I continue to come back here again and again because of the comradship I feel with all who are dealing with PC. I also feel a little guilty to express anything positive going on because I read of those who are continuing to have extremely difficult times - my heart goes out!
However, that said I feel something of an obligation to provide a little update to help others along their journey. I am now almost 10 weeks out. I had my first revisit with Dr. Fagin in Austin. My first PSA post operation was a .04. I thank God. I will now be on the 6 month PSA testing.
As far as incontinence I continue to have some intermittent leaking, although it is gradually improving. I am using one pad during the day (with the exception of weekends working in the yard a lot - standing up and straining causes more leaking), and another pad at night (which is mostly dry). Interestingly, it seems if I concentrate on it I can keep it dry. It mostly occurs when I am caught off guard. I guess I am almost getting use to this being a way of life as it doesn't seem to be a big deal, or maybe I am just so thankful having the PC out of my body. I have almost stopped doing the kregel exercises (I do a little here and there if I think about it) - it seems to make little difference. I believe the dribbling is on the road to drying up and I have hope that will occur soon.
As far as ED, I am dead down south, but that is also a result of still being under the influence of a 4 month Lupron shot which still has some wearing off time - time will tell. For now I am content.
Looking back - the robotic surgery has not been a bad experience. Everyone facing choices must make up their own mind, and I cannot say there are bad choices. Thankfully, we have many blessings or ways to deal with the horrible effects of cancer. I told someone I have had bad colds that were more painful and debilitating than this has been so far - I would encourage anyone with this kind of surgery in front of them, and they have a competent surgeon, to be encouraged. It will pass very quickly, and the road to recovery is not that bad. I hope anyone reading this will be encouraged if they are looking ahead to surgery. God speed! RBinCountry (Jim)
Original data - pre-operation
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA .04