I am new here. I'll try and shorten this as much as possible. My Father in law was diagnosed several months ago with prostate cancer. At the time they said a lymph node was involved, but they gave him an experimental "shot" treatment that he was to have every 6 months. I don't know the name of it. They said he wouldn't need any more treatment than that. it didn't seem right to me at the time, but he seemed positive about it.
He went back to the urologist and his numbers were great, way down..so that was evidence the treatment was working.
about 5-6 weeks ago he began itching inside..it kept him up all night and wouldn't subside. It went on and the doctors couldn't find out WHAT it was...they were stumped. Finally decided that he was alergic to the treatment, and would have to wait for the shot to wear of. SO he went home to suffer it out and was getting weaker by the day.
They decided it was best since the treatment supposedly wouldn't be able to be used, to remove the testicles. An appointment was made for the surgery but the night before, his legs swelled up. The surgery was put off until they could figure out why that had occured. only then did they give him an MRI..which showed his gut FULL of advanced lymph cancer. It is between his kidneys, and so far looks like major organs are not involved as much as it has taken up space everywhere else.
We have an appointment later this week with an oncologist, but they basically told him to go home and get his affairs in order.
I am LIVID that they didn't know the itching was a sign of internal lymph cancer. We google-d it and it popped right up. No more trusting doctors blindly. We are doing our own research.
Does anyone have any advice or hope for me? Any one had an advanced stage that has left the prostate that has had luck with certain treatments? We are on the East Coast so any suggestions for the best specialists would be appreciated too
thanks in advance