New comer - another young one!

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Dirtmover
Regular Member


Date Joined Apr 2008
Total Posts : 158
   Posted 4/20/2008 12:44 PM (GMT -6)   
Hello,
 
I was diagnosed in November of 2007 PCA. G6 and PSA 3.9. I am 43. Surgery is scheduled at the City of Hope on May 29, 2008. We have noticed some members on here have who have been to the City of Hope & would like to get more feedback as to what can be expected. Dr. Kawachi will be doing the DaVinci. We will be traveling to Los Angeles from Northern California by air. We are hoping for the best results.
 
Also, I (Chris - wife) would like to get some feed back as to what I can expect and some ideas from other wives things that maybe they found helpful.

StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 354
   Posted 4/20/2008 12:55 PM (GMT -6)   
Sorry to see another young one join the group, but glad to see you are on the attack and working toward getting rid of the beast. Welcome to the site!
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-18 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007); 4th post-surgery PSA: 0 (June 2007); 5th post-surgery PSA: 0

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on daily Cialis, L-arginine and pentoxyfylline. Peyronies has stabilized and significantly reversed.

- PGE1 batting average: .364 (4 for 11)
- Bimix #3 batting average: .722 (13 for 18) Bimix #1 batting average (4 for 4) = 1.000
- Trimix batting average: .500 (1 for 2) Grand total 22 for 35 = .629

"Lost in the valley without my horses, no one can tell me what my remorse is..."


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/20/2008 1:30 PM (GMT -6)   

  tongue    Hi ~ Dirtmover and Loved Ones,

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

Knowledge gives us POWER….  POWER takes away the fear.

 

~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~

 

 Click  on  link  below for important information that will help you ~ help us!!

 

  >>  Welcome New Members ~ to HealingWell

 

The information (link) listed above is to help you get around the forum! 

 

v       This is a journey best traveled with friends. 

Welcome ~ New Friend from all the members here... on HealingWell.com

 

v      IdahoSurvivor ~  Moderator for Prostate Cancer Forum

http://farm2.static.flickr.com/1160/1313099593_9f819e3ff8.jpg

 

v      TC-LasVegas ~  Moderator for Prostate Cancer Forum

 

v      bluebird ~  Moderator for Prostate Cancer Forum

http://i206.photobucket.com/albums/bb179/mamabluebird1955/mamabluebirdWelcome.jpg


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/20/2008 1:39 PM (GMT -6)   

Hi Chris,

Welcome to the best place on the internet for patient to patient interaction.  AND, for us, sharing the City of Hope experience.  I was operated on by Dr. Wilson, the head of the facility, over a year ago and I thought they had it together.  The support, the doctors, the team members are world class.  I travelled as well, from Las Vegas, and stayed in the area with family close by.  You can click my screename and find my EM address if you want to, I am always glad to help.  There are quite a few CoH patients here and they too will be helpful.  But now that you have chosen a great surgeon in Dr. Kawachi (one of the very best), you will find many here who will be most helpful.  Look at my signature below.  If you can add your signature so that as you post others can identify with your journey.  I have added a link with instructions below.

For signatures instructions, click below
http://www.healingwell.com/community/default.aspx?f=35&m=1067963

(Also I removed your other thread as it was a duplicate of this one ~ We want to keep your Journey together!)

Tony



Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator

Post Edited (TC-LasVegas) : 4/20/2008 1:42:24 PM (GMT-6)


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 4/20/2008 2:15 PM (GMT -6)   
Good luck Chris, the time is soon, and it will be over before you know it and you will be on the road to recovery. Stay positive and start thinking about how you can help others with this journey you are embarking on. Remember there is always a blessing in the midst of choas, it is only thru adversity that we find our true identity. please keep us posted as to how you are doing.

peace love and grace
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
 


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 4/20/2008 3:06 PM (GMT -6)   
Hi Dirtmover and Chris (hope I got that in the right order!),

Welcome. If you scan back through the links section of previous posts found up the top of the forum there are some really useful posts which explain tips for surgical preparation. It is worth looking through "Shopping for surgery" (Wittler) and a few other posts similiar. I found (as a wife) looking through these posts, and being extra prepared for the little things that may cause post op discomfort was helpful in the end. Like taking extra sized clothing to accomodate the catheter once you are up and around, own bathrobe and pillow etc. Depends on the length of stay and the facility of course, as to how much you actually can prepare - but have a look through the past preparation posts and they may have some good info you can use.

All the best in planning for the big day on the 28th. We have just passed one year since surgery, and have been blessed to have very good outcomes, and we wish the same for you too. This forum is an excellent source of information we found, and the only site with many younger men who post regularly. Welcome again, and ask anything that pops into your head in the next month or two as it comes up. Kind regards, Lana & CJ
Creed_three (Lana & CJ)
 
Husband CJ aged 50 yrs (49 years at diagnosis and surgery)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing, on 17th April 2007 (Sydney, Australia).
Gleeson 3 + 4 = 7.  Cancer confined. 1st PSA 0.01 (June 07) 2nd PSA 0.02 (Oct 07) undetectable. 3rd PSA 0.02 (April 08) undetectable.


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 4/20/2008 3:25 PM (GMT -6)   

  I was 43 at Dx and surgery also.  Wish you all the best.

    KW


    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.  Will probably try Collagen injections one more time around the first of May.  If no improvement after that will start looking for a AUS Doctor.
    April 18, 2008 - Collagen injection.
 
     


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 4/20/2008 6:13 PM (GMT -6)   
Chris:
 
Boy, I hate to see all of you young guys having to come here, but know you will find alot of support and help from everyone on this forum.  Don't know anything about surgery as I had proton, but have heard good things about CoH.  You mentioned your wife and the one thing I do know is that the love and support of your wife is the single most important thing that will get you thru this whole experience.  Best wishes to you both.
Dutch
Diagnosed Feb 2001  (Age 65)  Currently 72
PSA 4.8      Gleason 3+3=6      Stage   T2b
Completed Proton Therapy @ Loma Linda - 2001 - No side effects.  My journey is at: http://www.healingwell.com/community/default.aspx?f=35&m=727565
7yr PSA - 0.2
Our responsibility now is to educate men about Pca, PSA and the importance of early detection. 
 
 
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/20/2008 6:27 PM (GMT -6)   
tongue       Hey ~ Dirtmover, Chris, & Loved Ones,

 

We’re glad you found all of us!!!

 

I know we can “all” make “Your Journey” smoother ~ just by being here for you!  

Thank you for reaching out!!! 

 

You’ve just made your own journey a lot smoother.  There are a lot of Helping Hands here… and just by reaching out like you did ~ you will have a much easier time.  We’ve been where you are now…. Knowing you aren’t alone… makes a big difference in psyche and spirit.

 

We will always be here for you… This is truly a great forum!!! ~ You have joined! You are now part our forum family ~ a group of wonderful individuals who are so willing to share their journey with you!  Please take time to follow the link in your Welcome Message above… it will help to ease some of the unknowns…

 

It helps “all of us” ~ to help you ~ if we know where you are on your path.

So ~ Please stay with us and take our hand when you need it!  Keep posting.... OKAY!!   

  

KNOWLEDGE IS POWER... and POWER conquers fear

  

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

 

 

Buddy & I invite you to visit our personal thread “Our Journey”… listed in our signature below.

Hoping our experience can help you over at least one stepping-stone on your journey. 

http://i206.photobucket.com/albums/bb179/mamabluebird1955/Stepping-StonestoHealingWell.jpg

 

Our thoughts and prayers will be with you as you continue to move forward in your search for answers… Stay Close!

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

4th PSA 2-13-2008 (23 months) Less than 0.1 Non-Detectable :)


Dirtmover
Regular Member


Date Joined Apr 2008
Total Posts : 158
   Posted 4/21/2008 10:01 AM (GMT -6)   
Thank you all so much for your support through this tough time! Our names are Kevin and Christina. It is very uplifting to know there is people out there like all of you! 
 
Thank you Creed_three I will be looking over the sites you mentioned. I want to be a prepared as possible to take care of Kevin. I really appreciate everything. I am sure I will be asking more questions!
 
THANK YOU !!
 
Christina
 
 
 
Kevin McConnell - California
Diagnosed with PC November 2007 at the age of 43 -
DaVinci scheduled May 29, 2008 at the City of Hope.
PSA = 3.9 Gleason = 6  TS = T1C


Pete42
Regular Member


Date Joined Mar 2007
Total Posts : 114
   Posted 4/21/2008 12:53 PM (GMT -6)   
Hi Chris - Another CoH alum and I echo everything that TC said, top notch all the way.
My surgeon was Dr. Clayton Lau.
Diagnosed 1/26/07
Stage Tc1
Gleason 6
PSA 3.8
12 samples, positive in one 15%
Biopsy - 1% involvement, no bladder neck, Gleason 3+3, Tc1
Age 51
Surgery (robotic) May 4 2007 City of Hope
Final pathology - fully contained to prostate, TC1, Gleason 3+ 3
Fully continent one month
First Post op PSA - Undetectable
Second Post Op PSA (8/22/07)- Undetectable
ED- start injections 10/06/07
3rd Post op PSA 11/7 - Undetectable
 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 4/21/2008 1:53 PM (GMT -6)   
Kevin & Christina,
So glad you found this site - welcome!
The men & women here are wonderfully supportive and caring. You can ask anything you need to - there are no limits here.
I wish you well with surgery and as you've heard here already - COH is a wonderful facility with excellent doctors.

All the best,
Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
PSA - Undetectable since 6/07/07

Link to journey:
http://www.healingwell.com/community/default.aspx?f=35&m=826731

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