New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 4/21/2008 6:31 PM (GMT -6)   
Hi everyone.  After my cath came out I leaked like a faucet.  The first couple of months were tough because I have a public job with several public meetings in groups and with individuals in my office.  I was always worried about leaking.  I was like most people, when I stood up I leaked, when I bent over I leaked etc.  I never used more than two pads a day, for which I am lucky and greatful but I just could not shake the dependence on the depends (get it).  Last time I was about to run out of pads I told myself to try and do without them.  Well, I didn't listen very well so I bought another pack of them.  My wife went to Sam's club, called me and asked if I needed more and I told her no.  I was down toward the bottom of the pack I had and yesterday I was going to see how I would do.  No problems and went to work today without any leaking.  So I guess I am cured of this problem.  I know there are other guys out there who still struggle and I hope and pray that you will get some relief from the leaking.   Take care as always.
 
Mika
age at dx 54 now 55
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
wear one for insurance now
ED still a problem
last PSA undetectable
 


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 4/21/2008 8:11 PM (GMT -6)   
Congratulations.  I am getting VERY close to joining you in that club, although if I have radiation my guess is I will backslide some.
 
I know it must feel great not to have any pads in there.
Danman Bob
Age 57
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14
Biopsy result - 9 of 12 sticks showed cancer
Despite high Gleason score, cancer was confined to the prostate
Possible post-surgery radiation therapy...decision likely in late April 2008, depending upon PSA at that time
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of March 2008)
Began using Viagra 3 times a week December 2007 to stimulate blood flow
Began using Osbon Erec-Aid Esteem manual pump for therapy mid-February 2008
Will probably begin using bimix injections in addition to Viagra and pump in May 2008


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 4/21/2008 9:33 PM (GMT -6)   
Hey Mika,

Everything about this disease takes persistence. I have found that using incentives to improve work in the healing process. I was determined to get dry quick and was very lucky in that about a day after the catheter came out I quit leaking. So I threw away the pads. My first day teaching school was a little scary because I really didn't want to develop a big wet spot in front of 35 students. Didn't happen which did a lot for my confidence that I was healing up.

Good for you...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
"Patience is essential, attitude is everything."
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/21/2008 10:44 PM (GMT -6)   
Great news Mika,
Now that you got that back down, did you remember to put the seat back down on the toilet?.....LOL. This is a great post for those looking for that day, and how long it might take. The fact that you have remained so positive also leads the many that have to deal with this that there is Hope. And God Bless you for giving that out. I certainly Hope that this remains a very long term healing.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
Prostate Cancer Forum Moderator


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted Yesterday 6:09 PM (GMT -6)   
tongue  Great News ~ Mika,
 
Thank you for continuing to reach out to all of us with the healing/recovery stepping-stone that you are on and will now move forward on to another one.  Still taking the time to heal properly. 
 
We did a wonderful little dance and a high5 when we read your thread... and thought back to our 1st visit in your office.....   WOW... and here we are today!
 
Mika... you've done extremely well and in a profession where you're wearing that extra weight around the middle so soon after surgery... you've taken good care of you and that's important.
 
Special Hugs to your special lady "Dale", and supporting friends and family "Kay"...
In Friendship ~ Lee & Buddy
 
 
yeah   A reminder to all that each thread is so important... showing the Good, the Bad, and the Scary ~ helps to bring our Knowledge base to the highest level of knowing!!!

 

Caring Eough to Share ~ Everything!!!

That's what HealingWell is all about


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

4th PSA 2-13-2008 (23 months) Less than 0.1 Non-Detectable :)


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted Today 5:19 PM (GMT -6)   

Hi guys. 

 I am glad I was able to shake the crutch of the pads when I don't need them.  Also Bluebird, I wish I could keep those extra pounds off.  I need to drag myself to the gym and away from the table more often but I have been fighting this fight all my life.  When Dale called me yesterday about coming to the gym I had an FBI guy in the office and could not leave. I feel really good.  We had a health fair blood draw at work today and after preaching about PSA's they have included them in the screening.  So I guess I accomplished something with this.

Take care everyone and keep up the good fight.

 

Mika

 


age at dx 54 now 55
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
wear one for insurance now
ED still a problem
last PSA undetectable
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted Today 7:37 PM (GMT -6)   
  tongue   Hey ~ Mika....
The extra weight was your "gun belt"  (blushing smiley).... I was concerned when you first went back to work because of the pressure around your waist (incision)... eeekkkkk
 
You've spread the word in many ways ~ and this is a priceless gift you will have given many.
Hugs from Lee & Buddy
 

Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted 4/24/2008 9:46 AM (GMT -6)   
I remember panicking at a conference in Ottawa last december. I had decided to go without a pad because, darn it, I was was going to lick this thing. I spent the day looking down at my crotch for the tell tale signs of leaking. At noon, I had a close female college get me a thin pad from the female washroom. I needed my crutch!!!

A week later I was padless.

Mika, I with you on the weight fight. I started going back to the gym last month with the hope of getting below 200lb again.

Congrats Mika!!
Age: 43 (2008)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
              Both nerve bundles spared
              Pathology Report: Tumor confined w/in prostate
              T2c, Gleason is 3+3=6
              Went home with JP drain
10/2007: Made return trip to hospital.  All urine was comming out JP drain.
10/2007: Catheter removed. Next to no leakage
11/2007: 1st PSA <.003 :)
              ED: Started Viagra, no response yet.
12/2007: Had confidence to go padless!!!!!
12/2007: ED:  Stopped Viagra as it's causing hemroid problems.
01/2008: 2nd PSA <.003 :)
              ED: next to no response.
04/2008: 3nd PSA <.003 :)
              ED: next to no response.  Changed the Viagra prescription.
 


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/24/2008 7:52 PM (GMT -6)   

Mika,

Man of man was it nice to see your post today.  I am about 3 weeks out of surgery and I am not seeing any improvement with leaking.  I leak most when standing.  I need a good plumber. Even if my bladder is full sitting it just leaks out when I stand.  At night I do hold a little but have to get up to go 2-4 times a night and still leak some.  I would love to see improvement.  I am kegeling my little butt off and will start increasing my walk time. I am working full time and at the end of the day I am still sore down below. 

Must be some kind of a cruel joke I am truly blessed for my sexual function is back to the way it was before surgery but what am I supposed to do with this broken faucet.

Keep the good news coming Mika,  thanks again

Frank


Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on bottom of prostate, 1 positve margin  going to meet with oncologist to discuss treatment options if any at this time.
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, April 24, 2018 3:07 PM (GMT -6)
There are a total of 2,955,164 posts in 324,195 threads.
View Active Threads


Who's Online
This forum has 162216 registered members. Please welcome our newest member, gpwwright.
362 Guest(s), 8 Registered Member(s) are currently online.  Details
Gemlin, Flying Bookman, getting by, DaveNJ41, Lynnwood, rrandal1, OriolCarol, elvin