WIFE WITH QUESTIONS REGARDING CHICAGO SURGEONS

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MURPHY1
New Member


Date Joined Apr 2008
Total Posts : 12
   Posted 4/21/2008 6:10 PM (GMT -7)   
Hi all - I have been reading posts for the past few days awaiting my husbands biopsy results - well... we got them today and he has it!  going to the doctor tomorrow for our initial meeting and just need to know what sort of questions to ask and if anyone on these boards has had their surgery in a chicago area hospital.  My husband is only 46 which it seems is really really young but I have noticed many young people on these boards which will be helpful to us - his initial psa was 4.4 and then had it repeated it went up to 4.5 in just a few weeks.  biopsy showed only 1 area affected and the dr. said it was the lowest grade possible.  we will definatley have more information tomorrow but if anyone has any input for us tonight that would be great

DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 4/21/2008 7:08 PM (GMT -7)   

My first suggestion is to do as much research and ask as many questions as you can.  Perhaps there is a less invasive form of treatment that might suit your husband's needs better than surgery.  Not saying there is, but do not just assume that surgery is the answer.  In my case, I felt surgery was the best answer, but my biopsy results showed a very aggressive cancer and my PSA was rising VERY quickly.

Re. the Chicago area, Frank1205, email address (edit) click here...> Frank1205  lives in the Chicago burbs and had Davinci surgery at the University of Chicago in late March.  He posts here fairly often.

Best of luck to you and your husband.

DanMan


Danman Bob

Age 57

Nerve-sparing, open prostate surgery November 13, 2007

Gleason score 9, PSA 14

Biopsy result - 9 of 12 sticks showed cancer

Despite high Gleason score, cancer was confined to the prostate

Possible post-surgery radiation therapy...decision likely in late April 2008, depending upon PSA at that time

Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of March 2008)

Began using Viagra 3 times a week December 2007 to stimulate blood flow

Began using Osbon Erec-Aid Esteem manual pump for therapy mid-February 2008

Will probably begin using bimix injections in addition to Viagra and pump in May 2008

 

 

Post edited to mask personal e-mail address... 

(you must be signed on to the forum to view e-mail address if member has it activated)

v       bluebird ~  Moderator for Prostate Cancer Forum


Post Edited By Moderator (bluebird) : 4/22/2008 7:49:19 PM (GMT-6)


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 4/21/2008 8:43 PM (GMT -7)   
Hey Murphy,

Welcome to the forum. We are all here to help and support each other.

We found it useful to write our questions in a notebook for the doctor's appointments and then to write down the answers and other information in the meeting. That tense environment is not condusive to good memory and mine isn't that good anyway.

Please stay with us, we can all get well together...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
"Patience is essential, attitude is everything."
 
 


GBINAB
Regular Member


Date Joined Apr 2008
Total Posts : 203
   Posted 4/22/2008 4:57 AM (GMT -7)   
Hey Murphy and welcome aboard ,
I am sorry to find you here for those reasons but i guess we al here in the same boat.

as others already mentioned you should do your research , i wish i knew about this board before hand and learn more bout my disease before my open operation just to prepare me mentally.

I a sure you can find a great surge/uro in one of the specialized hospitals in th Chicago area if you look up on the internet, the most important thing to remember is that you want the most experienced hands with the least side effects track record by th surgeon..today everyone rave about the DaVinci robot procedure which known as the least invasive and most effective (2 days in the Hospital at most and faster recovery time
i had also a contained and microscopic PC and bing still young and healthy i elected to get rid of it once and for all by an open operation which also spared my nerve bundles, younger members show a faster recovery and great results , but do your own research and keep us posted since you can learn alot from this board members experiences.

Good Luck
GB
April 2007 PSA 8.4 for last 6 months biopsy shows PC 3+3=6

June 13 2007 Went for open RP with Dr. Christopher Johnson at St. Francis Hospital NY. with nerve sparing o both sides.

4 days later home for Fathers Day, and Catheter.
Removal of catheter 10 days later , incontinence next to nothing, no pads used from the get go.

1 month PSA next to not detected


ED is a longer battle:1month out start using occasionally Cialis and 50MG Viagra to promote blood flow with no response for 6 months.

3 months and 6 months PSA not detected

at 6 months mark starting with VED therapy and being more aggressive with meds , in addition taking Folgard supplement daily.

April 2008 10 month out and start seeing some serious improvements with ED while using Meds and VED , can achieve erections, Mid nights erections almost on a regular basis , and uncontrolled 90 % erections spontaneously.

1 year visit on June 13 2008 woohoooo!!!


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/22/2008 6:42 PM (GMT -7)   

tongue  Hi ~ Murphy1 and Loved Ones,

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

Knowledge gives us POWER….  POWER takes away the fear.

 

~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~

 

 Click  on  link  below for important information that will help you ~ help us!!

 

  >>  Welcome New Members ~ to HealingWell

 

The information (link) listed above is to help you get around the forum! 

 

v       This is a journey best traveled with friends. 

Welcome ~ New Friend from all the members here... on HealingWell.com

 

v      IdahoSurvivor ~  Moderator for Prostate Cancer Forum

http://farm2.static.flickr.com/1160/1313099593_9f819e3ff8.jpg

 

v      TC-LasVegas ~  Moderator for Prostate Cancer Forum

 

v      bluebird ~  Moderator for Prostate Cancer Forum

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bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/22/2008 6:51 PM (GMT -7)   

tongue   Hey  ~  Murphy1 & Loved Ones,

 We’re glad you found all of us!!!

 

I know we can “all” make “Your Journey” smoother ~ just by being here for you!  

Thank you for reaching out!!! 

 

You’ve just made your own journey a lot smoother.  There are a lot of Helping Hands here… and just by reaching out like you did ~ you will have a much easier time.  We’ve been where you are now…. Knowing you aren’t alone… makes a big difference in psyche and spirit.

 

We will always be here for you… This is truly a great forum!!! ~ You have joined! You are now part our forum family ~ a group of wonderful individuals who are so willing to share their journey with you!  Please take time to follow the link in your Welcome Message above… it will help to ease some of the unknowns…

 

It helps “all of us” ~ to help you ~ if we know where you are on your path.

So ~ Please stay with us and take our hand when you need it!  Keep posting.... OKAY!!   

  

KNOWLEDGE IS POWER... and POWER conquers fear

  

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

 

 

Buddy & I invite you to visit our personal thread “Our Journey”… listed in our signature below.

Hoping our experience can help you over at least one stepping-stone on your journey. 

http://i206.photobucket.com/albums/bb179/mamabluebird1955/Stepping-StonestoHealingWell.jpg

 

Our thoughts and prayers will be with you as you continue to move forward in your search for answers… Stay Close!

In Friendship ~ Lee, Buddy, and "our" Murphy


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

4th PSA 2-13-2008 (23 months) Less than 0.1 Non-Detectable :)


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 4/23/2008 4:28 AM (GMT -7)   
I go to the cancer treatment center of america which is about 40 miles north of Chicago and it is a wonderful facility. Glad you guys caught the enemy early, I agree with doing as much research as possible to see if there is a better solution than surgery. Please keep us posted as to how you are doing, mentally, physically, emotionally, and spiritually. WE CARE

peace to you
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
 

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