Looking for AUS Doctor!!!!!

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kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 3/29/2008 9:04 PM (GMT -7)   
    Hey All,  I wanted to post this seperate from "My Journey".  It looks like I will be "in the market" for a AUS soon.  If any of you have a recomendation or warning about a AUS Doctor please let me know here or on my e-mail listed in my profile.
    I appreciate all the support and well wishes you have given me this last year and a half.  But,  It looks like I will need some more from you all as I try to get a fix for this D### leaking!  I will keep posting updates on "My Journey" as things happen.
 
    Thanks,  Kelly
    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.  Will probably try Collagen injections one more time around the first of May.  If no improvement after that will start looking for a AUS Doctor.
 
     


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 3/29/2008 10:35 PM (GMT -7)   
Hi Kelly,
I've been here well over a year and it's hard to watch you still struggle with this. We sure have endured a lot as younger guys with this disease. I know you know about Mayo, UCLA, and Johns Hopkins. I could not do more than blindly suggest you work with the best institutions. I am so sorry the last procedure did not do it for you. I Hope and pray that you will stay as positive as you have and that you get the solution that works. I have grown to appreciate your trek more and more. You can count on us as a group to stand with each step of the way. For my part I will stand in prayer and Hope that you get there where you need to be. God Bless you, Kelly. You are well over due for a break.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 3/30/2008 11:17 AM (GMT -7)   

    Tony,  I feel the same about reading your journey.  The guys like you are the ones that inspire me.  My leaking is a major inconvineance but is in no way as hard as the things you and the others like you have to deal with.

    Thanks,  Kelly


    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.  Will probably try Collagen injections one more time around the first of May.  If no improvement after that will start looking for a AUS Doctor.
 
     


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/1/2008 3:46 PM (GMT -7)   

Hey ~ Kelly,  

You've given yourself a fair healing/recovery period.  It's time to move forward and I hope and pray that the future holds no leaking and no pads for you!!!  You have been such a support to all of us here ~ and your continuing to share "Your Journey" is so valuable...  Thank you!!!

I will be e-mailing you Jim & Ann's phone # (North Carolina).  I don't want to give wrong information here on this thread so will leave it for you to make contact with him if you wish.  Reminder: When you call him ~ leave a phone # and he will call you back... he has the plan where it doesn't cost him extra to return the call... so please make the call!   

I'm a firm believer that the more information you have the better armed you are to move in a smooth path forward... 

Hugs to you and please ~ continue to stay close.  In Friendship ~ Lee & Buddy 

yeah   Click on kw to see Kelly's e-mail address ... you must be LOGGED ON... to view this.  It is located on the left side of his postings also.  :-)

Updated 4-13-08:  I confirmed the name of the doctor with Ann.  Dr. Webster @ Duke University.

Post Edited (bluebird) : 4/13/2008 8:46:10 PM (GMT-6)


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 4/1/2008 5:29 PM (GMT -7)   
Thanks Mama......

    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.  Will probably try Collagen injections one more time around the first of May.  If no improvement after that will start looking for a AUS Doctor.
 
     

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