Some questions about incontenance

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No Control
New Member


Date Joined Apr 2008
Total Posts : 2
   Posted 4/6/2008 11:46 PM (GMT -6)   
I am 67 years old and back in August of 2007 I had set an appointment with a urologist to talk about an ED issue.
In Sep of 2007, my primary care doctor checked my PSA for the first time in my life. Why had he not checked it before? He says that ever since I have been comming to see him he focused in on my depression (he didn't fix that either) and somehow forgot to check the PSA. Anyways it was 18 at that time and he advised me to go to a urologist but I mentioned to him that I allready had the appointment which I had waited for 3 months so when I went in Oct, I informed the urologist that there was a more pressing issue that I needed help on than my ED and he agreeded.
By November he had determined that I had an extreemly enlargened prostate and none of the other options for treatment were viable so surgical removal was the only option left and the cancer was determined to be a 'very agressive' type. The surgery was done in mid January 2008.
I started leaking right after the surgery even with the catheter I was leaking around the tube and after the catheter was removed I continued to leak. I am overweight and it was pointed out that it might make regaining bladder control more difficult. To complicate matters after 9 weeks I came down with a minor case of the flu and it lasted 1 1/2 weeks during which time I lost the little control of my bladder that I had developed. It is now 12 weeks and the flu is gone but the control is still a dream.
The urologist said that the first sign of control would be a reduction of leakage during the night and that has finally started to occur.
I have been doing the exercise in the area but I am not sure I am doing it right because I still have no control. One of my observations is that my penis went into hiding right after surgery and hasn't come out so since I have no sense of a need to go to the bathroom I find myself just leaking all the time. I can sit on the stool for 3/4 of an hour and I just leak fairly constantly and when I stand up I just leak some more.
Does anyone have any suggestions that I might try to reduce the leakage?
I am using 3 types of pads from Wallgreens depending on what I am doing or what types of clothing I have on. I find that I am very irritated in that are and I am assuning it is from the constant wetness in the area and the fact that the pads are cenrtainly not smooth or comfortable.
Thanks in advance for any suggestions that you might be able to offer.
JimG
 

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/6/2008 11:53 PM (GMT -6)   

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/6/2008 11:57 PM (GMT -6)   
Hi Jim,
There are many here that will tell you that you need more time to assess the situation. And there are those less fortunate that are doing their best with their situations. You are barely not even three months out and can absolutely get much improvement. You have my best wishes for it. Welcome to HealingWell. This is an awesome site that has incredible support and caring. Stay close and watch the great supporters over the next few days. If you camn view the link in the above greeting. Try to get your signature set up and tell you vitals in your story. It will help others identify with your plight.

God Bless,

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 4/7/2008 7:16 PM (GMT -6)   
Hi Jim,
I was slow to show much imporvement as well. After 6 weeks or so I was sure that I was doomed to a life on Depends. I finally started to show improvement when I changed my kegel routine. I started doing them during urination. Pretending I was holding a quarter between my cheeks, I quickly isolated the muscles that cut off my stream. Within a few weeks I showed some improvement, but had to be satisfied taking note of each very small step in the right direction. While I'm not totally dry at 1 year +, I'm down to ultra thin pads, and it's only to catch a few drops. The best advice I can offer is patience - patience - patience, and I know it's easier said than done! Good Luck, and don't give up!
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear. February 2007 - Three to fo ur pads a day, no erection with viagara. April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.July, 2007 - Six Month Post-op: PSA 0.04 No change in ED. October, 2007 - Nine Month Post-op: PSA back down to 0.02!Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment. January 2008: One Year Post-OP PSA 0.02 still dripping, but improving. Tried 500 dose of MUSE for ED, no luck. Will try 1000.


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 4/7/2008 8:59 PM (GMT -6)   
JimG, You may want to ask your Dr. if they know a physical therapist that does bio-feedback training? I was seeing one for a while to help me isolate the pelvic floor muscles.
I wish you well with your Journey!

KW
    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.  Will probably try Collagen injections one more time around the first of May.  If no improvement after that will start looking for a AUS Doctor.
 
     


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 4/8/2008 12:41 AM (GMT -6)   
The muscles to concentrate on are those that close off urine and those that support the bladder. Having your prostate removed means there is quite a bit of tissue on which the bladder partially sat that has been removed so the way the bladder sits may have changed. You can isolate those that control bladder emptying by attempting to stop the flow while deliberately urinating. It feels like you are drawing your penis and scrotum back up into your body. The rest of the pelvic floor muscles feels like you are drawing up that area between your scrotum and your anus. Keep at it, it does take time but once you get the feel of what you are trying to flex you are home and hosed, so to speak. :-) That foreshortened member was another thing that was not mentioned before surgery.......where, oh where, did it go?
Bill confused
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcima-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable


No Control
New Member


Date Joined Apr 2008
Total Posts : 2
   Posted 4/10/2008 7:32 PM (GMT -6)   
My biggest concern at this point is that the oncologist that I saw wants to start Radiation because the cancer is still spreading and he said that when they start radiation whatever level of bladder control I have will NEVER get any better and he doesn't want to wait any more than 4 more weeks so I guess I will hope for the best and see what happens.
No Control
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