Artificial Sphincter

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zebbiedog
New Member


Date Joined Apr 2008
Total Posts : 4
   Posted 4/27/2008 9:11 AM (GMT -6)   
Hi I'm new to this forum.
 
A family memeber has been incontinent since surgery for prostate cancer in July 2006.  Following a recent scan he has seen a urologist who has recommened he requires an artificial urinary sphincter.
 
This has come as a bit of a shock as he was under the impression there may be other non-surgical options to try.  However the urologist feels this is the best option and is suggesting surgery at the end of May.
 
I pretty much understand what is involved in the surgery and I've researched to find stats on success rates etc but I don't think anyone can make an informed decision based on stats.  I always find it much better to get real experiences from real people (good or bad) as these are the people who really know what it's like to live with this condition.
 
Without me searching through hundreds of previous posts I thought it would be easier to just ask the question.......has anyone undergone this surgery and what was the outcome?
 
Also if anyone else has been recommended this option but has decided against it then what were your reasons and how do you manage your incontinence without the artificial sphincter?
 
 
 

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 4/27/2008 3:53 PM (GMT -6)   
Zeb, I had RRP in Oct of 06 and I have been almost fully incontinent since. HW will not let us give out our personal information here but "click" on KW and it should open my profile where you will see my personal e-mail. Feel free to drop me a line and if you wish I will call on the phone and talk about my treatments and outcomes. You may want to go back and read KW's Journey to see what all I have done and been through. Please do not get scared if you do. I am also looking at the AUS later this summer. I am also talking to a couple of guys that are in the process of gettting theirs done. They may be willing to talk too.
Good Luck to your relative!

KW
    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 15, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 4/28/2008 7:18 PM (GMT -6)   

Zeb, I will soon (less than two weeks) have an AUS installed.  I will chronicle my experience of surgery, healing, and function.  I hope I can be a help to you and others who are cosidering this surgery.  But first, I go through the experience... then perhaps I can help.

Gene214

 


Radical open removal 2-14-07
Removal of stricture 6-07
Bio-feedback (4) 8-7
Scheduled for AUS & implant 5-07


zebbiedog
New Member


Date Joined Apr 2008
Total Posts : 4
   Posted 4/29/2008 10:58 AM (GMT -6)   
Hi
 
Thanks for the replies.  KW I have already read your journey, wow a long journey that has been.  You sound a very strong and determined person.
 
I truely am not scared by any of it as my 6 year old daughter has been incontinent since the day she was born due to a rare pelvic tumour.  I am an expert in urology issues, lol.  She has just undergone surgery for bladder augmentation and a Mitrofanoff which for those who don't know is a urinary continent diversion.
 
However, for my uncle suffering from incontinence this is a whole new experience and one he is struggling to deal with.  He's not so open about these issues so I suggested I did a little research on his behalf which his wife is more than happy for me to do.
 
The AUS is a new thing for me.  I did a little research a couple of years ago when something similar was mentioned for my daughter but unfortunately we never got to that stage so my knowledge is limited.
 
As my family don't live too close by it is hard for me to know exactly what information they have been given.  However, I do know the mention of surgery fills them with dred.  I don't think they were expecting it just yet.  They seem to think there may be other ways of managing the incontinence eg) sheaths etc.  He has been doing pelvic floor exercises but to no avail.
 
If you don't mind me asking, what other non-surgical methods have people tried.  Have they been successful?  I'm guessing for those considering AUS they haven't been.  And do you wish you'd opted for the AUS sooner?  The urologist is suggesting surgery at the end of May which is very soon to come to terms with things, so the more infomration I can get the better.
 
Sorry for so many questions, and thank you again for those who have posted a reply.
 
Zeb
 
PS we're in the UK if that makes a difference!
 

Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 4/29/2008 2:16 PM (GMT -6)   
Zeb,
 
I probably am not one to share about the various non-surgical methods of regaining continence.  They are far and few between, if you get my drift.  Pelvic floor execises is by far the most common.  They, evidently, do not work on everyone, including me.  I have by now been under the care of three separate uros.  I moved from my original surgery location, located another one here where I presently live.  Neither of these doctors have a lot of faith in Kegals, though they had me on a regiment of them.  When I did not improve, I was sent to bio-feedback, which still did not help.  Now I am with a very experienced surgeon who has done over 200 AUS implants and many penile implants.  He is also skeptical about  bio-feedback, but of course AUS, etc. is now his bread and butter.  So his opinion may be subjective.
 
A friend of mine from another city has been having electric shock along with his bio-feed back treatment.  That's something I am not familiar with.  He is in the midst of these things now and seem to think they may be helping him a little.  Time will tell. It seems that there may be someone on the forum who has had something like that too.
 
As for the AUS, there once was a guy with the HW name of Biff who had both an artificial sphincter and a penile implant.  Biff, are you still hanging around?  As best as I remember, he was very pleased with both devices.  Since I will soon have these devices, I am trusting for a very satisfactory outcome.  I am dreading the surgery but hoping and praying for a good outcome.  Regardless of the outcome, I plan to share as much about this surgery as possible so that more guys in our situation can know more... in order to make clearer choices.  My surgery will be next week. 
 
Gene214
Radical open removal 2-14-07
Removal of stricture 6-07
Bio-feedback (4) 8-7
Scheduled for AUS & implant 5-07


jerryv
Regular Member


Date Joined Jan 2008
Total Posts : 52
   Posted 4/29/2008 5:20 PM (GMT -6)   

Hi

I am Jerryv and i have gone thru the ringer with AUS.  I think it was because i did not know what questions to ask and was not told by my urologist just how to handle this.  I was never shown a unit and how it work and so this led to two operations and both times the unit had to be taken out because of infection.  I finally became so dicouraged i went to Mayo clinic in Rochester Mn.  When i went there i was hurting and the day i arrived ,after their checking me out, i had an emergency opertion at 9PM and got to my room at mid nite.  It is so important to get someone who is experienced and knows what he is doing..My doctor at Mayo explained everythig to me and answered all my questions.  He does about 100 of these every 14 months.  I am going to Mayo on May  6 to be checked out to see if everything is OK.  If all is well i will have wait six months before a new one can be installed.

What should you ask your doctor

How many operations like this have you performed

How many were successful and how many failures

Make sure you see a unit and find out thoroughly how it works

The doctor at Mayo says this is a wonderful thing and there should be no reason for it not to work

The pain from the operation is not intense and it takes about 4 to 5 weeks to heal

If everything works out i will have a unit installed in six months.

I've been cut open four times in the last six months but i am sure i am in the right place now.

Good luck to all of you and make sure you get the right answers to you question.  It's imperative that you do

Blessings

Jerryv


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 4/29/2008 9:15 PM (GMT -6)   
Jerryv, Who are you seeing at Mayo? They are one of 4 facilities on my short list for AUS Doctors. Will be interested in how things fo for you. Please let us know how you do.
KW
    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 15, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 4/29/2008 9:19 PM (GMT -6)   
Zeb, Forgot to answer you. You have seen all I have done. I do not regret doing any of it. I am willing to do anything and everything I can before I go the AUS route at 45 years old. We all have to make our own decisions and deal with the outcomes!

Holler at me if you have any other questions.

KW
    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 15, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


zebbiedog
New Member


Date Joined Apr 2008
Total Posts : 4
   Posted 4/30/2008 4:45 AM (GMT -6)   
Thanks guys for your replies.  I'm going to pass them on to my uncle then see if he has any questions he'd like me to ask.
 
Gene it will be very interesting to find out how your surgery goes.  If my family does decide to go ahead with the AUS then it is scheduled for the end of May which may be a few weeks too soon to know your outcome but please keep me posted.  It's great to know there are other people out there going throguh the same thing.  I wish you all luck.
 
Zeb

DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 4/30/2008 8:10 AM (GMT -6)   

Gene, I have no personal experience with a penile implant, but a friend of mine had one 6 years ago and loves it.  He said that his penis was sore for several weeks, but once he got past that discomfort, things went very well.  He explained to me how it works and it sounds pretty straightforward.

He had a replacement done less than a year ago...the first one wore out....from excessive use or so he says....lol.  Seriously, they do sometimes wear out and have to be replaced.  In his case, this happened roughly 5 years from original implant date.

DanMan Bob


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 4/30/2008 8:33 AM (GMT -6)   

DanMan Bob,

Can you tell me how old your friend is who had the penile implant and subsequent replacement?  I found an extensive blog on the subject with postings by men who had them.  Generally, the men who had them were pleased, but there is always the exception.  There are some some explicit pictures (anonymous) of before and after posted there.  It's pretty gross and nearly grossed me out. It's certainly not a site nor sight for a casual or curious looker.  But I am set on "go" for both implants... after lots and lots of reading. 

So Bob, how old is your friend?  

Gene 214


Radical open removal 2-14-07
Removal of stricture 6-07
Bio-feedback (4) 08-07
Scheduled for AUS & implant 05-08
63 years old at time of nerve-sparing surgery


jerryv
Regular Member


Date Joined Jan 2008
Total Posts : 52
   Posted 4/30/2008 12:54 PM (GMT -6)   

Hi KW

I am seeing

Dr. Daniel S. Elliott

200 First Street SW

Rochester,Mn 53905

507-284-2511

If you call him he will surely return your call--Hope all goes well

Jerryv


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 4/30/2008 7:04 PM (GMT -6)   

Gene,

I believe my friend is 66, so he would have been around 60 when he had the original implant done, and 65 when he had the replacement (which he said was less invasive) last fall.

He is in generally good health and said the implants allow him to have sex for as long as he has the desire....extremely strong erections or so he tells me.

DanMan


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 4/30/2008 8:26 PM (GMT -6)   
Jerry, Dr. Elliott is the one at Mayo I am looking at as one of my Top 4. Would you mind talking on the phone about your experience with the whole process? My personal e-mail is in my profile.

Thanks, KW
    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 15, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


Biff
New Member


Date Joined Apr 2006
Total Posts : 13
   Posted 5/1/2008 5:03 PM (GMT -6)   
Hello everybody, this is Biff and yes I am still around. I haven't been on the forum in some time, as I have been trying to see how everything was going to turn out for me. Those of you who do not know me, I was diagnosed with prostate cancer back in 2006. I had my surgery in 2006 and have been screwed up since. My incontinence was terrible and I have done more keegles than Kelloggs has cornflakes. I had the artificial sphincter 800, I think it is called, with the double cuffs, as I am 54 years young with an active life. (use to be active life) LOL!! Dr. Pearson activated the sphincter and the penile pump, yes I had that done at the same time, in December of last year. My incontinence is better than it was, but I am still leaking just enough that I still have to wear a male guard. Let me say that I am not leaking very much, but I feel that everything I have been thru, I shouldn't have to wear a pad at all!!  That is my goal. I don't like wearing underwear, yea I love just hanging loose, and flopping around. It's is a man thing, you know? I feel like I'm wearing a jockey strap when I'm wearing underwear! Oh well, we got through that. Now for the penile implant!! I would like to hear from anyone who has one. I don't think they are all they are cracked up to be. When he activated it, I pumped it up till it hurt, and I looked like I had shrunk up to about half of what I had!! I told my Dr. that I was bigger when I was 13 years old!! LOL!! He kind of snickered but when he looked at my face he could tell that I was not joking and was serious as hell!!  He said to work with it and to come back to see him in a month. I did, (worked with it) for the next month, and stayed in the bathroom more than I ever have just pumping away!! I have managed to go from 9 pumps to 13 (painful!!!) pumps!!  But I still am not what I use to be!!  Mind me, I am not or have I ever been a John Holmes (deep throat), but was very happy with what I had!! To catch everybody up, I did use a penile pump ( one of those things that has a plastic tube that you stick your little stump in and pump the suction to it hoping to get an erection).
Yea, I have one of those and used it every day to keep the blood flow to my penis (Pee-wee) , as my wife and I call it now. So the Dr. cannot say that it is because it has not been stretched lately. I used that thing every day and probably stretched  it to lengths I never have been!!! I just pray it will get better. If only I could get to the size it was at that last stretching!!?? No kidding everyone, I try to laugh at myself, as it keeps me going, so just try to bear with me. For you guys who are contemplating on an artificial sphincter, I would do that one again, because I believe it will get better. There is a little valve, about the size of my little finger, in my scrotum sack, that I have to squeeze to urinate. I have it down pat to the sense that I have been at a public restroom and used the stand-up urinal and no-one knew that I had the prosthesis. It is very easy to use. You can even pump it twice to increase the stream if you have to go bad, and yes I still have that feeling that I need to go. They said in the begining that you have to remember to empty your bladder every two hours or so, but, I feel just the way I did before. I have that gotta go feeling and go to the bathroom and squeeze that button and OOOHHH, what a relief it issss!!!!  So do not hesitate if the Dr. says that is what you need. I have the two valves in my sack
and it does feel a little crowded down there at times. It just does not feel natural to me to feel the things. On my right is the penile pump and the left is the sphincter. Take care everyone and let me hear from anyone who needs advise on this. Bluebird, thanks for the help in the past and hope everyone is well. Gotta go!!1 Now let me see, is it the left or the right???????????????????
 
Biff

Biff
New Member


Date Joined Apr 2006
Total Posts : 13
   Posted 5/1/2008 5:27 PM (GMT -6)   

I had to just get on here again. This is Biff and gene I hope everything goes well with you. I had my surgery last November and had everything activated last december. Let me tell you, after the surgery, I did hurt like hell. It was hard for me to get in and out of bed. The Dr. implanted the two devices through my scrotum. he made an incision at the base of my shaft and in the scrotum. he took the cathedar out the next day and sent me home on the third day. I was up and walking on that third day, very slowly I might say. It isn't anything you can't handle. Just remember the final outcome, which is where you want to be. I would like to talk to someone else who has had the penile pump. I just am not that happy with mine so far. maybe I will be after a year or so. My wife and I have only had sex about three times since activation and I have experienced some pain each time. It just seems that it is sore when I pump it up. I guess I am looking for big results that are just not happening right now. No kidding, I use to have 7 and 3/4 inches before and now can barely get 6 out of it. OK everybody, stop laughing, but step into my shoes for a while. I get tired of hearing, you are alive!!, be happy!!!, so what??!!!!. I want at least what I had. The Dr. said, no pain, no gain, so I guess I will have pain for a while. I have been pumping it every day till it hurts. I don't know what my future holds for me but it has to get better. Just hang in there and let me know how your surgery goes. My e-mail is yjones1@hughes.net   Hughes has been working trying to upgrade our e-mail service about the last 5 days and I have not been able to receive or send mail, but it should be working in a few more days. Take care.

Biff


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 5/1/2008 9:10 PM (GMT -6)   
Biff. I'm curious about your level of leaking before you had the AUS done. Thanks for all your information.

KW
    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 15, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 5/1/2008 9:30 PM (GMT -6)   

Biff,

Thanks for your comments.  I knew you had been here and had the implants, and I really wanted to hear from you.  I will try to email you, and hope it gets through, but really would like to talk on the phone.  I am scheduled next week for both the AUS and the penile implant.  I cannot place my email address on this forum since I am a public figure.  I hope the administration or moderators can figure out some way to put us two together because I sure am feeling desperate after reading your comments.  If you get my email, please respond as soon as possible.

Gene


Radical open removal 2-14-07
Removal of stricture 6-07
Bio-feedback (4) 08-07
Scheduled for AUS & implant 05-08
63 years old at time of nerve-sparing surgery


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 5/2/2008 4:13 PM (GMT -6)   

Bob, Jerryv, KW, Biff, and others very interested in AUS/penile implant:

Last night before I went to bed I read Biff's take on the AUS/Penile implant.  Since I am scheduled for AUS/implant next week, Biff's straight-forward words grabbed my attention. Bob, you grabbed it too!  I immediately began praying for insight as to whether I should cancel or go ahead.  I emailed Biff & gave my cell number, since he provided his email address in his post. Although it took a while to go to sleep, I did and slept good.

Today I went to the hospital to pre-register.  In the next consultation room was a guy who had also had prostate surgery and I overheard him say, "I sure wish they had put my prostate back in after they took the cancer out."  I should have laughed with him, but I was not quite in the laughing mood.  It was all too close to "home."

I chatted with the pre-registering nurse to see if very many get the AUS and pennile implant in this hospital.  She named my doctor and another one as doing lots of them.  Since my doctor's office is less than a block away from the hospital, I high-tailed it over there and asked to see the doctor's head nurse. He was gone to lunch but receptionist said she'd have him call me, which he did before I even got out of the building.  I just leveled with him and told him I was terribly frightened and told him about HW posts.  Said he: "There is a certain amount of risk."  I know.  I know.  But... "You should know that your doctor does about seven AUS's a week and about one penile implant a week.  Out of all he has done, he now has had problems with two.  He is a great surgeon."  Now my hope is not in a man, good doctor or not, but... 

...Somehow, that's all I needed to hear today to give me the green light to go on with my surgery.  Then there was this call from Biff. In spite of Biff's expressions of disappointment last night, he was wonderfully encouraging, sharing how bit by bit things were getting better for him.  He does not come on to HW often, he said, but for some reason felt he should last night.  I really believe the Lord sent him to us...at least to me... So you guys have become a source of good information for those at this site who are struggling with incontinence and impotence.  We need more info from patients who have been there and done that.  Most surgeons have not been the patient.  They know how to do the job but don't know how it feels to be the patient.  But I really do appreciate their skill.

Cowboy Bob, I too know the Lord and am looking to Him.  I know my postings sometime do not reflect that fact and instead give off the sense of panic, but "I know Whom I have believed, and am persuaded that He is able to keep that which I committed to Him against that day." (2 Tim 1:12)

So to you all, thank you all at HW for your patience and prayers, especially next week when I go under.

Gene214


Radical open removal 2-14-07
Removal of stricture 6-07
Bio-feedback (4) 08-07
Scheduled for AUS & implant 05-08
63 years old at time of nerve-sparing surgery


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 5/2/2008 8:40 PM (GMT -6)   

tongue   Hi ~ Zebbiedog  &  Uncle,

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

Knowledge gives us POWER….  POWER takes away the fear.

 

~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~

 

 Click  on  link  below for important information that will help you ~ help us!!

 

  >>  Welcome New Members ~ to HealingWell

 

The information (link) listed above is to help you get around the forum! 

 

v       This is a journey best traveled with friends. 

Welcome ~ New Friend from all the members here... on HealingWell.com

 

v      IdahoSurvivor ~  Moderator for Prostate Cancer Forum

http://farm2.static.flickr.com/1160/1313099593_9f819e3ff8.jpg

 

v      TC-LasVegas ~  Moderator for Prostate Cancer Forum

 

v      bluebird ~  Moderator for Prostate Cancer Forum

http://i206.photobucket.com/albums/bb179/mamabluebird1955/mamabluebirdWelcome.jpg


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 5/2/2008 8:42 PM (GMT -6)   

Hey ~ Zebbiedog  &  Uncle,

 

We know ~ we can “all” make “Your Journey” smoother just by being here for you! 

This is truly a great forum!!! ~ You have joined!  You are now part our forum family ~ a group of wonderful individuals who are so willing to share...  It helps “all of us” ~ to help you ~ if we know where your loved one is …on their path. So ~ Please stay with us and take our hand when you need it!  Keep posting.... OKAY!!   

 

Pull from “all of us”… things that will help to make your uncle’s journey smoother.  And continue to share in order to help others who will follow “all of us”…  I'm thrilled to see that your thread brought a special friend back to us!  Hi ~ Biff.... :)

 

Our thoughts and prayers will be with all of you as you continue your research.

Keeping you close in thoughts and prayers.

In Friendship,  Lee & Buddy

 

“God Bless You”

It's a little prayer  ~  "God Bless You" ...but it means so much each day,

It means may angels guard you and guide you on your  way. 


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

4th PSA 2-13-2008 (23 months) Less than 0.1 Non-Detectable :)


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 5/2/2008 9:17 PM (GMT -6)   
Zebbiedog, I'm want to say I'm sorry if you feel we have taken over your posting. As you can see, the few of us that suffer this "life changing" complication of our PCa treatments are really in need of information and support from those who truly understand what we go through. I really hope our postings here help you inform your relative and give him hope that in the end there will be a fix to this problem. I know I am ready for that fix. But it will have to come in time.

Good Luck,
KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 15, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


jackcc
Regular Member


Date Joined May 2006
Total Posts : 80
   Posted 5/3/2008 8:33 AM (GMT -6)   
Biff

I just want to add a big thank you for a most interesting and informative post.
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