I feel your frustration. One of the most frustrating parts of this disease for our family has been that the medical community is divided on treatment options. We consulted with three radiation oncologists, two oncologists and two urologists regarding my father's post surgery report. The more opinions we sought, the more frustrating it was. The jury is out on when to begin adjuvant therapy following surgery with a positive margin and increasing PSA.
One oncologist we saw recommend .2 and another recommended >.1. The guidelines vary as well from different teaching institutions.
My dad had a positive lymph node and one focally positive margin, so his situation is a little different, but in regards to the radiation portion of his treatment, everyone but one RO advised waiting until the first PSA and then based on that reading to start radiation.
What we discovered, is that YOU need to be your own advocate, get the medical opinions and remember that they truly are opinions and make the best decision based on the information you gather. We have decided that no matter what the outcome, we refuse to look back. We have gone with what we believe to be the best course of action based on our research and that is all we can do. It's hard to get a grasp on that there is no if A then B with cancer. It just straight up sucks and doesn't follow a protocol. Good luck and keep us posted!
P.S. You should be able to have a tumor board review your case. Most major institutions have a team that reviews each case and comes up with a game plan. I would inquire about
DX July 15, 2007
Age 62 (now 63)
Original Gleason 3+4=7
Post Surgery Gleason- 4+3=7
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin
One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
T3a N1 M0
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07
Lupron beg. Dec 03, 2007 2 yr
Radiation started March 03, 2008 7 weeks 5x a week
2 weeks of radiation down!!!