New here - 2 weeks post-op radical prostatectomy

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anglophile
Regular Member


Date Joined Apr 2008
Total Posts : 82
   Posted 4/27/2008 9:19 AM (GMT -6)   
Hello to everyone. I am 59. I had my prostate removed by robotic radical prostatectomy on April 11. Was in hospital two days. Catheter removed 14 days later.

My doctor said my prostate was somewhat abnormally shaped and he had to cut into a larger portion of the bladder than he anticipated, so he had to do more reconstruction surgery to get it down to the right size to attach to the urethra. He left the catheter in an extra four days for additional healing.

I just finished my second night since catheter removal and was expecting the very worst: wet night clothes, wet bed sheets, even with a pad. I was pleasantly surprised to find I was holding in most of my urine but my bladder doesn't seem to hold much, so the first night I was up 3 times for the bathroom (about every two hours for the first four hours and then 3 1/2 hours the last time. I went through three pads first night.

Last night I was up 5 times (every 90 minutes) to empty my bladder. I was sound asleep and then woke up to a full bladder feeling. I noticed as long as I lay still, I had control of my bladder but once I started walking to the bathroom, I'd start to lose it. So I developed a routine of reaching down and squeezing the end percy and holding him until I got to the toilet, then I let 'er rip. Only two pads last night as I wasn't loosing as much walking to the the toilet.

I'm wondering if being able to mostly hold it while sleeping is a good sign or is pretty normal for immediately after catheter removal? I was expecting much worse. I had been practicing kegal exercises since well before the surgery and am already able to stop urine flow in mid-stream.

I'm due for my first post-op PSA check in four weeks.

For those who keep track of the medical end, I have the biopsy results on my prostate:.

Gleason Grade 6 (3+3)
Apex: neg
Base: positive (tumor present at right and left base)
Peripheral Margins: neg
Foci of tumor present on both sides of prostate glands.
Largest nodule on left: 1.7 CM in length. Largest nodule on right: 1.8 CM
Tumor involves 10% of tumor volume
No extra postatic extension seen
No tumor seen in right or left vas deferens
No tumor seen in right or left seminal vessels
Based on specimen this tumor corresponds to a AJCC/pTMN stage II

biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 4/27/2008 9:34 AM (GMT -6)   
Hey Anglophile,

Welcome to the forum and sorry you have to be here.

You will have all kinds of strange sensations while your insides are healing. Everything got messed up and it takes quite a while to get things back to "normal". Be patient with yourself and please stay with us. We can all get well together...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
"Patience is essential, attitude is everything."
 
 


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 4/27/2008 10:13 AM (GMT -6)   
HI. Glad you found this forum, but sorry you had to join. Urgency has always been my problem. Healing comes about in stages. First dry while sitting, next while sleeping and last for me was spurting when standing up, sneezing. lifting and turning and bending over was last for me. When I felt the need and headed for the bathroom it was hard for me to hold it until I was in position to go without wetting myself. I can't rememer who but there is a post about urgency that helped me a lot dealing with it. I wore a pad a lot longer that I should have because I was afraid of being wet in public. But I finally made it. Take care of yourself and let us know how your are on your journey with this.

Mika
age at dx 54 now 55
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
wear one for insurance now
ED still a problem
last PSA undetectable
 


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/27/2008 11:08 AM (GMT -6)   

Hi Anglophile,

I am 4 weeks post op DaVinci.  ED doing very well but continence seems slow but I believe it is on schedule.  I read a post here a few days ago that said average to being dry is 12 weeks if kegels before and after were done and 16 weeks if kegels not done.

I am up every 2-5 hours to urninate at night.  I retain well if I Sleep on my back. If I am on my side I have more leakage.  I can retain when I sit some but walking, bending and standing I still dont retain a drop. I am a little concerned that I dont hold any in those positions but I am trying to stay patient.

Welcome to this site you will find it very informative.

Frank


Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on bottom of prostate, 1 positve margin  going to meet with oncologist to discuss treatment options if any at this time.
 


KrisP
Regular Member


Date Joined Mar 2008
Total Posts : 162
   Posted 4/27/2008 11:49 AM (GMT -6)   
Hi Anglophile,
Good luck and best wishes. You are a little ahead of me in post surgery. I'll have the catheter remove on Tuesday 4/29 and I'm not sure what to expect. I'm hoping to drink less liquid for the first week after the catheter is removed and see how it goes. Not sure if this will help.
Keep the faith and hope you have a full recovery.
 
KrisP
Biopsy done 3/2008
Pathology report: Gleason 6 (3+3), involving left lobe
DRE=15gm with indurated left base and mid prostate
Cores positive: left base medial, left base lateral, left mid medial and left mid lateral (4 of 12)
Clinical stage t2b.
Prostate Carcinorna 185
Surgery on 4/21/2008 in Austin by Dr Randy Fagin.
Waiting for patholigist report for margin


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 4/27/2008 12:00 PM (GMT -6)   
welcome, sorry you came...lol   If you have ever had a bladder infection, you knwo how easily it si to trigger that gotta go urge.  You've been sliced and diced then shuffled back together, so it will take a while for the stitching to heal, the stimulaus to the same incisions stop and the feelings of urgency to reduce.  That's the way it was for me, at least.  I felt like I had a bladder infection the first month, from all the rawness and things needing to heal.

James C. 
 
Help support the forums so they can support you:  http://www.healingwell.com/donate 
 
Age 60 
4/19/07   PSA 7.6, referred to Urologist, recheck 6.7
7/11/07   Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07   Path report:  3 of 16 PCa, 5% involved, left lobe , GS 3/3:6. 
9/24/07   (Open) Retropubic Radical Prostatectomy performed 
9/26/07   Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07  ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08  Caverject started/stopped, aching.  2/24/08 .5ml Bimix started-success
3/24/08   ED- 6 mts.-Viagra, pump, no response- Bimix continues
Post-surgery PSA's:  3 mt:0, 6 mt:0,


CT
Regular Member


Date Joined Apr 2008
Total Posts : 25
   Posted 4/27/2008 12:06 PM (GMT -6)   

Anglophile, I had Da Vinci RP on 4/8 and have similar experiences to yours.  My catheter was removed on 4/18.  I was expecting much worse, as well.  However, I'm fairly dry at night and can stop urine flow in mid stream.  I'm going through several pads in the day, but I've also been very active around the house and in my garage.  I'm going back to work tomorrow for 1/2 days.

I'm hoping we are both a little ahead of the average.  Keep up the Kegels.


Age: 50 (March 2008)

DX 1/08 @ 49 yo

7/05: PSA 2.6 DRE Normal

9/07: PSA 3.4 DRE Normal

1/08: Biopsy 1 of 12 cores with 10% involvement, T1c, Gleason 3+3=6

4/08/08:  Da Vinci Rad. prostectomy @ Banner Thunderbird, 5 hrs.

                Advised both nerve bundles spared

                Post Op Pathology Report: Tumor confined w/in prostate, pT2c, NX, DX 

    Gleason is 3+3=6, bilateral with 15% total involvement near apex

                Margins and Seminal Vesicles negative!!!

4/18/08:  Staples and Catheter removed. Drip, drip, drip, drip...


anglophile
Regular Member


Date Joined Apr 2008
Total Posts : 82
   Posted 4/27/2008 12:11 PM (GMT -6)   
Thanks, everyone. I came here because my wife said I was giving here "too much information" haha, although she has been very supportive.

Funniest moment so far: about 4 days after surgery I was trying to insert suppository and I have hemorrhoids. All of a sudden, bright, red blood spurted from my backside and I thought something was terribly wrong. I screamed for my wife and she came in the bathroom and saw all the blood and so she was forced to check my backside, which was a first for both of us. Turns out, the suppository broke a swollen hemorrhoid (I didn't realize they were filled with blood) and that's all it was. The bleeding stopped almost immediately.

KrisP, it sounds counterintuitive but you need to drink a lot of liquids once the catheter is out to get your system back on track (so my doctor says -- others here may have better insight). I had an enlarged prostate for about 15 years prior and could never fully empty my bladder all that time. Now, I'm passing all sorts of "junk" from my bladder (cleaning it out). Luckily, the only time I notice blood tinges in my urine is when I have a bowel movement.

I went "out" for the first time this morning. Went to the grocery store. Hit the john first thing before leaving home and again when I got there and quickly did some shopping. It may be awhile before I can get over this "everyone is looking at me" syndrome while wearing pads.

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 4/27/2008 4:12 PM (GMT -6)   
Anglophile, The "Leakers" here know how you feel about the "everyone is looking at me". My biggest fear at first was buying pads or "someone" hearing something when I am in a stall changing pads. Now I could care less. take care of yourself and help your body heal.
KW
    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.  Will probably try Collagen injections one more time around the first of May.  If no improvement after that will start looking for a AUS Doctor.
    April 18, 2008 - Collagen injection.
 
     


anglophile
Regular Member


Date Joined Apr 2008
Total Posts : 82
   Posted 4/27/2008 5:50 PM (GMT -6)   
Kw,

I couldn't do the buying pads thing in the grocery store. I bought mine online from a medical supply place. I got two cases of them. Problem solved.
The ox is slow but the Earth is patient.


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 4/27/2008 6:01 PM (GMT -6)   
Anglophile, you must be related to my wife....lol.  She is AMAZED that I buy pads, discuss my incontinence and ED with my buddies, and discuss with the young lady pharmacist why I am buying needles, etc.  To me, I am just taking care of a medical problem.....nothing to be ashamed of...but to her, it is "too much information"....lol.

Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


anglophile
Regular Member


Date Joined Apr 2008
Total Posts : 82
   Posted 4/27/2008 6:33 PM (GMT -6)   
What a great group!

As for going back to work. I work on the Internet so I took the first week off after surgery and planned to work from home for awhile... the first week of recovery was a breeze and I thought, "What the heck," so I changed from the planned 1/2 days to full days the second week after surgery. Big mistake. The second week was worse than the first.

I did 8 hours the first day. Six hours the second. Couldn't work the third. And then 4-hour days for the fourth and fifth -- all from home. (Fifth day of work was when I had my catheter removed). I'm going to try 8-hour days next week from home. My employer has agreed to let me work from home for a month post-op -- mostly until I get my bladder under some semblence of control.

P.S. about changing pads in the bathroom stall. I'm still trying to figure out how to get the used pad to the trash in bathrooms without anyone noticing.
The ox is slow but the Earth is patient.


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/28/2008 8:09 AM (GMT -6)   

Hi anglophile,

I was like you in recovery.  I worked till they took my cell phone away and literaly walked in to the surgical room.  I worked at home day 3-6. Cath out and then went in to work part time at one week.  I did not work at all at the end of that week first week. The next week which was week two I started fulltime.  Did about 7 hours and was shot at home at night. Week three still very tired at end of day. Week four better but still tired.

We are all different.  I basically have a desk job but because I am a back up to the back up in the Fire Business I actually had to go on three emergency runs at week two. I was very very careful and got lots of help other wise I would have been in trouble.  My point is be prepared to say "NO" or be prepared to work harder than you expected for if it can happen be assured it will.

All the best and get well.

Frank

 


Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on bottom of prostate, 1 positve margin  going to meet with oncologist to discuss treatment options if any at this time.
 


GBINAB
Regular Member


Date Joined Apr 2008
Total Posts : 206
   Posted 4/28/2008 8:31 AM (GMT -6)   
Hi anglophile and welcome to the OTHER SIDE as we cal it here ...
You are doing great actually, as long as you are not leaking and get wet uncontroled, you are doing great.
Most of the continent problem occurs when you ca not control your bladder but it is quite natural to feel the need to go to the bathroom in mid nights and wake up DRY.
in my case i was dry one day after Cath removal but even now if i have lots of liquid or water melon before heading to bed , i still wake up wit an urge to go to the bathroom 3 times a night , sometimes NONE.... so it is all a matter of time and getting used to the NEW YOU inside .. (by the way if you wonder i am already 10 months post op ...so take your time , the body will heal itself)

Keep us posted ..
GB :-)
April 2007 PSA 8.4 for last 6 months biopsy shows PC 3+3=6
June 13 2007 Went for open RP with Dr. Christopher Johnson at St. Francis Hospital NY. with nerve sparing of both sides.
4 days later home for Fathers Day, and Catheter.
Removal of catheter 10 days later , incontinence next to nothing, no pads used from the get go.
1 month PSA next to not detected

ED is a longer battle:1 month out start using occasionally Cialis and 50MG Viagra to promote blood flow with no response for 6 months.
3 months and 6 months PSA not detected
ED 6 months mark starting with VED therapy and being more aggressive with meds , in addition taking Folgard supplement daily.
April 2008 10 month out and start seeing some serious improvements with ED while using Meds and VED , can achieve erections, Mid nights erections almost on a regular basis , and uncontrolled 90 % erections spontaneously.
1 year visit on June 13 2008 woohoooo!!!


anglophile
Regular Member


Date Joined Apr 2008
Total Posts : 82
   Posted 4/28/2008 10:32 AM (GMT -6)   
Once again thanks for the warm welcome and insight.

And a big THANK YOU to Frank1205 for the mention of sleeping on his back. I hadn't considered that because I thought if I did gravity would take the piddle AWAY from the pad and onto me, if I'm making sense. I thought I'd leak on myself and not the pad, that's why I was sleeping on my side.

So... Frank... I took your suggestion last night and here are the results (three days after catheter removal):

Went to bed at 9 p.m.

First time up: 11 p.m. No major leakage

Second time up: 3 a.m! No major leakage

1 pad all night and I kept it on for several hours after I got up at 4:45 a.m. to work from home

I still had to squeeze my tip when I woke up and walked to the bathroom. I think the reason I was using so many pads was the leakage when I walked to the toilet... squeezing the tip before getting up kept that from happening.

I'm starting to get the feel of kegal's... and fell like I go to sleep with those muscles "locked"

I have had very little leakage after getting up today.
The ox is slow but the Earth is patient.

Post Edited (anglophile) : 4/28/2008 9:42:52 AM (GMT-6)


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 4/28/2008 1:43 PM (GMT -6)   
Hi Anglophile
Bob is a year and a half post surgery now . . . .your night experiences with the bathroom mirror his initally as well. Just a positive note to tell you that all that eventually passed and he now goes to bed and doesn't get up to the bathroom until morning, no matter what. . . . a huge change for sure. It happens gradually, but as long as you see progress you know all is well. The squeezing the tip on your way to the bathroom had me laughing as that's exactly what his method was to hold it in back then.

Good luck to you and just don't overdo.

;o) Linda & Bob
Bob (62) - Laproscopic Prostate Removal Sept 27, 2006 at age 60.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
 
Pathology - cancer completely contained, even a second more aggressive, previously undetected cancer)
PSA UNDETECTABLE Nov 2006, Feb, May, Oct2007.  ONE YEAR!!!! WHOOO HOOOO! 

Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


anglophile
Regular Member


Date Joined Apr 2008
Total Posts : 82
   Posted 4/28/2008 1:50 PM (GMT -6)   
Linda,

I only have to do that at night... cause I think I'm relaxed and half asleep. During the day, I don't have that problem (which my co-workers will probably appreciate). From reading all the worse-case scenarios in books, I was expecting to wake up in a puddle for the first few weeks.
The ox is slow but the Earth is patient.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 4/28/2008 2:22 PM (GMT -6)   

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Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/28/2008 2:32 PM (GMT -6)   

Hi Anglophile,

I am glad that sleeping on your back helped a little.  You mention pads at night.  I was tutored here to were pads during the day but at night, yes I know,  wear an adult diaper.  It wont help the need to get up at night but it does give you extra confidence that you will not leak.  I have a new mattress so I bought a good water proof cover but as a little extra I place a couple of hospital pads under my side of the bed.  I am 4 weeks post op and have not had an appreciable accident but if I do its ok. I just will change the pads and wash the top sheet.

Also a little tip.  Here is how I change my pads.  I sit on the toilet, open the new pad, take the paper off the adehsive strip, take the old pad and place the paper back on the adhesive strip  of the old pad, I then fold the used pad and place back in the bag.  Makes a nice unnoticable package for the garbage.  Cuts down on odor.  Oh,  at home I also use scented garbage bags,  helps with odor control

All the best keep and keep in touch

Frank

 


Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on bottom of prostate, 1 positve margin  going to meet with oncologist to discuss treatment options if any at this time.
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 4/28/2008 10:22 PM (GMT -6)   

     Anglophile,  here is another "routine" for changing pads.  I take the pad out of my underwear with a "loud" rip where the adheasive is pulling loose.  I then roll the pad into itself from the bottom up.  Then I roll it a few times in tissue around the pad, then end over end.  If it is not soaked i compress it down as much as I can.  If it is full it is kinda hard to compress it without squeezin the "juice" out of it.  Then I take the new backing strip and outer covering from the new pad and wrap it around the old pad.  Then I wrap it a few more times with tissue.  I just palm it and hold it agianst my leg till I get to the trash can.  Just to give you an idea.  I work in a large maintenance facility.  The big bathrooms have about 8 - 10 stalls and urinals.  At times there is no "seating" avalible.  I have not done it but there have been times I wanted to "launch" a three pointer toward the trash can just to hear the bang when it went in.

    At home we bought some "pet" poop bags to keep the old pads in to cut down on the odor. 

    Good Luck,  KW


    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 15, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


Larryfromwyoming
New Member


Date Joined Apr 2008
Total Posts : 1
   Posted 4/28/2008 11:03 PM (GMT -6)   
Had radical prostatectomy 3-31-08. Four days in hospital, 2 weeks catheter. I have found that walking helps to strengthen bladder control. I try to walk 2-3 miles a day. It's hard as you have a feeling you have to pee every 15 min. of so. Down to one pad per day. Looking forward to full recovery. I will be off 6 weeks as I am a heavy equipment operator.

-------------------------------------------------
Found cancer with a free psa test and biopsy.
psa 1.5 free psa 11
1 of 12 positive before biopsy. T1c Two lobes after biopsy. Gleason 3+3
no treatment for ED yet,

anglophile
Regular Member


Date Joined Apr 2008
Total Posts : 82
   Posted 4/29/2008 12:12 PM (GMT -6)   
Welcome Larry.

A heavy equipment operation, huh? I bet your doctor tells you that you can lift more than 1,500 pounds during recovery.

I had a even better night last night than the night before... I went to bed at 8 p.m. (I get up at 4:45 a.m.) and slept until midnight (four hours). Bathroom break and back to sleep until 3 a.m. bathroom break. 1 pad all night and not a lot of leakage.

The weird thing was when I woke up at midnight, it was exactly midnight and when I woke up at 3 a.m. it was exactly 3 a.m.

I'll have try walking more. Thanks for the tip. tongue
The ox is slow but the Earth is patient.


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/30/2008 7:57 AM (GMT -6)   
Larry,
 
Thanks for the advice on walking.  I was walking alot right after the Cath came out and was doing better with continence.  Now that I am back to work I thought the activity would balance but my continence is worse especaily at the end of the day.
 
I have to find a way to work, walk and live at the same time. 
 
Frank

Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on bottom of prostate, 1 positve margin  going to meet with oncologist to discuss treatment options if any at this time.
 


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 4/30/2008 8:57 AM (GMT -6)   

Hey, Frank.

I was in the Chicago burbs yesterday, but on a tight schedule.

Maybe on one of my trips there or through there I can buy you a coke or something.

Take care. DanMan


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 4/30/2008 9:08 AM (GMT -6)   
Hi Danman,

I would love that. My email is listed. Let me know the details. I just need a days notice. I am in Glendale Heights for work and Roselle evenings and weekends.

Frank
Diagnosed 01-08-08 @ 53 years old 
DRE normal - High PSA for 5 or more years
2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
Current PSA 6 - Bone and Ct scans negative
clinicalg Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,5 hour surgery , 3 hour recovery
Unexpected Cardiac issues appear and disappear?
Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage - Erectile funtion back on line 9 days 
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on bottom of prostate, 1 positve margin  going to meet with oncologist to discuss treatment options if any at this time.
 

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