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corynski
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted 4/10/2008 9:55 PM (GMT -6)   
Well, it looks like this is the site I'm searching for. I'm 70, and a recent PSA jumped to 10 from the 4 level, which it had worked up to over a period of 20 years. Unfortunately my father died of a cancer that spread from his prostate in 1972. I wasn't close and have no idea what his diagnostic conditions were, I learned only that it had spread and he had some radiation.

I'm scanning the web, seeing what my options are. My doctors so far seem far too busy to talk alot. The urologist set up an appointment for a biopsy, which apparently is the next step. I understand the biopsy isn't that bad, but that there are some side effects. I'll start reading posts so I can converse intelligently. I am curious to know if there could be any complications with RLS, restless legs syndrome, or peripheral neuropathy.

I guess everyone's first thought is, 'darn, that biopsy sounds like a good torture technique'. You're going to do what? I'll talk, I'll talk....

I look forward to seeing what you're all up to, and how everyone is doing.

charley/70/ tennessee

DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 4/10/2008 10:15 PM (GMT -6)   

For me, the biopsy was not a big deal.  Doc gave me a quick prick of a shot to deaden things, then I felt very little discomfort....much less discomfort than having my teeth cleaned....just make sure he gives you that little shot of pain killer....

The worst thing about the biopsy is that each time he shoots a stick into the prostate to withdraw matter, it sounds like a nail gun being slammed into a wall.

Side effects from biopsy - the prostate bleeds for several weeks.  Typically there is blood in the urine for a short while and also blood in the ejaculate for several weeks.  I *********d the night of the biopsy and it was a bloody mess.....I knew my wife would shoot me if I tried unloading that in the conventional manner, which is why I did it that way the first time.

Good luck with the biopsy results.  Perhaps you will be fortunate and NOT be a cancer victim.  My best wishes are with you.

DanMan Bob


Danman Bob
Age 57
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14
Biopsy result - 9 of 12 sticks showed cancer
Despite high Gleason score, cancer was confined to the prostate
Possible post-surgery radiation therapy...decision likely in late April 2008, depending upon PSA at that time
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of March 2008)
Began using Viagra 3 times a week December 2007 to stimulate blood flow
Began using Osbon Erec-Aid Esteem manual pump for therapy mid-February 2008
Will probably begin using bimix injections in addition to Viagra and pump in May 2008


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 4/10/2008 10:27 PM (GMT -6)   
Hey Corynski,

Hopefully your biopsy will be negative for cancer. They are a little bit uncomfortable, mainly because I didn't like anybody poking stuff up there. Danman's nail gun description pretty well describes the process.

Good luck...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
"Patience is essential, attitude is everything."
 
 


corynski
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted 4/10/2008 11:05 PM (GMT -6)   
Apparently there's no way to skip the biopsy and just take it out. Reading thru this and the Yana site I see the prostate cancer situation is much more complicated than I had imagined. Like everything else around me. Last time I had a surgery was to have my tonsils out in 1946 or so. Things were very simple then. Doctor and nurse, a little ether, and I was out. I got ice cream that night.

Thanks for the welcome, I appreciate it.

charley

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 4/11/2008 12:36 AM (GMT -6)   
The post from DanmanBob could have been written by me. Had the exact same experience. The noise from the 'nail gun' was worse than the actual discomfort.
Hope it will all turn out ok for you. Good luck!
 
Magaboo

Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
Open RP 28 Nov 06
Post op staging T3
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA test Mar., 08 =.04 
 
 


goody5
Regular Member


Date Joined Mar 2008
Total Posts : 66
   Posted 4/11/2008 5:54 AM (GMT -6)   

HI Charley,

It looks like your situation is similar to my Uncles.  His PSA jumped from a 2 to 8 in 18 months.  He was sent for a biopsy right away without any other tests. His did come back positive so he then was sent for bone scan and cat scan. Today he is going to the urologist to find out the details of his tests and what the next step is. My dad also had a jump in his PSA from a 6 to a 10 in 6 months.  You can see all the details in my signature.  You have come to the right place.  I have found out more information here from actual men than statistics on the web.  I read more than I post, but I am here everyday. Good luck and keep coming back. :-)


Cheryl
Father diagnosed 13 years ago @ age 63
Watchful waiting until PSA jumped from 6 to 10
Cancer found in 1 core
Gleason score 6
Seeds implanted
PSA has been low since (don't know exact numbers)
 
Uncle (mother's brother) age 68
PSA jump from 2 to 8 in 18 months (2/08)
DRE was normal (2/08)
Biopsy (3/08) Cancer found
Bone scan (clear) 
CAT scan (3/08)
Lymph Biopsy (4/08)
Gleason Score (?) 
Waiting to see urologist 4/11/08
 


corynski
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted 4/11/2008 8:05 AM (GMT -6)   
Fantastic, thank you all for the feedback, especially all the right questions from Selmer. If you have a moment, I'll go over a few as this is the information I need for my next appointment. I think my father was about 71 when he was diagnosed. I suspect he did not go early enough to the doc, and as you say the PSA wasn't there. He may have turned down the DRE or it was too late when he did get one.

"Perhaps you need a second opinion from someone who can discuss this with you."

Yes, and I can understand the urologist's position. I personally think we just aren't training enough doctors. I've done the doctor routine in South Florida and now here in Wartburg, Tn. Quite a change, but I'm still asking questions as the doctor is backing out the door, my 10 minutes up. My immediate problem is that my regular urologist for the past 20 years is in West Palm. I may need to go down for a visit and get the second opinion there. My son lives in my house down there, and I hang out in the woods up here in Tennessee. Or, a nurse friend's father had a very successful removal in Knoxville. His doctor could be my second opinion.

"Secondly, did your urologist tell you he felt anything on the digital exam, DRE? lumps, bumps, hardness......greatly enlarged?"

He said the left side seemed a little firmer, and I think I remember feeling a slight difference. It was short and sweet, and he was edging for the door. Jump in PSA, slight abnormality on DRE, father's experience: Go straight to biopsy. I set up the appointment, then put it on hold when I heard of possible complications of the procedure, and learned how invasive it is.

"How many PSA tests have you had recently and how long ago was your last one prior to this year?"

It's been at least 6, maybe 9 months since the previous test, which was a 4 point something. I didn't realized that the point something was important, so I'll have to go to the office and get the exact numbers. I do have a graph of the rise over the last 15 years.

"then did the doctor ever discuss with you that it might be due to something else? Like a infection? Did he give you a course of antibiotics? Did he retest you a few weeks or a couple months later?"

Not much discussion from my primary care doctor, just a flat 'if it's over 4, I must send you to a specialist'.

"Just thought I'd ask because things like a bout of prostatitis can really make PSA results jump around.....even to 10."

I did look up prostatitis when I got home. It's more complex than I thought. I didn't present any symptoms of infection to my primary doctor, and the urologist never even mentioned it.

"I've got RLS at times myself, as did my father............Drives me nuts when its acting up. Recently its been mostly away for months? I have no clue why."

It's a weird one, and I've had it for years but never knew it. Curiously there is a link between orgasms and RLS. The symptoms will disappear for a short time, enough to get back to sleep following an orgasm so I think there must be something linked in the nervous system. Peripheral neuropathy and 3 sciatica attacks have left my right side weak. Mirapex has been my saviour, so to speak, regarding the RLS, as it is maddening.

My gut feeling is to either get my second opinion from my old urologist on my next trip south, in May, or just get a second from the Knoxville urologist who treated my friends father. I'm not worried as much about the impotence as I am about the incontinence, and my friend said her father has no problem. Anyway, I guess time is of the essence at this point, to find out just where I'm at, but I'll read the discussions here to get more background. I've got an appointment with my primary doctor for a second PSA scheduled for next friday.

Thanks very much for your imput, all of you. I'm sure I'll need it.

 

Quote deleted

Post Edited By Moderator (bluebird) : 4/13/2008 3:04:23 PM (GMT-6)


lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 677
   Posted 4/11/2008 9:19 AM (GMT -6)   
Just a comment on p/n.  I have suffered from idiopathic peripheral neuropathy for years.  As far as I can tell it had no tie in to prostate cancer surgery or recovery.  It is just really annoying. It motivates you to get out and walk after surgery.   I am currently testing the theory that it (p/n) was caused by years of statin use ( now I'm using other medications to reduce cholesterol).
 
Good luck with your journey.
biopsy 10/16/06
T2A,  PSA 4.7
Gleason  4+4=8  right side
DaVinci Surgery  1/16/07
Post op confirms gleason 4+4=8
no extension or invasion found
no continence problems
PSA 90 day -.01  , 6 month -.01 , 9 month +.02 , 1 year +.02
Ed problems continue
Now using Bi-mix
 
 


corynski
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted 4/11/2008 10:05 AM (GMT -6)   
Thanks Lifeguyd
I confess to the stupidlty of bringing on my p/n by putting down the malt liquor for a number of years. Although both my parents were serious hard liquor alcoholics I had no problem stopping immediately upon diagnosis, and my creepy-crawly worms under the skin and other symptoms disappeared rather quickly. I probably saved my life, as well as my liver and brain too.

The restless legs syndrome is the maddening one. It can get me out of bed in a heartbeat, walking around to calm it. I do think there may be a genetic component to it, as my cousin and my uncle both had it, and possibly more relatives too. 

 

Quote deleted

 

Post Edited By Moderator (bluebird) : 4/13/2008 3:04:34 PM (GMT-6)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/13/2008 2:50 PM (GMT -6)   

tongue    Hi ~ Charley and Loved Ones,

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

Knowledge gives us POWER….  POWER takes away the fear.

 

~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~

 

 Click  on  link  below for important information that will help you ~ help us!!

 

  >>  Welcome New Members ~ to HealingWell

 

The information (link) listed above is to help you get around the forum! 

 

v       This is a journey best traveled with friends. 

Welcome ~ New Friend from all the members here... on HealingWell.com

 

v      IdahoSurvivor ~  Moderator for Prostate Cancer Forum

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v      bluebird ~  Moderator for Prostate Cancer Forum

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bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/13/2008 3:05 PM (GMT -6)   

tongue  Hey ~ Charley & Loved Ones,

 

Gentle Hugs and Warm Thoughts

 

We know ~ we can “all” make “Your Journey” smoother just by being here for you! 

This is truly a great forum!!! ~ You have joined!  You are now part our forum family ~ a group of wonderful individuals who are so willing to share...  It helps “all of us” ~ to help you ~ if we know where you are on your path. So ~ Please stay with us and take our hand when you need it!  Keep posting.... OKAY!!

  

 

KNOWLEDGE    IS    POWER  ...  and  POWER conquers  fear

 

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

 

 

Thank you for letting us know the specifics… …this helps all of us to know where you are on your journey.

 

Buddy & I invite you to visit our personal thread listed in our signature below

We would like to help in making a portion of your journey a little smoother.. so pull from us what fits your needs.

 

Make sure you visit the links in your Welcome Message… there is so much information to help you through this!  This path is best traveled with friends. 

The stepping-stones ahead will be smoother if you stay close to all of us.

http://i206.photobucket.com/albums/bb179/mamabluebird1955/Stepping-StonestoHealingWell.jpg

 

Keeping you close in thoughts and prayers ~ as you travel this new path with new friends.

 

In Friendship ~ Lee & Buddy 


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

4th PSA 2-13-2008 (23 months) Less than 0.1 Non-Detectable :)


TonyB
Regular Member


Date Joined Mar 2007
Total Posts : 37
   Posted 4/13/2008 3:25 PM (GMT -6)   
Most guys post that they got their biopsy done in their urologist's office. Most claim that it was no big deal. In my region many urologists are being "encouraged" by their malpractice insurer (financial incentive) to send their biopsy patients to an outpatient surgery center for this procedure. My urologist told me he no longer does any outpatient surgery in his office. My urologist told me that he schedules all of his biopsies for a certain day of the month. He may have as many as eight patients scheduled for this same procedure. That way he spends the entire day doing prostate biopsies in a place that is almost like a hospital and is fully staffed and completely prepared for any unexpected events. His incentive is that doing so lowers his malpractice insurance premium. I had my biopsy done at a place like this. I had no choice in the matter. It was identical to having a colonoscopy. I was under general anesthesia for the entire procedure. I woke up in a recovery room and remember being offered orange juice. Don't remember a thing about being stuck with a needle 12 times. So, if the thought of having a biopsy done in the conventional way (urologist's office fully awake) bothers you, there is another way to do it. I'd suggest you ask to have it done at an outpatient surgery center like I did. yeah
SYMPTOMS: PSA Velocity=2.6 to 4.7 over 12 month period; DRE=Normal

PRE-OP STAGING: Biopsy=1 in 12 cores positive; Gleason 3+4=7; T1c; Bone scan=clear; CT scan=clear; da Vinci robotic LRP Jan2007 (@ age 58)

POST-OP PATHOLOGY: Adenocarcinoma; Gleason 3+3=6; T2c; Extra Prostatic Extension=Clear; Seminal Vesicles=Clear; Margins=Clear; Post-op PSA's (to date)=undetectable


corynski
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted 4/13/2008 9:29 PM (GMT -6)   
Thanks to you all, I'm feeling a little more comfortable about things after reading all your comments. I think it will move faster now. I'm in the middle, I don't want to get into alot of procedures if not necessary, but I'd rather be open to treatment if it means another 5 to 10 years for me. I know for certain my father's cancer was aggressive, so that's a firm starting point. I think a second PSA and DRE will probably take me to a biopsy sooner rather than later. My PSA chart since 1996 shows a rough doubling in about 8 years.

Selmer, I'll start that webpage tonight. I think I'll do a journal to keep everything straight, as the memory is on the way out too. I haven't used any Ibuprofen in awhile, but I do take Tramadol and Mirapex.

Neither my primary doctor nor the urologist has ever mentioned the free PSA or doubling times, or ultrasound tests. It seems they go just with the PSA and DRE directly to ultrasound/biopsy. Is that regular procedure? Does Medicare pick up the additional second opinion tests? I do have an AARP supplement, Part B I think.

And here's a question that may sound sort of dumb. I've been addicted to the computer for awhile and I've noticed lately that it seems my sitting posture is that of rocking back and forth on that pudental region, from side to side. Sitting has become difficult for me, even with three pillows, and it feels like all my weight is coming down on the prostate. Could this possibly affect the PSA reading?

Thanks again
charley/70/tn

Quote deleted ...

 Please contact:   bluebird     v    Moderator for Prostate Cancer Forum

                    Click here

 

Post Edited By Moderator (bluebird) : 4/14/2008 6:59:59 AM (GMT-6)


corynski
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted 4/14/2008 6:57 AM (GMT -6)   
Selmer said...
BTW, you are going in on Friday. Remember do not have any second DRE performed prior to them taking the blood for the PSA.

Yes, I've read a bunch now about preparations for the PSA.


Selmer said...
Is there any way you could stay off the chair/pillows for the next few days in order to remove all doubt about your Friday test.

The chair is probably not doing anything bad. Asymptomatic prostatitis is not that uncommon though. There are several journal articles on it and its impact on PSA scores.

Yes, I'm going to relax and get away from this machine. I usually walk every day with the dogs, which involves some climbing around the hills here for exercise. I'm in pretty good shape, weight low, and no other problems. I'm a workaholic gardener and house fixer-upper who is starting to slack up a bit. My guess is I'll get this PSA test done, and then I'll need to decide where to get the biopsy. I think I was not impressed with the urologist visit because he didn't talk about any options or anything at all. I felt he was selling me something, and stayed only long enough for an agreement. Not that he wasn't correct, he could have felt more on the prostate than he told me. Or something. Anyway, as I said, thanks to you all for providing me with some knowledge to discuss and plan, it's a tremendous help in keeping stress and nervousness down.

I can certainly see the value of preparation for any future procedures. I have some bronchitis from past cigarette use and a few industrial chemical spills, chlorine gas and concentrated sulfuric acid primarily, that produces enough coughing to make me want to plan for post operative problems. Plus these animals of mine keep me jumping up and down alot. Plently to think about as I live alone, and wil have to arrange with some friends for help.

I'll get my signature stats up asap. Looking at previous jumps in my PSA makes me wonder what would have happened if I had become active in treatment at that time, as opposed to the waiting I've done. All the questions pop up again: should I have acted sooner, gotten a biopsy 10 years ago perhaps? But each time the next PSA was back below 4.0. I read Andy Grove's book and waited for the next PSA. Once it jumped to 4.1 at a VA hospital physical exam. I later went back to my old urologist Murray Goldberg and the PSA was back down to 2.0. Here's my readings:

1995 - 1.2
1997 - 1.7
1998 - 1.4
1999 - 1.7
2000 - 3.4
2001 - 2.0
2002 - On 6/6 I got a 4.6 at a screening at work. Retest on 7/24 at the VA was 4.1. Retest at Murray Goldburg's shop in WPB on 10/2 was 3.5. Interesting, these could have all been different labs, or the same.
2003 - 2.29 on 5/03
2004 - 2.7 on 10/4
2005 - In the spring I moved to the country outside of Lancing, Tn, which is outside of Wartburg, Tn., which is outside of Oak Ridge, Tn, which is outside of Knoxville, Tn. I have the PSA's for 2006 and 2007 on file at my primary care doctor and will update this as a signature shortly.
2008 - 10.1 Retest to be done 4/17

Quote deleted ... 

Post Edited By Moderator (bluebird) : 4/15/2008 5:42:03 PM (GMT-6)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/14/2008 7:19 AM (GMT -6)   

tongue  Hey ~ Charley,

You are so right about having a place to come to ~ to talk things through.  It's really good to express all your thoughts and concerns.  I will state that the mind will play tricks.  The "what ifs" can play havoc with your mind and spirit.  Let it go... You are on the right track now so stay focused and continue your reaching out to all of us. 

KNOWLEDGE    IS    POWER  ...  and  POWER conquers  fear

 

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

Here's a tip that worked/works for us.  A donut pillow (open center) with a very soft pillow on top helps to take the pressure away from the sphincter muscle area.  3 pillows make a softer sitting but the pressure is still there.  We've bought one for right after surgery and continue to use it today 2 years after surgery and it really does help! (I got me one too!!)  The open center is the key.  We bought ours at a pharmacy... can't hurt to try it!

Thanks for staying close ~ it's important to all of us and to you! 

Hugs from Lee & Buddy

Post Edited (bluebird) : 4/15/2008 5:40:50 PM (GMT-6)


corynski
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted 4/14/2008 8:35 AM (GMT -6)   
Bluebird
Thanks, the donut cushion is one of the obvious things I haven't gotten yet. I do switch to a kneeling chair every so often but it still puts a weird pressure on the base of the spine. And I've set up my monitor so I can stand and use it. But that affects my spinal stenois, which gets me sitting again, a vicious circle. I'm addicted to this darn machine, that's the problem. But it's gardening season and I'll be outside most of the time now.

I've just gotten into your recovery techniques and aids part of your site and know I will need all that information later. Thanks. I live alone and have animals, etc.

Quote deleted ...

Post Edited By Moderator (bluebird) : 4/14/2008 5:51:16 PM (GMT-6)


TonyB
Regular Member


Date Joined Mar 2007
Total Posts : 37
   Posted 4/14/2008 9:59 AM (GMT -6)   
 ~off topic~
 
The forums are intended for offering mutual personal support. 

Post edited
 

Post Edited By Moderator (bluebird) : 4/14/2008 5:47:53 PM (GMT-6)


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 4/14/2008 3:53 PM (GMT -6)   
I thought the biopsy was more unpleasant than anything, but not necessarily painful. Just be prepared to have a small amt of blood in your stool and urine/ejaculate, shocking if you don't expect it. Good Luck, this is a great site with a complete range of info from real world patients, and has been a reassuring place for me.
Randy
46 you when diagnosed, now 47
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement, more notable over last month
with Viagra 100 mg.
Success with BiMix


corynski
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted 4/14/2008 4:35 PM (GMT -6)   
Seems the missing years were in the 3-4 range. Maybe I can call and get them tomorrow. Looking back, I see I've been riding a wave of hope - each year hoping that my PSA would just stay low one more time.

I've been getting alot out of the case histories many of you have written. It sures helps to keep down the anxiety. Thanks again.

Quote deleted ...

 

Post Edited By Moderator (bluebird) : 4/14/2008 5:49:32 PM (GMT-6)


corynski
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted 4/15/2008 3:15 PM (GMT -6)   
Hello Selmer
Well I collected the remaining numbers. Looks like I've been asleep at the wheel these last few years. Here's the whole list:

1995 - 1.2
1997 - 1.7
1998 - 1.4
1999 - 1.7
2000 - 3.4
2001 - 2.0
2002 - On 6/6 I got a 4.6 at a screening at work. Retest on 7/24 at the VA was 4.1. Retest at Murray Goldburg's shop in WPB on 10/2 was 3.5. Interesting, these could have all been different labs, or the same.
2003 - 2.29 on 5/03
2004 - 2.7 on 10/4
2005 - 3.2 on 7/13
2006 - no reading
2007 - 5.75 on 2/5, 5.69 on6/29
2008 - 10.36 on 2/29

So on the graph these appear as a slowly rising line with two jumps upward, years 2000 and 2002, then a steeper, almost exponential rise up to 10.36 about a month and a half ago. Looks like I'm between a rock and a hard place.

Quote deleted ...

Post Edited By Moderator (bluebird) : 4/15/2008 5:40:24 PM (GMT-6)


corynski
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted 4/15/2008 3:21 PM (GMT -6)   
Opps, sorry Bluebird
I just went to the control page and deleted the quote.
 
 
   tongue  Charley,
You're a good man...thanks...  We are all here for you ~ Stay Close... yeah bluebird

Post Edited By Moderator (bluebird) : 4/15/2008 5:42:37 PM (GMT-6)


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 4/16/2008 5:26 AM (GMT -6)   
Charley,

Welcome to the board. How's the weather in the Knoxville area? Will be headed down there for a few days in May or June. Save some sunshine for me.

Charley, I don't think a biopsy will cause any problems with your leg issues. If you were to have surgery it might be wise to have an open probably. Think about that if and when. The important thing is to find out what's going on with the prostate first. Selmer isn't really trying to scare you...He KNOWS diagnosis is our only reasonable tool.
I'm sure the Urologist has dealt with men with your concerns before. Good luck to you.

swim
 


corynski
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted 4/16/2008 6:13 AM (GMT -6)   
Hello Swimom and Selmer

Thanks for the comments. We hit 26 last night, which should be the last freeze. Got my potatoes which I thought could take some cold. This week will be beautifully warm and sunny. I'm reading all I can now on the net so at least I can talk intelligently. I am definitely all for testing and diagnostics, and it must have been my initial fear that made the last urologist seem like a car salesman to me. How does one pick a urologist? My nurse friend, whose father had a successful RP, gave me the name of his urologist, so I checked him out on the web. Stable, 20 years here in Knoxville, has satellite offices in Oak Ridge and Powell. Does surgery at St. Mary's.

I personally think I could have a prostate cancer that is just beginning to spread. I'm not in denial about it, so I don't really see any mental problems, just logistical ones. The value of this and other sites for assistence is tremendous, and I know you all realize that. I've read through many of the Yananow personal histories too, another tremendous help. I really believe doctors have a limit on how much time for each patient, as I've had so many now that fade backwards out the door as I'm still asking questions.

Selmer, the diet thing is interesting. I mis-diagnosed myself with claudication of leg veins once, (it was peripheral neuropathy), and I went vegetarian for about 15 years. As a single man it was easy to do. I still eat very modestly, very little red meat, moderation everywhere, lots of 7-layered burritos. I get one beer/wine and one coffee a day, and eat alot of humus, nuts, granolas, etc. that require little preparation. I hate frying and won't do it. If everyone would see the grease that builds up in kitchen sink drain lines, quite analogous to arteries and veins, they might think twice about fats. I read Dean Ornish's books years ago and have kept my blood pressure low naturally, and have few other problems. And I keep pretty active.

So tomorrow I'll get the next PSA, and talk to the doctor about finding the right urologist. That seems like the first step.

corynski
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted 4/16/2008 8:27 PM (GMT -6)   
Another quick question if I may. Are all urologists equally competent to do the DRE exam?

corynski
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted 4/17/2008 6:31 AM (GMT -6)   
Hello Selmer

I quizzed my sister regarding my father's problems and she mentioned that he was alcoholic, also had gout, and went regularly to a urologist. Perhaps he was aware of the pc but figured at the time the cure was worse than the disease. I did notice that theories about gout include a prohibition on large amounts of protein, meat, fish and tofu, because of something called purines which are present from the DNA and RNA in the food. Weird, that whole idea of eating another animals DNA and RNA. But consistent with a vegetarian diet. I did feel alot better on a strict veggie diet. And lighter. I remember once having a 'meat hangover' after gorging on an incredibly delicious pot roast one evening. Yes, I advocate a lighter, more vegetarian diet just on general purposes.

When I first got up here to Tenn from Fl I had a physical exam, and a NP did a DRE as part of the routine. Sort of shook me up at first, but I remember she didn't mention anything wrong at that time, which was the summer of 2005.

The mention of Kaiser brought back many memories. I went there when I worked for IBM in Oakland in the late 60's, when the whole idea of health maintenance organizations was just beginning. They were known for doing more preventative medicine than anywhere else. It seemed pretty good to me.

Thanks for the info on the location of Knoxville facilities, it should be helpful. I've been reading of the robotic surgery, it seems especially good for minimum destruction of surrounding tissues and fewer complications later. The case histories are invaluable for planning purposes, especially for those of us living out in remote areas.
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