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OK Folks, I could use some good wishes  
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Posted 3/25/2008 10:56 AM (GMT -7)
For those of you who have been following my husband's Brachytherapy journey, I have a somewhat disturbing update. 

Just when the Oncologist finally quelled my nerves about the PSA bounce, his Urologist has set my stomach in knots.  In December my husband had blood in his urine, I took him to the clinic to see if he had a urinary infection - they dipped and said no, and we don't want to start you on antibiotics because there is no infection - if it continues comes back, if not I don't think there's anything to worry about.

He mentioned it to his Urologist who has now scheduled him for a cystoscopy - they're scoping to check for a tumour in/on his bladder.  Please, if you could, think of me between now and April 29th, the date of his scope.  Needless to say I'm an emotional wreck but he seems to be holding up OK.  This has been quite a battle for both of us.  For your thoughts and support I am truly grateful.

JustJulie

Posted 3/25/2008 12:06 PM (GMT -7)
Hi Julie,
Hopefully this is just a minor setback. The waiting can get to be the worst part of cancer. Many of us have had that time to wait, and I for one had to turn to my Faith to get through it. Brachytherapy is a surgical procedure and it can be a slow heal. Hopefully your husband is taking it easy and giving himself a chance to heal. Stay positive, and believe that all thing will work them selves out. You have my promise of prayer for the both of you. Gather some of his strength for yourself. I believe you guys are still on the right path of healing. God Bless you, and be well.

Sincerely,
Tony
Age 45 (44 when Dx)

Pre-op PSA was 19.8

Surgery on Feb 16, 2007

Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)

HT began in May, '07 with Lupron and Casodex 50mg

IMRT radiation for 38 Treatments ending August 3, '07

Current PSA (1/08): <0.1

I will continue HT until May '09. 

Years in Remission (3/23/07): 1

Visit my Journey at:

http://www.caringbridge.org/visit/tonycrispino

STAY POSITIVE!

Prostate Cancer Forum Moderator

Posted 3/25/2008 12:09 PM (GMT -7)

JustJulie said...

  For your thoughts and support I am truly grateful. 

JustJulie

Our thoughts will be with you, along with our gratitude for your support for all as you ventured along your own path.

Putting a bunch of Vitamin C through the ol' system might be a pretty good idea at this juncture. Besides, it makes the pee pretty.

Meanwhile, good luck to the both of you...

JC

Age: 54

Gleason Score: 6

PSA: 3.33

Biopsy:6/8 Positive

Stage: T1c

Prostate Size: 27cc

 

Diagnosed: December 05, 2007

Brachytherapy: February 26, 2008

 

Posted 3/25/2008 12:13 PM (GMT -7)
Hey JustJulie,

Hopefully there is an easy explanation for his discomfort. You are on the right path getting it looked into. You are in our thoughts and prayers...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.

RRP 12/7/06. Nerves and nodes okay.

Catheter out on 12/13/06.  Dry on 12/14/06.

Pathological stage: T2C N0 MX. Gleason 3+4.

PSAs from  1/3/07 - 1/17/08 0.00. 

Next PSA test on 7/17/08

https://www.healingwell.com/community/default.aspx?f=35&m=759965

http://biker090.spaces.live.com/ 

"Patience is essential, attitude is everything."

 

Posted 3/25/2008 12:50 PM (GMT -7)

Hi JustJulie,

I hope the two of you can quickly get past this bump in the road with comfort in your hearts and confidence in your spirits.

God Bless

Frank

Frank S.

Age 53

Abmnormal PSA for 5 years>

2004 Biospy negative

2008 Biopsy positive (01-08-08)

10 cores, 1 positive and at 1% of that one core

Highest PSA 10

Lowest PSA   4

Current PSA   6

Bone and Ct scans negative

Staged at T1C

Gleason 3+3 = 6

Robotic Da Vinci scheduled March 27th, 2008

University of Chicago

Dr. Arieh Shalhav

Odd and unusual pain in pelvis, legs, hips, back and groin led to my insistance in another Biopsy (2008).  These symptoms have greatly improved after 5 months and all Doc's do not believe that these symptoms have anything to do with my Prostate Cancer.  I am not so convinced. May prove to be the most fortunate pain I have had.

03-25-08 pain is back in my lower back off to the right side. Very unusual.  I will be very interested after the prostate is out the 27th to see how if effects this roving/changing pain I have been having on and off.

Posted 3/25/2008 1:55 PM (GMT -7)

Julie

You guys are in my prayers. Hopefullly it all turns out to be nothing. God bless

Daveed

Diagnosed March 06

PSA 4.4

Two biopsies. One core of each 5% cancer, two suspicious

Gleason 3+3=6

DaVinci surgery Nov 1, 06

Cancer confined to prostate

Ist PSA 6 weeks post op less than 0.02

2nd PSA 4 months undetectable

Next PSA end of June

Posted 3/25/2008 2:10 PM (GMT -7)
Julie,

You guys have generously shared your journey with us, which is greatly appreciated. Though there are different paths to get rid of this cancer we all hope for the same results. I understand your fears and the waiting time is difficult to deal with. What WE can do at this point is let you know we're here for you and will support you both - you've done the same for us. Please stay close and let us know how you're doing.

All the best to you,
Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07

Posted 3/25/2008 2:43 PM (GMT -7)
You and your husband will be in my prayers, Julie.
Biopsy: Diagnosed March 25, 2007. PSA 3.0. Gleason 6. Five of twelve samples positive with <5% each. No perineural invasion seen.

Surgery: May 21, 2007, Florida Hospital, Orlando,FL
Post-op Pathology: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes. T2c

Continence/Erections Out of pads at five weeks. Ten months post-op I'm fully continent. No problems with having erections. Using Cialis
Post Surgery PSA: Four tests, all <0.1
Family history: Great-great grandfather died from PC. My Father had his prostate removed at age 67 in 1997 and has had an undetectable PSA ever since. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.

Posted 3/25/2008 3:26 PM (GMT -7)
Hi Julie,

We had a similar scare last summer with my daughter.  The problem turned out to be something unrelated to a cancer that she had overcome previously.  It was something minor and fixable, but scary all the same.  So, I'm hoping for the same minor problem for you and hubby.

I'm sorry about the wait for you two until the procedure.  You'll have friends waiting here with you :-)

Our thoughts and prayers go out to you and hubby.

Kind regards,

Barry

Posted 3/25/2008 4:05 PM (GMT -7)
Kidney stones might be his problem. Just a thought.
12/06/07 DaVinci and open prostate surgery after difficulties in breathing stopped the davinci.
Walked a lot
90% control the day the catherter removed.
pad only for a sneeze before the week was out
No pads most of the second week.

Posted 3/26/2008 6:09 AM (GMT -7)
Just lettin ya know Julie...you and DH are never out of our thoughts and prayers :>)


God Bless,

Swim
 

Posted 3/26/2008 6:16 AM (GMT -7)

My heartfelt thanks to all of you for your neverending support.  It never ceases to amaze me how, in our busy lives, this groups makes time to support each other.  I've managed to breathe again now and knowing the appointment is booked is the first step to the next answers.

With respect to kidney stones, the doctor said there would be no deny kidney stones if you had them.

Merkelman - a thousand thanks, just knowing that someone else has been down this path with favourable results is so encouraging and I will certainly hold on to that.

Thank you to all of you for taking time to offer your support - I will keep you posted as we trek down this path.

JustJulie

Posted 3/26/2008 7:18 AM (GMT -7)
JustJulie - you are indeed one of our treasured veterans here - and one who has been through so much. Since joining in August of '06, my husband and I have talked of you (and your journey) often.

The waiting period is going to be a tough one, of course, but it surely is an unrelated condition - believe that - and one that will be easily fixed.
Posted 3/26/2008 7:23 AM (GMT -7)

"Believe" is such a powerful word.  In fact I found it so powerful that when walking through my local card store I found what used to be the simple word Believe in a beautiful metal form - I bought it right then and there and hung it over my bedroom door - it is the first thing I see each morning when I rise and I have to trust in its power.

Thanks to those of you keeping us in your thoughts and prayers.

JustJulie

Posted 3/26/2008 7:43 AM (GMT -7)
Julie,
You have given advice and offered support to so many others. You have my best thoughts and prayers, and sincere wishes that this is just a small curve in the road.
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear. February 2007 - Three to fo ur pads a day, no erection with viagara. April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.July, 2007 - Six Month Post-op: PSA 0.04 No change in ED. October, 2007 - Nine Month Post-op: PSA back down to 0.02!Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment. January 2008: One Year Post-OP PSA 0.02 still dripping, but improving. Tried 500 dose of MUSE for ED, no luck. Will try 1000.

Posted 3/26/2008 8:18 AM (GMT -7)
Julie-

As a fellow brachy patient who recently got hit in the stomach with a baseball bat (figuratively), I feel a special kinship with you and your husband. Intellectually you know that there's no sense in making yourself crazy over this at this point, but, we all know that emotions take over if we let them.

We're all pulling for you two in our own ways. Try to be strong.

-Les
Posted 3/27/2008 1:49 AM (GMT -7)
JustJulie - my prayers for you both in the next few weeks, hoping for a victorious outcome!
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-18 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007); 4th post-surgery PSA: 0 (June 2007); 5th post-surgery PSA: 0

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on daily Cialis, L-arginine and pentoxyfylline. Peyronies has stabilized and significantly reversed.

- PGE1 batting average: .364 (4 for 11)
- Bimix batting average: .706 (12 for 17)
- Trimix batting average: .500 (1 for 2) Grand total 17 for 30 = .567

"Lost in the valley without my horses, no one can tell me what my remorse is..."

Posted 3/27/2008 10:30 AM (GMT -7)
Hi Julie,

Thinking of you at this stressful time. All the best for the 29th - sorry it has to be such a long wait for you, but sending all good thoughts, wishes and prayers your way. Lana
Creed_three (Lana & CJ)

 

Husband CJ aged 50 yrs (49 years at diagnosis and surgery)

PSA (2002) 2.1.  PSA (2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing, on Tuesday 17th April 2007 (Sydney, Australia).

Gleeson 3 + 4 = 7.  Cancer confined. 1st PSA 0.01 (June 07) 2nd PSA 0.02 (Oct 07) undetectable. Next PSA March 08.

Posted 3/27/2008 11:14 AM (GMT -7)

Julie,

I am proablly one of the youngest people on here. I know how it feels to be told lots of ups and lots of downs. I will be praying for you and your famiy. God wont give you more than you can handle. Keep your head high. Close your eyes and take a deep breath. Take one day at a time. KEEP POSITIVE!!!

Dad:

age: 58- good health overall

PSA- 6

G.score- 3+3

Doctor told him that surgry was best. Date not set yet.

Posted 3/31/2008 7:35 AM (GMT -7)
Merkelman:

When you had your cystoscopy did your Urologist perform the procedure and were results immediately available?  I'm wondering if we will once again be forced to play the waiting game for results.

JustJulie

Posted 4/2/2008 12:25 PM (GMT -7)
Hi JustJulie: Sometimes the hardest part is the waiting. It's too bad you guys have to wait so long. Try to be positive but i know that's hard. My prayers are with you and yours and I will say an extra prayer the day of his surgery. Feel all of the arms of this group surrounding you and hopefully it will bring you some comfort and peace. Lifeline
Posted 4/2/2008 12:36 PM (GMT -7)
You guys are awesome - thanks for your words of comfort - I think I need them more than my husband needs my support.  He's come to conclusion that I've dealt with this once before, I know the procedure and the waiting game - I've dealt with it once, I'm not so scared anymore ... I wish I could be that strong - you guys are the ones keeping my afloat these days and I'm truly grateful.

 

Posted 4/3/2008 5:20 PM (GMT -7)
Hello Julie,

Please know that we are all praying for you and your husband. We are all here to support both of you.

Glen
Diagnosed at age 60

PSA went from 2.2 to 3.8 in 14 months

2 of 14 cores positive at 10%

Gleason 6(3+3), negative DRE, neg. margins

DaVinci surgery on 02/23/06

Last PSA 02/26/08 @ 24 months "0"

Posted 4/3/2008 10:28 PM (GMT -7)

Hi Julie,

I can sure relate to the waiting game, how hard it is to have patience in matters like these. You and your hubby will be in my prayers.

Warm wishes

Diana

Rick & Diana

Age 68/ 67@ Dx

6-30-06  PSA 2.54

1-22-07  PSA 4.98

1-26-07  PSA 5.09

Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09

Bone Scan 3-1-07 Clear

3-6-07 Triple Spinal Fusion (due to old back injury)

Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins

4-29-07 PSA 0.02

6-9-07   PSA 0.02

7-6-07   PSA 0.03

8-1-07   CT Scan & Chest X-Ray   Clean

 9-26-2007 PSA 0.07

11/1/07 PSA 0.1

11/30/07 PSA 0.12

01/31/2008 PSA 0.3

03/01/2008 PSA 0.3

Posted 4/4/2008 1:43 PM (GMT -7)
Hang in there Julie;

For me, this darn disease is a day-by-day journey. It's taught me to not be too anxious about weeks or months down the road. Just concentrate on today and be thankful you have this exact moment in time. We all want to control our tomorrows but just when we think we have everything covered, LIFE GETS IN THE WAY. Since my diagnosis and my surgery, I'm thankful for each new day and I only concentrate on the next PSA test or the next urologist visit. That's it! It's the only way cancer patients can exist. One day at a time.

I'll be thinking about you and keeping you in my prayers between now and April 29th.
robotic LRP Jan2007
http://www.or-live.com/crozer/1818/

Post Edited (TonyB) : 4/6/2008 7:14:59 AM (GMT-6)

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