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mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 4/5/2008 1:38 PM (GMT -6)   
Both Frank and I wondered how we know when a group is in the PC chat room talking?

Do we have to physically look to see if anyone's in there, or is there a way to know it's active?
DIAG. 2/08
DRE POSITIVE
PSA 6.8
CONTAINED, LEFT SIDE, GLEASON 9
LUPRON, (3 MO.) 2/28
SURG, SCHED. 3/26/08
RRP, 3/26, HOME 3/31
BIOPSY REPORT:
GLEASON SCORE, 3+4
LEFT NERVE BUNDLE REMOVED, RIGHT RETAINED.
LEFT AND RIGHT LYMPH NODES NEGATIVE FOR MALIGNANCY.
BLADDER NECK , NEGATIVE FOR MALIGNANCY.
TUMOR CONFINED TO THE PROSTATE, INKED EXTERNAL SURFACE FREE OF INVOLVEMENT.
BILATERAL VAS DEFERENS, NEGATIVE FOR MAILIGNANCY.
BILATERAL SEMINAL VESICALS, NEGATIVE FOR MALIGNANCY.

WAITING NOW FOR 1ST POST OPERATIVE PSA, WHICH WILL DETERMINE VERY LITTLE DUE TO LUPRON INJECTION.

BASICALLY, THE "WINDOW OF OPPORTUNITY" THE PHYSICIAN WAS SEEKING WAS REACHED AND HE GOT IT ALL.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/5/2008 1:43 PM (GMT -6)   
It's hit or miss. I logged in just now. I'll hang for a few. bluebird has been the chat scheduler. She has been scarce lately so I will look into setting up chats.
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/5/2008 3:21 PM (GMT -6)   
Ditto...

Frank
Frank S.
diagnosed 01-08-08 53 years old 
DRE normal
High PSA for 5 or more years
2004 Biospy negative
2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA   6
Bone and Ct scans negative
Staged at T1C
Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago
5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours
Catheter out in 7 days  expected leakage
Erectile funtion back on line 9 days
 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on bottom of prostate distal, 1 positve margin distal at urethra, going to meet with oncologist to discuss treatment options if any at this time.
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 4/5/2008 3:48 PM (GMT -6)   
I usually just click the Chat button on the blue bar above, this opens to the login page.  Under the login section, it shows the rooms that are active with people in them, if it says Prostate, then I login.
James C. 
 
Help support the forums so they can support you:  http://www.healingwell.com/donate 
 
Age 60 
4/19/07   PSA 7.6, referred to Urologist, recheck 6.7
7/11/07   Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07   Path report:  3 of 16 PCa, 5% involved, left lobe , GS 3/3:6. 
9/24/07   (Open) Retropubic Radical Prostatectomy performed 
9/26/07   Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07  ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08  Caverject started/stopped, aching.  2/24/08 .5ml Bimix started-success
3/24/08   ED- 6 mts.-Viagra, pump, no response- Bimix continues
Post-surgery PSA's:  3 mt:0, 6 mt:0,


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/11/2008 7:15 PM (GMT -6)   
Chat Room was scheduled through April 8th.
 
I'm working on the rest of the month right now... tongue
 
If you ever want a specific day/time... just let me know and we'll schedule it.
No one has every requested it so I keep putting down the same schedule we've had for over a year now. 
 
:) Lee
 
Edited to add request info... :)

Post Edited (bluebird) : 4/11/2008 7:31:11 PM (GMT-6)


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 4/12/2008 7:27 AM (GMT -6)   

ms. blue.... could we try scheduling a couple of hours maybe twice weekly on weekdays between 8 and 11am EST?  I suspect others, like me, are most active on the computer of the mornings.  The 1 to 3pm slot I didn't know about, so will be checking there during the week to see if anyone is around. 

Is the formally scheduled Prostate Forum Chat  schedule any different than us just wandering in?  Is there any organization or leader, or such?

James C.


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/12/2008 11:33 AM (GMT -6)   
Bluebird,

Thats great , thank you very much for your time and effort.

Frank
Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on bottom of prostate, 1 positve margin  going to meet with oncologist to discuss treatment options if any at this time.
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/12/2008 3:49 PM (GMT -6)   
tongue  Hey James ~
I'll be back to answer your questions... and set the times up for your request.
 

cool Thanks Frank!!!  I'm a firm believer... you don't ask ~ you don't get.  You ask you ~ get a yes, maybe, or a no.   I like the odds....  smurf

Back soon and will let you know by popping the original Chat Schedule thread to the top!


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/14/2008 9:39 PM (GMT -6)   

Click here…..>Chat Room: Let's Get Together.... Monthly Schedule

Hope this helps!!  

  • Is the formally scheduled Prostate Forum Chat schedule any different than us just wandering in?

Chat is open 24/7 so drop in anytime.

Let us know you’re there by starting a thread titled:  Let’s Chat or In Chat

 

Or click on…>>> Chat Schedule

 

Look for

- Prostate
- Prostate (...

 

Click on both because each has a specific schedule… for members to make plans to talk. 

 

The schedule that has been posted for over a year was started so we would have specific times for our members to talk.  Other forums have stopped scheduling so there is more time available.

 

This is the first request for new times… Thank you for suggesting it Jim!  I’ll be happy to post your requested times.

  • Is there any organization or leader, or such?

No ~ Organization

No ~ Leader

 

If you want to talk about a specific subject on a specific day/time

A moderator will be happy to post this for you… we will need advance notice so plan ahead!

 

Just a couple of things to remember…

  • The same rules apply in chat as they do in the forums  yeah
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