davinci surgery scheduled suggestions please!

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soxfans4life
Regular Member


Date Joined Apr 2008
Total Posts : 63
   Posted 4/27/2008 10:57 AM (GMT -7)   
:-)  wow hard to believe that I'm catching a little smile here and there even with the presurgical nerves! bone and cat scan were negative and we met with the surgeon a few days after getting the results. our confidence in him is great and he seemed positive of a really sucessful outcome. that being said we are anxious all the time and can't wait for may 27 to really breathe again. everyone here is so wonderfully knowledgable and comforting  I can't imagine doing this without you all. Soo, one of my MANY questions is: what can we do to prepare in this month ahead?  I do the posting right now but share everything and Rod says a big thank you! Our thoughts are with all in this forum, I hope to be helpful someday as a wife ,a nurse ,and a couple that has made it through! Annie

GBINAB
Regular Member


Date Joined Apr 2008
Total Posts : 203
   Posted 4/27/2008 11:10 AM (GMT -7)   
Hi Annie ,
I am sure you are anxious for D day and there is really not much to do before surgery but stay healthy, exercise a bit to stay in shape for a faster and better recovery , and do your Kegel daily to develop better control over urinary afterwards.

Seems like you in good hands , widen your knowledge base by research and reading up a lot, that way you are inform of whats ahead and what to expect after.
Da Vinci known to be the least invasive route to surgery and recovery should be faster and easier especially since the cancer is organ contained and will have a nerve sparing procedure you 2 should do fine !!

As you mentioned , indeed you are among the lucky ones to find this board and learn lots from others experience , i wish i have known about it before my open RP back in June 2007

Hope all goes well
Good Luck !!!

Keep us posted

GB :-)
April 2007 PSA 8.4 for last 6 months biopsy shows PC 3+3=6
June 13 2007 Went for open RP with Dr. Christopher Johnson at St. Francis Hospital NY. with nerve sparing of both sides.
4 days later home for Fathers Day, and Catheter.
Removal of catheter 10 days later , incontinence next to nothing, no pads used from the get go.
1 month PSA next to not detected

ED is a longer battle:1 month out start using occasionally Cialis and 50MG Viagra to promote blood flow with no response for 6 months.
3 months and 6 months PSA not detected
ED 6 months mark starting with VED therapy and being more aggressive with meds , in addition taking Folgard supplement daily.
April 2008 10 month out and start seeing some serious improvements with ED while using Meds and VED , can achieve erections, Mid nights erections almost on a regular basis , and uncontrolled 90 % erections spontaneously.
1 year visit on June 13 2008 woohoooo!!!


KrisP
Regular Member


Date Joined Mar 2008
Total Posts : 162
   Posted 4/27/2008 11:13 AM (GMT -7)   
Hi Annie,
Just try to be positive. That is a theraphy by itself. I spent most of my time prior to sugery reading as many posts on this forum. It will help also if you add a signature to your profile. It will give members an idea of your status.
Good luck
KrisP
Biopsy done 3/2008
Pathology report: Gleason 6 (3+3), involving left lobe
DRE=15gm with indurated left base and mid prostate
Cores positive: left base medial, left base lateral, left mid medial and left mid lateral (4 of 12)
Clinical stage t2b.
Prostate Carcinorna 185
Surgery on 4/21/2008 in Austin by Dr Randy Fagin.
Waiting for patholigist report for margin


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 4/27/2008 12:51 PM (GMT -7)   
Hang in there Annie,

Being a nurse, you know that the only things they let you take in the OR is your naked body and a great attitude. Be a cheerleader for Rod's surgical team. We are all waiting here for his arrival on the "other side".

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 1/17/08 0.00. 
Next PSA test on 7/17/08
"Patience is essential, attitude is everything."
 
 


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 4/27/2008 2:21 PM (GMT -7)   

Greetings, Annie.  My wife is also a nurse and she has been a great caregiver both before and after the surgery.  This has been a team effort all along the way - she has been at my side from diagnosis to surgery to recovery.  I feel confident she has been the primary reason we haven't had to deal much with the side effects that normally come with this disease.  I kind of like her after 35 years together!

We received the diagnosis on Christmas Eve last year.  From that time until surgery on February 4 my wife and I were pretty much together 24/7.  She traveled with me (as she often does), we took long walks together and generally got mentally prepared for the surgery.  I think it is important to be in as good a condition both physically and mentally as you can be. You can't do too much physically in only a month but every little bit helps.  As a Christian, one of the most important things we did was enlist prayer support for my condition.  When the day of surgery rolled around we had thousands of people all around the world praying for not only us but also our medical providers.  That gave us great confidence as we entered surgery and then recovery. 

You will both do great - you have found a good place with many, many good people who have experienced the same things you are going through.  Don't hesitate to let us know any way we can help. We will be praying for you in the days ahead.  David


Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
Great wife and family who take very good care of me


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 4/27/2008 2:43 PM (GMT -7)   
Just a reminder. The only thing "less invasive" about the DaVinci is how they get inside you. You will still have a major surgery with alot of work being done. Take your time and let your body heal. Do not rush back to things. I think having the "big scar" from my open RRP was a good reminder to take it easy.
Wishing you the best.
KW
    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 15, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
 
     


phillysub
Regular Member


Date Joined Nov 2007
Total Posts : 64
   Posted 4/27/2008 2:51 PM (GMT -7)   

My suggestion: try not to dwell about it and have a positve outlook it. Hey! he's gonna kick cancer's butt! 

He'll have plenty to think about and will probably have plenty of questions during his post-op.

Good luck and have good thoughts.

Phillysub


Phillysub.

Age: 51
Last PSA before diagnosis: 2.9

Diagnosed: Oct 2007

Gleason: 3+3=6

RALP surgery: Jan 23, 2008 (Dr Costas Lallas @ Thomas Jefferson Hospital in Philadelphia)

1st Post-op appt: Feb 1, 2008 (negative margins, cancer contained within the capsule)


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 4/27/2008 3:18 PM (GMT -7)   
Hi Anne,

This news is a great relief. I don't think you are ever the same after awaiting the results of a bone scan. That is good news about results.

I remember asking the same questions about preparation myself and just scanned through ├Âur journey from last year ("Hello from Creed 49 yrs at Dx") to see if there was anything in it. There is some, although it is lengthy and rambled from my part. Anyway, I do say throughout, that Bluebird's tips in HER and BUDDY'S journey prepared us so well, and I recall we followed every single pre and post tip bluebird provided. Have a look through her journey too - it is insightful.

We also started a thread called "bladder spasm question" (under incontinence threads). You may want to browse through that as it has some great post op information which I did not know at all, and again a variety of experiences. As it turned out, CJ in the first 12 hrs post op, had 2 bladder spasms, but knew what they were and what to do, thanks to these responses.

We found everyone is different, so reading the journeys of a few people helped us prepare, even though we had open surgery - preparation is the same. I took lists etc as we came across things on the forum. We bought a second hand recliner chair, and I basically set a home rehab program beforehand which made ME feel better!! (and hubby as well post op as it turned out). It was very detailed but had a full plan for rest, activity and healing! And to my suprise hubby followed it. So all in all we were well over-prepared. Therefore feel free to browse through our past posts if it helps. (But I warn you they are rambling in part!). I found keeping compulsively busy kept my mind off it, but this helped too.

Good luck and so glad the news was good. Lana
Creed_three (Lana & CJ)
 
Husband CJ aged 50 yrs (49 years at diagnosis and surgery)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing, on 17th April 2007 (Sydney, Australia).
Gleeson 3 + 4 = 7.  Cancer confined. 1st PSA 0.01 (June 07) 2nd PSA 0.02 (Oct 07) undetectable. 3rd PSA 0.02 (April 08) undetectable.

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