I need some advice

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BamaCoast
Regular Member


Date Joined Apr 2008
Total Posts : 39
   Posted 4/23/2008 7:52 PM (GMT -7)   
I am seven weeks out from surgery and I am having problems getting firm enough for intercourse. I am currently taking 5 mg of cialis and using the erecaid pump. It is too soon or is there something I can do that would help?
 
 

BamaCoast - Kenny & Renae
from Gulf Coast of Alabama
Age 51
Di Vinci Robotic Surgery March 5th, 2008
by Dr. Scott Tully
PSA 3.5  Gleason 3+4= 7
Confined to Prostate
1st PSA will be May 9th
 


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 4/23/2008 7:57 PM (GMT -7)   
Have you considered injections?

Danman Bob
Age 57
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14
Biopsy result - 9 of 12 sticks showed cancer
Despite high Gleason score, cancer was confined to the prostate
Possible post-surgery radiation therapy...decision likely in late April 2008, depending upon PSA at that time
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of March 2008)
Began using Viagra 3 times a week December 2007 to stimulate blood flow
Began using Osbon Erec-Aid Esteem manual pump for therapy mid-February 2008
Will probably begin using bimix injections in addition to Viagra and pump in May 2008


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 4/23/2008 8:01 PM (GMT -7)   

Take your time....be patient.  Those nerves were really messed with and will take time to heal.

Good Luck,  KW


    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.  Will probably try Collagen injections one more time around the first of May.  If no improvement after that will start looking for a AUS Doctor.
    April 18, 2008 - Collagen injection.
 
     


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 4/23/2008 8:02 PM (GMT -7)   
Kenny,

You are right where most men are at this stage in recovery. It takes time and a bunch O patience. Expect 9-12 months and hope for sooner:>) My adivise, relax and let life happen. The body heals at its own pace. Keep doing what you're doing! Some say injections may jump start the recovery time.

Swim
 


BamaCoast
Regular Member


Date Joined Apr 2008
Total Posts : 39
   Posted 4/23/2008 8:22 PM (GMT -7)   
I am going to talk with my Doctor about the injections when I go back on May 9th. I have three appointments that day. One with the Doctor, one for ED and one for lab. They did have to take my right nerve but my Doctor told me that I should be able to perform with time. The Urologist Group I am seeing in Birmingham do a lot of research and they really emphasis recovery from ED. Thanks for the advice.
BamaCoast - Kenny & Renae
from the Gulf Coast of Alabama
Age 51
Di Vinci Robotic Surgery March 5th, 2008
by Dr. Scott Tully
PSA 3.5  Gleason 3+4= 7
Confined to Prostate
1st PSA will be May 9th
 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 4/23/2008 8:29 PM (GMT -7)   
You must be kidding us! :-) Most of us here took at least 6-12 month to get back to something resembling 'normal'. Some of us took even longer and some, heaven forbid, ever (except perhaps with injections). I'm a lot older than you, but even so, it took me over 12 month to produce anything 'usable' with the help of chemicals. In the ED department, patience is definitely a must.
Wishing you a quick and complete recovery.
 
Magaboo

Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
Open RP 28 Nov 06
Post op staging T3
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA test Mar., 08 =.04 
 
 


GBINAB
Regular Member


Date Joined Apr 2008
Total Posts : 203
   Posted 4/23/2008 8:41 PM (GMT -7)   
Kenny as most of the replies to you prior to mine i can only reassure thier statements.....you are VERY VERY early in the process of regaining potency following prostate removal ... it takes time and Patience to get there , and do ot jump into fast conclusions or rush anything...i am 10 months out after nerve sparing open RP and just started to feel the progress in the ED dept. Please take your time and first try the usual therapy such as oral meds (maybe increase doses of Viagra or Cialis) the VED is a good help, but you must remember that normal healing time for those nerves is about 9 to 12 months ..if i feel that i need more help after 12 months only then i will consider Injection therapy...
Keep up the good work and keep posting

good Luck !! i am certain you will get there eventually

GB :-)
April 2007 PSA 8.4 for last 6 months biopsy shows PC 3+3=6

June 13 2007 Went for open RP with Dr. Christopher Johnson at St. Francis Hospital NY. with nerve sparing o both sides.

4 days later home for Fathers Day, and Catheter.
Removal of catheter 10 days later , incontinence next to nothing, no pads used from the get go.

1 month PSA next to not detected


ED is a longer battle:1month out start using occasionally Cialis and 50MG Viagra to promote blood flow with no response for 6 months.

3 months and 6 months PSA not detected

at 6 months mark starting with VED therapy and being more aggressive with meds , in addition taking Folgard supplement daily.

April 2008 10 month out and start seeing some serious improvements with ED while using Meds and VED , can achieve erections, Mid nights erections almost on a regular basis , and uncontrolled 90 % erections spontaneously.

1 year visit on June 13 2008 woohoooo!!!


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 4/24/2008 12:12 AM (GMT -7)   
My husband would agree with the previous few comments re. 9-12 months average. Our progress was 50% at 6 months (cialis on and off increased etc),  and then a rapid 80% at 8 months and improving from then with Levitra. Still using Levitra 20mg when needed (at 12 months). Some others using injections here,  also report the return of natural function sometime between 9-12months up to 2 years. I think you are doing fine with some return of function at such an early stage too.  Others same age report much sooner, so it depends. Treatment also is a choice. Cialis did not work for us early on (8-12 weeks), and so at 4 months had a break from all meds, then switched. Not sure if it was the time factor or the medication, but tend to think it was time. Nothing significant from 6 months, then rapid improvement at 8 months. Similiar ages etc to you. If it had not worked would then have tried injections, but it did. Good luck in your recovery. 
Creed_three (Lana & CJ)
 
Husband CJ aged 50 yrs (49 years at diagnosis and surgery)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing, on 17th April 2007 (Sydney, Australia).
Gleeson 3 + 4 = 7.  Cancer confined. 1st PSA 0.01 (June 07) 2nd PSA 0.02 (Oct 07) undetectable. 3rd PSA 0.02 (April 08) undetectable.


fatcat
Regular Member


Date Joined Jan 2008
Total Posts : 31
   Posted 4/24/2008 6:00 AM (GMT -7)   
BamaCoast, I had the Surgery, the day before you, Dr. Tully also. Am having the same as you, same on the Cialis, but no pump, just work on it everyday. Have had Erections enough for sex, but don't last very long, maybe larger dose needed ? My appointments the week after yours. The leaking thing is my big bugaboo, still one heavy pad and one light one a day, more if I'm sweating. Wear only ultra thins on the Bike, then a couple. Keep the Faith and listen to the folks here. After my original Uro's staff screwed up everything, the folks here kept me from choking the crap out of someone.  

PSA 4.8

Biopsy Sept 07 half of one needle out of 13 Positive

Second PSA 3.4

DaVinci Mar 4 2008, Dr. Tully, St. Vincent’s Hospital, Birmingham AL, great Hospital and Staff

Path Report Gleason 3+3=6

 T2c, would have been T1c but one lobe 55% involved with benign fatty tumor

  Prostate grew from 28 grams to 32 grams due to Fatty Tumor growing.

2 nodes on lymphatic system did have 2 benign growths

Margins clear

Prostrate confined

2 pads in a 24 hour period

Mr. Happy gets happier everyday, still not firm enough,

 But that gets better everyday

5mg Cialis everyday

Outstanding Wife

Went back to light duty work, 3 days after Catheter removal

Awaiting first PSA, fingers, toes crossed.


GBINAB
Regular Member


Date Joined Apr 2008
Total Posts : 203
   Posted 4/24/2008 7:23 AM (GMT -7)   
fatcat said...
BamaCoast, I had the Surgery, the day before you, Dr. Tully also. Am having the same as you, same on the Cialis, but no pump, just work on it everyday. Have had Erections enough for sex, but don't last very long, maybe larger dose needed ? My appointments the week after yours. The leaking thing is my big bugaboo, still one heavy pad and one light one a day, more if I'm sweating. Wear only ultra thins on the Bike, then a couple. Keep the Faith and listen to the folks here. After my original Uro's staff screwed up everything, the folks here kept me from choking the crap out of someone.



Fatcat that is fabulous to know you are feeling some action with Mr. hAPPY so early nin the game ... you will do very well and very soon i M SURE it took me about 6 to 8 months to start seeing some significant progress but yet at 10 months not fully erect without medications (i use only oral meds and some practice with the VED) even though i had the open RP compare to your DaVinci

Great News and encouraging for others on here .. it is all up to everyones body to recover those nerves
GB :-)
April 2007 PSA 8.4 for last 6 months biopsy shows PC 3+3=6

June 13 2007 Went for open RP with Dr. Christopher Johnson at St. Francis Hospital NY. with nerve sparing o both sides.

4 days later home for Fathers Day, and Catheter.
Removal of catheter 10 days later , incontinence next to nothing, no pads used from the get go.

1 month PSA next to not detected


ED is a longer battle:1month out start using occasionally Cialis and 50MG Viagra to promote blood flow with no response for 6 months.

3 months and 6 months PSA not detected

at 6 months mark starting with VED therapy and being more aggressive with meds , in addition taking Folgard supplement daily.

April 2008 10 month out and start seeing some serious improvements with ED while using Meds and VED , can achieve erections, Mid nights erections almost on a regular basis , and uncontrolled 90 % erections spontaneously.

1 year visit on June 13 2008 woohoooo!!!


GBINAB
Regular Member


Date Joined Apr 2008
Total Posts : 203
   Posted 4/24/2008 7:25 AM (GMT -7)   
creed_three said...
My husband would agree with the previous few comments re. 9-12 months average. Our progress was 50% at 6 months (cialis on and off increased etc), and then a rapid 80% at 8 months and improving from then with Levitra. Still using Levitra 20mg when needed (at 12 months). Some others using injections here, also report the return of natural function sometime between 9-12months up to 2 years. I think you are doing fine with some return of function at such an early stage too. Others same age report much sooner, so it depends. Treatment also is a choice. Cialis did not work for us early on (8-12 weeks), and so at 4 months had a break from all meds, then switched. Not sure if it was the time factor or the medication, but tend to think it was time. Nothing significant from 6 months, then rapid improvement at 8 months. Similiar ages etc to you. If it had not worked would then have tried injections, but it did. Good luck in your recovery.


Creed , thanks for your response and sounds like your husband is doing fine and on the way to full recovery soon !!!
keep up the good work ..
Good Luck and keep us posted

GB :-)
April 2007 PSA 8.4 for last 6 months biopsy shows PC 3+3=6

June 13 2007 Went for open RP with Dr. Christopher Johnson at St. Francis Hospital NY. with nerve sparing o both sides.

4 days later home for Fathers Day, and Catheter.
Removal of catheter 10 days later , incontinence next to nothing, no pads used from the get go.

1 month PSA next to not detected


ED is a longer battle:1month out start using occasionally Cialis and 50MG Viagra to promote blood flow with no response for 6 months.

3 months and 6 months PSA not detected

at 6 months mark starting with VED therapy and being more aggressive with meds , in addition taking Folgard supplement daily.

April 2008 10 month out and start seeing some serious improvements with ED while using Meds and VED , can achieve erections, Mid nights erections almost on a regular basis , and uncontrolled 90 % erections spontaneously.

1 year visit on June 13 2008 woohoooo!!!


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 4/24/2008 5:50 PM (GMT -7)   
GB - many thanks for your kind words... I find it difficult to discuss these issues on my husband's behalf, but do so sometimes because it is so necessary. We do not discuss this one with anyone else at all, so if it was not for this forum, we would have no idea of how these things really are for a variety of other people. Many thanks for your good wishes GB. So glad to hear you are going so well too. cheers :-)
Creed_three (Lana & CJ)
 
Husband CJ aged 50 yrs (49 years at diagnosis and surgery)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing, on 17th April 2007 (Sydney, Australia).
Gleeson 3 + 4 = 7.  Cancer confined. 1st PSA 0.01 (June 07) 2nd PSA 0.02 (Oct 07) undetectable. 3rd PSA 0.02 (April 08) undetectable.


BamaCoast
Regular Member


Date Joined Apr 2008
Total Posts : 39
   Posted 4/24/2008 6:10 PM (GMT -7)   
fatcat said...
BamaCoast, I had the Surgery, the day before you, Dr. Tully also. Am having the same as you, same on the Cialis, but no pump, just work on it everyday. Have had Erections enough for sex, but don't last very long, maybe larger dose needed ? My appointments the week after yours. The leaking thing is my big bugaboo, still one heavy pad and one light one a day, more if I'm sweating. Wear only ultra thins on the Bike, then a couple. Keep the Faith and listen to the folks here. After my original Uro's staff screwed up everything, the folks here kept me from choking the crap out of someone.  

fatcat, It seems we are very close to the same on our recovery. I will be seeing Dr. Bugg when I go back on May 9th. Dr. Tully will be out of the office. I hear Dr. Bugg is very good. I am writing down questions to ask when I go back.  I was honestly under the impression that it would not take that long to be able to have a firm erection with medication. I thought from what I have read it would be more like 3 months not 9-12 months. Sounds like that is wishful thinking. If I lived close to Birmingham I would go to the monthly support meetings. You could probably get some very good information at the meetings.
 
Like you I was impress with the staff at St Vincents. My wife was very impress with the male nurse who was part of the robotic surgery team.
 
Thanks for all the replys and I will be a regular on the forum

BamaCoast - Kenny & Renae
from the Gulf Coast of Alabama
Age 51
Di Vinci Robotic Surgery March 5th, 2008
by Dr. Scott Tully
PSA 3.5  Gleason 3+4= 7
Confined to Prostate
1st PSA will be May 9th
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 4/25/2008 5:45 AM (GMT -7)   

Bama, since Alabama doesn't have that much of a coast, I figure you are somewhere around Mobile (we spent last winter in Satsuma), so heres a link to the USToo Chapters in the state, with info about the one in Mobile.  Hope this helps if you are seeking a support group.  This organization is great, in my opinion...

http://www.ustoo.org/chapter_nearyou.asp


James C. 
 
Help support the forums so they can support you:  http://www.healingwell.com/donate 
 
Age 60 
4/19/07   PSA 7.6, referred to Urologist, recheck 6.7
7/11/07   Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07   Path report:  3 of 16 PCa, 5% involved, left lobe , GS 3/3:6. 
9/24/07   (Open) Retropubic Radical Prostatectomy performed 
9/26/07   Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07  ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08  Caverject started/stopped, aching.  2/24/08 .5ml Bimix started-success
3/24/08   ED- 6 mts.-Viagra, pump, no response- Bimix continues
Post-surgery PSA's:  3 mt:0, 6 mt:0,


fatcat
Regular Member


Date Joined Jan 2008
Total Posts : 31
   Posted 4/25/2008 6:21 AM (GMT -7)   
 

BamaCoast, that would be Dewayne, he's from Mobile. He was first rate, when they rolled me in I asked to pat the machine, let it know I was a friend. They all got a good laugh. He kept my wife and sister-in-law fully informed as to what was going on. I see Dr. Tully the week after you. I'm in the Panhandle of Florida; we leave around 4 am, go to Birmingham, then head home. Did it by motorcycle for my first appointment with Dr.Tully, wife and I drove up and some friends, she has her own motorcycle. Left at 4 am, 26 degrees out, he thought we were certifiable. I told him having prostate cancer does that to men. Keep the Faith


PSA 4.8

Biopsy Sept 07 half of one needle out of 13 Positive

Second PSA 3.4

DaVinci Mar 4 2008, Dr. Tully, St. Vincent’s Hospital, Birmingham AL, great Hospital and Staff

Path Report Gleason 3+3=6

 T2c, would have been T1c but one lobe 55% involved with benign fatty tumor

  Prostate grew from 28 grams to 32 grams due to Fatty Tumor growing.

2 nodes on lymphatic system did have 2 benign growths

Margins clear

Prostrate confined

2 pads in a 24 hour period

Mr. Happy gets happier everyday, still not firm enough,

 But that gets better everyday

5mg Cialis everyday

Outstanding Wife

Went back to light duty work, 3 days after Catheter removal

Awaiting first PSA, fingers, toes crossed.


BamaCoast
Regular Member


Date Joined Apr 2008
Total Posts : 39
   Posted 4/25/2008 10:33 AM (GMT -7)   
James, I live in Grand Bay which is on the MS/AL State line and I worked in Chickasaw. I really like living in Grand Bay. It makes it a 15 minute drive to Mobile and a 40 minute drive to Biloxi where will be gong tonight to see Blake Shelton in concert at the Imperial Palace.

Fatcat,

I guess you went to B'ham for the same reason I did and that was because of the vast experience and reputation of Dr Tullys group. I saw where they have the Di Vinci System in Pensacola. I liked the Dr here in Mobile but he had only performed 24 sugeries and that was not enough for me. They are getting experience quickly. My Urologist group here in mobile is doing 2 per day and Mobile Infirmary has purschased a second machine to try and keep up with the demand.
BamaCoast - Kenny & Renae
from the Gulf Coast of Alabama
Age 51
Di Vinci Robotic Surgery March 5th, 2008
by Dr. Scott Tully
PSA 3.5  Gleason 3+4= 7
Confined to Prostate
1st PSA will be May 9th
 

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