PC side effects and progress

Side Effects time Line
Return to potency at 6 months - 28.6%
Return to potency at 12 months - 14.3%
Return to potency at 18 months - 14.3%
Retur to Potency at 24 months or longer - 42.9%

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Apr 2008
Total Posts : 203
   Posted 4/20/2008 10:44 AM (GMT -6)   
Hello Everyone,

I am New to this board and i wish as many others i knew about it pre surgery.

i just wanted to post my journey and hear about similar or related experiences from others.

I was diagnosed with 3+3 prostate, Localized and contained on April of 2007 by my Uro / Surgeon which recommended to remove it due to my age (i a 54 but was 53 at the time ) good health and recovery chances.

He laid out the possibilities and i elected to do an open RP as he was more experienced with the open procedure.

Went into surgery on June 13 2007, removal of the gland and Nodes, with both nerve bundle Spared.

4 days at the hospital , with substantial pain, home with catheter for 10 days , and another visit to remove it.

Incontinence almost did not exist , occasional leakage but nothing major, did not use any pads after removal of Catheter
and occasionally doing Keagal exercise.

On the ED front the journey is longer, even though my Surgeon was expecting a return to potency much faster.

as of today , 10 months post surgery, i am experiencing a good mid night erections but yet not controlled , taking oral meds (50 Mg Viagra or 20 Mg Cialis 3 times a week) and using VED occasionally , and achieving good erections.

however i am looking forward to the day i will regain erectins as good as Pre surgery and without any help of Meds or VED (if that day ever comes) as this journey seems endless and LONG!!.

any other similar experiences would be appreciated..

GB :-)

Post Edited (GBINAB) : 4/21/2008 7:01:24 AM (GMT-6)

Tony Crispino
Veteran Member

Date Joined Dec 2006
Total Posts : 8128
   Posted 4/20/2008 11:22 AM (GMT -6)   

  tongue    Hi ~ GBINAB and Loved Ones,


Welcome   to…   ~ HealingWell ~




A   Special   Warm Welcome  to  You !


Knowledge gives us POWER….  POWER takes away the fear.


~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~


 Click  on  link  below for important information that will help you ~ help us!!


  >>  Welcome New Members ~ to HealingWell


The information (link) listed above is to help you get around the forum! 


v       This is a journey best traveled with friends. 

Welcome ~ New Friend from all the members here... on HealingWell.com


v      IdahoSurvivor ~  Moderator for Prostate Cancer Forum



v      TC-LasVegas ~  Moderator for Prostate Cancer Forum


v      bluebird ~  Moderator for Prostate Cancer Forum


Tony Crispino
Veteran Member

Date Joined Dec 2006
Total Posts : 8128
   Posted 4/20/2008 11:30 AM (GMT -6)   
Welcome GBINAB,
When I came here a year and a half ago, I found amazing support, and you will to. I returned to potency with mads within weeks of the surgery, but I lost it to hormone therapy and additional therapies. This is different for everyone, some get back right away. Some struggle. I hope you will do better than I. But welcome to Healingwell. Great to have you with us.

Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
Prostate Cancer Forum Moderator

Veteran Member

Date Joined Nov 2007
Total Posts : 598
   Posted 4/20/2008 1:45 PM (GMT -6)   
10 weeks for me with 100 mg viagra. If this is what I have for the rest of my life, I am one of the lucky ones. A realistic goal is important. There are those who eventually do get all function back without aids. But remember, most of the men in america need some help by the time they hit middle age. Most of us were heading there whether we knew it or not. If we need to use a few drugs to obtain success, that is a small price to pay to be cancer free. Good luck.
47 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6      (Biopsy 3/07 just suspicious)
10/07 PSA 5.06   (Biopsy 11/07  1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC  www.roboticoncology.com
Saved both nerve bundles.
Path Report:  Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
PSA 0 at six weeks
Pad free on March 14 - (10 weeks.)
ED - Take 100mg viagra every night.
Totally usable erections at 10 weeks.

Veteran Member

Date Joined Nov 2006
Total Posts : 883
   Posted 4/20/2008 4:06 PM (GMT -6)   
Not to downplay your concerns, but I would take continence over erections any day. Count your blessings. Take your time and you will probably do just fine. Good Luck, KW
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.  Will probably try Collagen injections one more time around the first of May.  If no improvement after that will start looking for a AUS Doctor.
    April 18, 2008 - Collagen injection.

Regular Member

Date Joined Apr 2008
Total Posts : 203
   Posted 4/20/2008 4:39 PM (GMT -6)   
kw said...
Not to downplay your concerns, but I would take continence over erections any day. Count your blessings. Take your time and you will probably do just fine. Good Luck, KW

Sorry to hear you are still battling continence....i sure prey and hope you will overcome it soon as well , and thank you for your reply , we all should count our blessing for the mere fact we are cancer free and alive and well every day .

God Luck and thank you !

Veteran Member

Date Joined Apr 2008
Total Posts : 847
   Posted 4/20/2008 11:33 PM (GMT -6)   
I haven't voted in the poll simply because I am only six weeks along the path and very definitely naturally impotent for now -- non-nerve-sparing RRP.
I saw my urologist today and he is strongly of the "use it or lose it" school. He regards regular penile injections as helpful in regaining potency in cases like mine. Fortunately they work fairly well for me, and I think the VED will too, so I expect to be doing some practice. :-)
I believe chances of a near full recovery of natural potency with non-nerve-sparing surgery are somewhere between slim and none at all. Just about all other procedures, surgical and/or radiation should be much better than that. Of course if we have ED before our procedures, we can fully expect to still have it after!
Also, I'm not sure exactly what is meant by "return to potency" -- does it mean any and all kinds of aids are allowed for satisfactory sex? Or no aids at all -- apart from a willing partner. :-)

Age 63. Other than cancer, in good health
Left hemi-colectomy April 2006 (colon cancer)
PSA 5.7, Gleason 4+5=9
RRP 7 March 2008, non nerve sparing
Histology showed clear margins and lymph nodes
Two nights in hospital
Catheter and staples out after 7 days
Continent, no pads needed from the get-go
No erections (of course!)
Experimenting with VED and Bimix

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, March 21, 2018 1:26 AM (GMT -6)
There are a total of 2,942,090 posts in 322,820 threads.
View Active Threads

Who's Online
This forum has 161219 registered members. Please welcome our newest member, dkcrs3.
212 Guest(s), 2 Registered Member(s) are currently online.  Details
HJQuinn, Girlie