report, now dealing with the Leaking thing. In addition, Dr. Tully is starting a new program to make the ED symptoms easier to deal with. Will start that program next week, will let you folks know how it is going. Any advice on the first few days in the incontinence thing ? 

Posted 3/14/2008 10:15 PM (GMT -6)

Congratulations on your excellent pathology report, FatCat!   You're well on your way to a prostate cancer free future. 

about the leaking:  For comfort, I think it's good to frequently change the Depends or other absorbent underwear you're using. And don't drink a lot of liquid before bedtime. 

The gusher usually slows to a trickle before you know it. (I didn't make it through an entire carton of Costco diapers before I didn't need them anymore.) 

Of course, now that I've been through the experience as an adult, I know exactly why a one-year old cries his lungs out when he has a full, wet diaper.

Take care and be well...Tim


Age 59  PSA velocity quadrupled in 1 yr (0.6 to 2.6) 
1 of 12 biopsies positive (5%) 
Open surgery June 2006 
Cancer confined to one small area Gleason 5 
PSA's undetectable
 

Post Edited (TimG) : 3/14/2008 9:20:35 PM (GMT-6)

Posted 3/14/2008 10:43 PM (GMT -6)
Congratulations !!!

Rest and recover...
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-18 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007); 4th post-surgery PSA: 0 (June 2007); 5th post-surgery PSA: 0

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on daily Cialis, L-arginine and pentoxyfylline. Peyronies has stabilized and significantly reversed.

- PGE1 batting average: .364 (4 for 11)
- Bimix batting average: .706 (12 for 17)
- Trimix batting average: .500 (1 for 2) Grand total 17 for 30 = .567

"Lost in the valley without my horses, no one can tell me what my remorse is..."

Posted 3/15/2008 12:16 AM (GMT -6)
FANTASTIC Fat Cat!!!  Based on what you're saying so far, you're doing great and if all continues well your "incontinence thing" should resolve in a few weeks time. 
In my case, I noticed that certain moves led to deluges at times, such as bending down to pick something up from the floor, or twisting the cap off a bottle of soda, or turning around to look out the rear window while driving my car in reverse, or sneezing, or coughing etc. etc. etc.
I became frustrated after three weeks or so but continued to make those moves (while wearing pads).  I figured I had nothing to lose.  And after about week six, I was pad free.
Everyone is different in terms of recovery.  My suggestion, though, is not to avoid ordinary movements that make you leak, but continue them (with pad on) until you regain continence.
Best to ya,
Tom

D.O.B - 8/9/52

PSA: First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06.  Both lobes involved.  Six out of eight cores positive - from 100 percent to 90, to 60, to 50, two 20s and two zeros.

Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.  Volume of tumor much less than biopsy suggested.  12 percent overall.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07

Third post-surgery PSA -- Undetactable, 2/15/08

Posted 3/15/2008 12:25 AM (GMT -6)

Everyone's situation with incontinence is different, but in my case, I felt "safer" wearing Depends AND male pads for extra protection.  Did this for quite some time, getting double protection if you will, but at least I knew I was unlikely to leak on something that would put my dear wife into orbit....lol.

The first 2 or 3 nights were tough for me....up about each hour to change a saturated pad....went through 5 or 6 pads a night and about 10-12 a day.

Now down to 1 lightly used pad a day.  My incontinence recovery was hampered by a groin hernia that I had to deal with for quite some time before the doc would allow that surgery.  Once I got past that, incontinence situation improved greatly.

Do your Kegel exercises religiously and hopefully your recovery will go quickly, but whatever happens, just be patient.

Congratulations on a very promising pathology report.

Bob

Danman Bob
Age 57
Prostate removal November 2007
Gleason score 9, PSA 14
Biopsy result - 9 of 12 sticks showed cancer
Despite high Gleason score, cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (1 to 2 pads a day)
Began using Osbon Erec-Aid Esteem manual pump for therapy mid-February 2008
Begain using Viagra 3 times a week December 2007 to stimulate blood flow

Posted 3/15/2008 3:08 AM (GMT -6)

Hi FatCat,

Great pathology report, I am really glad for you. Rick regained urinary control at about 4 months post op but even now if he gets really tired he will have some leaking (Very Little) once every 2 or 3 weeks. Give your body time to heal and all should be allright.

Warm wishes

Diana

Rick & Diana
Age 68/ 67@ Dx
6-30-06  PSA 2.54
1-22-07  PSA 4.98
1-26-07  PSA 5.09
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
3-6-07 Triple Spinal Fusion (due to old back injury)
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
6-9-07   PSA 0.02
7-6-07   PSA 0.03
8-1-07   CT Scan & Chest X-Ray   Clean
 9-26-2007 PSA 0.07
11/1/07 PSA 0.1
11/30/07 PSA 0.12
01/31/2008 PSA 0.3
03/01/2008 PSA 0.3

Posted 3/15/2008 2:41 PM (GMT -6)
FatCat,

That's great news - and encouraging for the many that will come after you. Rest, recover & reflect.

Best,
Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07

Posted 3/15/2008 4:06 PM (GMT -6)
Fatcat great report and glad the old plastic tube is out.

I had control the next day with exception of a sneeze that caught me by surprise. Now I noticed since then that I automatically go in a hold stage before a sneeze and I think that is the way I have always done it but never thought about it. I wounder if this good be a clue to the quick control I was fortunate to have. The point is there is nothing I did that I can think of that gave me such quick control.
When the swelling goes down you might see a step up in control.
Just relax, enjoy your time off knowing that each day you are going to feel better than the day before.
12/06/07 DaVinci and open prostate surgery after difficulties in breathing stopped the davinci.
Walked a lot
90% control the day the catherter removed.
pad only for a sneeze before the week was out
No pads most of the second week.

Posted 3/15/2008 9:54 PM (GMT -6)
Fatcat- I've found the best protection to use is what has the thickest padding: For the underwear I use Depend's "Super Plus Absorbency" (the 18 count is about $11), and then I put a pad in- For this I use Stayfree Maxi "overnight maximum protection" pads (the 28 count is about $5). Even tho' these pads are called "overnight" I use them in the daytime since they are so thick. Incontenance requires some mental toughness. I'm in sales, and while it's a pain to be this way, especially when you are on the move so much that at times you get overdue to change a pad, you have to work through it mentally. Just make the decision that you are not going to change your lifestyle because of this. Do your kegels, and odds are heavily in your favor that you will become dry again.
Posted 3/16/2008 12:15 AM (GMT -6)
Good report card Fatcat!
 

Posted 3/16/2008 4:27 PM (GMT -6)

Fatcat,

I don't think you could have asked for a better pathology report!  Awesome! tongue

Like others have said, now give yourself time to recover.  In "normal" (what's normal?) circumstances, the leaking will gradually subside over a number of weeks.

Kind regards,

Barry

"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  9/11/2007   <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

My web site: http://pca-info.blogspot.com

Posted 3/17/2008 9:28 AM (GMT -6)
Fatcat!
Great pathology report! Bet yoiu're glad to get rid of Mr. Hang! And for the leaking issue: Like the others have said, everybody is different. I am still wearing one pad a day after 14 months, so my progress has been slower than some. But, I am still seeing progress and some days am completly dry. My point is, if you don't become fully continent as fast as you think you should, don't give up! Take note of any progress, no matter how small, keep doing your kegels, and keep a positive outlook! That pathology report is worth it's weight in Gold! Go celebrate!
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear. February 2007 - Three to fo ur pads a day, no erection with viagara. April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.July, 2007 - Six Month Post-op: PSA 0.04 No change in ED. October, 2007 - Nine Month Post-op: PSA back down to 0.02!Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment. January 2008: One Year Post-OP PSA 0.02 still dripping, but improving. Tried 500 dose of MUSE for ED, no luck. Will try 1000.

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