Just out of Curiosity - Let's Talk Numbers - Age Related

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JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 4/14/2008 12:41 PM (GMT -6)   
I'm not a numbers girl in any way but I would be interested to know this.
 
We've had several newcomers to the site who are well under the age of 50.  Given that most doctors do not routinely screen for prostate cancer until the age of 50 I'd like to know where you fall in respect of the average.
 
My husband, too, was well under 50 when diagnosed at the age of 44 - no signs, no symptoms and his cancer would have gone undetected for 6 years if our doctor had followed the "normal" testing age.  Like many who are in the under 50 category, we have heard "you're too young", "We're not used to seeing patients your age", "what are you doing here - we don't usually do this test on men your age" ... Maybe it's time to change the "normal" testing age - sad I know but if it can save a life, I say it's time to review and change standard practices ...
 
Since women don't like to tell their age, I won't ask you guys to give it up either.  So, were you:
 
Under 40
50-59
60-69
70 plus
 
Knowing what I know now, I don't think I'll be surprised by the varying ages on this forum.  Good wishes to each and everyone one of us that is travelling this bumpy road.
 

goody5
Regular Member


Date Joined Mar 2008
Total Posts : 66
   Posted 4/14/2008 12:57 PM (GMT -6)   
My dad had prostate cancer.  My brother is 46 and his Primary doctor would not do DRE exam on him because he is under 50. He went to a urologist for another reason and when he saw his history he asked him "When was your last DRE". My brother's reply " Never had one" Urologist " Well, your getting one now!" tongue   Thank Goodness   BTW, I am 51 
Cheryl
Father diagnosed 13 years ago @ age 63
Watchful waiting until PSA jumped from 6 to 10
Cancer found in 1 core
Gleason score 6
Seeds implanted
PSA has been low since (don't know exact numbers)
 
Uncle (mother's brother) age 68
PSA jump from 2 to 8 in 18 months (2/08)
DRE was normal (2/08)
Biopsy (3/08) Cancer found
Bone scan (clear) 
CAT scan showed 1 enlarged lymph node
Fine Needle Lymph Biopsy (Positive)
Gleason Score (7) 4 + 3
9 of 12 cores positive
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 4/14/2008 1:11 PM (GMT -6)   
I am age 61 at diagnosis.  I had been getting PSA tests since age 50.  It just wasn't on my radar before that.

James C. 
 
Help support the forums so they can support you:  http://www.healingwell.com/donate 
 
Age 60 
4/19/07   PSA 7.6, referred to Urologist, recheck 6.7
7/11/07   Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07   Path report:  3 of 16 PCa, 5% involved, left lobe , GS 3/3:6. 
9/24/07   (Open) Retropubic Radical Prostatectomy performed 
9/26/07   Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07  ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08  Caverject started/stopped, aching.  2/24/08 .5ml Bimix started-success
3/24/08   ED- 6 mts.-Viagra, pump, no response- Bimix continues
Post-surgery PSA's:  3 mt:0, 6 mt:0,


Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted 4/14/2008 1:15 PM (GMT -6)   
I was diagnosed with prostate cancer at 42.  My PSA was 1.5 (Highish if using an age adjusted PSA scale) and Gleason score of 7 (3+4).  I had surgery last October.
 
My father died of prostate cancer at 61 after fighting it for more than 6 years.  It was caught to late.  His father also died of it.  Because of this family history, my doctor (GP) started testing me (PSA and DRE) at 40.  This is suppose to be the norm for anyone with a family history of agressive prostate cancer, or african heritage.
 
I went to see a urologist because I was having trouble emptying my bladder, getting up at 3am, blood in urine, etc.  All the tell tale signs.  The big thing is to know what to look for.  My doctor sent me to the urologist more than anything to calm my nerves.
 
On the bright side, I don't require anymore DREs yeah
Roger

njiceman
Regular Member


Date Joined Sep 2007
Total Posts : 28
   Posted 4/14/2008 1:35 PM (GMT -6)   

JustJulie,

The earliest that I have data from is 1997 when I was 50 (PSA 0.94) .  Working in the chemical industry and a volunteer fireman, we were given complete physicals every year and I know that I had a DRE every time going back to 1980.  (We had a Dr. in the plant that was 6'4" 300 lbs. and we always felt that he used the finger that had his college ring on it.)

My Uncle and father both had PCa.  My father was diagnosed @ 80 y.o.  and had seeds, external beam and finally HT.  He is now 87 and PSA is undectable. yeah    After he found out that he had PCa, he bugged me constantly about staying on top of the PSA test.

 


Age- 59
Diagnosed July 2007
PSA-4.0 (Free psa 11%)
Biopsy August 2007 - 2 of 4 on Right Side with 20%, Stage T1c
Gleason (3+4)
Cat Scan & Bone Scan both Clean
DaVinci Surgery Nov. 26th RWJUH Cancer Center, New brunswick, NJ
11/27/07  Home & on the road to recovery
12/4/2007 Catheter Out!
Pathology Report:  Gleason 3+3=6
                          Stage   T2c
                          Organ contained Negative Margins
1/1/08  Back to Officiating Wrestling
2/27/08 1st Post Op PSA...<0.1 Undetectable
Still using a pad everyday for minor leaks (using Detrol for bladder spasms)
4/1/08 Trying Levitra every other day  very little response :(


Jim-N1BRP
Regular Member


Date Joined Jul 2006
Total Posts : 165
   Posted 4/14/2008 2:02 PM (GMT -6)   
First screened @ 43 found enlarged prostate, BPH.
I was screened every 6 months since then.

Jim, 54,~Jim-N1BRP. My Journey
Diagnosed: 12Nov. '07, Age 54

Treatment Started : 31 Jan 08

Completed 31 Mar 08

42 treatments 1.8 Gy M-F for a total of 75.6 Gy.

Prostate Biopsy: 18Sept '06, - 10 sample all negative, Prostate size 36.3 cc

Prostate Biopsy : 12Nov '07, Biopsy - 14 sample 2 positive, one Gleason 6 at 5 %,
other Gleason 6 at 15%- Stage T1C -Prostate size 40.2 cc

Bone Scan: 12Dec '07, - Hot Spot on Brain
Family history: Father and two uncles  die from PCa

Other: GERD, 30% Carotid artery blockage, Kidney Cyst, Asthma

Meds, Hytrin, BusPIRone, Trazodone, Tramadol HCl, Omeprazole, Nitrostat, Plavix, Albuterol, Multi Vitamin  Mens

PSA's                   fPSA

1.2    Oct  05

3.61  Jul    06    

2.6    Sept 06          19%  

2.6    Apr 07             3% Oh NO

 


JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 4/14/2008 2:06 PM (GMT -6)   
Wow!
Look at the number of men diagnosed UNDER the 50 marker.  My husband and I are now encouraging all our friends to insist on a PSA test - even if you have to pay for it - I think your life is worth the $30 cost.  I was amazed at the number of men who have never been for a physical and have no idea about prostate cancer ...
 
Knowledge is power - spread some!

Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted 4/14/2008 2:18 PM (GMT -6)   
If you are from Ontario the $30 PSA is now covered by OHIP (Provincial Heath Insurance plan).
Age: 43 (2008)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
              Both nerve bundles spared
              Pathology Report: Tumor confined w/in prostate
              T2c, Gleason is 3+3=6
              Went home with JP drain
10/2007: Made return trip to hospital.  All urine was comming out JP drain.
10/2007: Catheter removed. Next to no leakage
11/2007: 1st PSA <.003 :)
              ED: Started Viagra, no response yet.
12/2007: Had confidence to go padless!!!!!
12/2007: ED:  Stopped Viagra as it's causing hemroid problems.
01/2007: 2nd PSA <.003 :)
              ED: next to no response.
 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 4/14/2008 2:33 PM (GMT -6)   
I live in B.C., Canada, and PSA testing is not even part of our medical system unless there is a medical reason for testing (age is not one of them). Since patients, if the want the test done, have to pay for it  themselves (about $30.00), many men don't bother until it's to late. Hopefully, this will change soon. For my age, see below.
Wishing you and your husband well.
 
Magaboo

Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
Open RP 28 Nov 06
Post op staging T3
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA test Mar., 08 =.04 
 
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 4/14/2008 3:21 PM (GMT -6)   
I was 51 when I had my first PSA test. My dad had just died from PCa. I was diagnosed at age 72 and the doc had 21 years of annual PSA tests and DREs to look at. They showed a slow steady progression till it jumped from 5.5 to 7.1 in the last year. This triggered a visit to a urologist, a biopsy, open surgery and on the road to recovery in the span of one month.

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
"Patience is essential, attitude is everything."
 
 


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 4/14/2008 3:34 PM (GMT -6)   
My husband was 51 and only found the cancer cause the doctor did a routine PSA. He was given antibiotics for 2 months and then immediatly sent to an urologist when the numbers wouldn't go down. I remember thinking a few years ago... "he shouldn't have to get that test till he is 50 because thats what they say to do". He had so signs, symtoms or known family history. I tell everyone I talk to about it that they need the blood test done.

Age 51 Kent
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 anpther round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th.
Cindy (the wife!!)
Surgery preformed and doing great. Only took 1 1/2 hours. Will know in two weeks about pathology report. Surgeon feels he he got all cancer and confined to prostate. Both nerves were spared.
Home 4-11
 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 4/14/2008 3:36 PM (GMT -6)   
I was 56. I had my first PSA at 52 and had to ask my primary doctor to run it. It was 2.8. I wish I had a baseline done before then. I have been encouragiong all males I know 40 and over to get a baseline run.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 4/14/2008 3:48 PM (GMT -6)   
They also used to use a PSA threshold of 4 before the docs got further into it. Now, a PSA of 2.5 starts to pique their interest, as well it should.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.


zingaa
New Member


Date Joined Apr 2008
Total Posts : 13
   Posted 4/14/2008 4:04 PM (GMT -6)   

I was Diagnosed at just turning 40,


Don
Age 40
PSA 5.81 (2-1-2008) 
Biopsy Gleason 3+4=7
Surgery (4-1-2008)
Post op tests negative
10% of tissue cross sections
 


Valentine08
Regular Member


Date Joined Mar 2008
Total Posts : 30
   Posted 4/14/2008 4:39 PM (GMT -6)   
My husband was 59 at diagnosis, but his PSA had been rising for a couple years and I'm certain that if he had undergone a biopsy his condition probably would have been caught sooner.  I'm amazed at the guys whose urologists had them biopsied with PSAs in the 2 range.  While no one wants to have this condition, catching it when it is fully contained and in a low percentage seem way preferable.  We've put out the word on PSA tests to all our family and friends.  I'm not shy about asking guys if they've had the test.
Age 59
PSA ; PSA 9/07=3.4; '06=3.2 DRE Negative; '05=2.4; '04=1.7
Biopsy 11/07 =  Stage T1c, 12 cores, 2 positive
Gleason score= 3+3=6
DaVinci Robotic RP surgery: 2/14/08
Path report: Gleason= 3+4=7; Stage T2c


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/14/2008 5:23 PM (GMT -6)   
I have been getting DRE since 40. Again firefighting physicals, very complete. There are a lot of firefighters on this site and I wonder if it means nothing, has to do with the job or is simply because we are required to have a very good annual physical.?

Frank
Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on bottom of prostate, 1 positve margin  going to meet with oncologist to discuss treatment options if any at this time.
 


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 4/14/2008 5:24 PM (GMT -6)   
My husband was 49 yrs exactly Julie, however on doing some personal research we discovered a test had been taken 5 years earlier by another family doc, but husband did not know it was taken or the results at the time. It was 2.1 when he was 43, and was he diagnosed through routine PSA of 3.5 (leading to biopsy) at 48 years in an annual check 5 years later - no symptoms at anytime. No family history.

From what we can see, and from our experience, the evidence points to the definite need for ALL men - globally - to be recommended to start PSA testing at age 40. cheers, Lana
Creed_three (Lana & CJ)
 
Husband CJ aged 50 yrs (49 years at diagnosis and surgery)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing, on Tuesday 17th April 2007 (Sydney, Australia).
Gleeson 3 + 4 = 7.  Cancer confined. 1st PSA 0.01 (June 07) 2nd PSA 0.02 (Oct 07) undetectable. Next PSA: 15th April 08.


dutchy
Regular Member


Date Joined Jun 2007
Total Posts : 75
   Posted 4/14/2008 5:48 PM (GMT -6)   
My husband was 53 and diagnosed with 1940 PSA during a medical pre-employment test. Dutchy
Dutchy's husband
Diagnosis: 7/6: PSA 1,946, multiple bone metastases in thoracic, lumbar spine, pelvis, bilateral ribs and proximal left tibia, 2 weeks Casodex (50 mg)

Treatment: 3 monthly Lupron injection (22.5 mg) + Zometa (4 mg IV). Added daily Casodex (50 mg) in September 2007.

25/6: PSA 407
20/8: PSA 3,7
29/9: PSA 0.7
14/10: PSA 0.17
18/12: PSA < 0.003
15/3: PSA <0.003


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 4/14/2008 6:19 PM (GMT -6)   
Age 57 now, was 56 when diagnosed.
 
PSA annually since age 49 or 50.
 
DREs since age 43 or 44, when I began annual physicals....occasionally before then.
Danman Bob
Age 57
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14
Biopsy result - 9 of 12 sticks showed cancer
Despite high Gleason score, cancer was confined to the prostate
Possible post-surgery radiation therapy...decision likely in late April 2008, depending upon PSA at that time
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of March 2008)
Began using Viagra 3 times a week December 2007 to stimulate blood flow
Began using Osbon Erec-Aid Esteem manual pump for therapy mid-February 2008
Will probably begin using bimix injections in addition to Viagra and pump in May 2008


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 4/14/2008 6:26 PM (GMT -6)   
Don was diagnosed in 2005 at 63 - PSA of 7.96. His previous test in 2001 was .70 - I know, I know.

Once our sons (ages 36 & 40 at that time) told their doctors, both had dre & psa tests. Also, Moffitt Cancer Center where Don's surgery was done, follows sons of men with pc.

Good Thread, JJ!

Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07

Link to journey:
http://www.healingwell.com/community/default.aspx?f=35&m=826731


dawgfan
Regular Member


Date Joined Aug 2006
Total Posts : 148
   Posted 4/14/2008 6:33 PM (GMT -6)   
My GP started checking my PSA somewhere in my mid 40's I think. He started earlier than normal because I am adopted and have no family history. The PSA test revealed my PC when I was 48.
DX 8/24/06
Gleason 6
PSA 3.32
stage T1C
age 48 at the time
da Vinci on 10/20/06
Last PSA was ZERO
Husband, Father, Son, Brother, Friend
"Never miss a good chance to listen."
 


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 4/14/2008 6:37 PM (GMT -6)   
JustJulie.

I was 54 when I got the bad news. I have struggled with my employer to include PSA testing for our annual Health fair next month. I also tell all my friends about what I have been seeing on this forum and encourage everyone I come in contact with to make their Dr do a DRE and a PSA. Hope that will help some guys.

Mika
age at dx 54 now 55
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
wear one for insurance now
ED still a problem
last PSA undetectable
 


Johnny Canuck
Regular Member


Date Joined Jan 2008
Total Posts : 88
   Posted 4/14/2008 7:57 PM (GMT -6)   
Diagnosed at 53...first PSA at 52, I think. And kudos to those Liberal clowns for finally covering the test. Now if we can get vision testing covered by OHIP again...
Age: 54
Gleason Score: 3+3=6
PSA: 3.33
Biopsy:7/8 Positive
Stage: "Bulky" T1c
Prostate Size: 27cc
 
Diagnosed: December 05, 2007
Brachytherapy: on February 26, 2008
  68 seeds, (Iodine 125). 
 
 


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 4/14/2008 7:57 PM (GMT -6)   
At 45, my PSA was 3.15. I was 46 when got my PSA of 4.6. I was finally DX at 47.
My Doc does PSA's on all men over 40. He sees too much PCa in that age range to ignore it.

A good friend had it at 44. A friend at work, at 36.
47 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6      (Biopsy 3/07 just suspicious)
10/07 PSA 5.06   (Biopsy 11/07  1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC  www.roboticoncology.com
Saved both nerve bundles.
Path Report:  Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
PSA 0 at six weeks
Pad free on March 14 - (10 weeks.)
ED - Take 100mg viagra every night.
Totally usable erections at 10 weeks.
 
 


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 4/14/2008 8:03 PM (GMT -6)   
Diagnosed at 42 (days after 42nd birthday), with a PSA of 219, bones mets and lymph node involvement. That was 38 months ago....and counting!
Dx'd 2/18/05
PSA 219, bone mets, lymph node involvement
Gleason Score: 7
Current (2-24-08)
PSA: 29
Lupron, Nilandron

Personal Blog:
prostatecancerat42.blogspot.com

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