Catheter Removal time

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Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/2/2008 6:53 PM (GMT -6)   
I was wondering what to expect the day its removed.  Doc says this is a very personal day.  Some are dry ,most are not but most will be dry in 4 weeks.
 
What kind of experiences have you all had.  I had no urinary problems typical with PC before my surgery.  Does this make a difference or not.
 
Thanks,
 
Frank
Frank S.
diagnosed 01-08-08 53 years old 
Abnormal PSA for 5 years>
2004 Biospy negative
2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Highest PSA 10
Lowest PSA   4
Current PSA   6
Bone and Ct scans negative
Staged at T1C
Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago
Dr. Arieh Shalhav
surgery at noon out to recovery at 500 pm
in recovery 3.5 hours
Cardiac rythum issues
Surgery thursday pm home friday pm
 


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 4/2/2008 7:08 PM (GMT -6)   

Varies greatly from person to person.

I am still not completely continent, 4.5 months after surgery.  Been at one pad a day and counting for over a month....actually a fraction of a pad, but a pad nevertheless.

Some have no incontinence at all, some days, most weeks.


Danman Bob
Age 57
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14
Biopsy result - 9 of 12 sticks showed cancer
Despite high Gleason score, cancer was confined to the prostate
Possible post-surgery radiation therapy...decision likely in late April 2008, depending upon PSA at that time
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of March 2008)
Began using Viagra 3 times a week December 2007 to stimulate blood flow
Began using Osbon Erec-Aid Esteem manual pump for therapy mid-February 2008
Will probably begin using bimix injections in addition to Viagra and pump in May 2008


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/2/2008 7:37 PM (GMT -6)   
Danman Bob,

Did you have any trouble before your surgery and did you take an antbiotic after the cath was removed.
Frank S.
diagnosed 01-08-08 53 years old 
Abnormal PSA for 5 years>
2004 Biospy negative
2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Highest PSA 10
Lowest PSA   4
Current PSA   6
Bone and Ct scans negative
Staged at T1C
Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago
Dr. Arieh Shalhav
surgery at noon out to recovery at 500 pm
in recovery 3.5 hours
Cardiac rythum issues
Surgery thursday pm home friday pm
 


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 4/2/2008 8:18 PM (GMT -6)   
Frank1205,
having the catheter out was an unusual feeling....quick and while not painful, it was an uncomfortable and peculiar experience. As for continence, the early weeks seemed as though every time I moved about I leaked but it started a marked improvement from about week 4. Eight months later I am to all intentional purposes completely continent, only loosing a little on really heavy physical exertion particularly lifting really heavy objects. I had no urinary problems before surgery either.
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcima-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 4/2/2008 8:38 PM (GMT -6)   
For me, removal of the catheter felt weird, but not painful.  And it was absolutely WONDERFUL to have it out and replace it with pads.  As stated above, leakage varies from guy-to-guy.  Do your Kegels, but go easy with them.  I had no urinaqry issues before my diagnosis, but needed about three pads a day for the first two weeks after cath. removal, then one a day through about week eight.  I wore the pad mainly to feel secure during the last two weeks.
Frank:  Everyone is different, so just try to relax and heal at this time.  PATIENCE, PATIENCE, PATIENCE!!! 
Before you know it, you'll have a year behind you and be giving advice to others here.
Best to ya,
Tom

D.O.B - 8/9/52

PSA: First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06.  Both lobes involved.  Six out of eight cores positive - from 100 percent to 90, to 60, to 50, two 20s and two zeros.

Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.  Volume of tumor much less than biopsy suggested.  12 percent overall.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07

Third post-surgery PSA -- Undetactable, 2/15/08


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 4/2/2008 8:44 PM (GMT -6)   
Cath removal is NOT a big deal. It does not hurt...feels weird is the only thing I can say. NOTHING like getting the Jackson-Pratt drain removed from your side. It is over sooooo fast...then it feels soooo good to be rid of that stupid thing. I was able to hold urine right away - that is different than being continent, however. Some guys are not able to hold their urine it all and it just pours out. I leaked a bit, but was able to get to the bathroom and truly enjoyed the first day or so of just peeing like normal. It is such a little thing that we take for granted. I still leaked, but was dry at night from the first day. I was down to one pad a day at 4-5 weeks, then pad free about 9-10 weeks. I did a really bad job with Kegels. I still have an ocassional "oops" moment, but it is just a drip down my shorts, no big deal...not enough to leak through. Heck, every old man leaks in his pants, so who cares? We were headed there anyway.
47 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6      (Biopsy 3/07 just suspicious)
10/07 PSA 5.06   (Biopsy 11/07  1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC  www.roboticoncology.com
Saved both nerve bundles.
Path Report:  Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
 
 


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/2/2008 8:49 PM (GMT -6)   
Thanks for sharing your experiences.
 
Frank
Frank S.
diagnosed 01-08-08 53 years old 
Abnormal PSA for 5 years>
2004 Biospy negative
2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Highest PSA 10
Lowest PSA   4
Current PSA   6
Bone and Ct scans negative
Staged at T1C
Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago
Dr. Arieh Shalhav
surgery at noon out to recovery at 500 pm
in recovery 3.5 hours
Cardiac rythum issues
Surgery thursday pm home friday pm
 


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 4/2/2008 9:12 PM (GMT -6)   

Frank,

No, I did not have urination problems before surgery.

I DID have constant leakage the entire 22 days that I wore the catheter, which made wearing it that much more of a nuisance.

Yes, I took antibiotics for a couple of days after removing the catheter, as I recall.

Good luck.


Danman Bob
Age 57
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14
Biopsy result - 9 of 12 sticks showed cancer
Despite high Gleason score, cancer was confined to the prostate
Possible post-surgery radiation therapy...decision likely in late April 2008, depending upon PSA at that time
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of March 2008)
Began using Viagra 3 times a week December 2007 to stimulate blood flow
Began using Osbon Erec-Aid Esteem manual pump for therapy mid-February 2008
Will probably begin using bimix injections in addition to Viagra and pump in May 2008


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 4/2/2008 9:13 PM (GMT -6)   
Frank, Nice to see you in the chat last night. I pray you dry up in the normal time frame. The unlucky few like me have to explore other options to get dry. Other than any obvious damage the Dr. did during surgery....I think it is just how your body adjust. Mine just decided to be difficult!

Good Luck,
KW
    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.  Will probably try Collagen injections one more time around the first of May.  If no improvement after that will start looking for a AUS Doctor.
 
     


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 4/2/2008 9:46 PM (GMT -6)   

Hi Frank,

Yes... agreed it is a very strange sensation.  My surgeon just warned me that it was about to happen, then she released the bulb and away it went! 

Very weird feeling as it snaked through, but it was quick and so satisfying to get rid of the catheter, that I didn't mind it one bit!

I did not have any problems keeping dry at the doc's office.  You might ask a nurse before you go if they have pads on hand in the office.  My doc had several varieties on-hand so I didn't have to bring a thing.  Usually they are prepared to help you get to your car in a dry fashion.

I'd suggest not to buy a bunch of pads at first, perhaps get some samples from the doc until you know what your "leakage experience" will be.  I found that I needed the pads much more in the daytime compared to sleep time.

By doing Kegels faithfully, I was much better (not perfect) in another three weeks time.

KEGELS link

You should do fine.

Kind regards,


Barry ~ (a.k.a. "Idaho")

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  09/11/2007  <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

3rd PSA  03/17/2008  <0.04

My web site: http://pca-info.blogspot.com


beachbum50
Regular Member


Date Joined Sep 2007
Total Posts : 292
   Posted 4/2/2008 9:48 PM (GMT -6)   

fRANK, i WAS ON ANTIBOTICS THE SEVEN DAYS THE CATH WAS IN, THANKFULY, NO PAIN ON REMOVAL AND HAVE BEEN DRY FROM DAY 1

 

BEACHBUM


Beachbum
 
PSA 10 June 2007
Biopsy July 2, 16 of 16 samples positive
T2C
3+3=6
prostate weighed 40 grams
Di Venci 10/09/07, four hours on table, 3 in recovery
Total time in Hospital: 29 hours
Record for Dr. Lance, 65% of prostate had cancer, but NO spread, clean margins
Clean nodes,
First PSA at 5 weeks, UNDETECTABLE!
Catheter out at seven days, dry from hour one!
Second PSA 19 weeks post op, UNDETECTABLE 2/11/2008
The Lord has truly Blessed me.


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 4/3/2008 8:40 AM (GMT -6)   

Greetings, Frank.  I went to the surgeons office on the appointed day to have my staples removed and the catheter taken out.  The doctor came in and gave me the pathology report indicating there were no margins and everything was great on the report.  Then he left and the nurse started in - she asked me to remove my pants and gave me a "modesty panel".  I told her "Mam, I lost all modesty several weeks ago" so she just went about her business.  She removed my staples - absolutely painless and a very pleasant surprise.  I think there were 28 of them.  Then she took the fluid out of the bulb and before I knew what was happening she jerked and it was gone.  What a relief!  I really didn't feel much at all.  She had a pad for me to wear home.  We had bought a package of depends and a package of pads.  I never wore a depends and only wore a pad for the first three days.  After that I have been pad free - I do leak very infrequently and usually it is from exertion.  I have learned I can't lift anything over just a few pounds or I need to be ready to leak a little.  Overall I am very pleased with the incontinence issues. 

You will do great - just be patient.  The pads aren't the end of the world if you have to wear them for awhile. Before you know it you will be out of them - everyone is different.  There is no right or wrong but just what is right for you.  David


Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
Great wife and family who take very good care of me


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/3/2008 10:51 AM (GMT -6)   
Thank you all for your experiences.
 
My cath came out at 930 this morning.  My surgeon and daughter (a good nurse) became friends while I was out.  He suggested she take it out and save the drive.  Sooooo we did.  Little pain went quick no problem.
 
I did get a script for anti-biotic as a safe guard for infection.  Ciproflexin.  I will take it for 3 days.
 
I have some control and some leakage.  I am very typical so far according to the many comments and my Docs stats..  I will be PATIENT and deal with what ever comes my way.  I expect to get my pathology results today and that I am nervous about.  I will be glad when that is over. I expect good news but have seen some T1C brothers on this site get surprised and go up to a higher gleason ouch... 
 
Thanks so much,
 
Frank
Frank S.
diagnosed 01-08-08 53 years old 
DRE always normal
Abnormal PSA for 5 or more years
2004 Biospy negative
2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Highest PSA 10 ever
Lowest PSA   4
Current PSA   6
Bone and Ct scans negative
Staged at T1C
Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago
Dr. Arieh Shalhav
surgery at noon out to recovery at 500 pm
in recovery 3.5 hours
Cardiac rythum issues
Surgery thursday pm home friday pm
Catheter out in 7 days typical early indications
 


mgl
Regular Member


Date Joined Feb 2007
Total Posts : 122
   Posted 4/3/2008 12:32 PM (GMT -6)   
When they took out my catheter , I didn't know whether I should hit the nurse or hug her , it was quick and somewhat weird, the first 2 days I leaked alot and seemed like I always had to go. If i was just sitting or sleeping it was fine , but if I walked I would soak a pad in 2 miles , that was foe about a week 
   but after that it got better fast and I was running in a month with not much leakage. I wore a pad for about 6 weeks but it was mostly for just in case.
I still can leak a little if i exert, but I have been pad free for10 months . my surgery one year anniversary is next week.
One thing to remember, if you drink alcohol  make sure you empty your bladder before you go to bed. It seems that if I have had a few beers and go to sleep without waiting awhile I can wet myself.
Hopefully things go well for you
50 years old
gleason 3+4=7 psa5.8 clinical stageT3a
Da vinci surgery April10 2007 Mayo clinic Rochester, Mn.
extraprostatic extension Gleason -same
pelvic lymph nodes -negative
Catheter out April 19
37 treatments IMRT ended 10/26/07


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/3/2008 2:21 PM (GMT -6)   

Thanks mgl,

Thats were I am today but its the first few hours.  Sitting is good walking,  or excuse me farting is a real leaker.

 

Frank


Frank S.
diagnosed 01-08-08 53 years old 
DRE always normal
Abnormal PSA for 5 or more years
2004 Biospy negative
2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Highest PSA 10 ever
Lowest PSA   4
Current PSA   6
Bone and Ct scans negative
Staged at T1C
Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago
Dr. Arieh Shalhav
surgery at noon out to recovery at 500 pm
in recovery 3.5 hours
Cardiac rythum issues
Surgery thursday pm home friday pm
Catheter out in 7 days typical early indications
 


phillysub
Regular Member


Date Joined Nov 2007
Total Posts : 64
   Posted 4/3/2008 8:56 PM (GMT -6)   

Oh yes, saying "Goodbye to my old friend, "Mr Catheter".

This was one of my highlights of the whole experience. Very little discomfort when they took it out, and it felt like I was given my freedom.

I've been fairly stable with 1 pad during the day, and 1 pad at night (which I use for preventive reasons only). Worst times is when I'm fairly active around the house, or when I'm on the treadmill...then I sometimes have to go to a 2nd pad - it is rare, but it does happen.

Mentally, it can get discouraging, because you want to be totally dry - but I know, "BE PATIENT!!!


Phillysub.

Age: 51
Last PSA before diagnosis: 2.9

Diagnosed: Oct 2007

Gleason: 3+3=6

RALP surgery: Jan 23, 2008 (Dr Costas Lallas @ Thomas Jefferson Hospital in Philadelphia)

1st Post-op appt: Feb 1, 2008 (negative margins, cancer contained within the capsule)

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