Hi everyone: Rob and I finally got back from Sudbury last week. We were down a bit longer than first excepted. After 10 session of radiation he is impatiently waiting for his hands to be better. There was a lot of frustration at the cancer centre with the rad. dr. and his nurse. When we first arrived after us learning we had to stay down longer than we thought Rob kept waiting and waiting for his hands to return to him after each radiation. He was getting more and more depressed as each session went by. It wasn't until our last couple of days there that we found out through the technician who did Rob's rad. that it would take 3-4 weeks before he has any improvement. When we saw the dr. and asked about
this he repeated this to us. Why didn't he tell us this in the first place? It would have saved my husband and me a lot of bad moments. His nurse was lousy too. Really rude. Doesn't even acknowledge us or speak to us when we enter the room or while we are there. Dr. was in a bad mood the first time we saw him in Sudbury. Very curt and short. After speaking to a couple of other couples there, I learned that they had the same bad experience with him but one couple had an even ruder experience with the nurse. The one positive thing that came from being at the lodge for 10 days was we met a lot of great people there. I got to speak to one lady in particular while both our husbands were getting radiated. I was surprised how many people were there from where we live. Funny, but we couldn't wait to come home but at the same time it was kind of sad leaving the people we met. I will never complain again about
being there 10 days. One couple has been there for 7 weeks of radiation, just coming home weekends. I see small improvements in Rob's hands, just the movements, and he still has 2 more wks. to go. He seems depressed and is only focusing on the loss of his hands. Lately it's more difficult to get him to take his supplements and i now get knots in my stomach when i ask him to take them. He was down to 2 pain pills per day and went off them totally 2 days ago. I had suggested weaning himself off slowly due to being on them for 3 months but he is stubborn. Yesterday he started vomiting and going to the bathroom lots. When i tried to tell him it might be from going off meds cold turkey we wound up fighting. I got the med. sheet and showed him what it said about
going off them cold turkey. Everything I tried to tell him was there. I told him i can't do this anymore, that i feel like i am only his nurse and babysitter now. Told him that it seems he is complacent and just doing what drs. say, (rad. and chemo) and not fighting harder by at least trying alternative methods (self-visualization, meditation etc.) We had talked about
trying these things many times and he never follows through. I told him i'm frustrated and it feels like i am the only one trying to use every method possible to win this battle. From now on i won't ask him to take or do anything, from now on it's up to him. Well, so far he hasn't taken any supplements or done anything. Now i feel guilty. I went out last night for a couple of hrs. to a meeting then left early because i couldn't do anything but feel guilty about
what i said.What's the use anymore. I seem to be the only one who cares whether he lives or dies from this. I told him that if he just wants to sit and only do the minimum to survive than he will lose the fight. He had his 3rd round of chemo last Wed. and everything went well. He is just extremely tired and his red cells are at 95. Spoke to the nurse and she said the exhaustion is normal from chemo but he should move around some between resting and not to just do nothing but lie down. Not good for him. Now just trying to convince him. All he does is sit in his chair. If he is depressed he won't admit it and i'm sick of hearing my own voice so what's the use trying. I know he is the one with the illness, but he doesn't seem to realize that it's my illness too. He has lost interest in whether the grandchildren come to the house. the loss of his hands seemed to be the final straw. I'm at my wits end. I can't keep nagging him to take pills and eat, drink water etc... He is still pain free so maybe chemo is helping. They did psa test last Wed. also. Don't know results yet. does anyone know anything about
psa and chemo. if psa was still rising wouldn't he still be in pain like before? If anyone can help I would appreciate it. Sorry for babbling. I don't want to lose him but don't know what else to do.