Calling for results

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goody5
Regular Member


Date Joined Mar 2008
Total Posts : 66
   Posted 4/9/2008 2:07 PM (GMT -7)   
Today my Uncle called his urologist to see of the needle biopsy results were in from an enlarged lymph node seen on the CAT scan. The radiologist had said at the time of the biopsy that if the tissue came back "dead" he would have to come in again. We still do not know what "dead" tissue is. 
  The nurse called back and told him the doctor would rather discuss all of his test results with him on friday when he comes in for his scheduled appoitment. 
Has anyone called for test results and got them earlier than your appoitment?
 
Cheryl
Father diagnosed 13 years ago @ age 63
Watchful waiting until PSA jumped from 6 to 10
Cancer found in 1 core
Gleason score 6
Seeds implanted
PSA has been low since (don't know exact numbers)
 
Uncle (mother's brother) age 68
PSA jump from 2 to 8 in 18 months (2/08)
DRE was normal (2/08)
Biopsy (3/08) Cancer found
Bone scan (clear) 
CAT scan (3/08)
Lymph Biopsy (4/08)
Gleason Score (?) 
Waiting to see urologist 4/11/08
 


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2268
   Posted 4/9/2008 2:30 PM (GMT -7)   

I haven't.  The physician has always delivered the news, good or bad, in person at my appointment.  While it's hard to wait, some medical results require some interpretation, and it's easier with the physician there to interpret them and answer questions. 

Two years ago, I called for my prostate biopsy results, and was told that I would have to wait until my appointment.  I was so confident the results would be negative, I didn't want to waste time going in for an appointment.  Despite the odds against cancer, I was told I had it, but thankfully in the early stages and curable.  I felt unlucky, but now feel lucky, especially reading about some of those whose cancer was not caught early.

Make of this what you will....Tim

 


Age 59  PSA velocity quadrupled in 1 yr (0.6 to 2.6) 
1 of 12 biopsies positive (5%) 
Open surgery June 2006 
Cancer confined to one small area Gleason 5 
PSA's undetectable
 


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 4/9/2008 2:33 PM (GMT -7)   

My urologist called me with bone scan and biopsy results, then I met him in person for a more detailed discussion about what biopsy and possible treatments.

Post surgery pathology results were provided in person.

 


Danman Bob
Age 57
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14
Biopsy result - 9 of 12 sticks showed cancer
Despite high Gleason score, cancer was confined to the prostate
Possible post-surgery radiation therapy...decision likely in late April 2008, depending upon PSA at that time
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of March 2008)
Began using Viagra 3 times a week December 2007 to stimulate blood flow
Began using Osbon Erec-Aid Esteem manual pump for therapy mid-February 2008
Will probably begin using bimix injections in addition to Viagra and pump in May 2008


StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 353
   Posted 4/9/2008 3:19 PM (GMT -7)   
This is one of those areas where it is so easy to read too much into things. Best to try to wait for the actual meeting if that's what is required, though I know it can drive you crazy.

When I got the first bad PSA that led to my cancer diagnosis, my doctor left me a voicemail that said something on the order of "one of your tests came back odd, probably nothing, but we should check it out". Now words along those lines freak me out a little bit.

I have had doctors say I had to come in to get the results and there was no problem. So, I think it's a mix of protocol, requiring interpretation, wanting to go over things with the patient, and, sometimes, bad results. But the results can often be good, too.
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-18 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007); 4th post-surgery PSA: 0 (June 2007); 5th post-surgery PSA: 0

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on daily Cialis, L-arginine and pentoxyfylline. Peyronies has stabilized and significantly reversed.

- PGE1 batting average: .364 (4 for 11)
- Bimix #3 batting average: .722 (13 for 18) Bimix #1 batting average (2 for 2)
- Trimix batting average: .500 (1 for 2) Grand total 20 for 33 = .606

"Lost in the valley without my horses, no one can tell me what my remorse is..."

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