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Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 3/30/2008 2:00 PM (GMT -7)   
I can not properly express my sincere gratitude and love to all those on this site that have post their experiences, advice and support.  This information made my surgery better, safer and so so much easier when I got home.  The bucket for the night bag.  The rope to pull your self up.  The love of a good recliner. Thank you all so very much.
 
You will see in my profile updates as I progress.  I had cardiac problems right away.  I have acid reflux/gerd pretty bad.  I fasted and did not take my medicine.  During DaVinci you are head down about 45 degrees. I  feel that this acid back flow most likely casued the Cardiac issues.  I was in this position for 5.5 hours.  They gave me mediciine for this but I dont think it was working.  When I left recovery I had heart burn very bad and had relief with my aciphex.
 
It was not a walk in the park but it was major surgery.  That darn little drain was the worse pain I have ever had.  Something was wrong.  I will never know. I have had drains removed before and they tickled.  This felt like it was attached to my big toe.
 
Again thanks to all my brothers and sisters of the Healingwell.  I will keep you updated and reach out with questions.  The surgeon has given permission for my daughter the nurse to pull my cath on day seven.  Not exactly a father daughter dance is it nono .  Doc says six days we are waiting till the morning of 7 he said o.k.
 
God Bless my Wife and Daughter. I cant even begin to understand how a brother can face this alone.
 
Frank

Frank S.
Age 53
Abmnormal PSA for 5 years>
2004 Biospy negative
2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Highest PSA 10
Lowest PSA   4
Current PSA   6
Bone and Ct scans negative
Staged at T1C
Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago
Dr. Arieh Shalhav
 
Odd and unusual pain in pelvis, legs, hips, back and groin led to my insistance in another Biopsy (2008).  These symptoms have greatly improved after 5 months and all Doc's do not believe that these symptoms have anything to do with my Prostate Cancer.  I am not so convinced. May prove to be the most fortunate pain I have had.
 
03-25-08 pain is back in my lower back off to the right side. Very unusual.  I will be very interested after the prostate is out the 27th to see how if effects this roving/changing pain I have been having on and off.
 
03-30-08
Post Operative
Went into surgery at 12 noon on the 27th as soon as anestheic was begun I developed cardiac arythmias . New anesthesioligist was brought in. (the big guy) , surgery continued with arythmias. Surgery lasted until 530 and in recovery till 830 p.m. Had trouble waking up.  After recovery went to Cardiac floor not fancy post op urology floor.  This may have been the best thing to do but set me back for they really did not know how to deal with post op patient.  Managers said they do, Doc's and nurses said they dont.  I agreed and filed a complaint.  It was ugly till morning.  Then by the expertise of a god given day shift nurse we straightened things out.  My wife stayed the entire night with me.  My daughter is a surgical recovery nurse and stayed most of the night as well.  As far as my team after surgery, my daughter and wife.
 
Trouble pulling out the surgical drain.  The pain was a 12 out of 10.  I got nauseated, nurse gave me morphine and the Resident Doc said that these dont hurt.  If I had the strength I would have dropped him where he stood.  I will likely see him again another day.
 
Left Hospital at about 9: 00 p.m. the next night. Would have been much sooner but needed to be cleared by Cardiology who did not want to deal with me in the first place. Frst time I saw the Cardio folks was when I left. I am not happy. Everyone was saying I thougth the other guy did or ordered that.  I was not impressed.
 
Was very impressed with the Uro team.  They were just as good or better than I expected. Since we all think we caught this early I will reserve final appraisal of Dr. Shalhav and UC till I get the results of my margins.
 
Medical facts:
Both nerves sparred
Lyph nodes remain
Visual clear as well as no lumps felt on the outside of the gland.
 
First day home pretty sore. Catheter is interesting but not a problem or painful at all. Walked inside house for 10 minutes and then went outside for about another 30 minutes. Bags are pretty easy.  I am using blanket and pillows for coughs and sneezes.  Oh boy these hurt.  Just taking tylenol and then Ibroprhen ever 4 hours piggyback like.  Moved bowels once today.  Horay!!  Eating normal but easy stuff.  DO NOT DRINK CARBENATED POP AFTER..  Adds to the gas problem.  I farted so much I rented the movie Blazing Saddles just to feel at home.
 
Second day.  slept great with a little help of a sleeping pill.  Awake and up at 0700 wanted to sleep in but wide awake.  Biggest problem is getting up.  Weak painful abdominals.  Arm strength good.  God Bless my recliner. Took my first shower.  I am human.  I am human.  I will walk for 60 minutes through out today.  My Doc wants big time walking.
Lots of visitors today. Too many need nap.  Consitpation not a problem yet.
Pathology due in 7 days
 
Pain is much less.  Some pain noticed in mouth and on my bottom similar to the pain I had before surgery.  I hope it goes away.


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 3/30/2008 3:20 PM (GMT -7)   

Great going Frank.

Been thinking about you and Billy and wondering how things are going so far.

You seem to have a great attitude, which will help your recovery a great deal, in my opinion.

Hope your pathology results are good and that the rest of your recovery goes very well.

DanMan Bob


Danman Bob
Age 57
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14
Biopsy result - 9 of 12 sticks showed cancer
Despite high Gleason score, cancer was confined to the prostate
Possible post-surgery radiation therapy...decision likely in late April 2008, depending upon PSA at that time
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of March 2008)
Began using Viagra 3 times a week December 2007 to stimulate blood flow
Began using Osbon Erec-Aid Esteem manual pump for therapy mid-February 2008
Will probably begin using bimix injections in addition to Viagra and pump in May 2008


beachbum50
Regular Member


Date Joined Sep 2007
Total Posts : 292
   Posted 3/30/2008 3:45 PM (GMT -7)   

Welcome to the other side Frank. I had similar problems with the Hospital floor staff, but let's remain positive, the cancer is out and ezch day you will be feeling much better! I used a Harry and David's moose much contanier to keep my cath off the floor and noy a focus of visitors glances! You sure have a great family support system with you, use them and follow their directions and soon you will be back to normal. I was upside down four hours, but the Nexium I took that morning worked for me. I did swell up a lot, and it took a while in recovery before they could remove the breathing tube. I never knew, slept pretty good until I went back to my room, then no sleep! Again, glad to see your doing well!

 

Beachbum tongue


Beachbum
 
PSA 10 June 2007
Biopsy July 2, 16 of 16 samples positive
T2C
3+3=6
prostate weighed 40 grams
Di Venci 10/09/07, four hours on table, 3 in recovery
Total time in Hospital: 29 hours
Record for Dr. Lance, 65% of prostate had cancer, but NO spread, clean margins
Clean nodes,
First PSA at 5 weeks, UNDETECTABLE!
Catheter out at seven days, dry from hour one!
Second PSA 19 weeks post op, UNDETECTABLE 2/11/2008
The Lord has truly Blessed me.


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 3/30/2008 4:47 PM (GMT -7)   
Hey Frank,

Sounds like you had an ordeal but congrats on making it to the other side. Take it easy and plaese stay with us...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
"Patience is essential, attitude is everything."
 
 


FairRider
Regular Member


Date Joined Jan 2008
Total Posts : 32
   Posted 3/30/2008 8:22 PM (GMT -7)   
Hi Frank!

Glad to hear from you....welcome to the other side. Rest, walk, and believe.

FairRider
Age 54; (Father, paternal uncle and 1 brother so far with Pca)
1999 PSA 2.8; 2004 PSA 2.88; 1/2008 PSA 5.6 & repeat 4.37
DRE - "Unremarkable, L side slightly larger"
Free PSA 0.46 and ratio 0.11
Biopsy 1/25/2008 - 10 Cores - 4 with adenocarcinoma
3 cores Gleason 3+3=6 and 1 core 3+4=7
No Stage given on report, maybe T1c or T2c ?

Robotic Surgery March 17, 2008 - Vattakuti Institute - Dr. Menon
Both Nerves Spared - Pre-surgery DRE - TC1
Post Op Pathology - T3a - 2 small foci of Extra-prostatic Extensions,
CLEAR margins, 4 Lymph Nodes Clear, Seminal Vesicles clear.
Gleason now 4+3+7, Tumor 20-30% of gland
Dry immediately! - no pads by day 9 Post-op
No response with Viagra


Jetman
Regular Member


Date Joined Oct 2007
Total Posts : 30
   Posted 3/31/2008 2:40 AM (GMT -7)   
Hi Frank,

Welcome to the other side. I am surprised that your Dr. is letting your daughter remove your catheter at home. I had to have a Cystography to make sure there was no leaking before the catheter could be removed. I went once a week for five weeks. I had my catheter in for 45 days because it just was not healing. If you have it removed and it is leaking, you will just cause yourslf more problems. I know most guys don't have any problems, but you never know.

Any way Good Luck, I hope everything works out for you.

Matt


56 years old
Had 3 Prostate needle Biopsies done in the last 8 years all negative.  
Last Biopsy done on July 6th, 07 Positive in one sample.
March 2007 PSA 10
May 2007 PSA 12.1
Pre-surgery Gleason grade 3+3=6
Sept 4, 2007- Robotic Laparscopic prostatectomy Surgery Nerve-sparing right side, took half of the left side, 
                    took Seminal vesicles, and vas deferens, bilateral, and 
                    Lymph nodes left side, pelvic. NO Malignancy found out side of
                    the Prostate.
Post Surgery, Pathologic Stage: pT2(m) NO Mx
                   Gleason score: 4+4=8
                   Tumor volume: approximately 35%
 Oct 19, 2007 - Catheter removed after 45 days
 Oct 31, 2007 - Start Pelvic Floor Muscle Rehab, once a week for 6 to 12 weeks for incontinence.
 Dec 18, 2007 - 1st Post op PSA  0.0 (undetectable)
 March 20, 2008 - 2nd Post op PSA Less than 0.04 (undetectable)


KrisP
Regular Member


Date Joined Mar 2008
Total Posts : 162
   Posted 3/31/2008 5:16 AM (GMT -7)   
Frank S.
Glad you made it through. Hope everything goes great from here on. Good luck.
 
KrisP
Diagnosed 3/2008 at Age 54; with Prostate Cancer with PSA of 1.9
Biopsy done 3/2008; with Gleason 6
Pathology report - Gleason 6 (3+3), involving left lobe (T2b)
DRE=15gm with indurated left base and mid prostate
Cores positive: left base medial, left base lateral, left mid medial and left mid lateral
Clinical stage t2b.
Prostate Carcinorna 185
Urologist recommended no bone scan or other test is needed at this time.
In process of evaluating all options.


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 3/31/2008 8:37 AM (GMT -7)   
Thanks everyone for your kind words. Day 3 is better than day 2.

God Bless you all..

Frank

Post Edited By Moderator (TC-LasVegas) : 4/1/2008 11:17:48 PM (GMT-6)


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2268
   Posted 4/1/2008 12:08 PM (GMT -7)   
You're making great progress, Frank. The worst is over. I loved your wonderful descriptiveness that reminded me of the days just after surgery. A sense of humor is essential to the recovery process.

I,too, ended up in the cardiac ward after surgery, due to a lack of beds elsewhere. I was glad to get outta there, because they kept worrying my wife with reports that my blood pressure was too low. For Pete's sake, it was low going in and went lower with the IV drugs I was being given.

Hope to have some more good--and humorous--progress reports from you. Take care and be well...Tim
Age 59  PSA velocity quadrupled in 1 yr (0.6 to 2.6) 
1 of 12 biopsies positive (5%) 
Open surgery June 2006 
Cancer confined to one small area Gleason 5 
PSA's undetectable
 


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/1/2008 2:29 PM (GMT -7)   
Thanks TimG, I dated my progress on my profile. Danman have you heard from Billy?

Frank

Post Edited By Moderator (TC-LasVegas) : 4/1/2008 9:04:01 PM (GMT-6)


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 4/1/2008 5:31 PM (GMT -7)   

Frank,

Billy's wife posted a few days ago that he was doing ok.  This was Thursday, I think.....so you were no doubt busy on that day.

Nothing from them since then that I have seen.

Glad you both made it through.

DanMan


Danman Bob
Age 57
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14
Biopsy result - 9 of 12 sticks showed cancer
Despite high Gleason score, cancer was confined to the prostate
Possible post-surgery radiation therapy...decision likely in late April 2008, depending upon PSA at that time
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of March 2008)
Began using Viagra 3 times a week December 2007 to stimulate blood flow
Began using Osbon Erec-Aid Esteem manual pump for therapy mid-February 2008
Will probably begin using bimix injections in addition to Viagra and pump in May 2008


MURPHY1
New Member


Date Joined Apr 2008
Total Posts : 12
   Posted 4/24/2008 3:51 PM (GMT -7)   

Frank - not sure if you are still on the site but I need a little help - my husband was dx with pc last week at age 46 - we live in the chicagoland area also and your doctors name keeps popping up- were you happy with him - would you reccomend him and his team at UChicago - any other surgeons in area that you would talk to?? any advice would be great

 

 


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 4/24/2008 4:50 PM (GMT -7)   
HI Frank,

So glad you are home and doing well. As well as can be expected at this point! Kent, of course didn't have that kind of surgery but I suppose its all relative as to what is being done. At night we hung the cath bag on the side of a trash can next to the bed. Then it went in the trash can during the day if anyone comes over. Take your pain meds even if its just tylenol. It sure seems to help alot.
I think its great your daughter is a nurse and can help. Your family is the best sourse of healing, I believe.

Take Care, Frank and we will be waiting for all the good reports!
Cindy
Age 51 Kent
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 anpther round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th.
Cindy (the wife!!)
Surgery preformed and doing great. Only took 1 1/2 hours. Will know in two weeks about pathology report. Surgeon feels he he got all cancer and confined to prostate. Both nerves were spared.
Home 4-11
Cath out 4-22 dripping some
Prostate confined to one side of prostate.
Cialis 5 mg at night to start
Outlook very positive!!


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/24/2008 5:50 PM (GMT -7)   

Hi Murphy1 and Vafan and all.

Went back to work full time and had computer problems at home.  I have not been on site for a little while.

Murphy1 my email is listed so contact me directly any time.

I will give the long and short of my experience. 

I started out with a family Urologist (local community hosp) that I never was thrilled with.  He did the biopsy which I was always concerned with the accuracy and skill in doing it.  My two other opinions were from well known Universty Hospitals Northwestern and University of Chicago.

Universtity of Chicago was and is known for their cutting edge treatment and experience. On a scale of 1-10 I would rate my Doc as a 8.  He was surprised at the amount of cancer and the location was not close to where he thought.  It was a gleason 7 not a 6.  He is not yet playing the blame game with my original Doc yet but I am waiting. 

Surgical team I would rate a 9. 

Post op care I would rate as a 6. I had to go to Cardiac not Urology floor and they did not know what to do except watch my heart.  I was out of Hosp in 30 hours. I complained and my Doc said his floor would have been much better but it is the Anethesiologists call where I go.

Hospital in General

This is a huge City Hospital that is busy and doesnt have fancy carpeting or private rooms, although mine was in fact.  They brought a bed for my wife also. I have a friend who repairs all types of surgical and lab equipment. UC and Northwestern buys new equipment when it gets dusty and has back ups and complete service agreements for all their stuff.  They sell their used stuff to community hospitals.  Good People, Good tools.

Four things I would do differently. I would ask more questions in regards to the biopsy that everything is based on.  Is there any other test we can do so you know more going in no matter what option you choose. Two,  I would have seen a radiologist or oncologist or someone other than a Surgeon.  I am 98% sure I would have choosen surgery however in my case.  Three,  on more than one occasion the staff at UC kept assuming I wanted another Doctor to do the surgery and it was odd.  I had the Chief surgeon and everyone thought I wanted the assistant.  I would have taken the hint and checked out both of them.  Four, with biopsy I had a 1% chance that my lymph nodes were involved but because pathology was somewhat a surprise in hind site I would asked that we check them.  I still dont know why they cant be checked and not removed.  The procedure took 4 hours. I was in recovery 4 hours.  I had unexpected heart complications suspected from electrolyte imbalance from fasting and possably my Gerd. In DaVinci your head is lowered alot.  I dont know about open surgery in this regard but if you have Gerd you better give that some thought.  I had terrible heart burn when I woke up.

I would definetly recomend you check out this Hospital.  That is if you want to stay local.  There are many other Hospitals you will learn on this site that have equal or greater experience.

Northwestern Memorial

I had a great experience at this location.  Talk about plush.  This is the Ritz of Hospitals I have seen.  It was tough choosing between UC and NWMEMorial.  I was set on DaVinci and the Doc here had 170 under his belt where my Doc at UC had 700 and was the big boss.  The support system seemed to be better here (NWMH).  Lots of interaction with team approach. Funny thing, I found out my potential surgeon has a country home by mine in Wisc. and very similar interests in cross country skiing.  He was at a race 6 hours away where my father in law was and my surgery was the next day.  Yikes!! Huge race 6 hour drive and then I assumed he would say, hey lets get that thing out, what do ya say. He, his wife and children placed very high.  Great Guy truly.  I called his office and he called me back on my cell and talked to me on the phone for over an hour.  I would definetly recomend him and/or others at this Hospital. I am likely to fish with this Doc this summer.

I hope I did not go on too long.  Please email me and I will give you my phone number. I have been talking to a few brothers and sisters as of late.  By the way, I am located in the western suburbs of chicago.

Vafan, your the best I am so happy for you and your hubby. Keep in touch.

God Bless

Frank

 

 


Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on bottom of prostate, 1 positve margin  going to meet with oncologist to discuss treatment options if any at this time.
 


MURPHY1
New Member


Date Joined Apr 2008
Total Posts : 12
   Posted 4/24/2008 8:51 PM (GMT -7)   
Frank - thank you so much for all of your information - I have so many questions about everything you said and will email you in the morning with our phone number - btw, ...we are in the northern suburbs

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/24/2008 9:24 PM (GMT -7)   
    sad   (blushing smiley goes here!)
Can we say I'm a little late with this note to you!!!  Whew the threads are moving so fast ~ I can't seem to keep up!!!!!  I'm so thankful your thread was popped back to the top!!!!
 

tongue     Welcome Home ~ Frank,

It’s really good to hear from you!!!  Nice descriptive thread… Newbies who will follow will now be guided by your personal journey.  The giving back is a wonderful gift to all of us.  It allows the ‘oldies’ to follow closely and the Newbies stepping-stones to pull from.

 

Your message is heartfelt by all ~ the sharing is important.  Knowing we have options and those options have been tried!!  This path is best traveled with friends who know where you’ve been and where you’re headed.  It’s a great place to be “HealingWell”.

 

Take care ~ and know we are keeping you close in thoughts and prayers! 

Hugs from Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

4th PSA 2-13-2008 (23 months) Less than 0.1 Non-Detectable :)


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/25/2008 6:00 AM (GMT -7)   

Hi Bluebird,

Thanks for your kind words my family and I appreciate it very much.  I will add to my post on my recovery in around two weeks.  I will have my first PSA results and my visit with the Oncologist at that time.  Doc says it is something new they added to their protocols, for those who have a bad margin(s) he asks his patient to see an oncologist to pre arrange a course of action so it can quickly be put in place in the event of a positive PSA of .1 or more.

 

Thanks again,

Frank

 


Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on bottom of prostate, 1 positve margin  going to meet with oncologist to discuss treatment options if any at this time.
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 4/25/2008 6:05 AM (GMT -7)   
Good morning Frank and I to compliment you on your success, please remember my phrase "life is great when you are livin a dream", and you my friend are living one every day. Appreciate the awesome beauty around you, and begin to see life thru different lens, God is using you in a new way. Keep us posted as to how your improvements go.

my thoughts and prayers are with you
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
 

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