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sparkymo
New Member


Date Joined Feb 2008
Total Posts : 8
   Posted 4/10/2008 11:49 PM (GMT -6)   
Had cathater removed today. Fell asleep on the couch at about 10:00 PM.  Woke up about mid night and had peed all over myself and the couch where I was sleeping.  Escaped out of my depends and now as I sit here at 12:45 AM I'm afraid to go back to sleep. I had a long day and didn't sleep much last night so I was dead dog tired but I wasn't expecting this nor was I warned that this could happen. Has this happened to anyone else?  Untill I can get plastic or something to cover where ever I decide to sleep (not gonna sleep in bed with wife and have her have to put up with this) I'm afraid to go to sleep.

Post Edited (sparkymo) : 4/11/2008 11:50:34 AM (GMT-6)


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 4/11/2008 12:30 AM (GMT -6)   
Hi Sparky:  You're not experiencing anything unusual, especially upon having your cath removed TODAY!  You shouldn't expect to have any control right now, but things will improve as time goes by.
I was a gushing faucet for many days after my catheter came out.  I would also tend to "let loose" when I fell asleep on the couch or recliner during the evening hours (7 to 10 p.m. or so).  Surprisingly, once I went to bed after 10 or so, it was a rare occurance for me to even wet my pad, even during the early post=op days. 
So I say, put a plastic liner under your side of the bed, wear a pad and some jockey "tighty-whities" to keep it in place and you'll be OK.
Don't get yourself upset over this.  You're in the worst phase of incontinence right now -- your urethra situation has been through a lot of trauma, but things will get better.
Hang in there.
Tom

D.O.B - 8/9/52

PSA: First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06.  Both lobes involved.  Six out of eight cores positive - from 100 percent to 90, to 60, to 50, two 20s and two zeros.

Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.  Volume of tumor much less than biopsy suggested.  12 percent overall.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07

Third post-surgery PSA -- Undetactable, 2/15/08


sparkymo
New Member


Date Joined Feb 2008
Total Posts : 8
   Posted 4/11/2008 12:47 AM (GMT -6)   
Thanks Piano. That IS reassuring. Did you slow down on liquid intake of an evening for awhile? I guess peeing is better than the altenative and that would be what they wanted me to wait around and see that I could pee before sending me on my way. I went back to the motel room we were staying and drank a couple of 20 oz. bottles of water. Peed a couple of time and we headed home. We had a 4 hr. drive home. Had to stop 10 times to pee. about every 20 to 30 minutes. Flow was strong and urine was clear as the water I drank. Maybe I over did it on the consumption of water. After getting home it has been about every 2 hrs or so that I get the urge to go.

jrponalameda
Regular Member


Date Joined Dec 2007
Total Posts : 56
   Posted 4/11/2008 7:44 AM (GMT -6)   

Yes, Sparky, your situation does not sound unusual at all. The first day or two after catheter removal it seemed like I was going constantly. Within a few days I was doing fine with pads at night... I typically wouldn't leak at all while sleeping, but would wake up needing to go several times at night and needed the pad for leakage on the way to the bathroom. Hang in there - most of us start out similarly but many of us are fortunate enough to regain sufficient control to no longer need the pads. It takes some patience, you are still very early in your healing process.

Good luck and be well!


Diagnosed Sep 2007 Age 54 Gleason 6 (3+3)
DaVinci Surgery 11/8/07 University of Minnesota
2/22/08 PSA Undetectable


sparkymo
New Member


Date Joined Feb 2008
Total Posts : 8
   Posted 4/11/2008 11:37 AM (GMT -6)   
Thanks for your replys as it is reassuring. I have been feeling normal today with hardly any leakage. I was also pleasantly (well more than pleasantly) surprised that I woke up with a full erection this morning after I finally did trust myself to go back to sleep. Thinking maybe it was a fluke I did a little self manipulation a little while ago and got it up to full erection again. I know all of us has this as a major concern and I certainly feel fortunate. I called my doctor's nurse to see if it was ok to have sex since this is only 9 days post op. She said as long as I was the passive partner. I sure don't want to do anything that would hurt myself and will probably refrain for awhile as she told me there is still a lot of healing still going on down there. Anyway, anyone who reads this that is contemplating whether to have surgery to remove the prostrate, and is a candidate for laporascopic surgery, I can only say Dr. Androile at Barnes-Jewish Hospital in St. Louis has done a heck of a nerve sparing job on me.
I have not recieved my pathology report other than by phonef rom Dr. Androile's nurse.  She is mailing my report to me. I can tell you that I am 56 yrs. old. Cancer was found in only one of 12 biopsies originally taken. My Gleason score before and after surgery was 3+4=7. It was on the lower left apex. From the phone call the nurse told me that my cancer was contained to the prostrate. None found in lymph nodes or seminal vessels.
Again I feel very very fortunate that I was a candidate for nerve sparing laporascopic sugery and that I found a doc who is one of the best.
 
 
 

Post Edited (sparkymo) : 4/11/2008 11:49:05 AM (GMT-6)


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/11/2008 12:05 PM (GMT -6)   

Sparkymo,

I am 54 and had RRP.  I am 15 days post op and am getting better still day by day.  I am leaking a little less when walking, standing, bending or twisting.  At night I am try and stop all liquids 2 hours before bed time.  I then have slightly wet diaper instead of going through two of them.  Up often during the night.  I didnt know I could pee that hard and much as at night.  Where does all this liquid come from?  I too had early erections with the catheter in even and had to talk myself out of them quickly.  I was told to manipulate by my doc to climax without partner at first, (day 6 on) after the cath was out.  I do it in shower for there is a lot of urine leakage.  Doc gave ok for sex but no acrobatics.  Doc said that the important thing here is the blood flow increase to the area for healing.  I take 50 mg of viagra every other morning to also assist not with erection persay but with blood flow.

Hang in there, I know I still have to remind myself how good I am doing and that this takes time.

 

Frank

 


Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on bottom of prostate, 1 positve margin  going to meet with oncologist to discuss treatment options if any at this time.
 


sparkymo
New Member


Date Joined Feb 2008
Total Posts : 8
   Posted 4/11/2008 12:20 PM (GMT -6)   
I am on cialis. My prescription calls for 10mg. every other day. I am glad you enlightened me. My doc didn't tell me it was for increased blood flow to help healing. That makes sense though. I hope everything goes well with the oncologists. You hang in there.
Kenny

Bob D
Regular Member


Date Joined Mar 2008
Total Posts : 199
   Posted 4/11/2008 2:51 PM (GMT -6)   
Congrats sparkymo,
Welcome to the club.
I am 35 days post op & had my first erection only five days
post op while the catheter was still  in. While not yet the "diamondcutter"
it was pre op, it is great and continues to improve.
I keep the blood flow to it daily as it responds well to visual stimulation as
well as touch.
Best of luck with yours !!!!! :-)

PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 4/11/2008 9:20 PM (GMT -6)   
Dittos to all the above, Sparkymo. You'll have times where you feel like you have to urinate very frequently during the day and you'll find that certain movements create spurts in your pads. We all go through this. Things will get better with time and repetition of the twists, bends etc. that cause the urine to let loose. Take it easy and be patient. This is a surgery (I'm assuming you had surgery?) that requires internal healing as well-- and that takes TIME. In fact, when your internal swelling goes down (within about four weeks post-op) you may backslide a bit in terms of regaining full continence, but that is normal too.
So, the recovery process can be full of surprises, but after about six to eight weeks you should be back to your old self.
Best to ya!
Tom

D.O.B - 8/9/52

PSA: First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06.  Both lobes involved.  Six out of eight cores positive - from 100 percent to 90, to 60, to 50, two 20s and two zeros.

Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.  Volume of tumor much less than biopsy suggested.  12 percent overall.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07

Third post-surgery PSA -- Undetactable, 2/15/08

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