Shorten penis syndrome caused of pudendal nerve problem

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Alesssandro
New Member


Date Joined Apr 2008
Total Posts : 3
   Posted 4/9/2008 7:34 PM (GMT -6)   
I've read about this "Shorten penis syndrome". People who had prostatectomy, and have no frequent noturnal erections because of nerve problem, can eventually notice penis short in size (length and girth).

I had a condition that affect pudendal nerve called (pudendal nerve compression), and had a surgery in Nantes France to decompress the pudendal nerve in 2006. Havent had frequent noturnal erections since then ,and only now (2 years after) i notice my erection are getting a litter better. Although i started to notice my penis is getting smaller(erect and flaccid) during last year. I did take viagra and cialis . but only few times after surgery. I 've heard i should maintain blood flow to penis, but honestly i wasn't able to take viagra everyday.

My question are : Can I revert or stop this process ? Is it getting worse ? After shorten, is it possible to do something?

thanks


PS: sorry my english

Post Edited (Alesssandro) : 4/9/2008 6:37:47 PM (GMT-6)


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 4/9/2008 9:17 PM (GMT -6)   
I must have been born with it!!..... I know it is no joking matter but we are all different. Some bigger...some smaller... As long as it works it is fine with me.

Good Luck, KW
    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.  Will probably try Collagen injections one more time around the first of May.  If no improvement after that will start looking for a AUS Doctor.
 
     


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 4/10/2008 12:07 AM (GMT -6)   
Allessandro,
Following prostatectomy, the urethral length is reduced, pulling the member back somewhat (at least temporarily.....time and stretching should usually restore length). Although I am not overly familiar with the pudendal nerve compression of which you speak, I believe the trick to restoring size may be to maintain erections by natural means or mechanical. This will cause the penis to be blood filled and attain its maximum tissue allowable length. If full erection cannot be achieved naturally then there are various vaccuum devices that will cause the penis to be fully blood engorged. Additionally, if you cannot use Viagra or Cialis each day (was this recommended?) then perhaps a reduced amount on alternate days may be possible.
Bill :-)
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable


Alesssandro
New Member


Date Joined Apr 2008
Total Posts : 3
   Posted 4/10/2008 6:54 AM (GMT -6)   
thanks Bill,

so its proven that once I havent had normal erections, my penis tissues are having (somehow) an atrophy? and less engorged. Have you heard someone who did revert this? regaingned the "old" fully erection after being shorten for a period of time.

Alesssandro
New Member


Date Joined Apr 2008
Total Posts : 3
   Posted 4/10/2008 7:06 AM (GMT -6)   
i read this article:

http://hisandherhealth.com/2007-2008/prevention-treatment-of-erectile-dysfunction-following-radical-prostatectomy-radiation-th.html

"..The basis of therapy is based on the facts that the more blood flow and therefore more oxygen that goes to the penis on a regular basis, the greater the preservation of the normal vitality of the penis and the less chance of developing chronic fibrosis, scarring, and inelasticity of the penis which in time would leave to a penis that would respond to no form of therapy..."

this must be my case :(

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 4/10/2008 9:58 AM (GMT -6)   

This is not medical advice, but just some information from one who has had prostate removal surgery and am now rehabilitating penis function and restoration.  I would suggest considering getting a penis pump and beginning a course of therepy to rejuvenate and stretch the penis, just as we post-surgery guys do now.  A cheaper, but effective pump would begin the process of restoring, MAYBE, it shouldn't hurt to try.  Don't get suckered in with the sex ads that promise massive improvement and such by using their pump, though.  A good cheap medical grade pump, with a safety valve release feature to avoid over-vacuuming is what you need, if you decide to try this. 

Maybe something like this:

http://www.colonialmedical.com/catalog/Encore-OTC-Manual-Pump-p-20094.html

 

 


James C. 
 
Help support the forums so they can support you:  http://www.healingwell.com/donate 
 
Age 60 
4/19/07   PSA 7.6, referred to Urologist, recheck 6.7
7/11/07   Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07   Path report:  3 of 16 PCa, 5% involved, left lobe , GS 3/3:6. 
9/24/07   (Open) Retropubic Radical Prostatectomy performed 
9/26/07   Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07  ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08  Caverject started/stopped, aching.  2/24/08 .5ml Bimix started-success
3/24/08   ED- 6 mts.-Viagra, pump, no response- Bimix continues
Post-surgery PSA's:  3 mt:0, 6 mt:0,


StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 357
   Posted 4/10/2008 10:01 AM (GMT -6)   
I was told prior to my prostatectomy that penis length can decrease 10% to 15%, and that has been my experience, unfortunately. Not fun, my wife says she doesn't feel it much anymore. It hasn't been my experience that the pump helps restore length, either.
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-18 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007); 4th post-surgery PSA: 0 (June 2007); 5th post-surgery PSA: 0

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on daily Cialis, L-arginine and pentoxyfylline. Peyronies has stabilized and significantly reversed.

- PGE1 batting average: .364 (4 for 11)
- Bimix #3 batting average: .722 (13 for 18) Bimix #1 batting average (2 for 2)
- Trimix batting average: .500 (1 for 2) Grand total 20 for 33 = .606

"Lost in the valley without my horses, no one can tell me what my remorse is..."


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 4/10/2008 11:40 AM (GMT -6)   
strictlyinc says:
It hasn't been my experience that the pump helps restore length, either
 
Maybe it was just the swelling going down, allowing more length to show, or maybe it was the pump, but I saw a visible change once I had used the pump a couple weeks.  I am at 6 mts now, and seem to have leveled off with a loss of about 3/4 inch (erect).  Not enough to worry about, and the wife says it's just enough less to make its use comfortable for her, which it hadn't been before.  So I'm not complaining....lol redface   I see no real loss when flaccid now, although I did right after surgery.  

DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 4/10/2008 9:38 PM (GMT -6)   
JamesC, she told me the same thing.....JUST KIDDING...lol.

Danman Bob
Age 57
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14
Biopsy result - 9 of 12 sticks showed cancer
Despite high Gleason score, cancer was confined to the prostate
Possible post-surgery radiation therapy...decision likely in late April 2008, depending upon PSA at that time
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of March 2008)
Began using Viagra 3 times a week December 2007 to stimulate blood flow
Began using Osbon Erec-Aid Esteem manual pump for therapy mid-February 2008
Will probably begin using bimix injections in addition to Viagra and pump in May 2008

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