Pain after orgasm

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landcrab
Regular Member


Date Joined Feb 2008
Total Posts : 25
   Posted 3/26/2008 1:28 PM (GMT -6)   
It is now two months since my surgery and although I cannot get an erection I can achieve an orgasm which at times feels more intense than previous. However after orgasm my testicles ache for hours, the more intense the orgasm the worse the pain seems to be. Can I expect this to disappear or is it something that we have to live with ?.

lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 677
   Posted 3/26/2008 4:35 PM (GMT -6)   

At eight weeks past surgery you probably still have "parts" that have not yet found their new place.  In addition it is possible that some healing pains still exist.  i know my first few orgasms at about the same healing time, left some discomfort.

Most doctors will recommend that you wait at least two months before putting stress on your scrotum and the area back to the "former" prostate.

Some other people might have a different idea.


biopsy 10/16/06
T2A,  PSA 4.7
Gleason  4+4=8  right side
DaVinci Surgery  1/16/07
Post op confirms gleason 4+4=8
no extension or invasion found
no continence problems
PSA 90 day -.01  , 6 month -.01 , 9 month +.02 , 1 year +.02
Ed problems continue
Caverject/viagra /discomfort
02/28/08  start Bi-Mix Rx
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/26/2008 4:46 PM (GMT -6)   
Hi landcrab,
Others have had similar experience. I cannot speak to whether it goes away. The Ht I am on has pretty much placed my sexlife on hold. So I am challenged by that. But you have my prayers to get through it. Be patient, at two months I was in business.

Tony


Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 3/26/2008 5:51 PM (GMT -6)   
The thing most people forget is that during the surgery, the seminal vessels and part of the tube running from them down to the testicles are removed.  The ends of the tube from the testicles that carry sperm up to the seminal vessels are tied off.  Basically an internal vasectomy, in addition to removing the seminal fluid producers above that point, hence no ejaculation.  combine that situation with healing, adjusting and reconfiguring of your insides, you can easily have pain from the orgasms.  With time, it should lessen as your body and brain adjusts to the new situation.

James C. 
 
Help support the forums so they can support you:  http://www.healingwell.com/donate 
 
Age 60 
4/19/07   PSA 7.6, referred to Urologist, recheck 6.7
7/11/07   Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07   Path report:  3 of 16 PCa, 5% involved, left lobe , GS 3/3:6. 
9/24/07   (Open) Retropubic Radical Prostatectomy performed 
9/26/07   Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07  ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
01/14/08  Caverject started/stopped, aching.   .5ml Bimix started-success
 3/24/08   ED- 6 mts.-Viagra, pump, Bimix continues- no response
              Post-surgery PSA's:Nov-0, Mar-0


wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 3/26/2008 8:06 PM (GMT -6)   
Had that exact same thing now after three months and LOL when I was a teenager but then we called it the blue balls. yeah
12/06/07 DaVinci and open prostate surgery after difficulties in breathing stopped the davinci.
Walked a lot
90% control the day the catherter removed.
pad only for a sneeze before the week was out
No pads most of the second week.


kdnole
Regular Member


Date Joined Jun 2007
Total Posts : 152
   Posted 3/27/2008 8:28 PM (GMT -6)   
landcrab, Kudos for waiting so long before you tried. I was curiouis after 2 weeks and all I can say is thank God for oxycodone. I felt some of the worse pain ever but I think the guilty feeling that I had screwed up my healing was worse. I told my wife and she told me to wait or I will be back in the hospital, well I thought maybe I would give it another go a week later and that one hurt just as bad. Give it time and the pain will go away.
Age 44
PSA 4.8
Gleason 3+3=6
T2
Biopsy - 3 of 12 (2@20% / 1@80%
Da Vinci 7/31/07 @ Duke
2.5 hr. surgery, released from Duke with in 14 hrs.
Saved both nerve bundles. 
Foley out 8/10/08
Positive Pathology Report 
Near left side nerve bundle
New Gleason 7
Oncology visit in the near future for radiation
Back to work 3 weeks following surgery - Sales
 
9/13/07 - 1 Post PSA Undetectable less than 0.1 
 
9/17/07 - Pad Free! 
 
10/11/07 - ED, Trimix injection .2cc Tooo much but it worked. Now on .05cc, 3 times a week
No luck with viagra or pump. 
 
11/19/07 - 5 mth. PSA 0.1 (Ouch)
02/11/08 - Scheduled for CT Scan and MRI
2/27/08 - Started IMRT Radiation treatments
(6 weeks, 5 days a week)  


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 3/28/2008 6:19 AM (GMT -6)   
Here's an interesting conflict -

My nurse said no sex for 6-8 weeks. No manual stimulation, nothing. She said things should heal first.

Well, I was getting some action shortly after catheter came out, not much, but enough to be encouraged that all was not lost. I happened to talk to the surgeon when I was called to set up an appointment. I told him that I was sort of encouraged. Asked if I really had to wait. He laughed and said, "If you're getting some response, go for it. there's nothing you can hurt down there!" He then went on that it was good for my heart so put my health in my own hands and have a good time.

So, how do you like that? His own nurse was telling me to wait - he was telling me to do whatever i wanted. There's a really sexist remark lurking somewhere in all of this....
Paul
47 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6      (Biopsy 3/07 just suspicious)
10/07 PSA 5.06   (Biopsy 11/07  1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC  www.roboticoncology.com
Saved both nerve bundles.
Path Report:  Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
 
 


jgrock
New Member


Date Joined Mar 2009
Total Posts : 1
   Posted 3/29/2009 5:03 AM (GMT -6)   
i had p/s 3/28/06, 11/3/06 left test big as a plum they gave me levequin,12/07 i started to have problems when i ejac or just get exited it starts,but when i ejac feels like i been kicked where my prostate was,,B/S doctors used my ins like a credit card as long as they treat you they get paid at first i did not believe it,until i went thru 2 years of this and i had to find a cure myself,when i found out whats causing the pain I CALLED THE DOC ASK FOR FLOMAX when you get ready to have sex your bladder closes,post surgery your b-neck because it had to be stitched back to your bladder its not the same,now when it closes it may have spasms causing it to close to hard on the uretha that causes pain to your pelvis,down your penis and to your testacales,this pain does not respond to any pain med nor antibiotics,doctors b/s you because this in a grey area,flomax relaxes the b-neck and the prostatic area,so now when the b-neck closes its more like normal,i started taking flomax a month ago after two weeks still had pain but decreased 70% third week I HAD SEX FOR THE FIRST TIME IN 2 YEARS WITH NO PAIN,can't believe it so i did it again,no pain in all 4 times in a 24hr time frame no pain,but that 5th time ,back to the same,,i told the doctor i need to take 2 a day i'm on the right tract,right now no sex for a month til it fully heals,when your b-neck closes to hard on your uretha in the same spot time after time it becomes tender needs time to fully recover from 2 years of clamping,this also causes swelling of the uretha in that spot that causes multi trips to the bathroom

DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 732
   Posted 3/29/2009 8:53 AM (GMT -6)   
landcrab,

Also be careful, when you do get around to having an erection, that may hurt too, at first.

jgrock,

That's interesting. The day I left the hospital, the nurse gave me a prescription for Flomax, but he told me he didn't know why the doctor ordered it, since (as seen on TV) it's generally given for an enlarged prostate, which is now removed. Yours is a good explanation.
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 3/29/2009 6:41 PM (GMT -6)   
Dj,
That comment about Flomax is interesting.
I had had some good results with it before surgery (for BPH but i thought it also enhanced effect of Viagra -- could use less or none).
So i used my leftover stash of Flomax regularly after the catheter came out and have had nothing but glorious orgasms ever since.
Still nothing to write home about as far as erections go at week 8 but there are stirrings of life.
I did wonder though if Flomax prolonged IC symptoms, since it is relaxing the urethra muscles. Been just one pad a day mostly unless a really physical/walking kind of day so OK on that side.
Age 58, 192lbs, 6'4", 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
Biopsy Nov2008 1 of 12 cores 5%, Gleason 3+3 - Sona showed 140+ cc (110 grams post op) prostate size.
open RP surgery 02/03/09, Nerve sparing both sides, 1 day in hospital, Day 4 first BM,
Pathology Report - All margins clear - No Invasive spread - no change in Gleason score.
2/18/09 Cath out, passed a STONE within hours. To be analyzed by doc.
Using pump (encore) daily since catheter out -- Viagra and Levitra samples now and then (no effect).
03/06/09 Started Levitra 20mg rehabbing -> 3/23 no real effect yet.
03/20/09 First post-PSA blood drawn -> 04/01 will be meeting w/PA.


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 732
   Posted 3/29/2009 6:52 PM (GMT -6)   
Jim,

I wonder if you and jg are on to something? Flomax as a -- what do we call it-- "life enhancer"? I wonder if anyone else has good results with this?

I'll have to ask about this at my next appt. Too bad I took my last one months ago.

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)


RobnTexas
Regular Member


Date Joined Apr 2010
Total Posts : 24
   Posted Yesterday 7:29 AM (GMT -6)   
Guys can you tell me if flowmax continued to take away the pain? Because my uro encouraged me to get the machinery going ASAP after surgery, I was able to have sex 3 weeks after surgery. I have had sex 2 more times since then and my right test hurts for hours afterwards. I do not have probs with leakage and do not want to take flowmax if it will make me start leaking, but I am interested in taking flowmax if it will make the pain go away.

Rob
Age: 49, Height 5'11, Weight 190
Problem with urgency and frequency
No family history of C
Biopsy: 4/10 - 4 of 12 Positive 2@ 30% 2 @ 60%, Gleason 3+3=6, T2A
RRP: 5/18
PostOp: Gleason 3+4=7, 45g, 2cm tumor
6/1 - Catheter out YES!!!!


April6th
Regular Member


Date Joined May 2010
Total Posts : 264
   Posted Yesterday 10:09 AM (GMT -6)   
Interesting discussion because I was just going to start a post about this. I am 20 days post op and when I have an orgasm my penis has a burning sensation for about 20 seconds afterwards. It sounds like that is in the realm of normal recovery based on others experience.

Dan
Here are some of my stats:
Age:54
Father diagnosed with PC at age 72 - wasn't contained to prostate when found in 1992.
My PSA rose from 3.2 to 5.1 over the course of 1.5 years with Free PSA at 25% for the last two tests.
DRE showed no evidence of tumor but Uro thought my prostate was a little large for someone my age
PCa diagnosed 4/6/10 after biopsy on 4/1/10
1 out of 12 biopsy samples was positive with 5% of biopsy sample cancerous
Gleason 3+4
Da Vinci surgery on 6/1/10
Pathology report shows cancer confined to prostate and all other tissue clean


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted Yesterday 11:05 AM (GMT -6)   
There's one thing to remember when dealing with testes pain. The far end- inside the body has been cut and stitched/tied off. The physical act of ejaculation can cause pain due to this fact. I had similar happen to me, and even more pronounced when I had a vasectomy, many years ago. I'm not playing doctor, but unless the pain is really bad, I'd give things time to heal and seal before worrying too much about it. The same can be said for the smaller pains in the penis, there's lots of things that have been cut and tied off inside than most people realize, so these pains are really to be expected, actually. Of course, see your doctor at any time you are concerned enough about anything dealing with your recovery.
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted Yesterday 11:39 AM (GMT -6)   
Went through the same thing myself after open surgery. Pains down there lasted a good 6 months, my uro/surgeon said things would heal over time, and they did. You can get plenty of phantom pains too.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted Yesterday 4:23 PM (GMT -6)   
I was told to wait 6 weeks to not mess up the surgeon's handiwork. My first "O" hurt but was worth it. At 11 months there is no pain at all. Give it time.
Jeff
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 3+4=7, 3+3=6. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day. Try controlling fluids.
12/11/09 5 months: 3 pads per day, 400-450ml/day
02/26/10 7 months: 3 pads but leak is now 320 ml (5 day avg.)
03/22/10 8 months: 3 pads per day, 280 ml/day (5 day avg.) PT says all muscles are tight and working properly. There must be another issue. Uro mtg 4/23.
5/22/10 10 months: 2 pads per day, 190 ml/day Scope on June 15 Short sphincter
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05, 4/14 9 months - 0.04 and <0.01 with ECLIA.


April6th
Regular Member


Date Joined May 2010
Total Posts : 264
   Posted Yesterday 6:36 PM (GMT -6)   
My uro said it was OK to have sex at my two week exam (if I felt ready for it) and gave me some viagra samples and a prescription for more. I guess he was pretty confident I wouldn't mess up his handiwork. Dan
Here are some of my stats:
Age:54
Father diagnosed with PC at age 72 - wasn't contained to prostate when found in 1992.
My PSA rose from 3.2 to 5.1 over the course of 1.5 years with Free PSA at 25% for the last two tests.
DRE showed no evidence of tumor but Uro thought my prostate was a little large for someone my age
PCa diagnosed 4/6/10 after biopsy on 4/1/10
1 out of 12 biopsy samples was positive with 5% of biopsy sample cancerous
Gleason 3+4
Da Vinci surgery on 6/1/10
Pathology report shows cancer confined to prostate and all other tissue clean

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