A Year in Remission ~ And the Price...

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/4/2008 1:07 AM (GMT -6)   
A new perspective:
Many of you have been heroes to me both when I first came here and even new members since.  On March 23, I went past 1 year with an undetectable PSA.  Wow what a year!  Staying positive is my motto, I preach it here.  There were times it was difficult.  I am now a moderator here, but I am also a patient, too.  My signature tells a story that shows various levels of success.  I also blog a site for friends and family, and for myself to vent or articulate a feeling about this experience.  First off I am still positive, living a desert outdoors life, RVing, Dirt Biking, Ultraliting, Boating, much more, and a productive job.  I wanted to post this at my blog, and may still, but it's probably more useful here.  I started out well.  I came here (good start) at the age of 44 and learned about the process of treating PC and about courage.  You folks said I had courage but it was you all that showed me how to not be afraid.  Fact is that I still have days I worry about the relapse that I was told is likely.  It doesn't stop me from living though.  I went back and read my posts from day one and am amazed I kept my sanity. (at least some of it).  Here's how it all started:
 
daVinci:
On February 16, 2007, we accomplished removing the prostate while staying continent and having useful erections.  But we still did not get good results that we had hoped for.  I had a bad pathology and high probability of return.  pT3b, bilateral seminals involved, extraprostatic extension to the bone, positive margins, and a 4+3 Gleason.  I was told it may also still be stage IV but the lymphs were clean (10 removed).  The surgeon said 60% chance of return.
 
Oncology:
My oncologist stated 90% chance or relapse and had the slides sent to Johns Hopkins.  Epstein declined me for a clinical trial with false good news.  There was a clerical error on my PSA and the time lapsed on entering the trial.  No harm no foul.  The trial was abandoned.  (actually if I had started the trial I would have had free care for life after the program was stopped).  My medical oncologist today still thinks radiation was not fruitful but he OK'd me for the procedure.  I have a great oncologist and he has allowed me to do my own research and add my thoughts each step of the way.  I optioned out of chemotherapy for now.
 
Angrogen Deprivation Therapy (ADT or also HT):
This started out well but did not continue to be without side effects.  Hot flashes happen but have been tolerable.  Headaches have increased, and are still increasing.  Not too much to medicate, but enough to consider it.  I have completely lost the libido and that has been the biggest psychological down turn.  Using meds to get erections is fruitless if you are not sexually driven.  Also my short term memory is not nearly as good.  Also my short term memory is not nearly as good.  tongue   Still I must remain on it at least another year or more.  I take my bone meds, and also my supplements outlined in the Myers book.  But I want my dang sex drive back.  eyes
 
Radiation Therapy:
Standard IMRT 38 sessions just over six months ago.  I breezed through the treatment.  Walked many miles through beautiful Utah, Arizona, and Nevada.Walked daily afetr treatments about 3 miles or more.  No side effects.  At First.  If I drink a bunch of wine I am incontinent now.  I am alcohol free pretty much these days.  So its better.  Occasional drips are not enough to wear pads.  I hear this will get better in time.  I can tolerate the side effects.
 
Additional side effects:
I have high blood pressure and have had to intervene with meds. (Not good for the libido or the erections, what ever those are). Stamina is lowered by the combination of all the above.  But I am still quite active and working through light fatigue.  (working very hard probably isn't helping the fatigue).  I am doing OK with the weight, I was supposed to gain, but actually below the daVinci weight. yeah
 
Financial effects:
Because of a necessary job change, COBRA, travelling for treatment, I've blown over a 100k in savings over the last year and a half.  I was very lucky to save that much but now it's gone.  (lovely housing market crash doesn't help either).  Still I will rebuid it.  I don't fear the financials.  If I have had to make changes they are not too over bearing.
 
Spiritual effects:
I have decided to pursue a closer relationship with God and my religion.  It was much improved ten years ago by the loss of our baby. But it is now my way of life.  And this has made all the above meaningless.  The biggest gain in getting cancer.  Because of this I have no regrets and do not sweat the above small cancer stuff.  By now you know I am a devout Christian.  Sunday church, and Monday studies.  And every day practice.  It used to be my business that religion stopped at the doors of the church, but now I know that is where it begins.  I can go on about it but just know that my cancer lost it's battle to Jesus. 
 
One year Later:
I am still in remission.  I could have been tested by the job, money, and losing my mother less than a month ago, but instead I am stronger.  Better able to fight disease.  Better able to Love the little things in life.  Better Lover of my wife whom without I would only be half a man.  Cancer has made me some very special friends that I have never shook hands with.  Cancer has been a positive, not a negative.  But cancer still sucks.
 
What's Next:
No one knows physically.  But I will continue to thrive with my beautiful wife, Ruthie, my son, my friends.  I am a skilled engineer and Account Executive.  And when I see the desert, I ride, hike, and thrive.  And when I come here, I have found a great place to be. 
 
Thank you all!  Thank you for letting me moderate and help this site thrive.  I have to be up in six hours so I'm done for tonight.  I hope this was useful to someone.  It was for me. Overall, the price was affordable.  God Bless you all. 
 
Your Friend,
 
Tony


Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator

Post Edited (TC-LasVegas) : 4/4/2008 6:20:45 AM (GMT-6)


mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 4/4/2008 5:11 AM (GMT -6)   
Spent the night on your site with a pot of coffee.

I tried to leave a note in the guestbook, but my system said something about cookies and wouldn't allow it.
I am NOT a computer person.

Anyhow, my thoughts are with you (My prayers need a ton of work on so I leave them to ML) and hope your remission last's forever.

Billy
DIAG. 2/08
DRE POSITIVE
PSA 6.8
CONTAINED, LEFT SIDE, GLEASON 9
LUPRON, (3 MO.) 2/28
SURG, SCHED. 3/26/08
RRP, 3/26, HOME 3/31
BIOPSY REPORT:
GLEASON SCORE, 3+4
LEFT NERVE BUNDLE REMOVED, RIGHT RETAINED.
LEFT AND RIGHT LYMPH NODES NEGATIVE FOR MALIGNANCY.
BLADDER NECK , NEGATIVE FOR MALIGNANCY.
TUMOR CONFINED TO THE PROSTATE, INKED EXTERNAL SURFACE FREE OF INVOLVEMENT.
BILATERAL VAS DEFERENS, NEGATIVE FOR MAILIGNANCY.
BILATERAL SEMINAL VESICALS, NEGATIVE FOR MALIGNANCY.

WAITING NOW FOR 1ST POST OPERATIVE PSA, WHICH WILL DETERMINE VERY LITTLE DUE TO LUPRON INJECTION.

BASICALLY, THE "WINDOW OF OPPORTUNITY" THE PHYSICIAN WAS SEEKING WAS REACHED AND HE GOT IT ALL.


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 4/4/2008 6:03 AM (GMT -6)   
Tony-

You're an inspiration and hero to us all. Thank you.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 4/4/2008 6:46 AM (GMT -6)   
Tony,
You are an inspiration pure and simple. A positive attitude is contagious........thank you.
Bill :-)
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcima-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 4/4/2008 7:21 AM (GMT -6)   
Tony, you have a strong spirit and are truly (like all our men) a hero. Your ability to put your experiences into words is a treasured gift to us all.
Husband: Age 67
PSA had doubled in 14 mos to 4.3/Gleason 6
da Vinci 8/06 in Austin with Dr. Randy Fagin
Post surgical path shows encapsular penetration; possible bladder neck involvement.
PSAs remain undetectable; no further treatment at this time.
Next PSA: April 08


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 4/4/2008 7:45 AM (GMT -6)   

Tony, dear friend.

What can I say?  A terrific update on your journey!

You've given me inspiration and courage ever since I joined HW and I countinue to pray for your welfare.

Kind regards,

Barry


Barry ~ (a.k.a. "Idaho")

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  09/11/2007  <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

3rd PSA  03/17/2008  <0.04

My web site: http://pca-info.blogspot.com

Post Edited (IdahoSurvivor) : 4/4/2008 10:52:00 AM (GMT-6)


Jim-N1BRP
Regular Member


Date Joined Jul 2006
Total Posts : 165
   Posted 4/4/2008 9:01 AM (GMT -6)   
Tony,

You are the drive behind me to do well

Thanks

Jim, 54,~Jim-N1BRP. My Journey
Diagnosed: 12Nov. '07, Age 54

Treatment Started : 31 Jan 08

To be 42 treatment 1.8 Gy M-F for a total of 75.6 Gy.

Prostate Biopsy: 18Sept '06, - 10 sample all negative, Prostate size 36.3 cc

Prostate Biopsy : 12Nov '07, Biopsy - 14 sample 2 positive, one Gleason 6 at 5 %,
other Gleason 6 at 15%- Stage T1C -Prostate size 40.2 cc

Bone Scan: 12Dec '07, - Hot Spot on Brain
Family history: Father and two uncles  die from PCa

Other: GERD, 30% Carotid artery blockage, Kidney Cyst, Asthma

Meds, BusPIRone, Trazodone, Tramadol HCl, Omeprazole, Nitrostat, Plavix, Albuterol, Multi Vitamin  Mens

PSA's                   fPSA

1.2    Oct  05

3.61  Jul    06    

2.6    Sept 06          19%  

2.6    Apr 07             3% Oh NO

 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 4/4/2008 9:26 AM (GMT -6)   
Tony, a fantastic, touching update.  I am pleased that you have changed adversity into a deeper relationship with our God.  For believers, this is a well that too few go to in their struggle....
 
James C.

DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 4/4/2008 9:26 AM (GMT -6)   

Tony,

Thanks for sharing and best of luck for continue improvement.

DanMan


Danman Bob
Age 57
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14
Biopsy result - 9 of 12 sticks showed cancer
Despite high Gleason score, cancer was confined to the prostate
Possible post-surgery radiation therapy...decision likely in late April 2008, depending upon PSA at that time
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of March 2008)
Began using Viagra 3 times a week December 2007 to stimulate blood flow
Began using Osbon Erec-Aid Esteem manual pump for therapy mid-February 2008
Will probably begin using bimix injections in addition to Viagra and pump in May 2008


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 4/4/2008 9:32 AM (GMT -6)   
Hey Tony,

Your open, friendly and positive attitude are an example of how we can deal with and conquer cancer. My hero is Jimmy V. and your are certainly cast in the same mold.

Best in the future my friend...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
"Patience is essential, attitude is everything."
 
 


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/4/2008 9:36 AM (GMT -6)   
Tony,

What words can describe your journey. You are an educated, passionate man who is a natural born leader. I cant tell you how much your helping others like me battling with this disease really means to us and our families. Billy and I share a surgery date and are just a couple of new guys starting our journey. How many others have there been. What fears, questions and feelings would have gone unattended without your and the other moderators of this site. And to be helping these many others while you and your family have your own challenges and fears. You arent just a leader but a great one.

God Bless you and your family. I shall keep you close to my heart.

Frank
Frank S.
diagnosed 01-08-08 53 years old 
DRE always normal
Abnormal PSA for 5 or more years
2004 Biospy negative
2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Highest PSA 10 ever
Lowest PSA   4
Current PSA   6
Bone and Ct scans negative
Staged at T1C
Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago
Dr. Arieh Shalhav
surgery at noon out to recovery at 500 pm
in recovery 3.5 hours
Cardiac rythum issues
Surgery thursday pm home friday pm
Catheter out in 7 days typical early indications
 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 4/4/2008 9:58 AM (GMT -6)   
I'm glad you did this post. It's good to review where you've been and how far you've come. Sharing that is beneficial for everyone.
You've not allowed cancer to take who you really are...a man who loves his God & family, a fighter, a friend and a supporter of those in need.
Thanks for being here.

All the best to you Tony,
Susan

Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 4/4/2008 10:31 AM (GMT -6)   
My God, Tony!
What a post! It served as a reminder to me (we all need them don't we) as to why you have been one of my heroes here on Healing Well. Your outlook on life, your attitude and your gentle good humor are an inspiration to us all! Too often, many of us sweat the small stuff, and get lost in our own dealings with this terrible disease. As you said, the price is high. But thanks to caring souls like yourself Tony, it's a price I can still afford to pay. God bless you, and continue to get well my friend.
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear. February 2007 - Three to fo ur pads a day, no erection with viagara. April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.July, 2007 - Six Month Post-op: PSA 0.04 No change in ED. October, 2007 - Nine Month Post-op: PSA back down to 0.02!Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment. January 2008: One Year Post-OP PSA 0.02 still dripping, but improving. Tried 500 dose of MUSE for ED, no luck. Will try 1000.


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 4/4/2008 10:57 AM (GMT -6)   
Tony

Great post, you are an amazing guy with an unbelievable attiude that I take to heart each day and also try and live by and not fret the small stuff. It's in God's hands and we are his messingers to help others through all this and you do an outstanding job while dealing with your own journey with this nasty Pc. May your remission last a lifetime.

Norskie
norskie
Age 49, PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Pathology report 4+3=7 a couple agressive Grade 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
Catheter removed 1-18-07 suffered bladder spasms Catheter reattached 1-18-07 Catheter removed 2nd time 1-24-07
1st & 2nd Post PSA Blood Test .1 and less - Undetectable
3nd Post PSA Blood Test 01-17-07 .3-Next action awaits me.
Next PSA Scheduled and meeting with Radiologist set for 3-27-08
Incontenence-Pad free since end of May 07 4 1/2 months post surgery 
ED back to 95% prior to surgery - no medication required.


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 4/4/2008 1:24 PM (GMT -6)   

Cancer sucks, but you ROCK Tony!  Words can't express how much you have helped me and my family.  Your support at the most difficult time in our lives will be something we will ALWAYS remember! God bless you and your family! 

C


Father's Information
DX July 15, 2007
Age 62 (now 63)
PSA 5.5
Original Gleason 3+4=7 
Post Surgery Gleason- 4+3=7
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin
One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
T3a N1 M0
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07
Lupron beg. Dec 03, 2007 2 yr
Radiation started March 03, 2008 7 weeks 5x a week
2 weeks of radiation down!!!
 
 


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 4/4/2008 3:46 PM (GMT -6)   

Tony,

What a journey and what a price. But you and I know that the price is not that high. It is small compared to the price that has already been paid for us. As ussual your post shows to all what some of us have to go through to beat the monster. You inspire me every day. You are my friend and fellow traveler.

Peace, love, and War Eagle,

Walt


Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Casodex 4/2007
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
PSA 6.72 1/2008
PSA 8.23 2/2008 - Starting prednisone for 30 days
PSA 14 2-29-2008 - start chemo on 3/12 
 
"I will persist without exception - I will find a way where there is no way"


mozart250
Regular Member


Date Joined Jan 2007
Total Posts : 102
   Posted 4/4/2008 3:55 PM (GMT -6)   
Tony:
 
Great post.  And may it stay in remission.
 
Rob
52 Year Old DBA by profession; amateur pianist by passion.
 
June and Aug 2006:  PSA 4.6.  DRE prostate enlarged.  Second opinion
Sep  2006:  Biopsy results positive one lobe.  Gleason 3+3.
Nov  2006:  RPA performed at Fletcher Allen in Burlington VT.
Nov  2006:  Pathology report: Stage T3a and Gleason 3+4.
Dec  2006:  PSA 0.1
Feb, May  2007:  PSA 0.0 (under 0.1)
Aug, Nov  2007 and Feb 2008:  PSA 0.1
Mar-May  2008:  IMRT Radiation
 
Trying my hand at blogging.


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 4/4/2008 4:24 PM (GMT -6)   
Greetings, Tony.  Count me as one of those friends who has never had the privilege of shaking your hand.  I'd look forward to that and count it an honor to meet you one of these days.  Thanks for your encouraging words on this board that have helped all of us at one time or another.  We continue to pray that your zero's will continue forever and you will stay in remission.  David

Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
Great wife and family who take very good care of me


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 4/4/2008 6:40 PM (GMT -6)   
Dear Tony. You are such a Trooper. Hang in there buddy.


Mika
age at dx 54 now 55
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
wear one for insurance now
ED still a problem
last PSA undetectable
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/4/2008 7:33 PM (GMT -6)   
I've been readin' these posts and as Walt says, you guys make my heart sing. Like I said my inspiration comes from all of you. The people here are not the "woe is me" crowd, but rather the lemonaid makers. A great lesson in my life and I do draw from it. It's great to be friends with you all. Thank you again. I wish we were in the same building because what a party it would be, no? it would take time to personaize all my thanks so we'll do it as we go OK? Stay well and stay close......oh yea.....Stay Positive!

God Bless you.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 4/4/2008 9:50 PM (GMT -6)   
Tony:
Congrats on the one year anniversary - may you celebrate many more.  You are the greatest inspiration to us all - what an attitude!!!!  Best wishes.
Dutch
Diagnosed Feb 2001  (Age 65)  Currently 72
PSA 4.8      Gleason 3+3=6      Stage   T2b
Completed Proton Therapy @ Loma Linda - Aug 2001 - No side effects.
7yr PSA - 0.2
Our responsibility now is to educate men about Pca, PSA and the importance of early detection. 
 
 
 


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2366
   Posted 4/5/2008 2:34 PM (GMT -6)   

Tony--Thanks for sharing who you are with us on this forum.  Nobody here asked to get prostate cancer, but without it none of us would have the privilege of getting to know each other.

I count you as a friend and feel cheered every time I read one of your posts of encouragement, hope and courage. I was touched by what you wrote, as I have been by others here (I think of Gordy's message about his recent meeting with Bill, a member here).

I, too, have paid more attention to my spiritual life since being hit below the belt with a diagnosis of prostate cancer.  A man in my church who also had gone thru cancer diagnosis, met with me weekly during the first year after I was diagnosed.  I was able to be an emotional basket case, ask hard questions, and be wonderfully supported by someone who knew and cared about me.

This forum functions similarly.  The men and women here are the best!!

 

 

 
Age 59  PSA velocity quadrupled in 1 yr (0.6 to 2.6) 
1 of 12 biopsies positive (5%) 
Open surgery June 2006 
Cancer confined to one small area Gleason 5 
PSA's undetectable
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 4/5/2008 7:57 PM (GMT -6)   
when I started this journey 9 months ago I am sad to say I searched for people my age that had this type of cancer. this forum has provided a wealth of resources. You are an awesome moderator Tony and this forum is fortunate to have someone like you. I reposted my caringbridge site so hopefully it can be viewed now.
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids


anniea
Regular Member


Date Joined May 2007
Total Posts : 234
   Posted 4/6/2008 4:42 AM (GMT -6)   

Hi Tony,

What can I say YOU ARE THE MAN!!! I hope the man upstairs continues to look out for you. You have had one heck of a year and you still remain positive and are always so willing to extend a helping hand to all of us. God bless you my friend.

Love,

Diana


Rick & Diana
Age 68/ 67@ Dx
6-30-06  PSA 2.54
1-22-07  PSA 4.98
1-26-07  PSA 5.09
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
3-6-07 Triple Spinal Fusion (due to old back injury)
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
6-9-07   PSA 0.02
7-6-07   PSA 0.03
8-1-07   CT Scan & Chest X-Ray   Clean
 9-26-2007 PSA 0.07
11/1/07 PSA 0.1
11/30/07 PSA 0.12
01/31/2008 PSA 0.3
03/01/2008 PSA 0.3


dutchy
Regular Member


Date Joined Jun 2007
Total Posts : 75
   Posted 4/6/2008 6:53 AM (GMT -6)   
Keep going Tony! We're so happy for you. Dutchy
Dutchy's husband:
 7/6: PSA 1,946, multiple bone metastases in thoracic, lumbar spine, pelvis, bilateral ribs and proximal left tibia, 2 weeks Casodex (50 mg)
25/6: PSA 407, Lupron injection (22.5 mg) + Zometa (4 mg IV)
20/8: PSA 3,7
24/9: Started 50 mg Casodex daily
29/9: PSA 0.7
30/9: Lupron injection (22.5 mg) + Zometa (4 mg IV)
14/10: PSA 0.17
18/13: PSA 0.003, Lupron injection (22.5 mg), Testosteron 0.6
 
 
           

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