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livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 4/26/2008 5:08 PM (GMT -6)   
As i chat with many people and their caregivers about the struggles of cancer, it seems to me that there are times when we forget the emotions that the caregivers go thru. I would love to hear some thoughts and stories as to how the caregivers have impacted your life, and also I would like to hear from the caregivers how they deal with the emotions of cancer.
 
peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
 


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 4/26/2008 7:23 PM (GMT -6)   

Dale,

I will probably be in tears before I finish typing this, as my support system from diagnosis until now has been terrific...and there is no way that I deserve the love and comfort that I have received from so many people.

I am not the type of person who relies upon others for many things, so this was/is a new experience for me.  I am almost never sick...except for cancer and kidney problems...and am a very independent person in my day to day life.

First and foremost, my wife has been a saint.  Dealing with change of ANY kind is not her strength....and since we have no children or grandchildren, she has never had to do much home nursing in our 35 years of marriage.  It was a struggle for her, but she held up very well overall.  I kept a cell phone with me at all times after surgery and if I needed her, I called the home number rather than yelling if she was in a distant part of the house.  She was there....day after day....week after week....month after month.....and made my struggles with infection, inguinal hernia and all the "normal" problems manageable.

When I decided to have surgery, my sister and a lifelong male friend (since 4th grade, which means almost 50 years...lol) both insisted upon flying to Texas to be here for me and especially for my wife.  Both had to take 2 or 3 vacation days, plus incur the expense of flying across country.  My friend of almost 50 years spent the first night with me in the hospital, so that my wife could go home and get some much-needed sleep.  He kept after the staff to make sure any and every need was addressed and it really helped my wife....this during a week when he and his wife were moving into a new home in another state.  My sister spent hours with me at the hospital and gave my wife someone to talk with during the surgery itself.

In addition to my lifelong friend, I have several other buddies with whom I have close relationships...each with very different personalities...one is a worrier who I had to reassure occasionally....one is an optimist who made sure I kept a positive attitude and did not feel sorry for myself.....one is always super calm in the face of anything....and one is just a good ole boy (66 year old boy, that is...) who loves me and my wife as if we were his family.

It was great to be able to talk with them about what I was going through when I was researching, worrying, trying to decide which treatment and so on.  All of those buddies spent considerable time at the hospital during my two night stay.....one afternoon all 4 were there at the same time....and all of them made sure to call me several times a week and take me to lunch a few times during the first 3 or 4 weeks after surgery.  Even now, I talk openly with them about my ED therapy, incontinence status and PSA tests.  They are like brothers to me and I am very fortunate to have them as buddies.

It is difficult for me to express how wonderful the support was and continues to be, but I feel blessed by God to have family and friends who care enough to stick with me in these difficult times.

DanMan Bob



Danman Bob
Age 57
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14
Biopsy result - 9 of 12 sticks showed cancer
Despite high Gleason score, cancer was confined to the prostate
Possible post-surgery radiation therapy...decision likely in late April 2008, depending upon PSA at that time
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of March 2008)
Began using Viagra 3 times a week December 2007 to stimulate blood flow
Began using Osbon Erec-Aid Esteem manual pump for therapy mid-February 2008
Will probably begin using bimix injections in addition to Viagra and pump in May 2008

Post Edited (DanmanBob) : 4/26/2008 7:26:42 PM (GMT-6)


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 4/27/2008 7:20 PM (GMT -6)   
You are a great person Danman, I am proud of you and your support system. god has blessed you.

peace and love
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/27/2008 10:30 PM (GMT -6)   
Hi Dale,
I hope you had a great visit here in Vegas this weekend. I know that the weather was amazing. I had a great run to Zion National Park.

On the caregivers,
My wife has had an emotional ride as I have. But we are doing great. Her because she is an amazing lady who is the voice of reson when I need it. Me because of her. Blessed is a great analogy for the way I feel. I know it is true. The ladies here are amazing. Their husbands, uncles, fathers, brothers, are the lucky ones. I say prayer everyday and they are always included.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (1/08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
 
STAY POSITIVE!
 
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