Welcome New Member ~ BamaCoast

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/20/2008 11:15 AM (GMT -7)   
BamaCoast said...on Zingaa's Thread...

Hello, I am new here. I have been reading for a few weeks and decided to get involved. I had robotic surgery on April 5th at St Vincents Hospital in Birmingham, AL. My surgeon/urologist has done around 1000 of the robotic procedures and that is the reason I drove 4 1/2 hours to have the surgery. My gleason score was 3+4=7. The cancer isolated to the prostate and I will not need any further treatment except for bladder control and ed. Thought I would give a little background before responding to this post. I am 51 years old and it has been about 6 1/2 weeks since surgery. I feel really good and have recovered well.

I started out using 6-8 pads per day and this went on for about three weeks. Then it seem like overnight I went down to 4-5. this went on for about a week or so and overnight I went down to 2-3 where I am currently at right now. I can get by with two if I am not moving a lot and can get to the restroom at anytime. If I am active like working in the yard or fshing ect I will use 3 per day and from what I have read and after talking to my urologist I am about normal. I hope to be down to 1-2 in the next week or two and by 3 months be pad free. I have a problem with the pads. I just don't like it and I will celebrate big time when I am pad free. I seems like when it gets better it happens quick.

thanks to everyone for sharing your experience and sharing your knowledge.

Welcome BamaCoast to Healingwell.

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/20/2008 11:16 AM (GMT -7)   

  tongue    Hi ~ BamaCoast and Loved Ones,

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

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~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~

 

 Click  on  link  below for important information that will help you ~ help us!!

 

  >>  Welcome New Members ~ to HealingWell

 

The information (link) listed above is to help you get around the forum! 

 

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Welcome ~ New Friend from all the members here... on HealingWell.com

 

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livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 4/20/2008 11:21 AM (GMT -7)   
welcome to HW, Bamacoast. Glad to hear the surgery went well. There are so many success stories shared in this forum, I just wish more people were aware of it. Remain positive as your healing progresses, and most of all as your life has been forever altered please allow this to be a blessing, realizing that in our earthly journeys we need each other to clear the path of which we ourselves have littered. Yesterday is gone, yet tomorrow is ourselves to cherish. Life truly is good, and it isn't always what people see on the outside that counts, it is who we are on the inside. Glad to have you aboard and continue the healing. please stay in touch and share your journey with us.

peace love and grace
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/20/2008 11:23 AM (GMT -7)   

Welcome BamaCoast,
You come from a neck of the woods I am trying to visit soon.  I have a very dear friend in the area who also has PC and is also a member here, his screen name ~ War-eagle ~. (Something about a football team...LOL).  In incontinence get's better for almost all to where they don't require the pads.  I had an easy go of it and don't wear them.  Patience is advisable, but stay positive too.  That I think is required.  When you get the chance, if you can add a signature line, like mine, it will help others help you.  This is a great site and many caring people will check in soon.  God Bless and be well.

For signatures instructions, click below
http://www.healingwell.com/community/default.aspx?f=35&m=1067963

Tony


Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 4/20/2008 3:16 PM (GMT -7)   
I hope you continue to improve. But you can manage if it does not. There are options out there.
Good Luck. KW
    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.  Will probably try Collagen injections one more time around the first of May.  If no improvement after that will start looking for a AUS Doctor.
    April 18, 2008 - Collagen injection.
 
     


BamaCoast
Regular Member


Date Joined Apr 2008
Total Posts : 39
   Posted 4/22/2008 8:28 PM (GMT -7)   

Thanks for all the kind words. I have learned a lot from reading on healing well over the last few weeks. Since I made my post I have went down to 1-2 pads a day. Yesterday for the first time I used only 1 pad over a 24 hour spand. Things are improving and I will be going back to b'ham May 9th to have my first psa and go through the ed therapy. Looking forward to spending time and sharing with others.

 

 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/22/2008 8:32 PM (GMT -7)   

Hey ~ New Friend,

It's good to see you're staying close... we hope to hear from you as you move forward in your journey.  Stay Close... In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

4th PSA 2-13-2008 (23 months) Less than 0.1 Non-Detectable :)


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 4/25/2008 7:12 PM (GMT -7)   

Hey Bamacoast,

Hello from Birmingham. When you say Bamacoast, I hope you mean Gulf Shores or Orange Beach. We love the "Redneck Riviara". It is the best place in the world for fun and sun. Best beaches in the whole world. We will be comin' down soon to sit on the beach and chillout. We plan on going to Lulu's for some good seafood and great entertainment. Glad to see from your posts that you are doing well and on your way to full recovery. There are plenty of good people here to help along the way as you continue on your journey.

Where did you have surgery and who was your surgeon? I had mine at St. Vincent's with Dr. Eddie Bugg. Great staff and doctor.

The wife and I will keep you in our prayers.

Keep up the good work and War Eagle, baby.

Walt


Age: 55 ( still alive at 55)
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Casodex 4/2007
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
PSA 6.72 1/2008
PSA 8.23 2/2008 - Starting prednisone for 30 days
PSA 14 2-29-2008 - start chemo on 3/12
PSA 12.82 3/1/2008 round one chemo
PSA 12.24 4/2/2008 round two chemo 
PSA 10.86 4/24/2008 round three chemo
 
"I will persist without exception - I will find a way where there is no way"


BamaCoast
Regular Member


Date Joined Apr 2008
Total Posts : 39
   Posted 4/26/2008 8:49 PM (GMT -7)   
War-eagle,
 
I live just outside of Mobile. I have been to Lulu's a few times. I was over at Gulf Shores weekend before last. My Daugther and son in law were visiting from Utah. My son in laws father has a home on Ono Island and we went for a boat ride and docked at tacky jacks for lunch. It is starting to get crowded on the beach.
 
I too had surgery at St Vincents. Dr Tully did my surgery. I will be going back for a follow up appointment and my first psa and ed class on May 9th and will be seeing Dr Bugg. Dr Tully will not be in the office that day. Thanks for the prayers and we will keep you in ours.
 
 
BamaCoast - Kenny & Renae
from the Gulf Coast of Alabama
Age 51
Di Vinci Robotic Surgery March 5th, 2008
by Dr. Scott Tully
PSA 3.5  Gleason 3+4= 7
Confined to Prostate
1st PSA will be May 9th
 

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